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Experiences with
Radical hysterectomy
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Can’t decide
I have significant stage 4 endometriosis and adenomyosis for which I’ve had multiple surgeries including two excision and removal of left ovary and both tubes. Since my last excision I’ve been in pain every day which is now much worse as the disease returns within months of surgery even when excised
I have significant stage 4 endometriosis and adenomyosis for which I’ve had multiple surgeries including two excision and removal of left ovary and both tubes. Since my last excision I’ve been in pain every day which is now much worse as the disease returns within months of surgery even when excised
Lily1986
in
Endometriosis UK
9 months ago
Bleeding for holiday
Hello everyone, I have posted on here before, in summary I am 39 years of age, on waiting list for a Hysterectomy hopefully in the coming months. My symptoms are pelvic pain and heavy bleeding, currently managed via low dose of Provera. I have tried Norethisterone but experienced side effects including
Hello everyone, I have posted on here before, in summary I am 39 years of age, on waiting list for a Hysterectomy hopefully in the coming months. My symptoms are pelvic pain and heavy bleeding, currently managed via low dose of Provera. I have tried Norethisterone but experienced side effects including
Kittie5117
in
Endometriosis UK
10 months ago
Implant brand preferences?
Hello All, I'm 53 and had a radical prostatectomy in Feb 2023 for Gleason 5+5, stage 3, positive node=1, intraductal carcinoma. Surgeon was unable to spare any nerves and I've got nothing in the area of erections. All providers have agreed I will not regain erectile function on my own, although I'll
Hello All, I'm 53 and had a radical prostatectomy in Feb 2023 for Gleason 5+5, stage 3, positive node=1, intraductal carcinoma. Surgeon was unable to spare any nerves and I've got nothing in the area of erections. All providers have agreed I will not regain erectile function on my own, although I'll
Firstglantz
in
Prostate Cancer And Gay Men
11 months ago
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Zoledronate infusions yearly for 3 years
Hi ,i am 73 years old and am looking for reassurance that what i have been advised by my rheumatologist is right for me. Zoledronate infusions I had a full hysterectomy aged 34. One fracture of ankle,foot and fibular. One chipped ankle and one hairline fracture of wrist. Did fracture my patella aged
Hi ,i am 73 years old and am looking for reassurance that what i have been advised by my rheumatologist is right for me. Zoledronate infusions I had a full hysterectomy aged 34. One fracture of ankle,foot and fibular. One chipped ankle and one hairline fracture of wrist. Did fracture my patella aged
Metalmich
in
Bone Health and Osteoporosis UK
10 months ago
Night spasms
I had a
Radical
hysterectomy
in August and once again recovered really well. No chemotherapy as Low grade serous does not respond to it but I am on Letrozole to suppress the oestrogen it can “feed” on. I feel very fortunate to have these cancers diagnosed when I had no symptoms for either.
I had a
Radical
hysterectomy
in August and once again recovered really well. No chemotherapy as Low grade serous does not respond to it but I am on Letrozole to suppress the oestrogen it can “feed” on. I feel very fortunate to have these cancers diagnosed when I had no symptoms for either.
Frinks
in
My Ovacome
2 years ago
Add back hrt with Zoladex
Hi all, just after a bit of support/others’ experiences… I had my 3rd Zoladex last week and over the last 2 weeks menopause symptoms (muscle/joint ache, severe fatigue, palpitations etc) have kicked me hard. Previously prescribed Tibolone but massive headaches middle of the night so I tried to persevere
Hi all, just after a bit of support/others’ experiences… I had my 3rd Zoladex last week and over the last 2 weeks menopause symptoms (muscle/joint ache, severe fatigue, palpitations etc) have kicked me hard. Previously prescribed Tibolone but massive headaches middle of the night so I tried to persevere
Saffie123
in
Endometriosis UK
10 months ago
Post menopause, pernicious anaemia and endometriosis
Diagnosed with endomeriosis over 15 years years ago, had Prostap injections for 6 months, with little success and opted to try Mirena Coil first before hysterectomy. Mirena was a god send for me, it was great at controlling my symptons, I've had 3 mirena coils in total. The first one for a year
Diagnosed with endomeriosis over 15 years years ago, had Prostap injections for 6 months, with little success and opted to try Mirena Coil first before hysterectomy. Mirena was a god send for me, it was great at controlling my symptons, I've had 3 mirena coils in total. The first one for a year
Fiestadrive
in
Endometriosis UK
10 months ago
Should my Thyroxine be put down?
