Living with cancer

[Cujokera]

Hi Im from nz and am 71yrs young a retired nurse and fit and healthy.. well thort I was. In 2020 right on covid lockdown i was,diagnosed with grade 1 lobular breast cancer. Told on the Monday biopsy wed op following Monday.. so quick..had 1,breast off recovered well then on anatrozole tabs..in 2022 following back pain and muscle twitching went to gp..sent for ct scan..wham..metatases to the bones. Extensive throughout spine..ribs..skull and sternum.had radiation and commenced on ibrance 125mg tabs...fluvestrant inj..zoledronic acid infusions mthly..long story but now 3 mthly infusions continuing on ibrance and fluvestrant inj..6 mthly ct scans and yrly bone scans.had 4 vertabrae compress in spine and lost 3 inches in height..condition has,remained stable minimul side effects and am living an independent life with only 1 severadol and 2 panadol for pain.

Yes this cancer sux but live every day as it comes.im in a happier mindset and know there's others worse off..I live life to the fullest and look forward not back.life goes on..we can get thru the ugly times

[Teddypeppalola]

Hi Cujokera I loved reading your upbeat positive post! You are so right, we are living with cancer and we need to just make the most of each day! I’m coming for a year on ibrance and Letrozole and all is going well I’m stable, which is the most I could ask for! I’m coming up for 64 this may from UK and loving life and my grandchildren, long may this treatment continue for all of us xxx

[Cujokera in reply to Teddypeppalola]

All the best to you on your journey.

[AvidBooklover]

Everyone has something...this is our something and you are embracing it and living with it....stay positive...I am six years in with MBC and am more active now than before...water aerobics and yoga. I have dropped foot either from a shot or rads, but I work to keep my core strong to not fall. Taking exercise VERY seriously.

[FiJaLo]

Your journey sounds so similar to my mom’s. She, too, is taking each day as it comes, making the most of life! Some weeks are harder or easier than others, but being adaptable and open to change seems to be important. Best of luck to you!

[fancydog]

Welcome to the group nobody would choose to join but what a great support group it is. WE learn from each other, pray and compare notes. I have been MBC 12 yrs and have a good quality of life. I hope you continue to do well.❤️

[Cujokera in reply to fancydog]

I found this group by accident while scrolling on the internet..well I'm so glad I was..what a wonderful support network this is and reading stories from you wonderful people so far away.i will be sharing this site with others here in nz.i felt my story was my story..it isnt ..but best of all..one isn't alone.thank you all

[CTGirl1962]

I LOVE YOUR ATTITUDE!! We all have to be in this mindset!! I believe that wholeheartedly!!! 🩷🩷🩷

Love and prayers for us ALL!!! XO

[Batiksforme]

Wow! You have been through a lot. You are strong and brave. Good for you. Enjoy every moment of your new life. You’ve earned it.

[Bettybuckets]

long may the good times roll

[Hazelgreen]

Congratulations on your positive attitude! I was interested in your losing 3" in height. The last time my height was measured, years ago, both my husband and I found we'd lost inches. We decided it was simply our ages (mid to late 70's then). According to Harvard Health, it is true that most people lose inches in middle age, but exercise, good posture, and proper diet help.

[Cujokera in reply to Hazelgreen]

Hicthere.the inches I lost in height was due to 4 compressed fractures of my vertabrae..this,was due to the cancer.intially I was 5'6 now 5'2..I didn't notice the loss of height until my son's all over 6 feet said..geeze you are short mum..I had to laugh ..next visit I had to my oncologist I got them to measure me..sure enough..was now in the short brigade.oh well doesn't phase me ..my feet are now firmly closer to the ground lol