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Platelet transfusions
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Time to say goodbye— to Omaha and LU 177
I said goodbye yesterday at Dr. Luke’s office here to all the wonderful people. Today I had to rush in for another transfusion and got to see the girls at the hospital where I have that done here and got to tell them goodbye. We’re having lots of goodbye dinners this week with friends we met from here
I said goodbye yesterday at Dr. Luke’s office here to all the wonderful people. Today I had to rush in for another transfusion and got to see the girls at the hospital where I have that done here and got to tell them goodbye. We’re having lots of goodbye dinners this week with friends we met from here
greatjohn
in
Advanced Prostate Cancer
3 years ago
Waiting to get my infusion of CAR-T
Waiting to get my infusion of CAR-T. They extracted my cells 6 weeks ago. While waiting, my PSA ran amuck. Went from 7 to 50 in 10 weeks. Started going up after my completion of 4 rounds of Cabazataxel about 10 weeks ago. Did a various chemos prior to that to keep things in check. Blood counts went
Waiting to get my infusion of CAR-T. They extracted my cells 6 weeks ago. While waiting, my PSA ran amuck. Went from 7 to 50 in 10 weeks. Started going up after my completion of 4 rounds of Cabazataxel about 10 weeks ago. Did a various chemos prior to that to keep things in check. Blood counts went
abmicro
in
Advanced Prostate Cancer
3 years ago
Could I have your thoughts please?
I've just had my thriva results back. I'm now 4 weeks post iron transfusion. I've got an appointment for bloods at the doctor's next week and I'm assuming my TSH won't change dramatically between then and now, and GP doesn't test anything other than TSH so I can negotiate an increase in levo but I'm
I've just had my thriva results back. I'm now 4 weeks post iron transfusion. I've got an appointment for bloods at the doctor's next week and I'm assuming my TSH won't change dramatically between then and now, and GP doesn't test anything other than TSH so I can negotiate an increase in levo but I'm
Hidden
in
Thyroid UK
3 years ago
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Radiation Cystitis round 2
I just got out of the hospital last week after a 2nd ER visit in a year for blood clots blocking my urethra. On top of that my lupus had kicked in and we found out my immune system was killing my blood count lowering the red blood cells and destroying the immature platelets which help clotting. Found
I just got out of the hospital last week after a 2nd ER visit in a year for blood clots blocking my urethra. On top of that my lupus had kicked in and we found out my immune system was killing my blood count lowering the red blood cells and destroying the immature platelets which help clotting. Found
John438
in
Advanced Prostate Cancer
3 years ago
beating a dead horse? more Lu-177 or Sparky?
Sparky's kisses were very therapeutic on my trip home to Ft. Lauderdale a couple of weeks ago (for just 4 days) I have taken one Lu-177 treatment and in the 8 weeks following my PSA has gone from 217 to almost 600. My scans I just saw have gone from a few spots on bone in pelvic area...and a couple
Sparky's kisses were very therapeutic on my trip home to Ft. Lauderdale a couple of weeks ago (for just 4 days) I have taken one Lu-177 treatment and in the 8 weeks following my PSA has gone from 217 to almost 600. My scans I just saw have gone from a few spots on bone in pelvic area...and a couple
greatjohn
in
Advanced Prostate Cancer
3 years ago
Feeling worse after stopping chemo
The Doctor felt that my body needed a rest and time to heal . But since I stopped the chemo I have been aching worse than before . They told me I am anemic but want numbers to come up on there own . They were going to give me a transfusion but changed there mind. Have you heard of anyone experiencing
The Doctor felt that my body needed a rest and time to heal . But since I stopped the chemo I have been aching worse than before . They told me I am anemic but want numbers to come up on there own . They were going to give me a transfusion but changed there mind. Have you heard of anyone experiencing
Scootman
in
Advanced Prostate Cancer
3 years ago
Anyone want to join my pity party?
