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7 weeks on and a million questions sorry
hi and good morning all, well I’m 7 weeks after icu ventilation and I have a million questions I’m hoping people could shed some light on so I don’t dr google everything and think I have every illness known to man!! I was on ventilation for 9 days in icu and I still have health issues popping up here
hi and good morning all, well I’m 7 weeks after icu ventilation and I have a million questions I’m hoping people could shed some light on so I don’t dr google everything and think I have every illness known to man!! I was on ventilation for 9 days in icu and I still have health issues popping up here
Alfiedude99
in
ICUsteps
10 months ago
Sore mouth and tongue with GCA
Quick question....anybody else experience a sore tongue and roof of mouth and gums with GCA? Along with mild numbness on lip and cheek area and the usual temporal headaches and scalp sensitivity?
Quick question....anybody else experience a sore tongue and roof of mouth and gums with GCA? Along with mild numbness on lip and cheek area and the usual temporal headaches and scalp sensitivity?
Bummed24
in
PMRGCAuk
2 months ago
Sacral Insufficiency Fractures
Hi, I've just joined this online community, which feels like a good start! I was diagnosed with sacral insufficiency fractures following a scan in February of this year. My symptoms - excruciating pain and limited mobility - started in September 2022 only 3 months after the finish of my pelvic radiotherapy
Hi, I've just joined this online community, which feels like a good start! I was diagnosed with sacral insufficiency fractures following a scan in February of this year. My symptoms - excruciating pain and limited mobility - started in September 2022 only 3 months after the finish of my pelvic radiotherapy
Poir
in
Pelvic Radiation Disease Association
10 months ago
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Fissure or fistula
For the last few weeks I have been getting stabbing pains up the rear exit. Like I sat on a needle!! I used to suffer a lot with piles but not bled for about a year now. But today after large bm I bled! What concerns me is I should be having a camera look at my bladder on Saturday under local anaesthetic
For the last few weeks I have been getting stabbing pains up the rear exit. Like I sat on a needle!! I used to suffer a lot with piles but not bled for about a year now. But today after large bm I bled! What concerns me is I should be having a camera look at my bladder on Saturday under local anaesthetic
Edgar77
in
IBS Network
11 months ago
I didn’t know if I’d be able to come back…..
Hello It’s been months since I posted to all the lovely supportive people here. I’m very sorry but I couldn’t face it as I had an injury, which a physio said meant that I might not be able to run again. I was devastated. But the amazing news is after nearly 4 months of not running I started very slowly
Hello It’s been months since I posted to all the lovely supportive people here. I’m very sorry but I couldn’t face it as I had an injury, which a physio said meant that I might not be able to run again. I was devastated. But the amazing news is after nearly 4 months of not running I started very slowly
LindySearle
Graduate10
in
Bridge to 10K
10 months ago
Back and hips - is this a Flare??
Hi wonderful people, When I first had PMR and at each previous flare, the pain has been across my shoulders and down the backs of my legs. I am currently feeling it badly in my lower back and pelvic girdle and am not sure if it is a flare or summat else. I am somewhat stressed and know that this
Hi wonderful people, When I first had PMR and at each previous flare, the pain has been across my shoulders and down the backs of my legs. I am currently feeling it badly in my lower back and pelvic girdle and am not sure if it is a flare or summat else. I am somewhat stressed and know that this
MDT1
in
PMRGCAuk
10 months ago
Edinburgh Endo Clinic
Hello! Just wondering if anyone has been on a loooong waiting list to be seen by an Endo specialist for the first time since diagnosis? Currently, it's an 80-week waiting time in Edinburgh. I know there is an option to go privately but I am just totally shocked that someone has to suffer from pain etc
Hello! Just wondering if anyone has been on a loooong waiting list to be seen by an Endo specialist for the first time since diagnosis? Currently, it's an 80-week waiting time in Edinburgh. I know there is an option to go privately but I am just totally shocked that someone has to suffer from pain etc
Axolotl23
in
Endometriosis UK
10 months ago
My Ckd journey
Hi my name is Dineshwaran.i was diagnosed with kidney failure in year 2003 when I was 19.was on dialysis for two years and did transplant on 2005. Donated by my cousin.it was a perfect match until 2017 where my sugar level was very high. Was on all type of medication and insulin but didn't came down
Hi my name is Dineshwaran.i was diagnosed with kidney failure in year 2003 when I was 19.was on dialysis for two years and did transplant on 2005. Donated by my cousin.it was a perfect match until 2017 where my sugar level was very high. Was on all type of medication and insulin but didn't came down
Dineshwaran
in
Kidney Dialysis
7 months ago
SIBO/IMO investigations
Hello, community. I have a putative diagnosis of SIBO-IMO and would like to know of other people's recent experience of SIBO testing /investigations. Thank you. I'm new to this forum but have been on HU for many years. I have Lupus, Raynaud's, Erythromelalgia; IBS-c and Muscular Dystrophy (FSHD-1
Hello, community. I have a putative diagnosis of SIBO-IMO and would like to know of other people's recent experience of SIBO testing /investigations. Thank you. I'm new to this forum but have been on HU for many years. I have Lupus, Raynaud's, Erythromelalgia; IBS-c and Muscular Dystrophy (FSHD-1
skylark15
in
IBS Network
11 months ago
Rectal pain??
