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A tip for Australians with Chronic Lymphocytic Leukemia trying to access pneumococcal vaccination through the National Immunisation Program
What a morning I've had to get my third pneumococcal vaccine. I'll share the details here as the solution I found could help others with CLL in Australia who are having difficulty accessing these vaccines through the National Immunisation Program (NIP). In Australia, since 1 July 2020, it's standard
What a morning I've had to get my third pneumococcal vaccine. I'll share the details here as the solution I found could help others with CLL in Australia who are having difficulty accessing these vaccines through the National Immunisation Program (NIP). In Australia, since 1 July 2020, it's standard
CLLerinOz
Administrator
in
CLL Support
1 year ago
High Dose Niacin (Nicotinic Acid) and Hashimoto's?
Update 01/22/2023: I just learned there is an increased risk of diabetes on niacin therapy: https://heart.bmj.com/content/102/3/198 This study was based on people taking Niacin for cardiovascular reasons, which I think would be dosed at 500 to 6000 mg a day: https://www.mayoclinic.org/drugs-supplements
Update 01/22/2023: I just learned there is an increased risk of diabetes on niacin therapy: https://heart.bmj.com/content/102/3/198 This study was based on people taking Niacin for cardiovascular reasons, which I think would be dosed at 500 to 6000 mg a day: https://www.mayoclinic.org/drugs-supplements
Bolt_Upright
in
Thyroid UK
1 year ago
DIAGNOSED WITH BASEL SKIN CANCER ON TIP OF NOSE ..WANT TO KNOW IF RADIATION THERAPY IS AS GOOD AS MOHS? DON'T WANT TO BE DISFIGURED!
MY WIFE HAS JUST BEEN DIAGNOSED WITH SKIN CANCER RIGHT ON THE TIP OF HER NOSE... want to know if the cure rate is just as effective with radiation, cryotherapy as with mohs surgery? In fact which of Radiation, Cryoblation and/or Mohs has the best cure rate ? We don't want her disfigured with surgery
MY WIFE HAS JUST BEEN DIAGNOSED WITH SKIN CANCER RIGHT ON THE TIP OF HER NOSE... want to know if the cure rate is just as effective with radiation, cryotherapy as with mohs surgery? In fact which of Radiation, Cryoblation and/or Mohs has the best cure rate ? We don't want her disfigured with surgery
JWS13
in
Skin Cancer UK
1 year ago
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The KC in Skcin
17 years ago today we said our final farewell to our beautiful mother, best friend, devoted wife and grandmother Karen Clifford (the KC in SKCIN) following her courageous battle to melanoma. The devastation caused by her loss, made us determined to ensure her untimely death was not in vain. We wanted
17 years ago today we said our final farewell to our beautiful mother, best friend, devoted wife and grandmother Karen Clifford (the KC in SKCIN) following her courageous battle to melanoma. The devastation caused by her loss, made us determined to ensure her untimely death was not in vain. We wanted
SkcinHQ
Partner
in
Skin Cancer UK
1 year ago
Amy Callaghan MP’s VAT BURN campaign
Amy Callaghan MP’s VAT BURN campaign calls on the UK government to remove VAT from sunscreen products that have a health benefit. We should all know the health benefits that a “quality” (i.e. SPF 30+ product with a minimum 4 star UVA protection) sunscreen has on preventing the UK’s most common cancer
Amy Callaghan MP’s VAT BURN campaign calls on the UK government to remove VAT from sunscreen products that have a health benefit. We should all know the health benefits that a “quality” (i.e. SPF 30+ product with a minimum 4 star UVA protection) sunscreen has on preventing the UK’s most common cancer
SkcinHQ
Partner
in
Skin Cancer UK
2 years ago
Amelanotic Melanoma
Whilst amelanotic melanoma is relatively uncommon fatality rates tend to be higher because they often go undetected for longer, are often misdiagnosed because they mimic other skin lesions and are therefore commonly diagnosed at later stages. Any subtype of melanoma can be amelanotic. They can appear
Whilst amelanotic melanoma is relatively uncommon fatality rates tend to be higher because they often go undetected for longer, are often misdiagnosed because they mimic other skin lesions and are therefore commonly diagnosed at later stages. Any subtype of melanoma can be amelanotic. They can appear
SkcinHQ
Partner
in
Skin Cancer UK
2 years ago
Great to be back in Westminster today!
