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Truxima (Rituximab) Desperate for some hope and others experiences
Hi I've not posted on here since the early years of RA. I am now at a point of desperation because I feel I'm never going to get better. RA has taken over my life and I'm not coping. I've tried several treatments over the last 3 years and none of them have worked. I had my first infusion of Truxima on
Hi I've not posted on here since the early years of RA. I am now at a point of desperation because I feel I'm never going to get better. RA has taken over my life and I'm not coping. I've tried several treatments over the last 3 years and none of them have worked. I had my first infusion of Truxima on
SARAHG
in
NRAS
5 years ago
Treatments for C3G
These drugs include: o Glucocorticoids (corticosteroids, steroids) o
Rituximab
o Cyclophosphamide o Mycophenolate mofetil (MMF) o Tacrolimus o Sirolimus o Azathioprine
• Plasma exchange (plasmapheresis):
Plasma
These drugs include: o Glucocorticoids (corticosteroids, steroids) o
Rituximab
o Cyclophosphamide o Mycophenolate mofetil (MMF) o Tacrolimus o Sirolimus o Azathioprine
• Plasma exchange (plasmapheresis):
Plasma
DavidF_NKF
Administrator
in
C3 Glomerulopathy
5 years ago
Flare up
Hi I’ve posted recently about
rituximab
, I had it about 4/5 weeks ago my first infusion people have said stick with it try not to get a steroid shot because I won’t know if the
rituximab
is working, I literally couldn’t get out of bed for at least half hour today all my joints are kicking of goodo nightmare
Hi I’ve posted recently about
rituximab
, I had it about 4/5 weeks ago my first infusion people have said stick with it try not to get a steroid shot because I won’t know if the
rituximab
is working, I literally couldn’t get out of bed for at least half hour today all my joints are kicking of goodo nightmare
Vonnie10
in
NRAS
6 years ago
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Chemo Finished
At long last my final cycle of FCR has been completed, and looking back on the last six months it has been a pretty eventful journey, but I will say to all of you that are about to begin FCR treatment and those already mid treatment I do believe it has been a journey worth taking. The low points passing
At long last my final cycle of FCR has been completed, and looking back on the last six months it has been a pretty eventful journey, but I will say to all of you that are about to begin FCR treatment and those already mid treatment I do believe it has been a journey worth taking. The low points passing
dandelup
in
CLL Support
5 years ago
Anyone had change in ANA pattern? Mine gone from homogenous to negative to speckled
It’s been negative all this year then last week was positive again (despite high dose steroids, immunosuppressants and
rituximab
which I had thought was the cause of it being negative) but showed a speckled rather than homogenous pattern.
It’s been negative all this year then last week was positive again (despite high dose steroids, immunosuppressants and
rituximab
which I had thought was the cause of it being negative) but showed a speckled rather than homogenous pattern.
Melba1
in
LUPUS UK
5 years ago
4 Strikes (Biologics) and You're Out
After the replacements I was then put on
Rituximab
infusions for a few months and this didn't help. My feet and ankles started to get inflamed and walking started to get difficult. I was then put onto Orencia which I have been on for the last 6 months which hasn't helped.
After the replacements I was then put on
Rituximab
infusions for a few months and this didn't help. My feet and ankles started to get inflamed and walking started to get difficult. I was then put onto Orencia which I have been on for the last 6 months which hasn't helped.
Dingaan
in
NRAS
5 years ago
Breaking news form ASH conference: looks like Ibrutinib May be better than FCR for some patients
Standard Fludarabine, Cyclophosphamide, and
Rituximab
(FCR) Chemoimmunotherapy in Untreated Younger Patients with Chronic Lymphocytic Leukemia (CLL) | #leusm ash.confex.com/ash/2018/webpr…
Standard Fludarabine, Cyclophosphamide, and
Rituximab
(FCR) Chemoimmunotherapy in Untreated Younger Patients with Chronic Lymphocytic Leukemia (CLL) | #leusm ash.confex.com/ash/2018/webpr…
Newchallnge
in
CLL Support
6 years ago
Late breaking CLL abstract at ASH 2018 (FCR vs IR for untreated younger patients)
https://ash.confex.com/ash/2018/webprogram/Paper120779.html CONCLUSIONS: The combination of ibrutinib and
rituximab
provides superior PFS and OS relative to FCR for patients with previously untreated CLL age ≤70.
https://ash.confex.com/ash/2018/webprogram/Paper120779.html CONCLUSIONS: The combination of ibrutinib and
rituximab
provides superior PFS and OS relative to FCR for patients with previously untreated CLL age ≤70.
