Well. How do l start!
After 17 years of working and living with SLE plus other associating conditions, it looks like l have to give up on my job! I love my job and it helps me psychologically as well as having a work life balance. However, since January 2016, l have not felt better since a very bad Lupus flare. The pain left me immobile: Wow, it was the worst!
I am currently on long term sick leave and it is not likely that I can return to work. Maybe I should not be complaining as I have had the chance to work for 17 years and I am well aware most of us are unable to work with an SLE diagnosis.
However, I need your help.
My dears, l tried my best but for once I feel defeated temporarily. I went through all the alternatives to continue being employed: Went from full time to part time, Flexible working, Access to Work Assessments, Working from home. etc etc, and l have very supportive employers.
Even with the excellent treatment, my determination and positive attitude, this damned Lupus flare is holding me tight and wants to hug me even closer and cherish me as a friend. I really do not want to be its friend (Don't we all) However, it can be very persistent and clingy! I say that, because, since January 2016, even though l have been with, the most effective Lupus Team, on Rituximab infusions, high dose steroids plus other medications and it is still upsetting my life! A truly unwanted friend!
How dare lupus! If I could eliminate lupus by every painful process ever imagined on this earth I would!
Now back to my work issue.
I feel so disappointed with the current phase I am in. I never thought the possibility of losing my job will cause me such agony. I have been kept awake thinking about what other options to take and about my plan B and C when I feel much better.
I would have been off sick for a year come January 2017 and I am wondering what next?
Do I take a redundancy offer? Which is not favourable in the amount being offered. The only good aspect with the redundancy route is that I could find another job when I am much better. I am a very young 50.
Looks like I might be taking the route of a medical retirement if my circumstances does not improve.
I am wondering what are the processes of a medical retirement?
Any advice please if you have information or have been through it.
Also especially in this climate, this is the wrong time to be applying for benefits and all its associated stress. I am so angry and perplexed at this monumental decision before me. I feel so lost and uncertain about the future.
I know others have been through making this life changing decision and I will be very grateful to know how they coped during this difficult period of their life and any information on medical retirement and your experiences.
How dare Lupus!
Yes, how dare you LUPUS! I was once a very cute babe (l still am though) and loved high heels, loved matching them with my outfits. Now l line them on my staircase and smile because one day I will wear them! So far l find every alternative not to let lupus defeat my fashion sense and life.
I have every kind of wig for my nice cute bald head. Got a major shock this week when a really nice guy told me my wig was falling off! imagine! (He was real cute as well) I was in the midst of a hot flush and did not even notice! However, I will soon get some strong elastic bands to fix that! As well as how to ventilate my scalp. Perhaps a nice flower hair accessory that actually works like a fan. Oh dear!
I think I am ranting on now....
Hoping to hear from you pals soon.
I wish you all a very good day