Have just had bloods back and UGGGGHHHHH. My T3 is the lowest it's ever been; which makes sense because I've been feeling *really* sluggish and heavy and lethargic. My TSH is low though so I will get nowhere with the GP. What do I do now? DateTestRangeResult% thru range 25/5/21 TSH (0.27 - 4.2)
Have just had bloods back and UGGGGHHHHH. My T3 is the lowest it's ever been; which makes sense because I've been feeling *really* sluggish and heavy and lethargic. My TSH is low though so I will get nowhere with the GP. What do I do now? DateTestRangeResult% thru range 25/5/21 TSH (0.27 - 4.2)
Hidden
in
Thyroid UK
3 years ago
Hairy cell - 3 weeks after chemo
So here I am 3 weeks after my cladribine subcutaneous chemo finished. Am having weekly blood tests, had a phone chat with my haematologist this morning who is happy the way my platelets and neutrophiles are recovering - plats up to 138 and neuts 0.6, both doubled from a week ago. The main problem is
So here I am 3 weeks after my cladribine subcutaneous chemo finished. Am having weekly blood tests, had a phone chat with my haematologist this morning who is happy the way my platelets and neutrophiles are recovering - plats up to 138 and neuts 0.6, both doubled from a week ago. The main problem is
frankmok
in
Leukaemia CARE
3 years ago
Shocking letter from cardiology
I’ve just had a shocking letter from the cardiology department of my local hospital which has really shocked and upset me. It was from a telephone conversation I had with them some weeks ago having been transferred to their care after having a mitral valve replacement on the 7th of October 2020 At Barts
I’ve just had a shocking letter from the cardiology department of my local hospital which has really shocked and upset me. It was from a telephone conversation I had with them some weeks ago having been transferred to their care after having a mitral valve replacement on the 7th of October 2020 At Barts
Darkshades
in
British Heart Foundation
3 years ago
First ten days in hospice
Another update on our journey... (Brief background: after over a year of failing multiple treatments to control his cancer, my husband decided in April that he did not wish to continue pursuing treatments other than palliative care. On May 27 we were accepted into a Medicare hospice program.) So far
Another update on our journey... (Brief background: after over a year of failing multiple treatments to control his cancer, my husband decided in April that he did not wish to continue pursuing treatments other than palliative care. On May 27 we were accepted into a Medicare hospice program.) So far
WildRose6
in
Advanced Prostate Cancer
3 years ago
ITP after COVID vaccine
I've had CLL for about 11 years without issues. I received the first shot of Moderna on 28 January and have been dealing with ITP ever since. They dropped from 110K to 6K. Prednisone, platelet transfusion, IVIG, dexamethasone and now I'm looking at Rituximab. This almost seems worse than CLL!
I've had CLL for about 11 years without issues. I received the first shot of Moderna on 28 January and have been dealing with ITP ever since. They dropped from 110K to 6K. Prednisone, platelet transfusion, IVIG, dexamethasone and now I'm looking at Rituximab. This almost seems worse than CLL!
DoNorth
in
ITP Support Association
3 years ago
Have you Needed Blood Transfusions?
Hello from Down Under! Well, June marks 2 years from my diagnosis with Ovarian /Peritoneal cancer. It seems like 6 months! I insisted that my oncologist tell me the facts in regard to life span. Being a a retired RN. I wanted to know. She suggested about 3 years. In my mind, I had this idea that it
Hello from Down Under! Well, June marks 2 years from my diagnosis with Ovarian /Peritoneal cancer. It seems like 6 months! I insisted that my oncologist tell me the facts in regard to life span. Being a a retired RN. I wanted to know. She suggested about 3 years. In my mind, I had this idea that it
Jenjill47
in
My Ovacome
3 years ago
MF and platelet transfusions
He will be on weekly
platelet
transfusions
from now on. Fortunately, his symptoms have been mild / controlled by the ruxolitinib - he is not in pain and sleeps and eats well although he is fatigued.
He will be on weekly
platelet
transfusions
from now on. Fortunately, his symptoms have been mild / controlled by the ruxolitinib - he is not in pain and sleeps and eats well although he is fatigued.
dnsn
in
MPN Voice
3 years ago
Update on AMG 509 immunotherapy
I get transfusions every Thursday. I have been tolerating treatment quite well and feel good. I drove an hour and played 18 holes of golf last Friday, one day after treatment. It was a bit risky as I have experienced muscle cramping for 24-48 hours from the beginning. That is less of an issue each week
I get transfusions every Thursday. I have been tolerating treatment quite well and feel good. I drove an hour and played 18 holes of golf last Friday, one day after treatment. It was a bit risky as I have experienced muscle cramping for 24-48 hours from the beginning. That is less of an issue each week
Philly13
in
Advanced Prostate Cancer
3 years ago
Has anyone had an iron transfusion privately?
