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Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Ryshta
in
NRAS
10 months ago
I seem to be more ill since starting Levo
Before Levo I was hardly ever ill, rarely had a cold or flu but since starting Levo I’ve had the flu quite badly and I’ve had a constant cough since going on about 2 months. Now I’ve got a stinking cold over the holidays. Has anybody else had this or is this just a co-incidence?
Before Levo I was hardly ever ill, rarely had a cold or flu but since starting Levo I’ve had the flu quite badly and I’ve had a constant cough since going on about 2 months. Now I’ve got a stinking cold over the holidays. Has anybody else had this or is this just a co-incidence?
ockerdoc
in
Thyroid UK
7 months ago
2nd short term Ginkgo trial underway
The 1st was around 10 days ago. 1 tablet taken evening of purchase, and 3 over the following day. The day after that T was not around in the afternoon for a few hours. I thought I had been cured (!) but did come back around 6pm. 3 tablets also taken over that day. The following day T was around and it
The 1st was around 10 days ago. 1 tablet taken evening of purchase, and 3 over the following day. The day after that T was not around in the afternoon for a few hours. I thought I had been cured (!) but did come back around 6pm. 3 tablets also taken over that day. The following day T was around and it
Ray200
in
Tinnitus UK
9 months ago
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😵💫Crazy COVID story 😷🤧
So My friend who was infected a couple weeks ago for the first time with COVID saw his Dr and was prescribed paxlovid, one of 2 main antiviral treatment that is given to COVID infected people. He recovered, tested negative and returned to work last weekend. He text me last night...started feeling like
So My friend who was infected a couple weeks ago for the first time with COVID saw his Dr and was prescribed paxlovid, one of 2 main antiviral treatment that is given to COVID infected people. He recovered, tested negative and returned to work last weekend. He text me last night...started feeling like
LifeIsThePitts
in
Anxiety and Depression Support
10 months ago
Tetanus booster while on prednisone?
Has anyone had the tetanus booster (I'm due for a 10-year one) while on prednisone? Am I correct in understanding that we should not have "live" vaccines? And I can't find any information that mentions if it's live or not. Thank you so much for any insights!
Has anyone had the tetanus booster (I'm due for a 10-year one) while on prednisone? Am I correct in understanding that we should not have "live" vaccines? And I can't find any information that mentions if it's live or not. Thank you so much for any insights!
Spartans1
in
PMRGCAuk
9 months ago
Question on tapering
Everytime I start reducing my pred I develop a Cold sore on my lip, does an yone else have this problem?
Everytime I start reducing my pred I develop a Cold sore on my lip, does an yone else have this problem?
Kiwisufferer2019
in
PMRGCAuk
7 months ago
Drew Weissman, Katalin Karikó win Nobel in medicine for enabling mRNA COVID vaccines
[i]
A screen at the Karolinska Institute shows this year's laureates Katalin Kariko of Hungary (L) and Drew Weissman of the US during the announcement of the winners of the 2023 Nobel Prize in Physiology or Medicine at the Karolinska Institute in Stockholm on October 2, 2023.(Jonathan Nackstrand/AFP
[i]
A screen at the Karolinska Institute shows this year's laureates Katalin Kariko of Hungary (L) and Drew Weissman of the US during the announcement of the winners of the 2023 Nobel Prize in Physiology or Medicine at the Karolinska Institute in Stockholm on October 2, 2023.(Jonathan Nackstrand/AFP
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
10 months ago
Flare , cold and skiing !
Hope everyone had a lovely Christmas 🎄. Just looking for some advice - i have started with a terrible cold today, and also think i am flaring up as my shoulders and neck have been really sore for the last 7-10 days, reminding me of the early days. I am off skiing on 30 Dec and wondering what to do.
Hope everyone had a lovely Christmas 🎄. Just looking for some advice - i have started with a terrible cold today, and also think i am flaring up as my shoulders and neck have been really sore for the last 7-10 days, reminding me of the early days. I am off skiing on 30 Dec and wondering what to do.
Cysty1
in
PMRGCAuk
7 months ago
Seem to be stuck at 7.5mg
Hello my friends , I have been stuck at this dose for approaching 3 years . Sometimes going a little higher on sick days and throughout extremely stressful times. I’ve lost my Mum this year after years of caring , grief is a dreadful experience, the price we pay for love eh ! I only have to drop
Hello my friends , I have been stuck at this dose for approaching 3 years . Sometimes going a little higher on sick days and throughout extremely stressful times. I’ve lost my Mum this year after years of caring , grief is a dreadful experience, the price we pay for love eh ! I only have to drop
Greensleeves
in
PMRGCAuk
10 months ago
Post Covid
Morning all ,hoping for advice plz. I had covid 6 weeks ago,it was very unpleasant. Worse still is now ive been left with vertigo. Im actually struggling more with this than the covid. My RA nurse also stopped my meds due to how poorly i was. So far no flare. Please has anyone else had vertigo and how
Morning all ,hoping for advice plz. I had covid 6 weeks ago,it was very unpleasant. Worse still is now ive been left with vertigo. Im actually struggling more with this than the covid. My RA nurse also stopped my meds due to how poorly i was. So far no flare. Please has anyone else had vertigo and how
Ninnin67
in
NRAS
10 months ago
itch and bilirubin, long covid
1) since startin* urso I continue to have an itchy abdomen and scalp. My family dr does not think itch is related to PBC because my bilirubin is fine… I think I’m early stage. Enzymes starting to come down but the gi doc says nothing gets added or changed until we see how I do after being on it for a
1) since startin* urso I continue to have an itchy abdomen and scalp. My family dr does not think itch is related to PBC because my bilirubin is fine… I think I’m early stage. Enzymes starting to come down but the gi doc says nothing gets added or changed until we see how I do after being on it for a
Artsy123
in
PBCers Organization
10 months ago
Medication for cold with AF??
