Search
Search
About
Log in
Join
Experiences with
Rituximab
Posts
Communities
2,516 public posts
Filter results
Holiday and very low count
Hi there, I posted a few week's ago to say I was going through the latest treatment of
rituximab
. Well last treatment was two week's ago and count is still at 2, though I know it can take a while. The thing is we are meant to be going abroad in 4 weeks to Kefalonia.
Hi there, I posted a few week's ago to say I was going through the latest treatment of
rituximab
. Well last treatment was two week's ago and count is still at 2, though I know it can take a while. The thing is we are meant to be going abroad in 4 weeks to Kefalonia.
Caro40
in
ITP Support Association
8 years ago
ITP Spleen removal
Ever since I have had a single figure platelet count, proving non responsive to pred, IVIG, elmotrobag, romniplostim,
rituximab
, MMF. My options now are to have my spleen removed. I have requested an indium scan but been told that I do not have enough platelets to scan so this is not an option.
Ever since I have had a single figure platelet count, proving non responsive to pred, IVIG, elmotrobag, romniplostim,
rituximab
, MMF. My options now are to have my spleen removed. I have requested an indium scan but been told that I do not have enough platelets to scan so this is not an option.
Katewag
in
ITP Support Association
8 years ago
Hamster ovary?
Just had my very first
rituximab
infusion and second next week. I am the type who has to find out about everything I put in my body and have discovered that this drug is made from Chinese hamster ovary! It is fascinating stuff.
Just had my very first
rituximab
infusion and second next week. I am the type who has to find out about everything I put in my body and have discovered that this drug is made from Chinese hamster ovary! It is fascinating stuff.
Cathy777
in
NRAS
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Sero negative, what works?
I have taken the plunge, refused
Rituximab
and asked to change hospitals. Nothing has worked for two years and as I can never get through to anyone to talk about my issues and pain (short of staff) So I am moving. Has anyone been prescribed
Rituximab
if they are sero negative?
I have taken the plunge, refused
Rituximab
and asked to change hospitals. Nothing has worked for two years and as I can never get through to anyone to talk about my issues and pain (short of staff) So I am moving. Has anyone been prescribed
Rituximab
if they are sero negative?
LesBev
in
NRAS
8 years ago
ITP recurred after five years: 2nd round of Rituximab Or Homeopath Or Anything else??
And then he was treated with the regular course of
Rituximab
at Sir Gangaram Hospital, New Delhi. Since then his platelet counts were hanging around 30-40K. But since past a month, his counts started decreasing again and today it came down to 9000.
And then he was treated with the regular course of
Rituximab
at Sir Gangaram Hospital, New Delhi. Since then his platelet counts were hanging around 30-40K. But since past a month, his counts started decreasing again and today it came down to 9000.
Varenya
in
ITP Support Association
8 years ago
Rituximab infusion
My next
Rituximab
infusion is now on the 10th June. Let's hope it works long term fingers crossed. I hope all is well with my healthunlocked friends. Do take care. Sarah. Xx😊
My next
Rituximab
infusion is now on the 10th June. Let's hope it works long term fingers crossed. I hope all is well with my healthunlocked friends. Do take care. Sarah. Xx😊
sarah1967
in
NRAS
8 years ago
Flares???
When I was first diagnosed I had a flare that lasted for many months , I've had
rituximab
infusion and I've improved but I had a couple of 4-5 day episodes of nausea pains and exhaustion in the 8 weeks following treatment.
When I was first diagnosed I had a flare that lasted for many months , I've had
rituximab
infusion and I've improved but I had a couple of 4-5 day episodes of nausea pains and exhaustion in the 8 weeks following treatment.
weathervane
in
The Australian Sjögren's Syndrome Association
8 years ago
The unspeakable side effects of a bit of chemo ( bums and faries)
Well, what can I say... Recovering well from the trauma of the first round of FCR BUT now learning that it's not all plain sailing... Having had the most horrendous diarrhoea last week... Sorry for graphic details .... Which was rancid and bright yellow ... Like piccalilli ... I now have the sorest
Well, what can I say... Recovering well from the trauma of the first round of FCR BUT now learning that it's not all plain sailing... Having had the most horrendous diarrhoea last week... Sorry for graphic details .... Which was rancid and bright yellow ... Like piccalilli ... I now have the sorest
Bethan49
in
CLL Support
8 years ago
Rituximab
Hi, is anyone with RA on
rituximab
infusion. My husband has RA he's just been taken off gold injections as not working. He's tried a lot of other drugs. He has alot of other health problems so was wondering about side affects. Do other's have bad side affects.
Hi, is anyone with RA on
rituximab
infusion. My husband has RA he's just been taken off gold injections as not working. He's tried a lot of other drugs. He has alot of other health problems so was wondering about side affects. Do other's have bad side affects.
karenace1
in
Arthritis Foundation of South Africa
8 years ago
Chronic itp. Latest treatment is rituximab
With a count of 2, they started me on
rituximab
and I have now had the last of the standard 4 treatments yesterday. Side effects have been awful: chills, fevers, nausea. Count only at 3 yesterday. I'm trying to stay positive but it is so hard.
With a count of 2, they started me on
rituximab
and I have now had the last of the standard 4 treatments yesterday. Side effects have been awful: chills, fevers, nausea. Count only at 3 yesterday. I'm trying to stay positive but it is so hard.
Caro40
in
ITP Support Association
8 years ago
2nd Rituximab infusion and another flare... Anyone else had the Same?
