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Chronic itp
platelet counts but that never stopped her from doing anything she was much active than most of the normal platelet count ppl but since last nov she is having blood stools later she is also diagonised with piles she became very very serious she was un ucu she was given IVIG, wysolone steriods, revolade ,
rituximab
platelet counts but that never stopped her from doing anything she was much active than most of the normal platelet count ppl but since last nov she is having blood stools later she is also diagonised with piles she became very very serious she was un ucu she was given IVIG, wysolone steriods, revolade ,
rituximab
sreea_dey90
in
ITP Support Association
6 years ago
Update: No FCR, we will start Ibrutinib
Just got back from the CLL specialist to who we went for the second opinion. Background: 146k WBC, bone marrow showed 14p only, swollen lymph nodes and enlarged spleen, 68 years old. The doctor suggested FCR will be most efficient but due to the age we will try Ibrutinib (which is a relief since I
Just got back from the CLL specialist to who we went for the second opinion. Background: 146k WBC, bone marrow showed 14p only, swollen lymph nodes and enlarged spleen, 68 years old. The doctor suggested FCR will be most efficient but due to the age we will try Ibrutinib (which is a relief since I
paula_dae
in
CLL Support
6 years ago
CAR T-Cell Developments in Lymphoma Dr. Ian Flinn Highlights
In follicular lymphoma, one of the key updates is the RELEVANCE study that compared
rituximab
(Rituxan) and chemotherapy with
rituximab
and lenalidomide (Revlimid; R2). This study was a large, international trial.
In follicular lymphoma, one of the key updates is the RELEVANCE study that compared
rituximab
(Rituxan) and chemotherapy with
rituximab
and lenalidomide (Revlimid; R2). This study was a large, international trial.
lankisterguy
Volunteer
in
CLL Support
6 years ago
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Help confidence so low
I have been on steroids now for 2 years and my dose changes all the time plus every three months I have injections and
rituximab
infusion. A couple of months ago I was put on beta blockers and now pregabalin.
I have been on steroids now for 2 years and my dose changes all the time plus every three months I have injections and
rituximab
infusion. A couple of months ago I was put on beta blockers and now pregabalin.
LSurtees
3kg
in
Weight Loss Support
6 years ago
Weight Gain
I have been on steroids now for 2 years and my dose changes all the time plus every three months I have injections and
rituximab
infusion. A couple of months ago I was put on beta blockers and now pregabalin.
I have been on steroids now for 2 years and my dose changes all the time plus every three months I have injections and
rituximab
infusion. A couple of months ago I was put on beta blockers and now pregabalin.
LSurtees
in
LUPUS UK
6 years ago
Possible food poisoning when on rituximab
My worry is should I call the doctor because of
rituximab
or give it 48 hours . The gp isn’t taking calls unless it’s an emergency as low on staff in summer as you don’t get ill then LOL . Anyone have advice or similar experience , i am trying to drink fluids 🤢
My worry is should I call the doctor because of
rituximab
or give it 48 hours . The gp isn’t taking calls unless it’s an emergency as low on staff in summer as you don’t get ill then LOL . Anyone have advice or similar experience , i am trying to drink fluids 🤢
weathervane
in
LUPUS UK
6 years ago
FCR, WHAT IS THE AGE LIMIT FOR FCR OR IS IT MORE ABOUT FITNESS
I am 71 years of age and was diagnosed with MGUS 22 years ago, this progressed to CLL in July this year. I have had a FISH test and have been recommended for the FLAIR trail. FCR is one Arm of the trial so am I right to assume that my age is not an issue? I am pretty fit and do not have any co-morbidity
I am 71 years of age and was diagnosed with MGUS 22 years ago, this progressed to CLL in July this year. I have had a FISH test and have been recommended for the FLAIR trail. FCR is one Arm of the trial so am I right to assume that my age is not an issue? I am pretty fit and do not have any co-morbidity
BasTel
in
CLL Support
6 years ago
Healing words please
I have tried every medication out there and nothing seems to work for my RA 😭 I had a
Rituximab
infusion which worked and I was symptom free for four years! Then I had my second infusion and it didn’t work!
I have tried every medication out there and nothing seems to work for my RA 😭 I had a
Rituximab
infusion which worked and I was symptom free for four years! Then I had my second infusion and it didn’t work!
EmLem89
in
NRAS
6 years ago
50 yr old son had 6 cycles of FCR in 2017. In complete remission over a year. Recent wbc and platelets way down. What is happening?
Back to onco-hemo dr in 2weeks. BWB biopsy will be needed if counts do not go up. Son feels fine. Any thoughts?
