Anyone with WG?
I was diagnosed in 2016; 2 years into retirement. Previously I was fit and healthy with never a day off sick. I had pneumonia and was hospitalised for 1 month before they knew what the problem was. Now I have to wear hearing aides due to fluid in the ears, I have constantly blocked up nose, am breathless on the slightest exertion and am nothing like I used to be. I come under rhuematology, renal, respiratory, ENT and the appointment system is very stressful. I had a ‘flare up’ in Dec 2018, had treatment with rituximab in hospital. I’m interested in what treatments others have had and their effects. I get depressed and angry at having this incurable disease and although having to adjust myself to it have not accepted its presence. What are your experiences? I live in the southwest