Over the years I’ve found ways to cope by managing my diet, but over the past few months I’ve been starting to experience intense
rectal
pain
at night.
Over the years I’ve found ways to cope by managing my diet, but over the past few months I’ve been starting to experience intense
rectal
pain
at night.
Big_Tuna
in
IBS Network
2 years ago
Laparoscopy found nothing - symptoms all point to endometriosis
I don’t suppose anyone has been in the same situation as me and can help? I have suffered from a range of issues from 15 with periods; bleeding and pain with intercourse, severe leg pain, always bleeding/spotting outside of periods, bad period pains, UTI like symptoms and odd bowel movements around
I don’t suppose anyone has been in the same situation as me and can help? I have suffered from a range of issues from 15 with periods; bleeding and pain with intercourse, severe leg pain, always bleeding/spotting outside of periods, bad period pains, UTI like symptoms and odd bowel movements around
puddl0503
in
Endometriosis UK
10 months ago
Endo on the bladder
Anyone else have the bladder and bowel endo? Willing to try anything, for any kind of relief. I have endo on and going into my bladder and now also effecting my bowel. It's triggered normally about day 3 of my period and last for a good 3 weeks. The first few days I just have to be near a toilet, when
Anyone else have the bladder and bowel endo? Willing to try anything, for any kind of relief. I have endo on and going into my bladder and now also effecting my bowel. It's triggered normally about day 3 of my period and last for a good 3 weeks. The first few days I just have to be near a toilet, when
Country-Girl100
in
Endometriosis UK
10 months ago
arthritis
having cervicogenic headaches from arthritis in neck. Any painkillers better than paracetamol that we can safely take? Thanks again.
having cervicogenic headaches from arthritis in neck. Any painkillers better than paracetamol that we can safely take? Thanks again.
Lindaj754
in
AF Association
10 months ago
How to deal with side effect of hot flashes and feeling hot all the time from pain meds?
How do you deal with the side effect of hot flashes and feeling hot all the time that is being caused from your pain medicine or antidepressants used for pain? I take Tramadol at the highest dosage everyday for my severe nerve pain from CRPS because it's the only thing that works for me. However it makes
How do you deal with the side effect of hot flashes and feeling hot all the time that is being caused from your pain medicine or antidepressants used for pain? I take Tramadol at the highest dosage everyday for my severe nerve pain from CRPS because it's the only thing that works for me. However it makes
Hidden
in
Neuro Support
10 months ago
How to deal with side effects of feeling hot from pain meds and antidepressants for pain?
How do you deal with the side effect of feeling hot all the time and having hot flashes that are caused from your pain medicine or your antidepressant used for pain? I take Tramadol at the highest dosage for my severe nerve pain from CRPS because it's the only thing that works for me however I find that
How do you deal with the side effect of feeling hot all the time and having hot flashes that are caused from your pain medicine or your antidepressant used for pain? I take Tramadol at the highest dosage for my severe nerve pain from CRPS because it's the only thing that works for me however I find that
Hidden
in
Neuropathy Support
10 months ago
RSV and Flare
hi everyone, I seem to be in the wars a bit at the moment and need some advice: - diagnosed PMR and RA April 23 - dosage of 30mg pred and 20 mg methotrexate - gradually reduced pred to 10.5 as per Rhumetologist instructions - had a flare in calf muscles, increased pred to 12.5 - travelled to NYC
hi everyone, I seem to be in the wars a bit at the moment and need some advice: - diagnosed PMR and RA April 23 - dosage of 30mg pred and 20 mg methotrexate - gradually reduced pred to 10.5 as per Rhumetologist instructions - had a flare in calf muscles, increased pred to 12.5 - travelled to NYC
MegfromOz
in
PMRGCAuk
10 months ago
compressed vertebrae, i asked dr about stronger pain medication and they said no -- i wonder why?
Mum's got probably vertebral pain, is on an otc pain tablet, plus a step up from that, the prescription version. a dr friend of mine said she should be on something stronger like oxycodone. i asked specialist if Mum could have a stronger pain medication, and was told no. why's that? maybe cause elderly
Mum's got probably vertebral pain, is on an otc pain tablet, plus a step up from that, the prescription version. a dr friend of mine said she should be on something stronger like oxycodone. i asked specialist if Mum could have a stronger pain medication, and was told no. why's that? maybe cause elderly
MayGodBlessYou
in
Bone Health and Osteoporosis UK
10 months ago
looking for a neurologist
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
etchea33
in
Restless Legs Syndrome
7 months ago
Adenomyosis/Endometriosis Pain Management
Hi All, Just looking for a bit of advice. I was diagnosed with Adenomyosis and Fibroids at 38. Its only been a year and a half but Im struggling hugely. I am very depressed and cant motivate myself day to day. I have constant pain in my lower abdomen, tailbone and Left bum. My pain has progressed
Hi All, Just looking for a bit of advice. I was diagnosed with Adenomyosis and Fibroids at 38. Its only been a year and a half but Im struggling hugely. I am very depressed and cant motivate myself day to day. I have constant pain in my lower abdomen, tailbone and Left bum. My pain has progressed
ABFr23
in
Endometriosis UK
11 months ago
pain in knee
pain in knee and body the answer is green lipped mussel extract works for me better than new knee helps fm pain to
pain in knee and body the answer is green lipped mussel extract works for me better than new knee helps fm pain to
Eastwood1
in
Pain Concern
1 year ago
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