Hi all I've just had my second infusion of
Rituximab
, followed by a flare a couple of days later. It would be really helpful to hear if anyone else had the same reaction and then went on to feel good on the drug - just trying to not get too downhearted 😕 Many thanks
Hi all I've just had my second infusion of
Rituximab
, followed by a flare a couple of days later. It would be really helpful to hear if anyone else had the same reaction and then went on to feel good on the drug - just trying to not get too downhearted 😕 Many thanks
Harpey
in
NRAS
8 years ago
MY SENSE OF HUMOUR TOOK TO ITS HEELS AND RAN AS FAST AS IT COULD!!!!
Well last Friday was th first round of FCR. I felt quite positive, put on make up and a nice Lacey top to go to the party . All the staff were amazing, loads of reassurance and info... I was ready to go. Took the pills. Fine. Waited to start the infusion and was still quite jovial even though I did
Well last Friday was th first round of FCR. I felt quite positive, put on make up and a nice Lacey top to go to the party . All the staff were amazing, loads of reassurance and info... I was ready to go. Took the pills. Fine. Waited to start the infusion and was still quite jovial even though I did
Bethan49
in
CLL Support
8 years ago
Tocilizumab - looks like it is working
Had first infusion last Thursday, this was after having
Rituximab
late Feb then early March. On Friday I helped my daughter move into her own flat, hauled boxes, went up and down stairs, Saturday went out for a lovely lunch with son and a drive down the stunning Ayrshire coast.
Had first infusion last Thursday, this was after having
Rituximab
late Feb then early March. On Friday I helped my daughter move into her own flat, hauled boxes, went up and down stairs, Saturday went out for a lovely lunch with son and a drive down the stunning Ayrshire coast.
Chezis21
in
NRAS
8 years ago
We mightn’t like it, but there are ethical reasons to use animals in medical research
Rituximab
, the successful CD20 monoclonal antibody that dramatically improved CLL treatment success when combined with chemotherapy drugs, is colloquially termed mouse juice because part of the molecule derives from mouse protein.
Rituximab
, the successful CD20 monoclonal antibody that dramatically improved CLL treatment success when combined with chemotherapy drugs, is colloquially termed mouse juice because part of the molecule derives from mouse protein.
AussieNeil
Administrator
in
CLL Support
8 years ago
So the party is just about to start!
Just to let you all know that after my appointment in Tuesday I begin FCR on Friday....tomorrow!! I was initially elated as previously have gone through the process to start chemo and then it's been decided to keep me on W&W . I now feel nervous and reality is hitting...did my last day at work
Just to let you all know that after my appointment in Tuesday I begin FCR on Friday....tomorrow!! I was initially elated as previously have gone through the process to start chemo and then it's been decided to keep me on W&W . I now feel nervous and reality is hitting...did my last day at work
Bethan49
in
CLL Support
8 years ago
Saying hi!
I've had my first treatment of
Rituximab
in Dec and I'm still waiting for it to really kick in. I am very weak and wobbly first thing though it improves after about 2 hours. Heat really messes with me and if I get too warm I turn to jelly.
I've had my first treatment of
Rituximab
in Dec and I'm still waiting for it to really kick in. I am very weak and wobbly first thing though it improves after about 2 hours. Heat really messes with me and if I get too warm I turn to jelly.
Squeeker
in
LUPUS UK
8 years ago
Back pain and Rituximab
Anyway, has anyone else had back pain after
Rituximab
? This was 5/6 infusion and Ive had no problems before. Im due to have 7/8 in November but am flying to Oz for a month 10 days after my infusion but am now worried and want to cancel my infusion until I get back from Oz.
Anyway, has anyone else had back pain after
Rituximab
? This was 5/6 infusion and Ive had no problems before. Im due to have 7/8 in November but am flying to Oz for a month 10 days after my infusion but am now worried and want to cancel my infusion until I get back from Oz.
Llinos
in
Vasculitis UK
8 years ago
Got my rituximab date! Help!
Just got my date for this and rang the ward to ask if I needed to have someone come with me or if I needed escorting home afterwards. Got a very surly nurse. She said in a very amazed voice 'No, you can come alone.'. Like I had asked a pathetic question. Then I said 'do I need someone to take me
Just got my date for this and rang the ward to ask if I needed to have someone come with me or if I needed escorting home afterwards. Got a very surly nurse. She said in a very amazed voice 'No, you can come alone.'. Like I had asked a pathetic question. Then I said 'do I need someone to take me
Cathy777
in
NRAS
8 years ago
Taking Ibuprofen with Ibrutinib?? Is it OK?
FLAIR trail: One month on from end of 6 month
Rituximab
treatment. Taking 2/3 dose of Ibrutinib due to muscle pain problems. Now unfortunately I am still suffering severe muscle and joint pains from time time, ( Leg, back, knee...) bad enough to stop me being able to drive or walk for 2 or 3 days.
FLAIR trail: One month on from end of 6 month
Rituximab
treatment. Taking 2/3 dose of Ibrutinib due to muscle pain problems. Now unfortunately I am still suffering severe muscle and joint pains from time time, ( Leg, back, knee...) bad enough to stop me being able to drive or walk for 2 or 3 days.
romarin
in
CLL Support
8 years ago
Back pain
Had my 5/6
rituximab
infusion in April. Â Woke up today and my back was in agony, lumbar area is horrendous, Â now on ibuprofen, cocodamol and diazepam. Â No injury, lifting or anything. Anyone else had any back pain post infusion? Â It's listed as a side effect.Â
Had my 5/6
rituximab
infusion in April. Â Woke up today and my back was in agony, lumbar area is horrendous, Â now on ibuprofen, cocodamol and diazepam. Â No injury, lifting or anything. Anyone else had any back pain post infusion? Â It's listed as a side effect.Â
Llinos
in
Vasculitis UK
8 years ago
1
...
88
89
90
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1014 results
NRAS
563 results
Vasculitis UK
327 results
View top 10 communities
Sort by
Most Relevant
Newest