Back to onco-hemo dr in 2weeks. BWB biopsy will be needed if counts do not go up. Son feels fine. Any thoughts?
jumper23
in
CLL Support
6 years ago
Rituximab infusion
X (The photo, btw, is the
rituximab
monoclonal antibody)
X (The photo, btw, is the
rituximab
monoclonal antibody)
Jarden_20
in
NRAS
6 years ago
Systemic therapy - FCR: Day One
Chemo was way too eventful today. For the first treatment the nurses give the iv chemo slowly over a period of hours so that they can monitor for any allergic reactions...well, I ended up having an allergic reaction to it so they stopped and gave me Benadryl and steroids to help calm my body down. It
Chemo was way too eventful today. For the first treatment the nurses give the iv chemo slowly over a period of hours so that they can monitor for any allergic reactions...well, I ended up having an allergic reaction to it so they stopped and gave me Benadryl and steroids to help calm my body down. It
Famburt
in
CLL Support
6 years ago
Antiphospholipid Syndrome: The Risk of Travel at High Altitudes
Figure 1 Figure 1 She was subsequently treated with anticoagulation in addition to plasmapheresis and
rituximab
. However, the question of prior symptoms then arose: Was her initial abdominal pain actually mesenteric ischemia? Could this have been prevented?
Figure 1 Figure 1 She was subsequently treated with anticoagulation in addition to plasmapheresis and
rituximab
. However, the question of prior symptoms then arose: Was her initial abdominal pain actually mesenteric ischemia? Could this have been prevented?
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Rituximab immunology
Has anyone else been on
Rituximab
and had to change? If so what did you change to? I've been on infliximab and Humira previously. Can someone just give me a slap and tell me to stop worrying haha 🤣🤣
Has anyone else been on
Rituximab
and had to change? If so what did you change to? I've been on infliximab and Humira previously. Can someone just give me a slap and tell me to stop worrying haha 🤣🤣
purplecats
in
NRAS
6 years ago
28 Days on Ibrutinib
Yesterday was exactly 4 weeks since beginning Ibrutinib for my leukaemia. It’s a journey I should have started many months before I did. But previous NHS England guidelines of preventing those having been in remission following chemotherapy for more than 3 years from being treated with this drug saw
Yesterday was exactly 4 weeks since beginning Ibrutinib for my leukaemia. It’s a journey I should have started many months before I did. But previous NHS England guidelines of preventing those having been in remission following chemotherapy for more than 3 years from being treated with this drug saw
Mick491
in
CLL Support
6 years ago
Can a SLL patient become CLL?
Was wondering if an SLL can turn into CLL? would that mean it’s invasive? My WBC have always been within the normal range except when I did that FCR treatment they went down to 1. They are presently at 3.9 the highest they have ever been since March of 2014!
Was wondering if an SLL can turn into CLL? would that mean it’s invasive? My WBC have always been within the normal range except when I did that FCR treatment they went down to 1. They are presently at 3.9 the highest they have ever been since March of 2014!
Lola69
in
CLL Support
6 years ago
Rituximab infusion
Hi all, I got a letter yesterday telling me to attend hospital for the first of 2 infusions of
Rituximab
next Saturday i have read the leaflet but just wondered if any fellow sufferers had anything to offer as am still not totally sure what to expect. Kindest Regards
Hi all, I got a letter yesterday telling me to attend hospital for the first of 2 infusions of
Rituximab
next Saturday i have read the leaflet but just wondered if any fellow sufferers had anything to offer as am still not totally sure what to expect. Kindest Regards
phil_54
in
NRAS
6 years ago
MRD Results.
MRD results are in after 3 rounds of FCR. I am wondering if any other members of this group achieved MRD after partial treatment and what your MRD numbers were. I achieved a 1% according to my Dr. any info would be greatly appreciated. Thanks in advance
MRD results are in after 3 rounds of FCR. I am wondering if any other members of this group achieved MRD after partial treatment and what your MRD numbers were. I achieved a 1% according to my Dr. any info would be greatly appreciated. Thanks in advance
BEN61
in
CLL America Support
6 years ago
Fcr round 4 icthing
Bad Icthing with fcr only at round 4 , itch all night Bath in morning soothes it
Bad Icthing with fcr only at round 4 , itch all night Bath in morning soothes it
Jsk1950
in
CLL Support
6 years ago
Two years after stopping Ibrutinib muscle pains getting worse
Two years ago I stopped Flair trial of Ibrutinib and
Rituximab
and have been doing pretty well since then.
Two years ago I stopped Flair trial of Ibrutinib and
Rituximab
and have been doing pretty well since then.
romarin
in
CLL Support
6 years ago
Test Results FCR- Remission!
Very happy to say that my BMB showed no signs of any CLL ! After 3 rounds of FCR, I am finished with treatment. I am hoping I have a long remission. I see my oncologist next month for check up then hopefully back to routine blood work. Will keep port in thru the winter. Hopefully get thru the next
Very happy to say that my BMB showed no signs of any CLL ! After 3 rounds of FCR, I am finished with treatment. I am hoping I have a long remission. I see my oncologist next month for check up then hopefully back to routine blood work. Will keep port in thru the winter. Hopefully get thru the next
GMa27
in
CLL Support
6 years ago
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