Great to be back in Westminster today! 🧡💪 Today Skcin supported the launch of Sanofi’s new report about the Non-Melanoma Skin Cancer (NMSC) Patient Pathway and improving patient journeys and experience of care. Following on from our success in July 2019 when Skcin co-hosted the launch of Sanofi
Great to be back in Westminster today! 🧡💪 Today Skcin supported the launch of Sanofi’s new report about the Non-Melanoma Skin Cancer (NMSC) Patient Pathway and improving patient journeys and experience of care. Following on from our success in July 2019 when Skcin co-hosted the launch of Sanofi
SkcinHQ
Partner
in
Skin Cancer UK
2 years ago
boils and lupus
Hi all, Still fighting to get any support even though it has been confirmed I have lupus! I now have started to get giant boils in my groin and armpit. Does anyone else get these? Sorry about the graphic image 😞 I am in so much pain and all my neck glands are up too.
Hi all, Still fighting to get any support even though it has been confirmed I have lupus! I now have started to get giant boils in my groin and armpit. Does anyone else get these? Sorry about the graphic image 😞 I am in so much pain and all my neck glands are up too.
M0wnt
in
LUPUS UK
1 year ago
Even in the winter months UV rays are present.
Even in the winter months UV rays are present and we should take care to protect our skin from cumulative damage. If you’re spending extended periods of time outdoors, apply sunscreen with UVA protection before you head out.1 in 5 of us will develop some form of skin cancer in our lifetime, making it
Even in the winter months UV rays are present and we should take care to protect our skin from cumulative damage. If you’re spending extended periods of time outdoors, apply sunscreen with UVA protection before you head out.1 in 5 of us will develop some form of skin cancer in our lifetime, making it
SkcinHQ
Partner
in
Skin Cancer UK
2 years ago
SMC approve belimumab (Benlysta) for use by NHS Scotland
The Scottish Medicines Consortium (SMC) recently completed their assessment of belimumab (Benlysta) as a treatment for active auto-antibody positive systemic lupus erythematosus (SLE). We are pleased to report that they have recommended the treatment as an option to be added to standard therapy for
The Scottish Medicines Consortium (SMC) recently completed their assessment of belimumab (Benlysta) as a treatment for active auto-antibody positive systemic lupus erythematosus (SLE). We are pleased to report that they have recommended the treatment as an option to be added to standard therapy for
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
2 years ago
Cellulitis in foot and hands, leading to dramatic skin changes all over my body
I have primary lymphoedema in my left foot which has been well controlled through compression and daily creaming of the affected area. Despite showing no signs of any lesion I developed cellulitis which went un-diagnosed for a week or so as I was unaware of what it was. My foot and ankle were very swollen
I have primary lymphoedema in my left foot which has been well controlled through compression and daily creaming of the affected area. Despite showing no signs of any lesion I developed cellulitis which went un-diagnosed for a week or so as I was unaware of what it was. My foot and ankle were very swollen
walk
in
LSN
1 year ago
Running again after operation
I’ve read several posts about starting to run after an illness but I’m not sure if the advice is valid for post operative running. I have completed C25K a couple of times since Jan 2021 but have had long breaks between for various reasons. I got to week 7 in August of this year then had time away followed
I’ve read several posts about starting to run after an illness but I’m not sure if the advice is valid for post operative running. I have completed C25K a couple of times since Jan 2021 but have had long breaks between for various reasons. I got to week 7 in August of this year then had time away followed
thelastgizmo
Graduate
in
Couch to 5K
2 years ago
When does a mole spell melanoma!
WHEN DOES A MOLE SPELL MELANOMA?Superficial spreading melanoma is the most common form of melanoma which accounts for around 70% of cases. It can arise from a seemingly, normal or healthy pre-existing mole or freckle, but the majority appear as a new mole. Take note of the ABCDE rule and take charge
WHEN DOES A MOLE SPELL MELANOMA?Superficial spreading melanoma is the most common form of melanoma which accounts for around 70% of cases. It can arise from a seemingly, normal or healthy pre-existing mole or freckle, but the majority appear as a new mole. Take note of the ABCDE rule and take charge
SkcinHQ
Partner
in
Skin Cancer UK
2 years ago
Skin Cancer is the ‘Skinderella’ of all cancers!