Hello all, I've just had my latest results and my doctor has lowered my Thyroxine from 100mg to 75mg. Does that seem right? I feel very unwell and I'm putting on weight despite suffering from severe nausea, so I am definitely not over-eating. I'm 49-year-old woman who was diagnosed with an underachieve
Hello all, I've just had my latest results and my doctor has lowered my Thyroxine from 100mg to 75mg. Does that seem right? I feel very unwell and I'm putting on weight despite suffering from severe nausea, so I am definitely not over-eating. I'm 49-year-old woman who was diagnosed with an underachieve
Jojozo
in
Thyroid UK
10 months ago
Link between adhesions and ongoing abdominal pain.
Happy New year to everyone. I wonder if anyone has had a similar experience? .20 years ago after several years of abdominal pain I had a total hysterectomy. They found that my abdomen was full of violin string adhesions. I was great for a short time then I started to have intermittent abdominal pain
Happy New year to everyone. I wonder if anyone has had a similar experience? .20 years ago after several years of abdominal pain I had a total hysterectomy. They found that my abdomen was full of violin string adhesions. I was great for a short time then I started to have intermittent abdominal pain
Mrsmr
in
Endometriosis UK
7 months ago
5 Questions For The Forum Regarding CBD Products
I have heard mixed reports about CBD products and was wondering if the forum members could help determine what if any benefits you have found from the use of CBD purchased online as opposed to CBD purchased from legal medical marijuana dispensaries. Her are my questions 1. I am interested in knowing
I have heard mixed reports about CBD products and was wondering if the forum members could help determine what if any benefits you have found from the use of CBD purchased online as opposed to CBD purchased from legal medical marijuana dispensaries. Her are my questions 1. I am interested in knowing
chartist
in
Cure Parkinson's
7 months ago
Feeling so alone
I don't even know where to start after "getting better" when I was early teens from Dermatomyositis life has been pretty good I had two beautiful boys after being told I couldn't have children. Few bad choices on partners but now I have a great partner. 2 years ago I was diagnosed with fibroids but
I don't even know where to start after "getting better" when I was early teens from Dermatomyositis life has been pretty good I had two beautiful boys after being told I couldn't have children. Few bad choices on partners but now I have a great partner. 2 years ago I was diagnosed with fibroids but
Ho0lio76
in
Myositis UK
10 months ago
Had Gabapentin caused anyone’s RLS to flare or worsen??
I’ve only been on low dose gabapentin (300mg) for 10days. When it first kicks in I feel like my RLS will be under control but quit the opposite. After a few hours my RLS kicks in and has been worse these past 10 days then it was prior to starting Gabapentin. I also been getting these body jerks when
I’ve only been on low dose gabapentin (300mg) for 10days. When it first kicks in I feel like my RLS will be under control but quit the opposite. After a few hours my RLS kicks in and has been worse these past 10 days then it was prior to starting Gabapentin. I also been getting these body jerks when
Tbone87
in
Restless Legs Syndrome
7 months ago
Help! Consultant appt brought forward....
Brief background, I had my 2nd laparoscopy on 31 August. Big fibroid squashing everything and stage 4 endometriosis....couldn't do anything because fibroid taking up so much room. And worry is endo infiltration of bowels. Pouch of Douglas 'obliterated'. Doc mentioned hysterectomy which freaked me out
Brief background, I had my 2nd laparoscopy on 31 August. Big fibroid squashing everything and stage 4 endometriosis....couldn't do anything because fibroid taking up so much room. And worry is endo infiltration of bowels. Pouch of Douglas 'obliterated'. Doc mentioned hysterectomy which freaked me out
MJD1712
in
Endometriosis UK
10 months ago
Happy New Year
I'm well and coming up to first anniversary of total hysterectomy for grade 1b ovarian cancer. No treatment just 3 monthly follow ups with CA125. I am very emotional and feeling like a bit of a fraud for not just being very grateful that I am still here.Thanks
I'm well and coming up to first anniversary of total hysterectomy for grade 1b ovarian cancer. No treatment just 3 monthly follow ups with CA125. I am very emotional and feeling like a bit of a fraud for not just being very grateful that I am still here.Thanks
10Ronnies
in
My Ovacome
8 months ago
Constant pain down below and heavy feeling.
