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Radical hysterectomy
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Mother Diagnosed with Stage 4 OC, recurrence, now liver traces
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only
akhilsalwan
in
My Ovacome
5 months ago
Mother Diagnosed with Stage 4 OC - Recurrence, now Liver traces
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only to
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only to
akhilsalwan
in
OvaCare
5 months ago
High Testosterone Level
Has Anyone experienced high testosterone level along with hypothyroidism or have any ideas why I should have it. I haven't posted for a long time for various reasons and being very unwell. However reached the end of my tether with our GP practice and everything else. Getting nowhere and no life I
Has Anyone experienced high testosterone level along with hypothyroidism or have any ideas why I should have it. I haven't posted for a long time for various reasons and being very unwell. However reached the end of my tether with our GP practice and everything else. Getting nowhere and no life I
Sallybones
in
Thyroid UK
5 months ago
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Alexa
hi just seen this add on to my usual h/u log in. Well as above my name is Alexa and my journey began in 2020 when l had an unexpected bleed at the age of 74. My first surgeon didn’t take me seriously when l told him l had a post meno haemorrhage which to be blunt kept me on the loo for almost half
hi just seen this add on to my usual h/u log in. Well as above my name is Alexa and my journey began in 2020 when l had an unexpected bleed at the age of 74. My first surgeon didn’t take me seriously when l told him l had a post meno haemorrhage which to be blunt kept me on the loo for almost half
AlexaMac
in
Gynae Cancer Support
5 months ago
Consultant decided to withhold info from laparoscopy :(
Hello lovelies. I hope you don't mind me posting. I'm not actually sure what my diagnosis is. So, I have been having severe pelvic pain for 2 years and had lots of tests. In the summer i had a laparoscopy, which showed an enlarged uterus, query adenomyosis. That's all it said and that was sent to my
Hello lovelies. I hope you don't mind me posting. I'm not actually sure what my diagnosis is. So, I have been having severe pelvic pain for 2 years and had lots of tests. In the summer i had a laparoscopy, which showed an enlarged uterus, query adenomyosis. That's all it said and that was sent to my
Mindfullness4791
in
Endometriosis UK
5 months ago
Consultant decided to withhold information from laparoscopy :(
Hello lovelies. So, I have been having severe pelvic pain for 2 years and had lots of tests. In the summer i had a laparoscopy, which showed an enlarged uterus, query adenomyosis. That's all it said and that was sent to my gp.I had a scan previous to this that showed a large fibroid. When I queried this
Hello lovelies. So, I have been having severe pelvic pain for 2 years and had lots of tests. In the summer i had a laparoscopy, which showed an enlarged uterus, query adenomyosis. That's all it said and that was sent to my gp.I had a scan previous to this that showed a large fibroid. When I queried this
Mindfullness4791
in
Pelvic Pain Support Network
5 months ago
Intermediate favorable vs. unfavorable Gleason 7 acc.to 2 doctors + CLEAN PSMA, do we need third opinion +where? (Green Bay/Milwaukee areas)
Hello all~ I am writing as spokesperson and chief researcher for my husband, Steve. He is 75 and was dx'ed w/prostate cancer on 11/27 by his urologist after some months following a bad UTI and subsequent catheterization to "rest his bladder" by initial NP (whom we saw upon referral but subsequently
Hello all~ I am writing as spokesperson and chief researcher for my husband, Steve. He is 75 and was dx'ed w/prostate cancer on 11/27 by his urologist after some months following a bad UTI and subsequent catheterization to "rest his bladder" by initial NP (whom we saw upon referral but subsequently
AliceinW57
in
Prostate Cancer Network
6 months ago
B12 deficiency v. Ferritin deficiency
Hi everyone. Some of you may have come across one of my posts this week and may have interacted, but if not, hi 😊 I’ve been going through a lot of the posts on here looking for answers to my query before I post this, but haven’t seen anything that covers it. Is there anybody here that has suffered
Hi everyone. Some of you may have come across one of my posts this week and may have interacted, but if not, hi 😊 I’ve been going through a lot of the posts on here looking for answers to my query before I post this, but haven’t seen anything that covers it. Is there anybody here that has suffered
MLJ2024
in
Pernicious Anaemia Society
5 months ago
Abdominal hysterectomy pain....advice needed
Hi there, I am 5 weeks post abdominal hysterectomy. I had uterus, cervix, fallopian tubes and ovaries out and it was quite a lengthy op. I have been up and down pain wise but not more than expected, however I thought by 5 weeks it would have eased?? It is like a burning pain more on the right side
Hi there, I am 5 weeks post abdominal hysterectomy. I had uterus, cervix, fallopian tubes and ovaries out and it was quite a lengthy op. I have been up and down pain wise but not more than expected, however I thought by 5 weeks it would have eased?? It is like a burning pain more on the right side
Marypoppins54
in
Endometriosis UK
2 months ago
Waiting for laparascopic Hysterectomy but struggling with womb and bowel symptoms
Hello everyone, I hopefully have a date next month for a laparoscopic Hysterectomy - waiting for confirmation in writing. Have been waiting for nearly 2 years on NHS. I am age 40, living in Scotland. I had none of these Gynae issues until about 3 years ago. Since then, I have had heavy bleeding, cramps
Hello everyone, I hopefully have a date next month for a laparoscopic Hysterectomy - waiting for confirmation in writing. Have been waiting for nearly 2 years on NHS. I am age 40, living in Scotland. I had none of these Gynae issues until about 3 years ago. Since then, I have had heavy bleeding, cramps
Kittie5117
in
Endometriosis UK
5 months ago
7 days post and home.
