Experiences with

Rituximab

Hi all just a quick update on me - I'm in europe starting cycle 13 of venetoclax on my ven plus obinutuzimab phase1b trial at Barts for relapsed and refractory patients. Still commuting every 3 months from Australja for my one day Appt and to collect my Venetoclax but just found out my bone marrow results

Glad to report that after finishing 6 rounds of F C R and waiting 6 weeks to have bone marrow tested and CT scans done, I have been told I am in molecular remission for my CLL.. Happy days are here again. Keep a positive attitude and G d willing I live many more years

Andrew Roberts from a discussion we had about the new data on Venetoclax used in combination with Rituximab for relapsed refractory CLL. You can find the interview on our front page. On Saturday, October 29th I will be in San Francisco, CA.

Hi, does anyone know if it's ok to have yakult or actively while taking methotrexate and Rituximab infusions please? x

Any unmutated IGVH fellow CLLers out there ever do FCR as frontline? I ask please for responses to this direct question...not commentary on the topic in general. Thanks!

Has anyone had Rituximab for GPA and Denosumab for osterpororis ? What I want to know is are they compatible ? Has anyone experienced side effects?

Wondered peoples thought's on Rituximab ? reading about it has really spooked me and am in the not sure what to do stage ! I had a BCC after being on Humira so that's putting me off as well I know drugs act differently from person to person but any thoughts greatly appreciated.

So my doctor thought it would be fun for me to lower my diagnose of Rituximab from 2,400 ml to 400ml I'm scare it's not gonna work has anyone else had this done before

just completed round 1 of FCR ,and so far so good!! The only worry is low phosphate levels? Anyone else had this and any problems associated with this , as far as I understand it could be kidney related?

Hi everyone! This site has been an amazing resource for us this year; a place of expert information; a comforting hug when worried ; an agony aunt off load page as well as a chance to meet new friends! @Bellabee and I have had a little sisterhood on line relationship going on where we have kept

He is currently on prednisolone, sulfasalazine, gabapentin, hydroxychloroquine and rituximab infusions (quarterly). He was on methotrexate but it did not agree with him. He is constantly tired, has headaches, tummy and joint aches.

A week ago today I dressed up in my lovely blue dress and new polka dress shoes and went for my final day trip to the Phoenix Unit Sunderland for a bit of Fcr. The chair was comfortable and the nurse warm and reassuring...I was on an unatural high! Very excitable ! I told everyone it was my last

I have now had 4 cycles of FCR and although my hair is thinning a lot (fortunately I had very thick hair to start with) , I haven't actually lost it. However, I have very painful patches on my scalp & wondered if anyone has any remedies for this.

Hi guys its been a while since i popped in so i thought i would just say hi to everyone & because its now December - Merry Christmas! I had FCR a while back and other than normal fatigue i have a pretty healthy life and good remission. I work full time and my job is quite demanding as im in management

As you may know, my husband went through 6 treatments FCR ending December 2015 after 4 1/2 years W&W. Came through it like a champ, had BMB late August this year. Got the news that the results couldn't look better from his CLL specialist and then about 6 weeks ago felt a lump in his neck again after

Then start in nov immunotherapy rituximab intravenous. Dr is great and he is giving low doses and slowly introducing all treatments as we do not want kidney issues and all those other issues from so many of those darn leukemia cells dying etc.

Hi all, My sister has churg Strauss and on 4monthly infusions of rituximab. who has just been diagnosed with bilateral enlarged ovarian veins or pelvic venous congestive? Apparently this is another rare condition. Has anyone else experienced or had this?

Has anyone experienced the rituximab becoming less effective over time? Thank you

Sept 16th. 2nd infusion Rituximab. 4th cycle. As usual followed by cough... antibiotics... cough cleared. Oct 9th. Cough again... one huge cough pulled/tore muscle in back. Pain went off the register but short lived. Pain only happens when I cough.

(After 6 months of Rituximab and 8 months on Ib which was stopped due to painful side effects) My last check up about 3 weeks ago; my blood results remained normal. Doctors very pleased. Me too.