Please bare with me as this must be a common post!I have endo in uterus muscle, pouch of Douglas and on ligaments and on my bowel. Also had a 5cm endometrioma. I'm in pain most of the time from my endometrioma and bowel but used to get about 5to 7 days of less pain after my period in my other areas.
Please bare with me as this must be a common post!I have endo in uterus muscle, pouch of Douglas and on ligaments and on my bowel. Also had a 5cm endometrioma. I'm in pain most of the time from my endometrioma and bowel but used to get about 5to 7 days of less pain after my period in my other areas.
Loveneige
in
Endometriosis UK
10 months ago
horror surgery
so I’m 5 days past what was meant to be a “simple” hysterectomy. Oh no, 6 1:2 hrs and emergency surgery later to fit a stoma here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!? I can’t get my head round dealing with the stoma bag cleaning and
so I’m 5 days past what was meant to be a “simple” hysterectomy. Oh no, 6 1:2 hrs and emergency surgery later to fit a stoma here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!? I can’t get my head round dealing with the stoma bag cleaning and
MrsPaddingtonBear
in
Endometriosis UK
10 months ago
Managing post surgery expectations
I had a radical prostatectomy and lymph node dissection on 9/12 and my catheter removed on 9/22. (Surgery was successful and I received the best pathology report possible.) As I am now at the very early stages of getting urinary control back, I'm struggling to understand what might be "normal" or "expected
I had a radical prostatectomy and lymph node dissection on 9/12 and my catheter removed on 9/22. (Surgery was successful and I received the best pathology report possible.) As I am now at the very early stages of getting urinary control back, I'm struggling to understand what might be "normal" or "expected
Shopnot
in
Prostate Cancer Network
11 months ago
ART NIH Predicting the Outcome of Salvage Radiation Therapy for Recurrent Prostate Cancer After Radical Prostatectomy
Summary: Patients in this audience have had both radical prostatectomies (RP) and salvage radiation treatment (sRT) and want to know their chances of having recurrent prostate cancer. This study developed a predictive model called a nomogram that predicts the 6-year progression-free probability (PFP
Summary: Patients in this audience have had both radical prostatectomies (RP) and salvage radiation treatment (sRT) and want to know their chances of having recurrent prostate cancer. This study developed a predictive model called a nomogram that predicts the 6-year progression-free probability (PFP
RMontana
in
Active Surveillance - Prostate Cancer
11 months ago
Best apps for tracking cycle after hysterectomy
Hello all, I was wondering if anyone had any suggestions for useful apps for tracking your cycle after a hysterectomy? Back in Feb i had a hysterectomy and a small bowel resection, they left both ovaries. The recoveries not gone to plan. Was meant to be able to run/start yoga again after the 3 month
Hello all, I was wondering if anyone had any suggestions for useful apps for tracking your cycle after a hysterectomy? Back in Feb i had a hysterectomy and a small bowel resection, they left both ovaries. The recoveries not gone to plan. Was meant to be able to run/start yoga again after the 3 month
PaintToughTed
in
Endometriosis UK
10 months ago
Options?
Endometriosis formally diagnosed via laparoscopy 2023, however had no effect and still in chronic pain. Due to other medical issues can’t go on any contraceptives and HRT. Tried the Decapaptyl (GNRH) injections but bleed 24/7 with them?! Endo BGSE specialist has said there are no other options as hysterectomy
Endometriosis formally diagnosed via laparoscopy 2023, however had no effect and still in chronic pain. Due to other medical issues can’t go on any contraceptives and HRT. Tried the Decapaptyl (GNRH) injections but bleed 24/7 with them?! Endo BGSE specialist has said there are no other options as hysterectomy
Cats1311
in
Endometriosis UK
10 months ago
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