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Sialic acid storage disorders
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Vacuum pump newbie
Hi all,Have suffered from errectile dysfunction for years due to blood pressure problems but, having had a double heart bypass and angioplasty in last few years, it's gotten worse. Used to be cialis was OK but no its not really working so have been prescribed a vacuum pump to use. Have just started using
Hi all,Have suffered from errectile dysfunction for years due to blood pressure problems but, having had a double heart bypass and angioplasty in last few years, it's gotten worse. Used to be cialis was OK but no its not really working so have been prescribed a vacuum pump to use. Have just started using
Hidden
in
Erectile Dysfunction Support
10 months ago
Waiting for laperoscopy
Hi everyone :) I am just wondering if anyone has had similar experiences. I had heavy bleeding and pain during my periods, pain and bleeding during and after sex, painful bowel movements during my period. At one time I went travelling and asked if I could take my pill packets together and was told
Hi everyone :) I am just wondering if anyone has had similar experiences. I had heavy bleeding and pain during my periods, pain and bleeding during and after sex, painful bowel movements during my period. At one time I went travelling and asked if I could take my pill packets together and was told
LUCY001
in
Endometriosis UK
8 months ago
Amino acid complex, is it worth trying?
I have been seeing more and more about amino acids and the possible benefits for those with hypothyroidism. Their importance for conversion, also their benefits regarding liver health. I'm also type2 diabetic, it seems there may be benefits there too. Have any of you looked into this? If so are there
I have been seeing more and more about amino acids and the possible benefits for those with hypothyroidism. Their importance for conversion, also their benefits regarding liver health. I'm also type2 diabetic, it seems there may be benefits there too. Have any of you looked into this? If so are there
Jones1969
in
Thyroid UK
2 months ago
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Severe RLS Where do I go now?
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
e365
in
Restless Legs Syndrome
8 months ago
Repost results
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
5 months ago
CPAP first time user - your experience please, 4G etc
I picked up a Resmed CPAP machine with a nasal only mask yesterday from our local Guildford (Surrey) NHS hospital to hopefully remove my mild sleep apnoea and stop me waking around 3 times every night. Any comments on member's experience would be appreciated. In particular before I start, do members
I picked up a Resmed CPAP machine with a nasal only mask yesterday from our local Guildford (Surrey) NHS hospital to hopefully remove my mild sleep apnoea and stop me waking around 3 times every night. Any comments on member's experience would be appreciated. In particular before I start, do members
secondtry
in
Atrial Fibrillation Support
5 months ago
adalimumab
I’ve been taking this Biologic for about six months now alongside high dose methotrexate injections which I have had for a couple of years. Since starting Biologic I have a sticky blocked nose and frequently blood in tissues when I blow my nose. My husband says I’m snoring really loudly and he has
I’ve been taking this Biologic for about six months now alongside high dose methotrexate injections which I have had for a couple of years. Since starting Biologic I have a sticky blocked nose and frequently blood in tissues when I blow my nose. My husband says I’m snoring really loudly and he has
Amb1xkr
in
NRAS
5 months ago
Not sure if I missed my progynova…advice please!
Hello I’m wondering if anyone can help?! I’m currently taking 2 x progynova per day and can’t remember if I’ve taken my evening dose. I likely did as I remember my alarm going off but can’t actually remember taking them. I can’t count back as not sure when I started taking this pack. I’m 7 weeks pregnant
Hello I’m wondering if anyone can help?! I’m currently taking 2 x progynova per day and can’t remember if I’ve taken my evening dose. I likely did as I remember my alarm going off but can’t actually remember taking them. I can’t count back as not sure when I started taking this pack. I’m 7 weeks pregnant
HokyKoky
in
Fertility Network UK
5 months ago
PMR Update
Good morning everyone - sunny chilly day here in Devon - uplifting after all the grey and rain! So it’s now 7 weeks since I started Pred at 15mg and after return from golf holiday in Spain which went very well and was in no pain at all - so after 3 weeks cut to 12.5 which also settled well and body
Good morning everyone - sunny chilly day here in Devon - uplifting after all the grey and rain! So it’s now 7 weeks since I started Pred at 15mg and after return from golf holiday in Spain which went very well and was in no pain at all - so after 3 weeks cut to 12.5 which also settled well and body
Sungolfer
in
PMRGCAuk
8 months ago
how common is tumor lysis syndrome after infusions?