Skin cancer is the ‘Skinderella’ of all cancers. It’s a lifestyle cancer that’s hugely overlooked by government considering it’s the UK’s most common and fastest rising cancer, yet 90% of cases are preventable AND if detected, diagnosed and treated early 98% treatable or curable! This post shows the
Skin cancer is the ‘Skinderella’ of all cancers. It’s a lifestyle cancer that’s hugely overlooked by government considering it’s the UK’s most common and fastest rising cancer, yet 90% of cases are preventable AND if detected, diagnosed and treated early 98% treatable or curable! This post shows the
SkcinHQ
Partner
in
Skin Cancer UK
2 years ago
Ringworm skin problems
I have been suffering from ringworm for about a year. They are mostly near the side of the cheek, near the beard and near the ear. I have used many medicines and creams, but when I stop the medicine, it comes out again. How to stop at once?
I have been suffering from ringworm for about a year. They are mostly near the side of the cheek, near the beard and near the ear. I have used many medicines and creams, but when I stop the medicine, it comes out again. How to stop at once?
SunnyM7
in
Aspergillosis and Rare Fungal Infection Support
2 years ago
Moderna and Merck Melanoma Vaccine
Knowing we have a much greater risk of Melanoma figured I’d share this news: “Moderna's messenger RNA vaccine is being studied in combination with Merck's Keytruda to treat patients with high-risk melanoma, the deadliest form skin cancer, in a phase 2 trial.” Link to an article about Moderna and
Knowing we have a much greater risk of Melanoma figured I’d share this news: “Moderna's messenger RNA vaccine is being studied in combination with Merck's Keytruda to treat patients with high-risk melanoma, the deadliest form skin cancer, in a phase 2 trial.” Link to an article about Moderna and
Rando21
in
CLL Support
2 years ago
UKHSA update on scarlet fever and invasive Group A streptococcal infection
https://www.gov.uk/government/news/ukhsa-update-on-scarlet-fever-and-invasive-group-a-strep Extract: "[i]Scarlet fever is caused by bacteria called group A streptococci. These bacteria also cause other respiratory and skin infections such as strep throat and impetigo. [/i][i] [/i] [i]In very rare occasions
https://www.gov.uk/government/news/ukhsa-update-on-scarlet-fever-and-invasive-group-a-strep Extract: "[i]Scarlet fever is caused by bacteria called group A streptococci. These bacteria also cause other respiratory and skin infections such as strep throat and impetigo. [/i][i] [/i] [i]In very rare occasions
bennevisplace
in
CLL Support
2 years ago
Don’t be fooled into thinking that Sunbeds are safe!
‼️ DON’T BE FOOLED INTO THINKING THAT SUNBEDS ARE SAFE: Sunbed use is bad news at any age and dramatically increases the risk of both melanoma and non-melanoma skin cancer. They are classed as a group 1 carcinogen - the highest cancer risk category. AND the younger you are and more often you use them
‼️ DON’T BE FOOLED INTO THINKING THAT SUNBEDS ARE SAFE: Sunbed use is bad news at any age and dramatically increases the risk of both melanoma and non-melanoma skin cancer. They are classed as a group 1 carcinogen - the highest cancer risk category. AND the younger you are and more often you use them
SkcinHQ
Partner
in
Skin Cancer UK
2 years ago
Interrupting Acalabrutinib for a minor surgery
Acalabrutinib seems to increase the patient's propensity to bruising / bleeding even more, on the top of the already low platelet count. So it needs to be stopped before and after a minor skin surgery. Have any of you been in a similar situation, and if yes - how long was your interruption ?
Acalabrutinib seems to increase the patient's propensity to bruising / bleeding even more, on the top of the already low platelet count. So it needs to be stopped before and after a minor skin surgery. Have any of you been in a similar situation, and if yes - how long was your interruption ?
MikeOr
in
CLL Support
2 years ago
cellulitis
I have cellulitis in my right arm, post operative lymphoedema ( 9 years ago) first time. Swelling, heaviness and pain don’t seem to be getting any better after a week of antibiotic. Wondered if there is anything else I can do to get rid of it. Awaiting an appointment with the clinic but no idea when
I have cellulitis in my right arm, post operative lymphoedema ( 9 years ago) first time. Swelling, heaviness and pain don’t seem to be getting any better after a week of antibiotic. Wondered if there is anything else I can do to get rid of it. Awaiting an appointment with the clinic but no idea when
guys-dolls
in
LSN
2 years ago
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