Search
Search
About
Log in
Join
Experiences with
Sialic acid storage disorders
Posts
Communities
15,948 public posts
Filter results
Update 7.7
It has been a while since my last update. Overall, things are going well. I feel better than ever, other than my knees. Time for another hyaluronic acid injection to lubricate the knees. I am going to try Durolane this time. It is a single injection instead of a series of three. In other news
It has been a while since my last update. Overall, things are going well. I feel better than ever, other than my knees. Time for another hyaluronic acid injection to lubricate the knees. I am going to try Durolane this time. It is a single injection instead of a series of three. In other news
hunter5582
in
MPN Voice
8 months ago
Gastric side effect of PMR medications
Hello, I am relatively newly diagnosed with PMR, in July 2023, and just starting my tapering journey. I started on 20mg Prednisolone (now just reached 10mg), plus I take 15mg Lansoprazole and once a week 70mg Alendronic Acid. I started well, feeling great with the loss of my joint pain, but after
Hello, I am relatively newly diagnosed with PMR, in July 2023, and just starting my tapering journey. I started on 20mg Prednisolone (now just reached 10mg), plus I take 15mg Lansoprazole and once a week 70mg Alendronic Acid. I started well, feeling great with the loss of my joint pain, but after
Suobe
in
PMRGCAuk
8 months ago
Beta 2 Microglobulin
Hi. I'm considering getting a Beta 2 Microglobulin blood test done. I have CLL and on W&W. Has anyone else had this done?
Hi. I'm considering getting a Beta 2 Microglobulin blood test done. I have CLL and on W&W. Has anyone else had this done?
ColSte
in
CLL Support
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hallucination
I was feeling very well. no anxiety and depression from last 8 weeks. I am not using medicines anymore. but suddenly I felt hallucination this evening. I never experienced this before even when I was extem depressed. but I don't know why I felt this today. now I am very very upset and nervous.
I was feeling very well. no anxiety and depression from last 8 weeks. I am not using medicines anymore. but suddenly I felt hallucination this evening. I never experienced this before even when I was extem depressed. but I don't know why I felt this today. now I am very very upset and nervous.
Asif_Melton
in
Anxiety and Depression Support
7 days ago
Am I wrong?,
My doctor is trying to make out I'm crazy. Please can people clarify if my understanding is correct or am I completely wrong?So August 2023 I pay for an active b12 test, cones back borderline low at 48. I supplemented with sublingual cyanocobalamin for 4 months. Then waited 3 months before having another
My doctor is trying to make out I'm crazy. Please can people clarify if my understanding is correct or am I completely wrong?So August 2023 I pay for an active b12 test, cones back borderline low at 48. I supplemented with sublingual cyanocobalamin for 4 months. Then waited 3 months before having another
Popcorn12345
in
Pernicious Anaemia Society
8 days ago
Sever Depression, Anxiety, intrusive thoughts and bipolar disorder
hi! I have been depressed for what feels like my whole life. Recently, I thought it might be from gender dysphoria but I have been diagnosed with major depressive disorder and bipolar one. I have been told that I rapidly cycle through manic and depressive states. I just feel extremely uncomfortable being
hi! I have been depressed for what feels like my whole life. Recently, I thought it might be from gender dysphoria but I have been diagnosed with major depressive disorder and bipolar one. I have been told that I rapidly cycle through manic and depressive states. I just feel extremely uncomfortable being
DCHAM
in
Anxiety and Depression Support
11 days ago
strontium
I’ve recently finished 2 year course of Teriparatide and have a hospital appointment shortly to decide next treatment. I have discussed possibility of Stontium with doctor. Does anyone have experience of taking this? Are some kinds of Strontium better than others and will I have a choice as to what
I’ve recently finished 2 year course of Teriparatide and have a hospital appointment shortly to decide next treatment. I have discussed possibility of Stontium with doctor. Does anyone have experience of taking this? Are some kinds of Strontium better than others and will I have a choice as to what
Snowybear
in
Bone Health and Osteoporosis UK
8 months ago
How big are AA tablets
I am considering trying weekly alendronic acid tablets but am worried they will be too big for me to swallow since I have dysphagia (difficulty swallowing). Please, what shape and how long/wide are the tablets people take? Note that there are good reasons why I should not have infusions. Meds involving
I am considering trying weekly alendronic acid tablets but am worried they will be too big for me to swallow since I have dysphagia (difficulty swallowing). Please, what shape and how long/wide are the tablets people take? Note that there are good reasons why I should not have infusions. Meds involving
Jubux
in
Bone Health and Osteoporosis UK
8 months ago
I have discovered that music helps my anxiety. Share what helps with your anxiety and depression
I listen to reggae mostly and it helps with my depression and anxiety. Try some soothing music. The music helps with racing thoughts because my focus is on the beat and the words. Chose upbeat rhythms upbeat words
I listen to reggae mostly and it helps with my depression and anxiety. Try some soothing music. The music helps with racing thoughts because my focus is on the beat and the words. Chose upbeat rhythms upbeat words
Koko7777
in
Anxiety and Depression Support
16 days ago
Could I have bipolar or something similar?
