Search
Search
About
Log in
Join
Experiences with
Rituximab
Posts
Communities
2,525 public posts
Filter results
About to start FCR
I'm about to start FCR after almost 5 years of watch and wait. Anyone been through it? Any advice?
I'm about to start FCR after almost 5 years of watch and wait. Anyone been through it? Any advice?
Kenn123
in
CLL Support
8 years ago
Shingles with CLL
Hi all Has anyone had shingles post FCR. Ive had it for a week now and just finished a course of Aciclivor 800mgs 5 x a day. Spread of the rash is continuing although slower. Anyone have any idea how long this painful virus lasts and any advice for dos and donts thanks.
Hi all Has anyone had shingles post FCR. Ive had it for a week now and just finished a course of Aciclivor 800mgs 5 x a day. Spread of the rash is continuing although slower. Anyone have any idea how long this painful virus lasts and any advice for dos and donts thanks.
Mick491
in
CLL Support
8 years ago
Rashes during chemo
Hello, My father has CLL for about 15 years now and had first round of chemo with bentamustine &
rituximab
2 years ago when his WBC went too high. In Sept. 2015, his WBC went up again and his platelets dropped. His doctor ordered to have another chemo again with the same chemo cocktail.
Hello, My father has CLL for about 15 years now and had first round of chemo with bentamustine &
rituximab
2 years ago when his WBC went too high. In Sept. 2015, his WBC went up again and his platelets dropped. His doctor ordered to have another chemo again with the same chemo cocktail.
yccymj
in
CLL Support
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
life insurance
, but more interestingly if I was taking any of the following:- adalimumab, azathioprine, entercept, infliximab. lefumonide( is being considered by consultant) or
rituximab
.. now is this is because these are the drugs that increase health/ mortality risk as they carry their own risks, or do they think
, but more interestingly if I was taking any of the following:- adalimumab, azathioprine, entercept, infliximab. lefumonide( is being considered by consultant) or
rituximab
.. now is this is because these are the drugs that increase health/ mortality risk as they carry their own risks, or do they think
summer32
in
NRAS
8 years ago
RA and fibromyalga and PIP
My rheumy suggested trying to keep active but as I cannot walk now (apart from a few steps) I cant exercise so I am really struggling and the weight is piling on due to permanent steroids and steroid infusion after a bad reaction to
Rituximab
.
My rheumy suggested trying to keep active but as I cannot walk now (apart from a few steps) I cant exercise so I am really struggling and the weight is piling on due to permanent steroids and steroid infusion after a bad reaction to
Rituximab
.
dmc12
in
NRAS
8 years ago
FCR vs imbruvica first line
I was wondering what people's opinion was for FCR vs imbruvica first line for moderate risk (unmutated, +Zap70, normal FISH for me) patients. With my genetics, I should expect a average response ~5 years with FCR which is the recommended standard treatment per current guidelines. I feel
I was wondering what people's opinion was for FCR vs imbruvica first line for moderate risk (unmutated, +Zap70, normal FISH for me) patients. With my genetics, I should expect a average response ~5 years with FCR which is the recommended standard treatment per current guidelines. I feel
nkferg
in
CLL Support
8 years ago
Update
Well I went to hospital and my nurse agreed to put me on
rituximab
.i just have to wait for finding and an infusion date . I'm so happy as I'm banking on this to work .Please God it does .
Well I went to hospital and my nurse agreed to put me on
rituximab
.i just have to wait for finding and an infusion date . I'm so happy as I'm banking on this to work .Please God it does .
Fifi2
in
NRAS
8 years ago
Low dose naltrexone for alcohol cravings intefere with Anca positive MPA vasculitis treatment?
Using low dose naltrexone 50mg to curb alcohol cravings after going through a course of
rituximab
and currently taking prednisilone 25mg. Is this going to screw with my treatments?
Using low dose naltrexone 50mg to curb alcohol cravings after going through a course of
rituximab
and currently taking prednisilone 25mg. Is this going to screw with my treatments?
alcoman
in
Vasculitis UK
8 years ago
Shingles and methotrexate
This is the 3rd. time I have had shingles over the last few years and guess it is due to the fact that I am immunosuppressed due to
rituximab
. Know not to take metho when on antibiotics, but does the same apply to antivirals? GP didn't know!
This is the 3rd. time I have had shingles over the last few years and guess it is due to the fact that I am immunosuppressed due to
rituximab
. Know not to take metho when on antibiotics, but does the same apply to antivirals? GP didn't know!
