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Next NoSilverBullet webinar on 22nd of April: Dr M Sexton on “How can medical cannabis help people with Parkinson’s?”
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 22nd of April. Dr Michelle Sexton will be talking to us about “How can medical cannabis help people with Parkinson’s?” Please use the Eventbrite link below to register for
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 22nd of April. Dr Michelle Sexton will be talking to us about “How can medical cannabis help people with Parkinson’s?” Please use the Eventbrite link below to register for
Michel0220
in
Cure Parkinson's
4 months ago
Buprenorphine and Nausea
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
davchar23
in
Restless Legs Syndrome
4 months ago
Fear about upcoming surgery
Good Evening all hope you are well I am having a total hysterectomy on Tuesday 12th March Suffer from endometriosis and I had fluid in my cervix that the consultant hadn't seen before. Did a hysteroscopy DNC and took a bit of my cervix away More fluid further up inside me the could not get to Sent
Good Evening all hope you are well I am having a total hysterectomy on Tuesday 12th March Suffer from endometriosis and I had fluid in my cervix that the consultant hadn't seen before. Did a hysteroscopy DNC and took a bit of my cervix away More fluid further up inside me the could not get to Sent
harryhonda25
in
Menopause and Perimenopause Support
5 months ago
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Spotting - ovarian cancer
I have stage IIIb ovarian clear cell, and I had my first chemo infusion 10 days ago. I've just started to feel a little better after all the side effects. A worrisome new symptom has come up today (Sunday), which was a little spotting when I went pee. I had a total hysterectomy in September, and I can't
I have stage IIIb ovarian clear cell, and I had my first chemo infusion 10 days ago. I've just started to feel a little better after all the side effects. A worrisome new symptom has come up today (Sunday), which was a little spotting when I went pee. I had a total hysterectomy in September, and I can't
Susi3
in
SHARE Ovarian Cancer Support
5 months ago
Saw a specialist
I saw a specialist in endometriosis last week and it was eye opening. I had to pay for it or wait 12 months so I opted to go private. I spent over an hour with him and he was incredible. He explained everything and was very practical. I had a list of questions and he answered all of them. I already know
I saw a specialist in endometriosis last week and it was eye opening. I had to pay for it or wait 12 months so I opted to go private. I spent over an hour with him and he was incredible. He explained everything and was very practical. I had a list of questions and he answered all of them. I already know
Sunset-lady
in
Endometriosis UK
9 months ago
Medical Cannabis
I have Severe Spinal Stenosis and due to also being diagnosed with Heart Failure following a Triple Bypass and Mitral Valve Repair the only pain relief I’ve now been given is Oramorph. I’ve always looked on this as the “last resort “ for pain relief but over the last several days the pain has become
I have Severe Spinal Stenosis and due to also being diagnosed with Heart Failure following a Triple Bypass and Mitral Valve Repair the only pain relief I’ve now been given is Oramorph. I’ve always looked on this as the “last resort “ for pain relief but over the last several days the pain has become
Davewm
in
Pain Concern
5 months ago
Monthly endometriosis bleeding after hysterectomy
Hi, I'm new here, so sorry if this has been asked before. I had a hysterectomy (retaining ovaries and cervix) in June, but since August have had monthly bleeding. Pretty sure it's endometriosis, which I was only diagnosed with when the hysterectomy was undertaken. It was in my bowel and pouch of Douglas
Hi, I'm new here, so sorry if this has been asked before. I had a hysterectomy (retaining ovaries and cervix) in June, but since August have had monthly bleeding. Pretty sure it's endometriosis, which I was only diagnosed with when the hysterectomy was undertaken. It was in my bowel and pouch of Douglas
Emwb
in
Endometriosis UK
9 months ago
PSA Rising Dx 06/2022 PSA 864.42 to 01/2023 <0.06 now no longer undetectable, I won’t see DR until next month, What will the Dr do?
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Radical prostatectomy consultant in the south of England
I've been diagnosed with prostate cancer, quite aggressive with a Gleason of 9 (4+5). No spread has been detected on a CT scan and I'm due to have a NM bone whole body scan on Friday to detect any spread to the bones. Assuming there is no or little spread, I am keen to have a radical laparoscopic prostatectomy
I've been diagnosed with prostate cancer, quite aggressive with a Gleason of 9 (4+5). No spread has been detected on a CT scan and I'm due to have a NM bone whole body scan on Friday to detect any spread to the bones. Assuming there is no or little spread, I am keen to have a radical laparoscopic prostatectomy
MarkS
in
Prostate Cancer Network
9 months ago
I've been prescribed Amitriptyline for pelvic pain. Has anyone had success with this medication?
