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GP insisting on using CRP & ESR as inflammatory markers...and managing to get a creatine kinase blood test ordered...legs are still an issue
Hello I was called in to my GP surgery yesterday, by one of the GPs, the letter indicating it was for a medication review. She's not one of the GPs I prefer to see, she can be a little vague etc. But we ended up going through my meds and she asked about steroids being on my repeat....I said that although
Hello I was called in to my GP surgery yesterday, by one of the GPs, the letter indicating it was for a medication review. She's not one of the GPs I prefer to see, she can be a little vague etc. But we ended up going through my meds and she asked about steroids being on my repeat....I said that although
Wendy39
in
LUPUS UK
10 months ago
MacGrumphy
I developed infantile eczema in 1942 when my mother was unable to breast feed me anymore and I was transferred to a powdered milk. The eczema plagued me into my early twenties before almost disappearing. In December 2022 I was diagnosed with Covid. A few days later I was aware of two itchy red spots
I developed infantile eczema in 1942 when my mother was unable to breast feed me anymore and I was transferred to a powdered milk. The eczema plagued me into my early twenties before almost disappearing. In December 2022 I was diagnosed with Covid. A few days later I was aware of two itchy red spots
MacGrumphy
in
MY SKIN
9 months ago
covid booster
just been reading that the covid booster can bring on another episode of af in some people. Never even thought of that when I booked mine. I’m due to have it next Wednesday 2 days before I go on holiday. My last holiday last month was spent mostly in hospital due to another episode. This is why I’m having
just been reading that the covid booster can bring on another episode of af in some people. Never even thought of that when I booked mine. I’m due to have it next Wednesday 2 days before I go on holiday. My last holiday last month was spent mostly in hospital due to another episode. This is why I’m having
macymoo007
in
AF Association
9 months ago
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hyrimoz not working anymore, possible?
hello. After covid in august ( notihng serious just 5 days flu) i start after a week to feel again flares on my back. I suffer again im my dorsal sector and on my cost pretty bad. Finish covid with retard ( normaly i take shot every two weeks and i star again after 3 weeks) i start again hirimoz but
hello. After covid in august ( notihng serious just 5 days flu) i start after a week to feel again flares on my back. I suffer again im my dorsal sector and on my cost pretty bad. Finish covid with retard ( normaly i take shot every two weeks and i star again after 3 weeks) i start again hirimoz but
Jack72
in
NRAS
9 months ago
Cold showers
Interesting article about the benefits of cold water therapy on inflammation and the immune system. Anyone any experience? MtS https://www.wimhofmethod.com/benefits-of-cold-showers?utm_source=newsletter&utm_medium=email&utm_id=Newsletter+January+2024&utm_content=benefits-text&
Interesting article about the benefits of cold water therapy on inflammation and the immune system. Anyone any experience? MtS https://www.wimhofmethod.com/benefits-of-cold-showers?utm_source=newsletter&utm_medium=email&utm_id=Newsletter+January+2024&utm_content=benefits-text&
Mervetheswerve
in
PMRGCAuk
6 months ago
Slight Cold and Actemra
I caught a slight cold over the holidays which I’ve had for about a week and a half. It’s been nothing more than a runny nose and congestion. Very mild. I decided to skip my 6th Actemra dose last Friday until it clears up. It’s almost gone but has settled in my sinuses. Tomorrow is Friday and that’s
I caught a slight cold over the holidays which I’ve had for about a week and a half. It’s been nothing more than a runny nose and congestion. Very mild. I decided to skip my 6th Actemra dose last Friday until it clears up. It’s almost gone but has settled in my sinuses. Tomorrow is Friday and that’s
Lenore58
in
PMRGCAuk
6 months ago
Covid, Flu and RSV vaccines
I’m looking for advice on spacing vaccines. I received the newest Covid vaccine on Sept 20. Is it best to space out the flu and RSV vaccines or receive them the same day? I am still in active surveillance but I know that my antibody production from previous Covid vaccines has not been great.
I’m looking for advice on spacing vaccines. I received the newest Covid vaccine on Sept 20. Is it best to space out the flu and RSV vaccines or receive them the same day? I am still in active surveillance but I know that my antibody production from previous Covid vaccines has not been great.
BlueJk
in
CLL Support
9 months ago
Scared newbie
I was poorly all over November and December with a terrible cough and flu like symptoms. Contacted the Dr's numerous times x rays show pneumonia. A and e visit as in agony on right side, 2nd xray was worse antibiotics not working. CT scan the following day to be told 28th Dec I have a large mass lung
I was poorly all over November and December with a terrible cough and flu like symptoms. Contacted the Dr's numerous times x rays show pneumonia. A and e visit as in agony on right side, 2nd xray was worse antibiotics not working. CT scan the following day to be told 28th Dec I have a large mass lung
Rubyjean28
in
Lung Conditions Community Forum
7 months ago
Scared Newbie
I was poorly all over November and December with a terrible cough and flu like symptoms. Contacted the Dr's numerous times x rays show pneumonia. A and e visit as in agony on right side, 2nd xray was worse antibiotics not working. CT scan the following day to be told 28th Dec I have a large mass lung
I was poorly all over November and December with a terrible cough and flu like symptoms. Contacted the Dr's numerous times x rays show pneumonia. A and e visit as in agony on right side, 2nd xray was worse antibiotics not working. CT scan the following day to be told 28th Dec I have a large mass lung
Rubyjean28
in
The Roy Castle Lung Cancer Foundation
7 months ago
Cold feet & change in toenail
Hi I am two years after chemo and since the I have been taking Niraparib highest dose everyday. I sometime have had cold feet but they seem to be cold a lot more recently than they have been before. I also have a reddish colour under both my big toe nails and they are a little brittle. I have tried
Hi I am two years after chemo and since the I have been taking Niraparib highest dose everyday. I sometime have had cold feet but they seem to be cold a lot more recently than they have been before. I also have a reddish colour under both my big toe nails and they are a little brittle. I have tried
Jingles6
in
My Ovacome
7 months ago
stopping warfarin
Hi, I am having a lumbar steroid injection for a slipped disc. the doctor performing it wants my my inr below 1.2. I attend Barnet hospital anticoagulation clinic in London. They told me the person performing the steroid injection must make a “ bridging plan “, that may or may not involve heparin
Hi, I am having a lumbar steroid injection for a slipped disc. the doctor performing it wants my my inr below 1.2. I attend Barnet hospital anticoagulation clinic in London. They told me the person performing the steroid injection must make a “ bridging plan “, that may or may not involve heparin
Kev667
in
Hughes Syndrome APS Forum
10 months ago
covid vac
hi everyone, Can anyone help, I’ve had my covid jab last Wednesday 27th, my arm was very painful after jab and I thought it would go away, but now I feel really Ill, got a temp feel achy all over and really run down, my husband is the same, do you think it’s to do with the jab? I was fine before.
