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UPCOMING ONLINE SUPPORT GROUPS
WE HAVE A NEW ROUND OF GROUPS STARTING UP THIS MONTH
Surgery Support - Tuesday 19th March 7-8pm (weekly for 8 weeks)
Genetic Mutation Support - Wednesday 20th March 6.30-7.30pm (weekly for 8 weeks)
Carers Group - Friday 22nd March 10-11am (ongoing fortnightly)
WE HAVE A NEW ROUND OF GROUPS STARTING UP THIS MONTH
Surgery Support - Tuesday 19th March 7-8pm (weekly for 8 weeks)
Genetic Mutation Support - Wednesday 20th March 6.30-7.30pm (weekly for 8 weeks)
Carers Group - Friday 22nd March 10-11am (ongoing fortnightly)
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
4 months ago
Community Guidelines (updated 2024)
The minimum age will now be 18 years in order to comply with the new legislation from the Information Commissioner's Office In general please post what you feel to be useful, accurate and constructive information or questions related to Asthma. It is impossible for Asthma and Lung UK (ALUK), or HealthUnlocked
The minimum age will now be 18 years in order to comply with the new legislation from the Information Commissioner's Office In general please post what you feel to be useful, accurate and constructive information or questions related to Asthma. It is impossible for Asthma and Lung UK (ALUK), or HealthUnlocked
Holly_ALUK
Asthma Nurse
in
Asthma Community Forum
4 months ago
Respite from the fight
My beloved is snoring beside me: a sound I wasn’t sure I’d get to hear again. He’s spent the last two years “living” in the recliner in the living room. Pneumonia 3 times: a collapsed lung, likely from one of a series of falls last spring. On oxygen PRN since June 2023. Surgery to stretch the right
My beloved is snoring beside me: a sound I wasn’t sure I’d get to hear again. He’s spent the last two years “living” in the recliner in the living room. Pneumonia 3 times: a collapsed lung, likely from one of a series of falls last spring. On oxygen PRN since June 2023. Surgery to stretch the right
Cateydid
in
Advanced Prostate Cancer
4 months ago
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feeling a little lost
Apologies in advance for the long post but if anyone can offer any advice I’d appreciate it! I was admitted into hospital 2 years ago for what was suspected appendicitis. I had a lap to have it removed and once inside they seen cysts and endo which was what was the cause of the pain nothing to do with
Apologies in advance for the long post but if anyone can offer any advice I’d appreciate it! I was admitted into hospital 2 years ago for what was suspected appendicitis. I had a lap to have it removed and once inside they seen cysts and endo which was what was the cause of the pain nothing to do with
Sarahjayne511
in
Endometriosis UK
4 months ago
Anyone else had BC change from E+ to triple negative?
I've never heard of anyone having this happen so I'm just wondering if anyone else has had it happen. I have lobular bc that was diagnosed at stage IV 20 years ago and have done well in treatment but have more side effects now and while my long survival got me way passed the initial fears, I feel so
I've never heard of anyone having this happen so I'm just wondering if anyone else has had it happen. I have lobular bc that was diagnosed at stage IV 20 years ago and have done well in treatment but have more side effects now and while my long survival got me way passed the initial fears, I feel so
PJBinMI
in
SHARE Metastatic Breast Cancer
4 months ago
Grade 4 endometriosis in Pouch of Douglas
Hello everyone I am new here and have joined for advice and support , as you all know endometriosis can make you feel very isolated and alone at times. I have had issues with pain and heavy periods since I was 11 years old , with so many appointments back and forth to GPs and different Gynea departments
Hello everyone I am new here and have joined for advice and support , as you all know endometriosis can make you feel very isolated and alone at times. I have had issues with pain and heavy periods since I was 11 years old , with so many appointments back and forth to GPs and different Gynea departments
SRD91
in
Endometriosis UK
4 months ago
post-op incisions
Hi everyone, I had surgery (ovarian cystectomy & excision of endometriosis) on 18/02/24 One of my wounds seems to be open. I feel ‘fobbed off’ by doctors who state it will close on its own. Did anyone else’s incisions look like this? Did they heal okay? Also, my belly button scab has now fallen
Hi everyone, I had surgery (ovarian cystectomy & excision of endometriosis) on 18/02/24 One of my wounds seems to be open. I feel ‘fobbed off’ by doctors who state it will close on its own. Did anyone else’s incisions look like this? Did they heal okay? Also, my belly button scab has now fallen
sxnam
in
Endometriosis UK
4 months ago
Travelling to Sheffield tomorrow for my mini maze
At long last I am finally having my mini maze with Mr Steven Hunter on Thursday. Travelling to Sheffield tomorrow, admission at 2pm on Wednesday for surgery on Thursday. My daughter and son in law are taking me and staying in Sheffield while I am in hospital. I am nervous and excited all at the same
At long last I am finally having my mini maze with Mr Steven Hunter on Thursday. Travelling to Sheffield tomorrow, admission at 2pm on Wednesday for surgery on Thursday. My daughter and son in law are taking me and staying in Sheffield while I am in hospital. I am nervous and excited all at the same
Mrsvemb
in
Atrial Fibrillation Support
4 months ago
Why are things so grim?