I have had severe depression for close to 10 years but the past few years I’ll get days to weeks (more and more frequently) where I’ll have a bunch of energy, do a lot of thing, sleep a lot less, do impulsive things (like this past time I bought pet birds…), talk a lot, and feel really confident and
I have had severe depression for close to 10 years but the past few years I’ll get days to weeks (more and more frequently) where I’ll have a bunch of energy, do a lot of thing, sleep a lot less, do impulsive things (like this past time I bought pet birds…), talk a lot, and feel really confident and
redmama2
in
Anxiety and Depression Support
17 days ago
Coming soon to the UK: Thyroid Artery Goiter Embolization (TAE)
Today I spoke to an RFA consultant. He told me that Thyroid Artery Goiter Embolization (TAE) is a new procedure he hopes will be available on the NHS within the next couple of years. Apparently TAE can be used to treat more complex and larger goitres and help further reduce the need for thyroidectomies
Today I spoke to an RFA consultant. He told me that Thyroid Artery Goiter Embolization (TAE) is a new procedure he hopes will be available on the NHS within the next couple of years. Apparently TAE can be used to treat more complex and larger goitres and help further reduce the need for thyroidectomies
nssimpson
in
Thyroid UK
17 days ago
The key is to be mindful of whom you ask support
In this world, so often we meet people who choose to be right, instead to be compassionate. I do not judge them, because, at times, I myself might have wanted to offer my advice so much that forgot to connect on a deeper level, and forgot just to be there for the one who needs it. I just rolled out
In this world, so often we meet people who choose to be right, instead to be compassionate. I do not judge them, because, at times, I myself might have wanted to offer my advice so much that forgot to connect on a deeper level, and forgot just to be there for the one who needs it. I just rolled out
GreyWolf001
in
Anxiety and Depression Support
25 days ago
Gabapentin to Pramipexole for RLS/PLMD.
Has anyone changed from Gabapentin to Pramipexole for RLS/PLMD. What your experience of doing this? Many thanks
Has anyone changed from Gabapentin to Pramipexole for RLS/PLMD. What your experience of doing this? Many thanks
Arrendene1
in
Restless Legs Syndrome
5 months ago
Side effectd
HiI have had 2 instances of ppp now. The first time Quetiapine worked to resolve the symptoms. This second time though it wasn't effective, so I have been switched to ablify/aripiprazole. I am just wondering how long the side effects lasted for anyone else who took this medication? I have been on
HiI have had 2 instances of ppp now. The first time Quetiapine worked to resolve the symptoms. This second time though it wasn't effective, so I have been switched to ablify/aripiprazole. I am just wondering how long the side effects lasted for anyone else who took this medication? I have been on
Zebrawhite
in
Action on Postpartum Psychosis
28 days ago
Experience with meds?
Finally confirmed that I have BPD and when speaking with my psych she said we could try to see how I respond to risperidone. I told her I didn't wanna take prozac cause it dulls all the colors in the world. Anyone have any experience taking risperidone? Any side effects? I know they mentioned weight
Finally confirmed that I have BPD and when speaking with my psych she said we could try to see how I respond to risperidone. I told her I didn't wanna take prozac cause it dulls all the colors in the world. Anyone have any experience taking risperidone? Any side effects? I know they mentioned weight
2Scared
in
Anxiety and Depression Support
29 days ago
The Effect of Intranasal Oxytocin in Patients With Functional Motor Symptoms: A Preliminary Open-Label Case Series
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
Bolt_Upright
in
Functional Neurological Disorder - FND Hope
5 months ago
relapsing after 10 years?
am I relapsing? I’ve been on aripiprazole for 10 years nearly. I was taken off it 5 months ago as it was causing drug induced Parkinson’s. I. The last handful of months, I believe weird things have been happening at night. Doors opening, hearing people walking around my bedroom at night, seeing insects
am I relapsing? I’ve been on aripiprazole for 10 years nearly. I was taken off it 5 months ago as it was causing drug induced Parkinson’s. I. The last handful of months, I believe weird things have been happening at night. Doors opening, hearing people walking around my bedroom at night, seeing insects
Hayleynevin
in
Action on Postpartum Psychosis
1 month ago
History terrorizing me
I am having lucid dreams that usually include my ex. I really loved him and I found out he was cheating. It broke my heart. I sold my home and moved away. Gave up my dogs. While I was out of state my mental health declined significantly. Hallucinations delusions depression. I blame him but I know it
I am having lucid dreams that usually include my ex. I really loved him and I found out he was cheating. It broke my heart. I sold my home and moved away. Gave up my dogs. While I was out of state my mental health declined significantly. Hallucinations delusions depression. I blame him but I know it
April2024
in
Anxiety and Depression Support
1 month ago
Guilt over choosing to have another baby
Hi everyone 👋 It's been awhile since I last posted. I found the forum after I experienced psychosis following stopping breastfeeding my eldest daughter in 2021. Quite soon after leaving general psychiatric hospital I fell pregnant again which was a shock at the time but turned out to be the biggest
Hi everyone 👋 It's been awhile since I last posted. I found the forum after I experienced psychosis following stopping breastfeeding my eldest daughter in 2021. Quite soon after leaving general psychiatric hospital I fell pregnant again which was a shock at the time but turned out to be the biggest
Emilyr123
in
Action on Postpartum Psychosis
1 month ago
Anyone with alendronate side effects?
I was just diagnosed with osteoporosis in July of this year. My physician immediately started me on alendronate. Approximately two months into treatment I began having severe shoulder joint and muscle pain that is making it too painful to do most exercise I had begun. My physician thinks it is unrelated
I was just diagnosed with osteoporosis in July of this year. My physician immediately started me on alendronate. Approximately two months into treatment I began having severe shoulder joint and muscle pain that is making it too painful to do most exercise I had begun. My physician thinks it is unrelated
ohsuzyq
in
Osteoporosis Support
8 months ago
1
...
14
15
16
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Anxiety and Depression Support
3602 results
Anxiety Support
2543 results
Thyroid UK
784 results
View top 10 communities
Sort by
Most Relevant
Newest