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Radical hysterectomy
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frustrated and frightened
This is not a question, and sorry very long so don’t feel you need to read, just feel I need to connect with those who understand. I was due to have a total hysterectomy, bowel resection and excision of any endo on Monday at a BSGE centre and have been cancelled last minute due to the junior doctors
This is not a question, and sorry very long so don’t feel you need to read, just feel I need to connect with those who understand. I was due to have a total hysterectomy, bowel resection and excision of any endo on Monday at a BSGE centre and have been cancelled last minute due to the junior doctors
Poppyg16
in
Endometriosis UK
6 months ago
Starting "zolodex" or Gnhr injections
After months of arguing to get an appointment i got a cancellation last min yay! So she has suggested starting the Zolodex injections as my cries for a hysterectomy are ignored again, but honestly i think at this point if she said try licking windows i would give it a go! lol Just wondering if anyone
After months of arguing to get an appointment i got a cancellation last min yay! So she has suggested starting the Zolodex injections as my cries for a hysterectomy are ignored again, but honestly i think at this point if she said try licking windows i would give it a go! lol Just wondering if anyone
rubine7521
in
Women's Health
9 months ago
pain management
Hi all I had a full hysterectomy in February this year & endometriosis has already come back & is also on my bowel & bladder. I’ve taken so many meds & I’m still lying here awake in absolute agony. Any advice/recommendations for pain relief would be greatly appreciated. Thanks
Hi all I had a full hysterectomy in February this year & endometriosis has already come back & is also on my bowel & bladder. I’ve taken so many meds & I’m still lying here awake in absolute agony. Any advice/recommendations for pain relief would be greatly appreciated. Thanks
Penguin20_23
in
Women's Health
9 months ago
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pain management
Hi all I had a full hysterectomy in February this year & endometriosis has already come back & is also on my bowel & bladder. I’ve taken so many meds & I’m still lying here awake in absolute agony. Any advice/recommendations for pain relief would be greatly appreciated. Thanks
Hi all I had a full hysterectomy in February this year & endometriosis has already come back & is also on my bowel & bladder. I’ve taken so many meds & I’m still lying here awake in absolute agony. Any advice/recommendations for pain relief would be greatly appreciated. Thanks
Penguin20_23
in
The Endometriosis Foundation
9 months ago
pain management
Hi all I had a full hysterectomy in February this year & endometriosis has already come back & is also on my bowel & bladder. I’ve taken so many meds & I’m still lying here awake in absolute agony. Any advice/recommendations for pain relief would be greatly appreciated. Thanks
Hi all I had a full hysterectomy in February this year & endometriosis has already come back & is also on my bowel & bladder. I’ve taken so many meds & I’m still lying here awake in absolute agony. Any advice/recommendations for pain relief would be greatly appreciated. Thanks
Penguin20_23
in
Endometriosis UK
9 months ago
Feeling low after consultant meeting following laoaroscopy
I have a long history of pelvic pain. I had a laparoscopy in August and no Endo was found but they did say I have a globular uterus, which is probably caused by Adenomyosis. I wasn't surprised, as I have all the symptoms. I met with the consultant and he did play my symptoms down. He said that the globular
I have a long history of pelvic pain. I had a laparoscopy in August and no Endo was found but they did say I have a globular uterus, which is probably caused by Adenomyosis. I wasn't surprised, as I have all the symptoms. I met with the consultant and he did play my symptoms down. He said that the globular
Mindfullness4791
in
Endometriosis UK
9 months ago
Local hospital treats endometriosis in general gyn
I started experiencing cyclical pain last summer, after ultrasound and mri they noted I had an 8cm endometioma on one ovary and DIE behind my other ovary. In February they said I would be discussed at mdt with endo specialist. In March I was told to wait for an appointment. In October I turned up to
I started experiencing cyclical pain last summer, after ultrasound and mri they noted I had an 8cm endometioma on one ovary and DIE behind my other ovary. In February they said I would be discussed at mdt with endo specialist. In March I was told to wait for an appointment. In October I turned up to
Hidden
in
Endometriosis UK
9 months ago
taking trazodone with Gabapentin
First of all, I am so thankful for this community and the information I have found on here. I am finally getting relief from my RLS by taking gabapentin. My doctor has been way too conservative, starting me at 100mg and only increasing 100mg every week or two weeks. I am finally at a dosage of 1200mg
First of all, I am so thankful for this community and the information I have found on here. I am finally getting relief from my RLS by taking gabapentin. My doctor has been way too conservative, starting me at 100mg and only increasing 100mg every week or two weeks. I am finally at a dosage of 1200mg
Tbone87
in
Restless Legs Syndrome
5 months ago
Going Private
I can't wait any longer so I've decided to go private and I've booked to see a consultant next week. I can't get my head around the fact I can see the same consultant I have to wait a year for on the NHS next week if I pay £200. I'm 50, currently on continuous provera and estrogen and I'm bleeding heavily
I can't wait any longer so I've decided to go private and I've booked to see a consultant next week. I can't get my head around the fact I can see the same consultant I have to wait a year for on the NHS next week if I pay £200. I'm 50, currently on continuous provera and estrogen and I'm bleeding heavily
Sunset-lady
in
Endometriosis UK
9 months ago
Biopsy prior lap
Hello ladies! I am about to have a partial hysterectomy in december, i am already terrified, gutted, i am s...ing on myself with fear. My consultant told me I need to have a biopsy from my womb prior to surgery so he can know there is nothing dodgy there except a lot of fibroids he has already seen