hi everyone, Can anyone help, I’ve had my covid jab last Wednesday 27th, my arm was very painful after jab and I thought it would go away, but now I feel really Ill, got a temp feel achy all over and really run down, my husband is the same, do you think it’s to do with the jab? I was fine before.
2013mayo
in
Lung Conditions Community Forum
9 months ago
Covid got me - cycle day 9 pre FET 😭
Any similar stories? Or messages of positivity? Currently feeling rubbish and rather sorry for myself after testing COVID positive today with a fever and banging head last night. I was supposed to be in clinic today for day 9 scan pre-FET. I'm so frustrated as I really hoped to transfer this embryo
Any similar stories? Or messages of positivity? Currently feeling rubbish and rather sorry for myself after testing COVID positive today with a fever and banging head last night. I was supposed to be in clinic today for day 9 scan pre-FET. I'm so frustrated as I really hoped to transfer this embryo
Minniemouse88
in
Fertility Network UK
9 months ago
covid booster and prednisolone
just a quick question- I am on a tapering course of prednisolone and have my covid booster booked before the end of the course. Does anyone know if I can go ahead or should I postpone?
just a quick question- I am on a tapering course of prednisolone and have my covid booster booked before the end of the course. Does anyone know if I can go ahead or should I postpone?
Zip1
in
NRAS
9 months ago
Covid - Beware Getting Treatment
it’s currently 08.30 in the morning and I have probably had the worst ordeal ever. I tested positive yesterday morning. As is the protocol I rang my Consultants Secretary, she arranged for the paperwork to West Yorks Healthcare (we live in North Yorkshire) Trust. She added to let them know as it was
it’s currently 08.30 in the morning and I have probably had the worst ordeal ever. I tested positive yesterday morning. As is the protocol I rang my Consultants Secretary, she arranged for the paperwork to West Yorks Healthcare (we live in North Yorkshire) Trust. She added to let them know as it was
Investigator1
in
Vasculitis UK
10 months ago
Advice please with cold and PMR
For the first time in nearly a year, I have a cold and where I before just go on with it, I am feeling terrible! My body aches so much from my shoulders to the groin and neck and wondering if is this normal when having an autoimmune disease. Should I increase my prednisone until this passes as not sure
For the first time in nearly a year, I have a cold and where I before just go on with it, I am feeling terrible! My body aches so much from my shoulders to the groin and neck and wondering if is this normal when having an autoimmune disease. Should I increase my prednisone until this passes as not sure
Markandevie
in
PMRGCAuk
7 months ago
Been on the IC since April 24h….bit fed up now!
Hi, I completed C25K a few years ago, and run regularly. I started having pain in both feet earlier this year, which felt like Plantar Fasciitis, which I had had very successful surgery for over 20 years ago! ( I must have been REALLY lucky with the results, as it’s hardly done now, as it’s not thought
Hi, I completed C25K a few years ago, and run regularly. I started having pain in both feet earlier this year, which felt like Plantar Fasciitis, which I had had very successful surgery for over 20 years ago! ( I must have been REALLY lucky with the results, as it’s hardly done now, as it’s not thought
Dansac29
Graduate
in
Couch to 5K
10 months ago
Targinact
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
Quiltingmum
in
Restless Legs Syndrome
9 months ago
My Stem Cell Journey so far.
Hi everyone just thought I’d share my experience of STC with you. I began the prep treatment over a week ago which consisted of a concoction of IV and oral meds. The day before transplant I had Total Body Irradiation - on the 31st I received “the gift” of stem cells from an anonymous donor 🙏. Im sorry
Hi everyone just thought I’d share my experience of STC with you. I began the prep treatment over a week ago which consisted of a concoction of IV and oral meds. The day before transplant I had Total Body Irradiation - on the 31st I received “the gift” of stem cells from an anonymous donor 🙏. Im sorry
Billarina
in
CLL Support
11 months ago
Does anyone here continue to have blood in their phlegm after recovering from pneumonia?
I finished taking my medication a week ago, and I haven't been getting much phlegm these days. But now I see blood spots in the phlegm, I have an x-ray tomorrow.I am very worried, my mind sometimes drifts to dark thoughts.
I finished taking my medication a week ago, and I haven't been getting much phlegm these days. But now I see blood spots in the phlegm, I have an x-ray tomorrow.I am very worried, my mind sometimes drifts to dark thoughts.
Vinaa
in
Lung Conditions Community Forum
7 months ago
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