Good evening,
Yesterday, Nov 16, 2023, was the one year anniversary for my kidney transplant. Cindy (my donor kidney named after my good friend who helped me decide to pursue transplant eligibility testing) has been a trooper this year. She has soldiered forward without faltering as we’ve battled very low white blood cell counts (from early February through late July) and four rounds of CMV (from May to date).
Current renal function:
Creatinine range: .72 to .75
eGFR: 85.8 to 90.1
WBC count 4.86 to 5.89
CMV (new treatment plan for current recurrence): <35 to “not detected”
Electrolytes in average range
Mild anemia (11.3 to 11.6)
My new CMV treatment plan is working. I’ve been pulled off Myfortic. They have increased Prograf by .5mg daily. No antiviral medication. They are relying on my immune system to generate the specific T cells needed to respond to CMV. They’ve tested my T cell response rate. In short, my body does generate T cells in response to CMV, I.e., both the CD4 T cell which scouts out CMV and the CD8 T cell which combats CMV. This data together with the renal panels drawn over the past six weeks which show a very different CMV progression (much better) than the past three rounds of CMV, have convinced my doctors that my body is effectively combatting CMV using my own immune system. They expect this will continue.
So, Cindy has remained strong throughout all of this. I feel like I’m emerging from the wilderness and rejoining civilization.
I’m thankful but also deeply committed to the importance of self-advocacy. My doctors would not have tried this new treatment plan without my push for them to do something different.
That’s my one year anniversary update. I thank this forum for its continuous support throughout this past year and before. It would be impossible for me to overstate how beneficial that has been.💕
Jayhawker
How do you cope with In center Hemodialysis 
Hello I'm Joey's mom, yes newbie here
New lease on life