Hello ladies! I am about to have a partial hysterectomy in december, i am already terrified, gutted, i am s...ing on myself with fear. My consultant told me I need to have a biopsy from my womb prior to surgery so he can know there is nothing dodgy there except a lot of fibroids he has already seen
Pisi
in
Endometriosis UK
9 months ago
Adenomyosis
Do you always need a hysterectomy with Adenomyosis? I've just been diagnosed,also with suspected Endo, ovaries 'stuck' together and 6 ovarian cysts. Does it always progress to get much worse and possible endo cancer? I've had thyroid cancer and seen there is a link with Adenomyosis and thyroid cancer
Do you always need a hysterectomy with Adenomyosis? I've just been diagnosed,also with suspected Endo, ovaries 'stuck' together and 6 ovarian cysts. Does it always progress to get much worse and possible endo cancer? I've had thyroid cancer and seen there is a link with Adenomyosis and thyroid cancer
DarkStar85
in
Endometriosis UK
9 months ago
Update on NOT a UTI
Hi, just to update. I had the cystoscopy this morning, not a pleasant experience, but no cancer, no inflammation and no gritty substance, so that at least is good. She did say some people's kidneys do just excrete microscopic blood particles as their normal, but that I possibly have overactive bladder
Hi, just to update. I had the cystoscopy this morning, not a pleasant experience, but no cancer, no inflammation and no gritty substance, so that at least is good. She did say some people's kidneys do just excrete microscopic blood particles as their normal, but that I possibly have overactive bladder
Pusph
in
PMRGCAuk
7 months ago
Now for something completely different
Monday, when you probably will see this post. Crack of dawn. I will be on my way to University Hospital London for a Radical Prostatectomy on Weds. Yes, I've had to learn a new lexicon of terms and medical knowledge. Whilst for the last few months I have been an observer of comments and post rather
Monday, when you probably will see this post. Crack of dawn. I will be on my way to University Hospital London for a Radical Prostatectomy on Weds. Yes, I've had to learn a new lexicon of terms and medical knowledge. Whilst for the last few months I have been an observer of comments and post rather
Tryfan
in
AF Association
10 months ago
Down to 5mg! - wondering about changing timing of dose?
Hi Everyone, I haven't posted lately as I have been steadily reducing using Dorset Lady's 5-week plan - at a .5mg rate since 7 - with a few pauses along the way to manage stress points (such as my BP meds that I had been on since 1990 suddenly ceasing manufacture!). Generally feeling much better,
Hi Everyone, I haven't posted lately as I have been steadily reducing using Dorset Lady's 5-week plan - at a .5mg rate since 7 - with a few pauses along the way to manage stress points (such as my BP meds that I had been on since 1990 suddenly ceasing manufacture!). Generally feeling much better,
Hopingsail
in
PMRGCAuk
7 months ago
Caelyx and hair loss
Hello,This journey against ovarian cancer stage IV with bcra1 mutation started in June 2016, with chemo, debulking hysterectomy surgery and more chemo...stayed in avastin and then olaparib as maintenance until had a reocurrence in February 2022, spread to collarbone lymph nodes and tummy.Lost for the
Hello,This journey against ovarian cancer stage IV with bcra1 mutation started in June 2016, with chemo, debulking hysterectomy surgery and more chemo...stayed in avastin and then olaparib as maintenance until had a reocurrence in February 2022, spread to collarbone lymph nodes and tummy.Lost for the
Pumpkininja
in
My Ovacome
9 months ago
EGPA and Cancer
Hi Every one I was diagnosed with EGPA about 5 years ago. I have been on Methotrexate since then and on and off low doses of Prednisolone. I have hardly had any symptoms . However in February this year I was diagnosed with womb cancer, I had a hysterectomy which be re moved the cancer and chemo and
Hi Every one I was diagnosed with EGPA about 5 years ago. I have been on Methotrexate since then and on and off low doses of Prednisolone. I have hardly had any symptoms . However in February this year I was diagnosed with womb cancer, I had a hysterectomy which be re moved the cancer and chemo and
Farnorth
in
Vasculitis UK
10 months ago
ADT and bone health
I am 79 in exceptional physical condition. I have been on ADT after radical Prostatectomy for over 14 months and to date aside from the sexual libido loss I have had very little side effects. I have always been a health / exercise buff & continue to exercise everyday to maintain my mental & physical
I am 79 in exceptional physical condition. I have been on ADT after radical Prostatectomy for over 14 months and to date aside from the sexual libido loss I have had very little side effects. I have always been a health / exercise buff & continue to exercise everyday to maintain my mental & physical
Stevegr
in
Advanced Prostate Cancer
10 months ago
osteoporosis
I was told I had osteopenia whist workng as nurse in the xray department ( a dexa scan machine was new so all females were able to have a scan to give experience to the radiographers who had been trained in osteoporosis and scanning, I must admit I did have several scans under this 'scheme' and eventually
I was told I had osteopenia whist workng as nurse in the xray department ( a dexa scan machine was new so all females were able to have a scan to give experience to the radiographers who had been trained in osteoporosis and scanning, I must admit I did have several scans under this 'scheme' and eventually
Booge_15
in
PMRGCAuk
7 months ago
Bisphosphonates
hi everyone! I have been diagnosed about 6 months ago with osteoporosis, I am 65. I saw a rheumatologist and he prescribed adcal d3 caplets and Risedronate . Initially I had a few side effects , mainly gastro as I have a sensitive stomach anyway and some bowel issues which have eased. I wanted to ask
hi everyone! I have been diagnosed about 6 months ago with osteoporosis, I am 65. I saw a rheumatologist and he prescribed adcal d3 caplets and Risedronate . Initially I had a few side effects , mainly gastro as I have a sensitive stomach anyway and some bowel issues which have eased. I wanted to ask
MuffinFruit
in
Osteoporosis Support
8 days ago
STAGE 1C1 Grade 2
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Kscott10
in
My Ovacome
10 months ago
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