Ugh… I doubted myself recently when I went to see a consultant again. Despite having endo treated twice before, I thought ‘what if it’s not endo this time?’, ‘what if I’m wasting this person’s time?’. …anyway I’m booked in for surgery in 2.5 weeks time and can’t come soon enough. Today I started my
Ugh… I doubted myself recently when I went to see a consultant again. Despite having endo treated twice before, I thought ‘what if it’s not endo this time?’, ‘what if I’m wasting this person’s time?’. …anyway I’m booked in for surgery in 2.5 weeks time and can’t come soon enough. Today I started my
endotheline
in
Endometriosis UK
4 months ago
Recent surgery surprise!
Hello everyone, I wanted to give an update on my situation, as I have been posting on here with 101 questions over the past 3 years! I strongly believed that I had Endometriosis until recent days. I will try to summarise my situation - age 40, living in Scotland, issues for past 3 years with very
Hello everyone, I wanted to give an update on my situation, as I have been posting on here with 101 questions over the past 3 years! I strongly believed that I had Endometriosis until recent days. I will try to summarise my situation - age 40, living in Scotland, issues for past 3 years with very
Kittie5117
in
Endometriosis UK
4 months ago
Recent surgery
Hello everyone, I have been mainly posting elsewhere as I believed that I had Endometriosis until recent days. I will try to summarise my situation - age 40, living in Scotland, issues for past 3 years with very heavy period bleeding, pelvic pain. Hysteroscopy for suspected polyp, nothing found. Tried
Hello everyone, I have been mainly posting elsewhere as I believed that I had Endometriosis until recent days. I will try to summarise my situation - age 40, living in Scotland, issues for past 3 years with very heavy period bleeding, pelvic pain. Hysteroscopy for suspected polyp, nothing found. Tried
Kittie5117
in
Adenomyosis Advice Association
4 months ago
Stopping amlodipine 5mg
Hi I'm 15 months post quadruple heart bypass and doing well ,I'm on anvostatin 80mg,asprin 75mg allopurinol 300mg,amloadpine 5mg and bisoprolol 2,5mg ,just checked letter cardio surgeon sent gp saying he wanted amloadpine stopped after 6month post bypass and bisoprolol 5aken down gradually from 3.75
Hi I'm 15 months post quadruple heart bypass and doing well ,I'm on anvostatin 80mg,asprin 75mg allopurinol 300mg,amloadpine 5mg and bisoprolol 2,5mg ,just checked letter cardio surgeon sent gp saying he wanted amloadpine stopped after 6month post bypass and bisoprolol 5aken down gradually from 3.75
Charl70
in
British Heart Foundation
4 months ago
Newbie
Hi all, Newbie to running here, currently on week 3 completed 2 runs successfully . Aiming to run 5 k before having some abdominal surgery. Want to be as fit as possible to speed up my recovery.open to any help and advice for my journey Thanks
Hi all, Newbie to running here, currently on week 3 completed 2 runs successfully . Aiming to run 5 k before having some abdominal surgery. Want to be as fit as possible to speed up my recovery.open to any help and advice for my journey Thanks
KB1969
in
Couch to 5K
4 months ago
changes
Hi everyone I had my quadruple bypass back at the end of June. I did extremely well with recovery and suffered no setbacks. Now coming up to 9 months post surgery. I’m just wondering what changes people made to their diet and lifestyle following their surgery? We had/have a healthy diet anyway but
Hi everyone I had my quadruple bypass back at the end of June. I did extremely well with recovery and suffered no setbacks. Now coming up to 9 months post surgery. I’m just wondering what changes people made to their diet and lifestyle following their surgery? We had/have a healthy diet anyway but
