Ugh… I doubted myself recently when I went to see a consultant again. Despite having endo treated twice before, I thought ‘what if it’s not endo this time?’, ‘what if I’m wasting this person’s time?’.
…anyway I’m booked in for surgery in 2.5 weeks time and can’t come soon enough.
Today I started my period with no notice. A complete gush. I’ve leaked twice. Wrecked two pairs of knickers. Two pairs of jeans are in the wash. And the blood is thick and almost black? Despite all my endo issues over the many years, it’s never been this bad. Any nuggets of wisdom? Pretty please? xx feeling awful tonight.
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endotheline
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Hi there. I'm so sorry you're feeling like that, but please don't ever think you're wasting anyone's time. None of what you are experiencing is 'normal' and it's very distressing (I've had the same symptoms in the past so I can understand what you're going through). Has anyone ever mentioned that you could have adenomyosis as well as endo? I didn't know I had it for years after my endo was diagnosed, but I did quite a lot of reading up after my current consultant saw it on my MRI. Adenomyosis is linked with heavy periods and clotting more than endo is. I didn't find that laparoscopy helped me with my periods problems until my second one when I had a Mirena put in during surgery and over a few months my periods stopped altogether which was such a relief. I've used the Mirena for getting on for 15 years now.
For short term relief, I used to find hot baths could help stem the flow of blood although it wasn't always pretty just getting in and out when you're bleeding so heavily. A hot water or heat pad can also be beneficial. x
Thank you so much. I’ve never even researched adenomyosis. Maybe I should! Would that show in my laparoscopy I have in two weeks’ time?
I’m so lucky that my husband is hot water bottle expert. I have one of those super long ones that I love and I’ve lost count of the number of times he’s done one for me.
I had to even get up in the night last night as felt leaking. Not what I fancied doing at 3.00 am.
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