back pain - steroid injection : I’ve always... - Behçet's UK

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back pain - steroid injection

Welsh92 profile image
7 Replies

I’ve always suffered with joint pain and back pain. I had a steroid injection on 16th September and over the weekend my lower back pain has come back with avengence.

How long are steroid injections meant to ease your pain? Is this normal for it to have worn off already

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Welsh92 profile image
Welsh92
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7 Replies
Aerobobcat profile image
Aerobobcat

Hi Welsh92, as a rule I stopped replying to unlocked posts. However there are many topics that I can identify with, steroid back injections are something I have experienced on 4 occasions now.

I have mentioned my experiences in my own posts including my appointment with the London COE.

Specifically the back injections have never lasted more than 3 weeks, but they gave me a level of relief and normality that preceded all my disabilities and gave a feeling of normality.

Have a look at my posts for a better understanding of how Behcets and blood cancer have affected me.

In the meantime I wish you well and hope you can find some lasting relief from your symptoms.

My regards

Aerobobcat

Welsh92 profile image
Welsh92 in reply toAerobobcat

Thank you ever so much for your response I do appreciate it.

I’ll take a look! That’s how I felt, for the first two weeks it gave me so relief and normality to the point I was able to walk my dog and do things with my children, however now it’s worn off I feel I need something longer lasting. I suppose I was being nice thinking it would last longer.

Aerobobcat profile image
Aerobobcat in reply toWelsh92

Yes, that’s how I felt on every occasion, euphoric fantastic. My last procedure was nerve denervation I was led to believe that I would get a year or more relief.

However the procedure did not take account of my diagnosed Spondylolisthesis, which is a fractured vertebrae and forward slip.

I was left in back extension and agony throughout the procedure and just made things worse with no follow up appointments.

Welsh92 profile image
Welsh92 in reply toAerobobcat

Oh gosh I’m so sorry to hear about that, that must have been absolutely awful for you to have gone through. That is one thing I’m worried about, if they don’t look at the whole picture and how much damage they can do. I’m going to seek advice from my GP tomorrow regarding my back pain and fortunately he has studied immunology so I’m hoping he may be more understanding of what I’m suffering with and can then advise properly

Aerobobcat profile image
Aerobobcat in reply toWelsh92

Hi again. I would be interested to know if your back pain and any other joint pain has been blamed on your Behcets.

The situation for me now after more than 40 years of joint and muscle pain which was always blamed on my Behcets.

More recently a Rheumatologist has claimed that all my joint issues are down to osteoarthritis and in his words I have not had Behcets for decades.

Have you ever been told your joint problems are nothing to do with Behcets?

Welsh92 profile image
Welsh92 in reply toAerobobcat

At the moment I’m still undergoing “possibly Behçet’s although… I have all of the symptoms genital ulcers mouth ulcers etc and everything else has been ruled out. Physio have said it’s because of Behçet’s, most GPs and prior rheumatologist put it down to fibro however I haven’t had a recent MRI or scan on my back and it’s definitely not never pain, it’s deeper than that, I can literally feel my spine and my hips/pelvic area and they are always so hot to touch when they get like this. I have wondered what sort of scan would show something, I’m not sure whether it would be MRI or dexa bone scan? Just found out my GP appointment is cancelled until another week 🙄🙄

Aerobobcat profile image
Aerobobcat in reply toWelsh92

Yes I now recall your earlier post about awaiting a diagnosis, but your symptoms very much fit the Behcets criteria especially the ulcer symptoms.

I hope you will soon get a proper diagnosis and treatment for all your symptoms especially your back as I know just how debilitating it can be.

Take care

Aerobobcat

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