Search
Search
About
Log in
Join
Experiences with
Sialic acid storage disorders
Posts
Communities
15,948 public posts
Filter results
Suboxone works!
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
Happygrandmother
in
Restless Legs Syndrome
4 months ago
Dexa Scan Results
Hi, can anyone translate these test results for me please? My GP has put me on Alendronic Acid one per week, 70mg and l am taking Vitamin K2, Vitamin D but unfortunately l cannot seem to tolerate the calcium supplements that we have tried, they give me terrible stomach problems even in small doses.
Hi, can anyone translate these test results for me please? My GP has put me on Alendronic Acid one per week, 70mg and l am taking Vitamin K2, Vitamin D but unfortunately l cannot seem to tolerate the calcium supplements that we have tried, they give me terrible stomach problems even in small doses.
Legsandmore
in
PMRGCAuk
7 months ago
does anyone have experience of Benzatropine?
My doctor prescribed Benzatropine for dystonia, he didn’t have time to explain at my visiting. Also I know what he prescribed until I see it at CVS pharmacy. I googled it, seems I should stop taking other med include Amantadine and Rasagiline . Does anyone have knowledge and experience of Benzatropine
My doctor prescribed Benzatropine for dystonia, he didn’t have time to explain at my visiting. Also I know what he prescribed until I see it at CVS pharmacy. I googled it, seems I should stop taking other med include Amantadine and Rasagiline . Does anyone have knowledge and experience of Benzatropine
Grandsonlover
in
Cure Parkinson's
4 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
side effects Alendronic acid
I have had really bad neck pain for about 3 months, it is a lot worse in the night. My rheum consultant thinks it is osteoarthritis, but I haven’t had an X-ray or anything to confirm this. I was diagnosed with osteoporosis in August and started Alendronic acid in September. I was wondering if the neck
I have had really bad neck pain for about 3 months, it is a lot worse in the night. My rheum consultant thinks it is osteoarthritis, but I haven’t had an X-ray or anything to confirm this. I was diagnosed with osteoporosis in August and started Alendronic acid in September. I was wondering if the neck
Olliechops
in
NRAS
8 months ago
I think I have endometriosis
Hi,I am a 25 year-old teacher and I think I may have endometriosis. I thought I would post my story on here in the hope that somebody may have had something similar and maybe let me know how the rest of their journey to diagnosis went. I started my periods at the age of 10, they were always heavy
Hi,I am a 25 year-old teacher and I think I may have endometriosis. I thought I would post my story on here in the hope that somebody may have had something similar and maybe let me know how the rest of their journey to diagnosis went. I started my periods at the age of 10, they were always heavy
PinkButterfly25
in
Endometriosis UK
8 months ago
Farmed salmon and PLMD
Hi everyone I would again be grateful for your help on this wonderful site I have severe RLS and severe PLMD. I take 1500 mgs gaberpentin and 750 micros clonazepam every night .Normally i wake up twice a night,,twitching away, go for a 30 minutes walk, and, if i am lucky, I can get back to
Hi everyone I would again be grateful for your help on this wonderful site I have severe RLS and severe PLMD. I take 1500 mgs gaberpentin and 750 micros clonazepam every night .Normally i wake up twice a night,,twitching away, go for a 30 minutes walk, and, if i am lucky, I can get back to
thorp
in
Restless Legs Syndrome
4 months ago
Duloxetine to Mirtazapine
I been on Gabapentin from 23.02.24 and was previously on Pramipexole but had compulsive eating so asked to change. I stopped Pramipexole straight away and moved to Gabapentin and went from 300mg three times a day to 900mg three times a day and not really helped me. Spoke to Dr today who’s decided I should
I been on Gabapentin from 23.02.24 and was previously on Pramipexole but had compulsive eating so asked to change. I stopped Pramipexole straight away and moved to Gabapentin and went from 300mg three times a day to 900mg three times a day and not really helped me. Spoke to Dr today who’s decided I should
Puggy1910
in
Restless Legs Syndrome
4 months ago
Smart Protein and amino acids
I have had an under active thyroid for many years, I’ve recently learns about T4 and T3 tests. All mine have come back as “normal”. I have read about amino acids which can help you, I eat healthy, exercise 3 times a week and I’m no spring chicken. I never loose weight and when attending medial appointments
