Hello, I've had ITP since Feb 2012, this now my 3rd spell of it. first time I had 7 (probably had been lower but my symptoms were easing by time they checked!), I responded ok ish to steroids and after 9 months was discharged. By July 13 is was back, with a count of 27, (not as bad as some I know!), and was straight back on steroids, but this time I got steroid induced type diabetes, so was rushed of them and put on rituximab. Thankfully diabetes has gone, but I am now susceptible apparently.
On Friday after nearly 3 years my platelets decided they would vanish again, down to 10. A 3 hour nose bleed a trip to a&e, and haematologist later, I'm on a short emergency course of steroids. After 4 days I'm up to 32! But as my body really doesn't like steroids I'm going try nplate.
I try not to worry about my itp to much, there is not much I can do about, it's the life I have now. But my question is....is there any exercise regime anyone does that helps, without tiring you too much? And is there any diets anyone has other than low sugar and fat?
Hope you are all well, and thank you in advance