Experiences with

Respiratory tract infections (RTIs)

hi, I was diagnosed with SLE in 2022 and have had positive and negative antibody results since this time but my most recent test came back as equivocal which is a first for me. I’m on Benlysta monthly infusions which has massively dampened down my symptoms. Has anyone had this equivocal result and could

I’ve always suffered with joint pain and back pain. I had a steroid injection on 16th September and over the weekend my lower back pain has come back with avengence. How long are steroid injections meant to ease your pain? Is this normal for it to have worn off already

The FDA recently granted an emergency use authorization for a new Covid prophylactic for the immunocompromised. It's called Pemgarda and it is administered intravenously. It's like the former Evusheld in that it gives us antibodies (which is great for those of us who don't respond well to Covid vaccines

I had a bad cough and chest infection for a few weeks then started get very put of breath and my heart racing , I was sent to the hospital and admitted and after a long while was told that I had viral/covid cardiomyopathy, I have never had problems with my heart , I had been discharged and had to wait

With post "frozen shoulder" issues, I am still having shoulder pain (more of an issue at night in bed). I Am on Hydrea (1000mg daily) - anybody knows if receiving steroid injections for the pain could cause a problem for immune system?. (HU + Steroid = both lower immune system responses? - The way I

I spoke to my GP yesterday, I was having a steroid injection in my knee. He had obviously been looking at my records, as he asked how I was getting on with Momelotinib. He asked if I’d had the autumn flu and covid vaccinations. I informed him I wanted to have my blood test before having a jab so I would

I just tested positive for COVID for the first time. I am 67 with Afib/flutter, Inappropriate SinnTschycardia,, I take 25 mg of Metoprolol and -25 mg of klonopin for anxiety. I take 81 mg of aspirin. I have the Atriclip that occluded my left atrial appendage, as I had a near fatal hemorrhage with Eliquis

Thank you for your replies, I spoke to my rheumy nurse and it looks like I am one of the rare few people who has had a reaction to the drug and instead of helping it has made my phsoriatic arthritis worse. I have taken the fortnightly injections for 15 weeks and suffered thinking it was just bad side

I had right total knee replacement surgery on 17th September so just over 2 weeks post op now. I was really scared beforehand especially with having to stop Baracitinib a week before. I know everyone is different but I feel so lucky. So far I’ve managed the pain with paracetamol and codiene. I was offered

I am going away with 2 friends, both who know my infertility journey and struggles with TTC. (PCOS, 18months TTC, 2 cycles of Letrozole for ovulation induction which I haven’t responded to). We would all talk about being on maternity leave together, our future babies etc and are all very close friends

Hi everyone, I am writing to ask if you can have a sore thyroid without significant enlargement and with 'normal' bloods? I have had 'normal' bloods, it doesn't seem visually enlarged, though I feel like I am being strangled and have audible sounds when I swallow in my ears. When I move my head something

I thought I would share with you my experience of a cough due to ramipril in case it helps someone else as I didn’t believe it would cause such an awful cough. I was prescribed ramipril after having a HA in July last years. No side effects at all. I got an awful cold in November which also came with

I went to my local private hospital this morning where I was first diagnosed with copd nearly 10 years ago, I got to see the new chest specialist within 20 minutes. After a long talk I had a xray that she compared it to one that I had 6 years ago, and there was hardly any noticeable difference. She said

Be aware of the childhood desease HF&M. My 2 year old grand twins caught HF&M last year.Unfortunately I caught it from them & it was a nightmare. Because of the thickness of my skin due to SS, the spots & sores could not break out on the surface of my skin. They errupted below the skin on my hands

Following months of repeated eye infections, I have now been diagnosed with dry eyes, and drops certainly seem to be helping. However I came across an article on Sjorgren syndrome,. The list of symptoms include dry mouth, IBS, dry eyes, dry skin, joint problems, all of which I suffer from. I also get

I suspect I have endometriosis after years of painful periods, painful sex and occasional bloating. My symptoms were menstruation specific. The last 2 years I have been almost been symptom free (for some unknown reason) but since Feb I have been having the classic tugging pain from my upper abdomen down

Hello, my husband had an appointment with the Rheumatology nurse today. He is on tocilizumab but has had to have half dose as his liver blood results are too high. It is not as effective and he is developing problems with his hands. He is seeing the physiotherapist and an steroid injection was discussed

I've been on an increased dose of prednisolone since August last year. I've started reducing since January (tried before with a flare-up). I also use a steroid inhaler for asthma (and rinse afterwards). I have frequent problems with oral thrush. Unfortunately the stuff that seemed to work best - the

Is it okay to have a covid booster whilst on Prednisone.? I am currently tapering and on 5 mg at the moment.

After pneumonia my ra took a turn for the worse. Could a medicine change help