Hi the next installment, I got admitted as planned and the operation went well, the surgeon had to change from keyhole to open surgery as something wasn't quite right so it took a bit longer than expected about 4hrs 30. Woke up in HDU feeling like a double decker bus had run over and to be honest I am
Hi the next installment, I got admitted as planned and the operation went well, the surgeon had to change from keyhole to open surgery as something wasn't quite right so it took a bit longer than expected about 4hrs 30. Woke up in HDU feeling like a double decker bus had run over and to be honest I am
Thanksnhs
in
British Heart Foundation
5 months ago
Overwhelmed, what do I do next? Mutations In my Germline & a Tier 1 ATM Frameshift Alteration
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Is hysterectomy my only option?
I was told 12 months ago that I have abcess near ovary and uterus, possibly due to previous infected copper coil. Have had repeated episodes of pelvic pain, hospitalisation, antibiotic treatment. Doctor has now mentioned hysterectomy. I'm waiting for a recent CT scan. Doctor has not mentioned drainage
I was told 12 months ago that I have abcess near ovary and uterus, possibly due to previous infected copper coil. Have had repeated episodes of pelvic pain, hospitalisation, antibiotic treatment. Doctor has now mentioned hysterectomy. I'm waiting for a recent CT scan. Doctor has not mentioned drainage
Hannah818
in
Pelvic Pain Support Network
5 months ago
Pelvic Pain and spotting 9+ years post hysterectomy
Hi my mum had a full hysterectomy following a diagnosis of Stage 1C clear cell OC. 6 months of Chemo followed this. Since treatment and op she has been suffering with what has been described as chronic pelvic pain ever since. She had been told she cannot go on HRT as her cancer was Clear Cell. She
Hi my mum had a full hysterectomy following a diagnosis of Stage 1C clear cell OC. 6 months of Chemo followed this. Since treatment and op she has been suffering with what has been described as chronic pelvic pain ever since. She had been told she cannot go on HRT as her cancer was Clear Cell. She
Livkatt90
in
OvaCare
5 months ago
Been on Firmagon with Zytiga and Prednisone PSA rising, what can I do next?
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Pre Op assessment
I was diagnosed in July with stage 4 endo/adeno, bilateral endometriomas and a frozen pelvis, large ovarian cysts, enlarged falopian tubes following MRI and various ultrasounds. I have been on prostrop since, while on the waiting list for surgery. Last month I received a call from the endo nurse saying
I was diagnosed in July with stage 4 endo/adeno, bilateral endometriomas and a frozen pelvis, large ovarian cysts, enlarged falopian tubes following MRI and various ultrasounds. I have been on prostrop since, while on the waiting list for surgery. Last month I received a call from the endo nurse saying
EvilEdna77
in
Endometriosis UK
5 months ago
Is there any order to when new medications or PARP inhibitor are tried?
My medical oncologist is hell bent on me doing Lu 177 pluvicto next, I was hoping to try other things first… Medical Oncologist suggested waiting for the next two months to see if PSA is still rising…and to do a pet scan Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved
My medical oncologist is hell bent on me doing Lu 177 pluvicto next, I was hoping to try other things first… Medical Oncologist suggested waiting for the next two months to see if PSA is still rising…and to do a pet scan Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved
Shorehousejam
in
Fight Prostate Cancer
6 months ago
Question, each month with rising PSA, when do I do a pet scan
Medical Oncologist suggested waiting for the next two months to see if it’s still rising… Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 currently still on these meds Docetaxel Chemotherapy on 08/11/2022
Medical Oncologist suggested waiting for the next two months to see if it’s still rising… Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 currently still on these meds Docetaxel Chemotherapy on 08/11/2022
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Adenomyosis and hysterectomy
Hi, I was diagnosed with Adenomyosis and signs of endometriosis in 2019, been on the hysterectomy waiting list for 2 years and now I’m booked for surgery on 5th March. Now it’s getting closer I’m getting nervous and would just like to hear from anyone who’s had a hysterectomy and how the recovery was
Hi, I was diagnosed with Adenomyosis and signs of endometriosis in 2019, been on the hysterectomy waiting list for 2 years and now I’m booked for surgery on 5th March. Now it’s getting closer I’m getting nervous and would just like to hear from anyone who’s had a hysterectomy and how the recovery was
Kimmi36
in
Endometriosis UK
5 months ago
ivf and endometriosis: gender selection allowed?
Hi, I’m at the stage where I’m thinking about getting a hysterectomy because I just can’t take the pain anymore. The only thing stopping me is children. However, I don’t think I could ever bring a baby girl into the world thinking she could grow up with this condition it would break my heart everyday
Hi, I’m at the stage where I’m thinking about getting a hysterectomy because I just can’t take the pain anymore. The only thing stopping me is children. However, I don’t think I could ever bring a baby girl into the world thinking she could grow up with this condition it would break my heart everyday
Wilderpeople24
in
Endometriosis UK
5 months ago
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