I've seen the consultant for Adenomyosis. He is referring me for an urgent mri to confirm it's Adenomyosis and listed for a hysterectomy, including my ovaries. It's an 18 month wait.So, I've been prescribed Amitriptyline and he wants me to trial Prostsap again. Which I'm nervous to do, as it was the
I've seen the consultant for Adenomyosis. He is referring me for an urgent mri to confirm it's Adenomyosis and listed for a hysterectomy, including my ovaries. It's an 18 month wait.So, I've been prescribed Amitriptyline and he wants me to trial Prostsap again. Which I'm nervous to do, as it was the
Mindfullness4791
in
Endometriosis UK
9 months ago
Almost 2 years after laparoscopy!
My consultant is sending me for a scan to see if she can see anything going on but has suggested a
radical
hysterectomy
due to the extent of my endometriosis. I have just turned 30 is there anyone else who has had a hysterectomy this young and how was it for you?
My consultant is sending me for a scan to see if she can see anything going on but has suggested a
radical
hysterectomy
due to the extent of my endometriosis. I have just turned 30 is there anyone else who has had a hysterectomy this young and how was it for you?
Bethalex
in
Endometriosis UK
1 year ago
Does tibilone get better?
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Womble84
in
Endometriosis UK
9 months ago
Post Surgery Issues
Hi All, I had a total laparoscopic hysterectomy in July and all healed well - very happy. Then the past few days the incision in my belly button has started hurting, I have a swollen belly and it feels like a UTI then I have some bleeding from my belly button and it has a red mark around it. It looks
Hi All, I had a total laparoscopic hysterectomy in July and all healed well - very happy. Then the past few days the incision in my belly button has started hurting, I have a swollen belly and it feels like a UTI then I have some bleeding from my belly button and it has a red mark around it. It looks
TJ2021
in
Endometriosis UK
9 months ago
first lap - nothing found. Please help.
Hi, I’m new here (or I’ve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
Hi, I’m new here (or I’ve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
GraceElli
in
Endometriosis UK
9 months ago
pelvic floor
Hi everyone, I hope that you are doing okay. I was wondering if anyone is also suffering with pelvic floor dysfunction as well as evil endo? I have stage 3/4 my consultant wanted me to try prostap prior to hysterectomy (I am petrified) and have not started it yet. I guess I’m wondering if anyone
Hi everyone, I hope that you are doing okay. I was wondering if anyone is also suffering with pelvic floor dysfunction as well as evil endo? I have stage 3/4 my consultant wanted me to try prostap prior to hysterectomy (I am petrified) and have not started it yet. I guess I’m wondering if anyone
Silkthrow
in
Endometriosis UK
9 months ago
Bowel pain, bleeding and colonoscopy
Hello, I am writing today for advice - I am 40 year old, waiting for a Hysterectomy in Scotland. Suspected Endometriosis due to pain and bleeding, this is being managed with Provera and transexamic acid. Anyway, the most recent problem is bleeding from my bottom. Spoke to GP and had blood tests and
Hello, I am writing today for advice - I am 40 year old, waiting for a Hysterectomy in Scotland. Suspected Endometriosis due to pain and bleeding, this is being managed with Provera and transexamic acid. Anyway, the most recent problem is bleeding from my bottom. Spoke to GP and had blood tests and
Kittie5117
in
Endometriosis UK
9 months ago
Escape from Augmentation part 2
I have been excellently helped by several forum participants in my "escape from augmentation" and am now at a stage where I need to report my story and ask another question going forward:- I would like to ask for comments on my current situation. I am writing this note having been awoken by nausea
I have been excellently helped by several forum participants in my "escape from augmentation" and am now at a stage where I need to report my story and ask another question going forward:- I would like to ask for comments on my current situation. I am writing this note having been awoken by nausea
davchar23
in
Restless Legs Syndrome
5 months ago
Abdominal ultrasound
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Loveneige
in
Endometriosis UK
9 months ago
Smear test problems
So I went for a smear on Tuesday and it was pretty awful. She couldn't find my cervix and I was bleeding (because I'm always bleeding). She tried all different sizes and had me lying on my side at one point but no joy. She said I'd have to come back in 6 weeks. Has anyone else had problems with smears
So I went for a smear on Tuesday and it was pretty awful. She couldn't find my cervix and I was bleeding (because I'm always bleeding). She tried all different sizes and had me lying on my side at one point but no joy. She said I'd have to come back in 6 weeks. Has anyone else had problems with smears
Sunset-lady
in
Endometriosis UK
9 months ago
Ovarian mass continued...
Hi all still in limbo. I got my results recently of MRI repeated in October last one was March. The mass has only increased marginally in size. I have repeated CEA and CA125 so should get those results tomorrow. Last time they said it was solid but this time they said it is not solid component. I don't
Hi all still in limbo. I got my results recently of MRI repeated in October last one was March. The mass has only increased marginally in size. I have repeated CEA and CA125 so should get those results tomorrow. Last time they said it was solid but this time they said it is not solid component. I don't
Ova104
in
My Ovacome
9 months ago
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