HealthyBigHeart
in
British Heart Foundation
4 months ago
B12 prescription cancelled by pharmacist
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Willow404
in
Pernicious Anaemia Society
4 months ago
Breast Cancer in Men
I'm an 85year old male with Heart Disease Afib and now Brest Cancer. At the moment I'm on Tamoxifen to shrink the lump it appears to be working, be on it about 7 Months. There was some concern about surgery because of my age and low heart rate but that's been cleared by the Cardiologist who says just
I'm an 85year old male with Heart Disease Afib and now Brest Cancer. At the moment I'm on Tamoxifen to shrink the lump it appears to be working, be on it about 7 Months. There was some concern about surgery because of my age and low heart rate but that's been cleared by the Cardiologist who says just
Redier
in
Male Breast Cancer
4 months ago
Advice on shrinking endometrioma
Hi, I've been recently diagnosed with endo and have a large endometrioma on my ovary. I've been advised the only way to get rid of it is with surgery. However I'm weighing up whether surgery is worth it due to A) the risks of other organs being damaged and potentially losing my ovary and B) it still
Hi, I've been recently diagnosed with endo and have a large endometrioma on my ovary. I've been advised the only way to get rid of it is with surgery. However I'm weighing up whether surgery is worth it due to A) the risks of other organs being damaged and potentially losing my ovary and B) it still
SB0910
in
Endometriosis UK
4 months ago
Swap from 4mg pred
dear all I have been prescribed 10 mg hydrocortisone swapping from 4mg pred as from yesterday. things are a bit of a struggle anyway as I’m 3weeks post total reverse shoulder replacement - in a sling for another 3 weeks when more intensive physio will start. I experienced a bit of a crisis a week
dear all I have been prescribed 10 mg hydrocortisone swapping from 4mg pred as from yesterday. things are a bit of a struggle anyway as I’m 3weeks post total reverse shoulder replacement - in a sling for another 3 weeks when more intensive physio will start. I experienced a bit of a crisis a week
AnniesRyder5
in
PMRGCAuk
4 months ago
Surgery while on V + O
I finished O August 2023 and at 1 yr on Ven with 1 more year of V planned as I was treated for relapse. I also have severe Cubital Tunnel Syndrome in both elbows that has cause numbness, and weakness in the hands as well as pain that has progressed to the point of interning with almost every activity
I finished O August 2023 and at 1 yr on Ven with 1 more year of V planned as I was treated for relapse. I also have severe Cubital Tunnel Syndrome in both elbows that has cause numbness, and weakness in the hands as well as pain that has progressed to the point of interning with almost every activity
skipro
in
CLL Support
4 months ago
Fear about upcoming surgery
Good Evening all hope you are well I am having a total hysterectomy on Tuesday 12th March Suffer from endometriosis and I had fluid in my cervix that the consultant hadn't seen before. Did a hysteroscopy DNC and took a bit of my cervix away More fluid further up inside me the could not get to Sent
Good Evening all hope you are well I am having a total hysterectomy on Tuesday 12th March Suffer from endometriosis and I had fluid in my cervix that the consultant hadn't seen before. Did a hysteroscopy DNC and took a bit of my cervix away More fluid further up inside me the could not get to Sent
harryhonda25
in
Menopause and Perimenopause Support
4 months ago
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