Scorer
in
NRAS
8 years ago
Pneumonian prevention
Hi all Over the last 7 winters i have had either full blown pneumonia or severe chest infections requiring hospitalisation. I was treated with FCR in 2010/11 and managed 5 treatments. At my last appiontment i told my consultant of my concerns for this winter and he has given me 3 months of antibiotics
Hi all Over the last 7 winters i have had either full blown pneumonia or severe chest infections requiring hospitalisation. I was treated with FCR in 2010/11 and managed 5 treatments. At my last appiontment i told my consultant of my concerns for this winter and he has given me 3 months of antibiotics
Mick491
in
CLL Support
8 years ago
FCR-neutrophils
My blood was taken last Friday 9 days post
Rituximab
and my neuts were at 0.1. Injected a course of G-CSF over Fri/Sat/Sun and blood taken again today. Results WBC 0.7, neuts still 0.1!..Anybody kindly have any advice as to how long they will possibly flat line before coming up? Best regards Jack
My blood was taken last Friday 9 days post
Rituximab
and my neuts were at 0.1. Injected a course of G-CSF over Fri/Sat/Sun and blood taken again today. Results WBC 0.7, neuts still 0.1!..Anybody kindly have any advice as to how long they will possibly flat line before coming up? Best regards Jack
jackhammer
in
CLL Support
8 years ago
6-month post FCR
I'm a little late posting this- as I had no choice but to go back to work which has been EXHAUSTING!!! My Oncologist is happy with my blood levels so he released me to go back 8/1- I'm obviously very happy that my levels are good. Unfortunately, the chemo caused other issues (according to my neurologist
I'm a little late posting this- as I had no choice but to go back to work which has been EXHAUSTING!!! My Oncologist is happy with my blood levels so he released me to go back 8/1- I'm obviously very happy that my levels are good. Unfortunately, the chemo caused other issues (according to my neurologist
rlyndecker
in
CLL Support
8 years ago
Blotches and Red Blood spots
Hi I'm on the Flair Trial I had my first of 6 treatments of
Rituximab
along with Ibrutinib and have been well apart from having Blood spots and getting a red blotch like sunburn on my cheek ,I see my specialist soon and have my next dose of Retuximab next week just hoping those symptoms are common thanks
Hi I'm on the Flair Trial I had my first of 6 treatments of
Rituximab
along with Ibrutinib and have been well apart from having Blood spots and getting a red blotch like sunburn on my cheek ,I see my specialist soon and have my next dose of Retuximab next week just hoping those symptoms are common thanks
Chuddie48
in
CLL Support
8 years ago
tocilizumab for gpa?
hi all, my wife was diagnosed with gpa almost five years ago which seems to be rumbling on and has been refused funding for
rituximab
but has been told she can have tocilizumab. have any of you had treatment with this drug for small and medium vessel vasculitis and with what results as most of the
hi all, my wife was diagnosed with gpa almost five years ago which seems to be rumbling on and has been refused funding for
rituximab
but has been told she can have tocilizumab. have any of you had treatment with this drug for small and medium vessel vasculitis and with what results as most of the
roobub
in
Vasculitis UK
8 years ago
Waiting time for another round of Rituximab
Not posted for a while as been well since my 3rd cycle of
Rituximab
last July ( should have been May but hospital messed me around and was quite unwell by the time finally booked in!!!).
Not posted for a while as been well since my 3rd cycle of
Rituximab
last July ( should have been May but hospital messed me around and was quite unwell by the time finally booked in!!!).
lisalockit
in
NRAS
8 years ago
Chest Pain
Hi all, I've been diagnosed with GPA for nearly a year now, currently in remission (thanks to
rituximab
) but have been experiencing a real tightness in my chest which comes and goes.
Hi all, I've been diagnosed with GPA for nearly a year now, currently in remission (thanks to
rituximab
) but have been experiencing a real tightness in my chest which comes and goes.
Marcus1988
in
Vasculitis UK
8 years ago
Problem
Whould therapy
Rituximab
might bee too risky for me of any help?(one kydney and other comorbiditet)My Haematologist previosly recomanded Endoxanplus Prednisolon,but I have refused the totoxity concerns.I have asked about Bendamustin and was told it is not aviable .What now?
Whould therapy
Rituximab
might bee too risky for me of any help?(one kydney and other comorbiditet)My Haematologist previosly recomanded Endoxanplus Prednisolon,but I have refused the totoxity concerns.I have asked about Bendamustin and was told it is not aviable .What now?
Name-1
in
CLL Support
8 years ago
End of FLAIR. No more Ibrutinib. Great improvement!
I have been on FLAIR trail since November 2015, finished
Rituximab
end of March. Suffered side effect from Ibrutinib of severe muscle and joint pains. Despite reducing the dosage to the minimum these continued. So debilitating that eventually it was decided to stop the Ibrutinib completely.
I have been on FLAIR trail since November 2015, finished
Rituximab
end of March. Suffered side effect from Ibrutinib of severe muscle and joint pains. Despite reducing the dosage to the minimum these continued. So debilitating that eventually it was decided to stop the Ibrutinib completely.
romarin
in
CLL Support
8 years ago
Rituximab
I had another
Rituximab
infusion yesterday which went well. A little tired and a couple of odd hot flushes later in the evening. The funny thing was one side of my face was red hot and the other side cool, chest red hot but fine today. Anyone else had odd symptoms after
Rituximab
.
I had another
Rituximab
infusion yesterday which went well. A little tired and a couple of odd hot flushes later in the evening. The funny thing was one side of my face was red hot and the other side cool, chest red hot but fine today. Anyone else had odd symptoms after
Rituximab
.
Hidden
in
Vasculitis UK
8 years ago
Can anyone help
Hi I'm a newbie I have had non Hodgkin's lymphoma 2004, 2013, 2015 I am now nearly half way through a
rituximab
maintenance programme and have noticed how much weight I seem to be putting on around my middle and cannot shift it no matter what I do. it's really starting to affect my mental health.
Hi I'm a newbie I have had non Hodgkin's lymphoma 2004, 2013, 2015 I am now nearly half way through a
rituximab
maintenance programme and have noticed how much weight I seem to be putting on around my middle and cannot shift it no matter what I do. it's really starting to affect my mental health.
Ladyjay56
in
The Australian Sjögren's Syndrome Association
8 years ago
1
...
87
88
89
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1017 results
NRAS
566 results
Vasculitis UK
329 results
View top 10 communities
Sort by
Most Relevant
Newest