I have had an under active thyroid for many years, I’ve recently learns about T4 and T3 tests. All mine have come back as “normal”. I have read about amino acids which can help you, I eat healthy, exercise 3 times a week and I’m no spring chicken. I never loose weight and when attending medial appointments
Spud68
in
Thyroid UK
1 month ago
PMR/Prednisolone and dental implants
Hi, I’m enquiring as to whether anyone else has experienced issues with their dental implants since being diagnosed with PMR and taking Prednisolone. I’ve been having trouble with one of my dental implants for a couple of weeks and on seeing the dentist today have been told that the implant has loosened
Hi, I’m enquiring as to whether anyone else has experienced issues with their dental implants since being diagnosed with PMR and taking Prednisolone. I’ve been having trouble with one of my dental implants for a couple of weeks and on seeing the dentist today have been told that the implant has loosened
Tiggy70
in
PMRGCAuk
8 months ago
was it the wrong time to take myself off ibandronic acid?
Hello folks, feeling a bit out of my depths at the moment. I am now 5 years on prednisolone and, after discovering this wonderful forum was on a very slow tapering, got to 6.5 mgs but a bad cold followed by stressful events and I’m back to 7.5 mgs. My husband has recently been diagnosed with non-hodgkins
Hello folks, feeling a bit out of my depths at the moment. I am now 5 years on prednisolone and, after discovering this wonderful forum was on a very slow tapering, got to 6.5 mgs but a bad cold followed by stressful events and I’m back to 7.5 mgs. My husband has recently been diagnosed with non-hodgkins
allofaquandry
in
PMRGCAuk
8 months ago
First Post from New Member
Hi everyone!, My name is Lisa. I can't believe there's a group of people who I can reach out to that know the hell I live with. I was diagnosed about RLS & PLMD about 25 years ago. I was 32. I've had 3 sleep studies done. I guess as with everyone, it was a bunch of trials and errors with
Hi everyone!, My name is Lisa. I can't believe there's a group of people who I can reach out to that know the hell I live with. I was diagnosed about RLS & PLMD about 25 years ago. I was 32. I've had 3 sleep studies done. I guess as with everyone, it was a bunch of trials and errors with
Leeserann
in
Restless Legs Syndrome
4 months ago
How much more can I take ?
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Huntingleroy
in
Restless Legs Syndrome
4 months ago
Zolendroic acid after discovering compression fractures. Osteoporosis.
This is an update and a thank you really, as well as info for others. Last time I posted I was puzzled about back pain. Later after a scan revealed compression fractures I realised that the digging in the garden in July resulting in back pain which I thought was an old war wound slipped disc, was probably
This is an update and a thank you really, as well as info for others. Last time I posted I was puzzled about back pain. Later after a scan revealed compression fractures I realised that the digging in the garden in July resulting in back pain which I thought was an old war wound slipped disc, was probably
Ebiker
in
PMRGCAuk
8 months ago
Not sure whether I should be pleased or disappointed. Sleep study results
PLMD (Passive limb movement disorder) = a little twitchy in the legs at night, but nothing significant (Personal thought, I think of cats twitching during sleep – nothing to worry about?)-negligible RLS (restless Leg Syndrome) = Willis Eckborn Syndrome =EARLS (European alliance RLS) -(personal note
PLMD (Passive limb movement disorder) = a little twitchy in the legs at night, but nothing significant (Personal thought, I think of cats twitching during sleep – nothing to worry about?)-negligible RLS (restless Leg Syndrome) = Willis Eckborn Syndrome =EARLS (European alliance RLS) -(personal note
Spurdog1
in
Restless Legs Syndrome
4 months ago
Methionine restricted diet for recurring PSA and positive PMSA pet scan w/ 1 bone met
quick to the point. PSMA pet showed 1 L2 small met and some lymph activity. My PSA went from 2.01 to 2.9 in one month. after doing some research on diets and supplements . I found that the keto diet is extremely high in the amino acid methionine and I made it worse trying to reduce my blood pressure
quick to the point. PSMA pet showed 1 L2 small met and some lymph activity. My PSA went from 2.01 to 2.9 in one month. after doing some research on diets and supplements . I found that the keto diet is extremely high in the amino acid methionine and I made it worse trying to reduce my blood pressure
Eieio
in
Advanced Prostate Cancer
1 month ago
Has anyone done an Organic Acid Test(OAT)?