hi there everyone I hope everyone had a happy Christmas/holidays/festivities. I am pretty sure I read something in the forum ref m6 question but can’t seem to find it now, so apols for asking again. I am in persistent AF and symptoms are pretty much constant with dizziness and lightheaded from Diltiazem
hi there everyone I hope everyone had a happy Christmas/holidays/festivities. I am pretty sure I read something in the forum ref m6 question but can’t seem to find it now, so apols for asking again. I am in persistent AF and symptoms are pretty much constant with dizziness and lightheaded from Diltiazem
Tplongy
in
Atrial Fibrillation Support
7 months ago
Not had a very good Christmas
Christmas day I came down with this flu thing. Cough and cold feeling unwell but temperature was ok because our immune system isn't good do we get this sort of thing worse and will it last longer?
Christmas day I came down with this flu thing. Cough and cold feeling unwell but temperature was ok because our immune system isn't good do we get this sort of thing worse and will it last longer?
Caulkhead63
in
PMRGCAuk
7 months ago
Covid prior to FET with a positive outcome
Hope everyone is doing ok! I just wondered if anyone tested positive for covid the month before their FET and then had a positive result? I know it’s different for everyone but just making sure it has actually happened and if I go ahead with my FET next month I’m not starting on the back foot! (Well
Hope everyone is doing ok! I just wondered if anyone tested positive for covid the month before their FET and then had a positive result? I know it’s different for everyone but just making sure it has actually happened and if I go ahead with my FET next month I’m not starting on the back foot! (Well
Booda21
in
Fertility Network UK
10 months ago
immunosuppressants and Covid vaccine
I was told by my nephrologist that I should wait 3 months to get the current Covid vaccine until my immunosuppressive medication (rituximab) wears off because I won’t mount a good response if I get it now. Has anyone been told similar advice?
I was told by my nephrologist that I should wait 3 months to get the current Covid vaccine until my immunosuppressive medication (rituximab) wears off because I won’t mount a good response if I get it now. Has anyone been told similar advice?
MsAmyM
in
Kidney Disease
10 months ago
covid vaccination
Thankyou to everyone who replied to my previous post . Most people seem to be having the covid booster . It isn’t the initial jab that bothers me but what it’s doing long term . I had my last one in November and since then I’ve developed polymyalgia rheumatica, another auto immune disease . Who knows
Thankyou to everyone who replied to my previous post . Most people seem to be having the covid booster . It isn’t the initial jab that bothers me but what it’s doing long term . I had my last one in November and since then I’ve developed polymyalgia rheumatica, another auto immune disease . Who knows
Juliet46
in
MPN Voice
10 months ago
Covid jab, to be or not to be
I really don't know what to think about the covid jab, i have had them all until now, but having contracted covid 4 weeks ago, and ended up feeling terrible, and even now i feel pretty dire, and it certainly heightened my depression, and so i do question if it's really worth bothering. Several people
I really don't know what to think about the covid jab, i have had them all until now, but having contracted covid 4 weeks ago, and ended up feeling terrible, and even now i feel pretty dire, and it certainly heightened my depression, and so i do question if it's really worth bothering. Several people
secrets22
in
Anxiety and Depression Support
10 months ago
Covid autumn booster
Usually get invite for Covid booster. Has the criteria changed recently only severe asthma sufferers are eligible now. Did not get any invited%? Thanks
Usually get invite for Covid booster. Has the criteria changed recently only severe asthma sufferers are eligible now. Did not get any invited%? Thanks
ahfat41
in
Asthma Community Forum
10 months ago
Am I getting back to hillwalking too soon?
Hello all, I've now been out of hospital for just over three months. I was admitted in February this year for flu, pneumonia and severe septic shock and was in a coma for almost a month in ICU, then in a general ward for another 8 weeks before getting out. I do have ICU-acquired weakness in various
Hello all, I've now been out of hospital for just over three months. I was admitted in February this year for flu, pneumonia and severe septic shock and was in a coma for almost a month in ICU, then in a general ward for another 8 weeks before getting out. I do have ICU-acquired weakness in various
helen_m
in
ICUsteps
11 months ago
Struggling with flare up
Since last Wednesday my asthma has flared up. I have been taking regular reliever (mart regime fostair 100/6)every 4 hrs. I have had tight chest and peak flow dropped to 350/500. Although I not making my top peak flow as my lungs are still healing from pneumonia. Now I woke up with soreness in my diaphragm
Since last Wednesday my asthma has flared up. I have been taking regular reliever (mart regime fostair 100/6)every 4 hrs. I have had tight chest and peak flow dropped to 350/500. Although I not making my top peak flow as my lungs are still healing from pneumonia. Now I woke up with soreness in my diaphragm
elanaoali
in
Lung Conditions Community Forum
7 months ago
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