Im reading about cll infusion treatment. A side effect is tumor lysis syndrome. I'm wondering how common that is
Im reading about cll infusion treatment. A side effect is tumor lysis syndrome. I'm wondering how common that is
elm1
in
CLL Support
5 months ago
Sunshiney days.
Should vit D supplements be adjusted when we are out and about in sunshine? Are amino acids worth taking as supplements? All stuff I come across in random readings. Thanks.
Should vit D supplements be adjusted when we are out and about in sunshine? Are amino acids worth taking as supplements? All stuff I come across in random readings. Thanks.
Calceolaria
in
Thyroid UK
2 months ago
Coverage of RLS?
The title is not quite right, but I should have asked this long ago (for general benefit all the time). The title for this group is "Restless legs syndrome" What other ailments are covered in this header? Sleep apnoea PLMD (think that is RLS?) REM sleep disorder? it may be helpful to have "
The title is not quite right, but I should have asked this long ago (for general benefit all the time). The title for this group is "Restless legs syndrome" What other ailments are covered in this header? Sleep apnoea PLMD (think that is RLS?) REM sleep disorder? it may be helpful to have "
Spurdog1
in
Restless Legs Syndrome
5 months ago
iron lab results 10 weeks post iron infusion
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
SleeplessinNC
in
Restless Legs Syndrome
5 months ago
first lap - nothing found. Please help.
Hi, I’m new here (or I’ve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
Hi, I’m new here (or I’ve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
GraceElli
in
Endometriosis UK
8 months ago
Is anyone here familiar with metabolomic analysis?
I've heard about metabolomics only recently while listening to a Dr Berg podcast. In short, if I understood correctly, it differs from regular blood tests by looking for the concentration of things (like amino acids, minerals, polyphenol, etc...) within your cells rather than the concentration in your
I've heard about metabolomics only recently while listening to a Dr Berg podcast. In short, if I understood correctly, it differs from regular blood tests by looking for the concentration of things (like amino acids, minerals, polyphenol, etc...) within your cells rather than the concentration in your
Mascouche
in
Advanced Prostate Cancer
3 months ago
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017 https://sci-hub.st/10.1016/j.biopha.2017.04.065 A woman on FB Parkinson's Alternative Healing posted that wasp venom has made most of her symptoms go away. I am still trying to find out if she stopped her meds.
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017 https://sci-hub.st/10.1016/j.biopha.2017.04.065 A woman on FB Parkinson's Alternative Healing posted that wasp venom has made most of her symptoms go away. I am still trying to find out if she stopped her meds.
Bolt_Upright
in
Cure Parkinson's
4 months ago
Suggestions on Supplements
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
JayPwP
in
Cure Parkinson's
3 months ago
diagnosed with PMR
quick introduction , am early 50’s contacted GP after 9months or so of increasing all over pain and stiffness especially in the morning , extreme fatigue, I asked if I could consider HRT as thought maybe it could be menopause symptoms , had been taking naproxen for menstrual pain and migraines for about
quick introduction , am early 50’s contacted GP after 9months or so of increasing all over pain and stiffness especially in the morning , extreme fatigue, I asked if I could consider HRT as thought maybe it could be menopause symptoms , had been taking naproxen for menstrual pain and migraines for about
Emilydarby
in
PMRGCAuk
8 months ago
GCA. LVV
Hi Everyone,This is my first post,apologies if it’s a little long.I am a 74 year old male in UK.My journey started in March 2020 when my GP diagnosed GGA with PMR.I was started on 40mg prednisolone immediately and put on fast track to see a rheumatologist at the local hospital.I was seen the following
Hi Everyone,This is my first post,apologies if it’s a little long.I am a 74 year old male in UK.My journey started in March 2020 when my GP diagnosed GGA with PMR.I was started on 40mg prednisolone immediately and put on fast track to see a rheumatologist at the local hospital.I was seen the following
Oxfordboy2
in
PMRGCAuk
8 months ago
Beta 2 Microglobulin
Hi. I'm considering getting a Beta 2 Microglobulin blood test done. I have CLL and on W&W. Has anyone else had this done?
Hi. I'm considering getting a Beta 2 Microglobulin blood test done. I have CLL and on W&W. Has anyone else had this done?
ColSte
in
CLL Support
5 months ago
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