Experiences with

Rituximab

I finished 4 rounds of Rituxan for B-cell NHL about 45 days ago. Overall I feel amazing! Thanks for asking. What's weird is what's happening on my skin. I have blisters popping up on my right arm, chest, and now one on my scalp. The ones on my arm and hand jumped up quickly and disappeared just as fast

Hello all, I'm Bill from Canada and I just wanted to vent and to ask what everyone thought about what's going on with my cll. To share a bit of history about my condition, I had FCR 5 years ago and after the 3 treatment I got very sick and this lead me to throwing out my back. To this today, I had fractures

That's the name of the drug the consultant has recommended to the transplant team one of the side effects shows it attacks my immune system and can cause infections if that's the case then I wont be getting this. Has anyone used this drug so I can get some feedback. Mattcass

one of the side effects of Rituximab is pins and needles My main gripe at the moment is my hip .ive had pain for over a year now and most days walking is very painful.

Food for thought. https://www.nyp.org/amazingadvances/clinical-innovations/rethinking-therapeutic-and-diagnostic-approaches-for-vasculitis My doctor, Robert Spiera 👍

Hi all, finally completed my Rituximab/Truxima infusions, I should have had my 2nd infusion 2 weeks ago but sadly our niece passed away so we had her funeral to go to, she was only 37, it certainly makes you think of your own motality, I'll do my best to be as cheerful as her.

Hello everyone I completed FCR in January and now enjoying what I hope will be a long remission. Bone marrow test had no detectable CLL and my doctor has said this result is the best possible outcome of treatment. My health has been good since treatment but at the beginning of June I caught a nasty

My father was just at his CLL appointment with a specialist here in Vancouver, BC and we were advised that targeted therapies like Ibrutnib are not approved in Canada unless you are 17p deleted. What are members in Canada using a front line treatment? Is it all just FCR even if you unmutated? Is Ibrutnib

Hi was diagnosed 10 years ago on watch and waiting... 2 months ago I had hemolytic anemia now ok after prednisone,but treatment on horizon.I am unmuteted no 17p only good one 13qI live I Ontario and this qualifies me for treatment with Imbruvica I am 67 years in good health otherwise.My onc feels that

However, rituximab may be associated with significant risks (eg, infectious complications), and clinicians are advised to monitor patients closely.

After being hospitalised for an infection due to using Cimzia for 5 years, I have been given the choice of having Rituximab or Baricitinib, and thinking of favouring Baricitinib as it is not a biological drug.

Hi Sweetcandy. I have had two infusions of this Biologic drug and have not experienced any adverse side effects. In the past I have suffered with chronic anxiety and worked on a support helpline for people with this dreadful problem. We tend to get in to a "fear of fear" situation and find it difficult

I got really bad anxiety and depression approximately 2 months after my rituximab infusions. I don't know if this is as a result of the infusions as I got an informational pamphlet about rituximab and it mentioned mood changes and to tell your rheumy. But my rheumy says it's not from that.

I only had one negative reaction - the very first cycle - to the rituximab with a slightly increased temp which was managed by stopping, then restarting the infusion at a slower rate.

As none of the medication I have previously tried had been effective my specialist is recommending we try Rituximab or Belimumab next, has anyone had positive experiences of these?

U-MRD6 = Undetectable-Minimal Residual Disease (U-MRD6) (10-6 sensitivity) Discussion The majority of pts with BM U-MRD4 after first-line FCR were MRD6+ and these patients had shorter PFS; MRD analysis with a more sensitive assay may therefore more accurately assign prognosis. Not accounting for

I thought I would let you all know how my fcr is going hopefully to give those that are soon to be starting treatment some encouragement . I am currently at my treatment centre just about to be plugged in to start my 3 rd course, I will be honest the first course wasn’t great but I think that was due

I was given Rituximab as part of my treatment which might have helped offset it until 2015, but acquired ITP is suspected as a possible side-effect of chemo, so the other components of the treatment probably did that.

Have so far tried cimzia, humira, Benepali, rituximab and tox infusions - some worked for a short while, some not at all. I have been on prednisolone since I was diagnosed at varying doses - sometimes as low as 1mg a day but currently on 10mg daily and haven’t been below 5 in a couple of years.

This trial is comparing ibrutinib alongside rituximab with fludarabine, cyclophosphamide, rituximab and venetoclax for chronic lymphocytic leukaemia. This trial is for people who haven’t yet had treatment for their chronic lymphocytic leukaemia (CLL). The CLLSA supports this research.