avzuclav
in
CLL Support
6 years ago
Kimsome
Hello all of my CLL friends!! Happy New Year as well!! So, I was diagnosed with CLL in 2010 when I was 45 year old woman. Went through aggressive chemo, FCR. In my case the sickness now supposedly in remission but continued to make me critically ill even when it was over. If fact, I was in and out
Hello all of my CLL friends!! Happy New Year as well!! So, I was diagnosed with CLL in 2010 when I was 45 year old woman. Went through aggressive chemo, FCR. In my case the sickness now supposedly in remission but continued to make me critically ill even when it was over. If fact, I was in and out
Kimsome
in
CLL Support
5 years ago
Last cycle of FCR next week
I am on the Flair trial am now approaching my last lot of FCR. When signing up to Flair given the choice FCR would have been my last choice of treatment, but on reflection although it has been tough, I am glad it’s the arm I was given. My haematologist told me that it is still regarded as the gold standard
I am on the Flair trial am now approaching my last lot of FCR. When signing up to Flair given the choice FCR would have been my last choice of treatment, but on reflection although it has been tough, I am glad it’s the arm I was given. My haematologist told me that it is still regarded as the gold standard
dandelup
in
CLL Support
5 years ago
When do you get answers...
on top, now another round of
rituximab
.
on top, now another round of
rituximab
.
MOOG144
in
LUPUS UK
6 years ago
Flu like symptoms
Hi just need some sort of help really I had
rituximab
my first ever infusion my last one was about three weeks ago, I feel like I’ve got flu like symptoms but I never get the flu my imflamation in my wrist as goneworst I’m sleeping loads but always tired,I feel so unwell zero energy , I should say I
Hi just need some sort of help really I had
rituximab
my first ever infusion my last one was about three weeks ago, I feel like I’ve got flu like symptoms but I never get the flu my imflamation in my wrist as goneworst I’m sleeping loads but always tired,I feel so unwell zero energy , I should say I
Vonnie10
in
NRAS
6 years ago
Pneumonia injection
I need advice please on having the pneumonia injection 3 month after
Rituximab
I was diagnosed with GPA 5 years ago I had the pneumonia jab then so am due for another one After 5 years of not feeling well I am now starting to feel normal so don’t want to rock the boat I had forgotten how feeling
I need advice please on having the pneumonia injection 3 month after
Rituximab
I was diagnosed with GPA 5 years ago I had the pneumonia jab then so am due for another one After 5 years of not feeling well I am now starting to feel normal so don’t want to rock the boat I had forgotten how feeling
102637
in
Vasculitis UK
6 years ago
Transformation of CLL into prolymphocytic leukaemia
My chemo immuno therapy of Bendamustin and
Rituximab
scheduled to start on Nov 10, 2018 has to be kept on hold. as my Hb is oscillating between 9 and 10 from last 2 months.
My chemo immuno therapy of Bendamustin and
Rituximab
scheduled to start on Nov 10, 2018 has to be kept on hold. as my Hb is oscillating between 9 and 10 from last 2 months.
venk_46
in
CLL America Support
6 years ago
Flu jab
Can I have the flu jab whilst having
rituximab
infusions?
Can I have the flu jab whilst having
rituximab
infusions?
Peterborough67
in
NRAS
6 years ago
Rituximab/Rituxan Side Effects
Here's what I read: "Call your doctor at once if you have any of these other side effects, even if they occur several months after you receive
rituximab
, or after your treatment ends.
Here's what I read: "Call your doctor at once if you have any of these other side effects, even if they occur several months after you receive
rituximab
, or after your treatment ends.
TigerM
in
Non Hodgkin's Lymphoma Friends
6 years ago
Live vaccines
I have lupus and APS with medication including methotrexate and
rituximab
. I’m waiting to hear back about this from rheumatologist but wondered if others have had advice / experience if live vaccines
I have lupus and APS with medication including methotrexate and
rituximab
. I’m waiting to hear back about this from rheumatologist but wondered if others have had advice / experience if live vaccines
Pickzie
in
LUPUS UK
6 years ago
FCR or BR proposed for second round of treatment in London
Diagnosed end of 2013. FLAIR trail Nov 2015 – June 2016 stopped due to severe muscle pain. (See previous posts) Now need more treatment. Moved up partly because I also need a hip replacement and they can’t do it with my low immunity. So I am now being offered FCR or BR. A year or so ago I was told there
Diagnosed end of 2013. FLAIR trail Nov 2015 – June 2016 stopped due to severe muscle pain. (See previous posts) Now need more treatment. Moved up partly because I also need a hip replacement and they can’t do it with my low immunity. So I am now being offered FCR or BR. A year or so ago I was told there
romarin
in
CLL Support
5 years ago
Negative nancy
Hi I hate been negative Nancy but since I started
rituximab
I’ve had stomachs pain right in the upper middle is it a side effect of the drug ? Just a dull ache 😖
Hi I hate been negative Nancy but since I started
rituximab
I’ve had stomachs pain right in the upper middle is it a side effect of the drug ? Just a dull ache 😖
Vonnie10
in
NRAS
6 years ago
Rituximab
Hi I had my first infusion today I’ve got a head ache and pain in my stomachedoes this pass , I was good having the infusion part from a little light headed I think that was the piriton infusion, just these pains and headache, hope it passes.
Hi I had my first infusion today I’ve got a head ache and pain in my stomachedoes this pass , I was good having the infusion part from a little light headed I think that was the piriton infusion, just these pains and headache, hope it passes.
Vonnie10
in
NRAS
6 years ago
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