I’ve been doing a lot of testing lately to determine what I should be eating or supplementing. The OAT will test methylation, b vitamins, oxalates, Mitochondria, amino acids and more. It also tests some neurotransmitters related to dopamine but understanding how I can use that information is above my
I’ve been doing a lot of testing lately to determine what I should be eating or supplementing. The OAT will test methylation, b vitamins, oxalates, Mitochondria, amino acids and more. It also tests some neurotransmitters related to dopamine but understanding how I can use that information is above my
Debgiffen
in
Cure Parkinson's
1 month ago
When will it end?
So I’ve lost 3st with slimming world and nine months later can’t stop bingeing and purging. 70 years old and clinging to behaviour I learned at 17. At this precise moment just want to die. What is wrong with me?!!
So I’ve lost 3st with slimming world and nine months later can’t stop bingeing and purging. 70 years old and clinging to behaviour I learned at 17. At this precise moment just want to die. What is wrong with me?!!
Jacky63
in
Talk ED (eating disorders)
4 months ago
Vacuum pump newbie
Hi all,Have suffered from errectile dysfunction for years due to blood pressure problems but, having had a double heart bypass and angioplasty in last few years, it's gotten worse. Used to be cialis was OK but no its not really working so have been prescribed a vacuum pump to use. Have just started using
Hi all,Have suffered from errectile dysfunction for years due to blood pressure problems but, having had a double heart bypass and angioplasty in last few years, it's gotten worse. Used to be cialis was OK but no its not really working so have been prescribed a vacuum pump to use. Have just started using
Hidden
in
Erectile Dysfunction Support
10 months ago
Do B Complex vitamins upset the stomach? Advice please
Morning all. Can I please ask for ways to take B complex that won't upset stomach. I bought Igennus Super B complex and took 1 tablet about 30 mins after eating dinner. The next day I had an upset stomach and felt more exhausted that usual the way you can get with a stomach upset. I haven't taken any
Morning all. Can I please ask for ways to take B complex that won't upset stomach. I bought Igennus Super B complex and took 1 tablet about 30 mins after eating dinner. The next day I had an upset stomach and felt more exhausted that usual the way you can get with a stomach upset. I haven't taken any
Irish_Gal
in
Thyroid UK
4 months ago
Waiting for laperoscopy
Hi everyone :) I am just wondering if anyone has had similar experiences. I had heavy bleeding and pain during my periods, pain and bleeding during and after sex, painful bowel movements during my period. At one time I went travelling and asked if I could take my pill packets together and was told
Hi everyone :) I am just wondering if anyone has had similar experiences. I had heavy bleeding and pain during my periods, pain and bleeding during and after sex, painful bowel movements during my period. At one time I went travelling and asked if I could take my pill packets together and was told
LUCY001
in
Endometriosis UK
8 months ago
1
...
12
13
14
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Anxiety and Depression Support
3602 results
Anxiety Support
2543 results
Thyroid UK
784 results
View top 10 communities
Sort by
Most Relevant
Newest