Newly diagnosed are my scores bad ?

[Simplyred57]

Hi after getting myself better with the help of the Thyroid forum and now feeling good on my Thyroid meds (T4 &T3) my endocrinologist requested a DEXA scan last one done in 2020 and the results came in that I have gone from osteopenia to osteoporosis in my spine.

My calcium and vitamin D have always been good I supplement with VitD3 & K2 so I’m devastated ( I did refuse Adcal as my results were good in the range when I was told I had osteopenia ) and now prescribed Alendronate 70mg per week and no side effects so far on week 4.

My results are attached I know I have a lot of learn , but as a starting point do they look bad?

Any advice would be gratefully accepted ☺️

[CinnamonRose]

Join the club!! It's a shock isn't it. It does take quite a while to sink in, it's a lot to process. My scores are nowhere as high/low as yours are and yet I've fractured 7 vertebrae in total. Have you had any fractures?

This forum is great and hopefully someone who's more knowledgeable than I am will chip in re your scores

I must admit I've scoured the internet looking for info and a cure but there doesn't seem to be a magic pill - like a lot of things in life!!

[Simplyred57 in reply to CinnamonRose]

Hi CinnamonRose thank you so much for your response, no fractures thank goodness it was just picked up on a routine DEXA scan as part of my thyroid treatment, my TSH is always suppressed for me to feel well, but they say it can lead to osteoporosis ( no real proof on that ) My endocrinologist ordered the scan .

I had a hysterectomy at 42 I’m now 65 and very limited HRT only took it for a few years as nothing seemed to agree with me , and not as much choice back then and nobody stressed the importance of the bone health side of taking it . I spoke to my GP about HRT recently as an option , but due to my sister having breast cancer, she said the risks out weigh the benefits for me sadly.

I’m going to ring one of the nurses recommended on here to have a chat as I have so many questions, I had to do lots of research on thyroid and joined the health unlocked forum to get better , thankfully the amazing people on there helped me so much, hopefully I will get some good advice on here too 🤞🏻

[CinnamonRose in reply to Simplyred57]

It is tough, the ROS nurses are very helpful, there's also a UK only Facebook group that is useful that you could join, similar to here, the ROS is possibly more active on Facebook.As my consultant told me, try not and live in fear, it's easier said than done!!

[corcho]

Welcome to the forum. I think ongoing thyroid problems can contribute to bone loss as well as being post menopausal with no hrt. I had (have) Graves disease since the mid 1990's but it went undiagnosed for at least 5 years. I was made to feel as if the symptoms were all in my head... lots of anxiety and feelings of panic, very unlike me. My profile is typical of a person with osteoporosis. Genetic tendency from my mother, no hrt, history of thyroid and a small build. Considering that little list, I feel I've got off lightly so far with osteopenia in my spine and hips are ok. I'm determined to keep my life going as normal for as long as possible. I continue to be active, even running, albeit less now and on softer surfaces. There are days when fear starts to creep in and I imagine every twinge is the start of a fracture, but by and large my life is good.Keeping informed (from reliable sources) keeping as active within your own safe limits, correct diet & nutrition and medication if you need it helps to tackle this from every angle available. Reach out to ROS for reliable advice and emotional support here on the forum. All the best. x