Just that really. I'm considering one but the consultation alone is £200 plus the transfusion if it's deemed necessary, is almost £500 so it's a lot of money and I just wondered if anyone would recommend it? I'm veggie so it's much harder to get enough iron to increase my ferritin. I take 3 iron tablets
Just that really. I'm considering one but the consultation alone is £200 plus the transfusion if it's deemed necessary, is almost £500 so it's a lot of money and I just wondered if anyone would recommend it? I'm veggie so it's much harder to get enough iron to increase my ferritin. I take 3 iron tablets
Hidden
in
Thyroid UK
3 years ago
Loxo 305 + Venetoclax trial MRD Negative but with extras ....
Despite this being my 3rd treatment I’m usually quite well, however I’ve been feeling really unwell since March with Chronic Sinusitis, which developed into a bacterial infection, pneumonia and beginnings of sepsis. (Trial treatment was stopped for a week whilst I was in hospital) My Haematologist
Despite this being my 3rd treatment I’m usually quite well, however I’ve been feeling really unwell since March with Chronic Sinusitis, which developed into a bacterial infection, pneumonia and beginnings of sepsis. (Trial treatment was stopped for a week whilst I was in hospital) My Haematologist
Billarina
in
CLL Support
3 years ago
Off label use of Mekinist (Trametinib)
I came across this in chapter 43 of the Dr Mark Sholz book The Key to Prostate Cancer. It's only anecdotal evidence of course. Anybody considering taking it, should do it with agreement of their MO. Mekinist is a Mek inhibitor and used to treat melanoma, thyroid cancer and non small lung cancer. Patient
I came across this in chapter 43 of the Dr Mark Sholz book The Key to Prostate Cancer. It's only anecdotal evidence of course. Anybody considering taking it, should do it with agreement of their MO. Mekinist is a Mek inhibitor and used to treat melanoma, thyroid cancer and non small lung cancer. Patient
Graham49
in
Advanced Prostate Cancer
3 years ago
Cirrhosis diagnosis
Hi everyone Quick recap for people new to this forum. Diagnosed with Hep C last year. Got it from a blood transfusion in 1986. Had the treatment and happily have since been cleared. Bad news is I am left with liver damage. I have been approved for stage 1 compensation from the infected blood scheme
Hi everyone Quick recap for people new to this forum. Diagnosed with Hep C last year. Got it from a blood transfusion in 1986. Had the treatment and happily have since been cleared. Bad news is I am left with liver damage. I have been approved for stage 1 compensation from the infected blood scheme
Ruby1960
in
British Liver Trust
3 years ago
Update, after ending treatments
I posted about a month ago, soon after my husband decided to end all cancer treatments. I thought I'd post an update as some might find our experience helpful. We decided not to do any more imaging as it wouldn't really tell us anything that we don't already know: that the cancer is progressing rather
I posted about a month ago, soon after my husband decided to end all cancer treatments. I thought I'd post an update as some might find our experience helpful. We decided not to do any more imaging as it wouldn't really tell us anything that we don't already know: that the cancer is progressing rather
WildRose6
in
Advanced Prostate Cancer
3 years ago
Whoa
So I’m 52… have always been told that I was disgustingly healthy. Active mother of two. Then in 2016, I almost bled to death was hospitalized, blood transfusions and had an emergency hysterectomy. 2018 on annual blood test noticed platelets were in 800,000’s. Doctor looked at 2017 test and platelets
So I’m 52… have always been told that I was disgustingly healthy. Active mother of two. Then in 2016, I almost bled to death was hospitalized, blood transfusions and had an emergency hysterectomy. 2018 on annual blood test noticed platelets were in 800,000’s. Doctor looked at 2017 test and platelets
Bug68
in
MPN Voice
3 years ago
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