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Iron transfusion & an having a moan!
Hi ladies Hope you are all keeping well. This is an iron based question, but its a bit long winded. 1) I m still waiting for an MDT to be do for my 3rd lap, to see what would best route long term, has the specialist was quite happy to operate with less then half the info. 2) I've been experiencing
Hi ladies Hope you are all keeping well. This is an iron based question, but its a bit long winded. 1) I m still waiting for an MDT to be do for my 3rd lap, to see what would best route long term, has the specialist was quite happy to operate with less then half the info. 2) I've been experiencing
Jasmin24
in
Endometriosis UK
3 years ago
The Role of Novel Agents in Treating CLL-Associated Autoimmune Hemolytic Anemia (AIHA)
J. Clin. Med. 2021, 10, 2064 There have apparently never been any prospective clinical trials conducted in the setting of CLL-associated AIHA, as patients with uncontrolled AICs are typically excluded from trials. This paper looks at the role of novel agents in treating AIHA and suggests that BTKi's
J. Clin. Med. 2021, 10, 2064 There have apparently never been any prospective clinical trials conducted in the setting of CLL-associated AIHA, as patients with uncontrolled AICs are typically excluded from trials. This paper looks at the role of novel agents in treating AIHA and suggests that BTKi's
Jm954
Administrator
in
CLL Support
3 years ago
Update help me and my sister x
I wrote a post last week and was so overwhelmed with all the responses and support so thank you all very much... Rebecca has been in hospital now for a month and in the last couple of days they have found an inflammation in her brain after having and MRI scan and lumber puncture...they think this is
I wrote a post last week and was so overwhelmed with all the responses and support so thank you all very much... Rebecca has been in hospital now for a month and in the last couple of days they have found an inflammation in her brain after having and MRI scan and lumber puncture...they think this is
clairebaby123
in
Multiple System Atrophy Trust
3 years ago
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Another update on 5th heart surgery….
Ok, well I’ve now been here for almost 2 weeks and hoping to be discharged today. Thought I’d give a bit more of a comprehensive update (although don’t want to scare anyone!) Quite a few problems with various levels (INR, potassium and hemoglobin) which has lead to several blood transfusions and potassium
Ok, well I’ve now been here for almost 2 weeks and hoping to be discharged today. Thought I’d give a bit more of a comprehensive update (although don’t want to scare anyone!) Quite a few problems with various levels (INR, potassium and hemoglobin) which has lead to several blood transfusions and potassium
Clairealou
in
British Heart Foundation
3 years ago
Myleofibrosis diagnosis
Thank you to Mark for the link and invite. My husband, Fred, and I just found out in July that he has MF, which we never even heard of. Lots of fear and questions. He has a good team in Houston, Texas at MD Anderson. We are going for the SCT and meet with the team in one week. Today he is getting
Thank you to Mark for the link and invite. My husband, Fred, and I just found out in July that he has MF, which we never even heard of. Lots of fear and questions. He has a good team in Houston, Texas at MD Anderson. We are going for the SCT and meet with the team in one week. Today he is getting
Kashworth
in
MPN Voice
3 years ago
Living La Vida Loca...Cancer/Chemo/Banana Trees & Miracles
well....(deep subject)... my PSA has gone up (again) and is now ALMOST 1000. It's 980.0 My platelets having dropped to 6,000. I was prepared to argue with my oncologist about doing the chemo (Jevtana) that she has me scheduled for again on Thursday...but, alas... there was no argument. She concurred
well....(deep subject)... my PSA has gone up (again) and is now ALMOST 1000. It's 980.0 My platelets having dropped to 6,000. I was prepared to argue with my oncologist about doing the chemo (Jevtana) that she has me scheduled for again on Thursday...but, alas... there was no argument. She concurred
greatjohn
in
Advanced Prostate Cancer
3 years ago
Impact of surgery, signs of over medication
Hi, I've just had fairly major surgery to remove a very large fibroid from the outside of my uterus, a myomectomy. It was 30cm and 4.5kg, so quite a life-changing procedure and thankfully it went well. I did lose a lot of blood so had to receive two units in transfusion; also the incision on my abdomen
Hi, I've just had fairly major surgery to remove a very large fibroid from the outside of my uterus, a myomectomy. It was 30cm and 4.5kg, so quite a life-changing procedure and thankfully it went well. I did lose a lot of blood so had to receive two units in transfusion; also the incision on my abdomen
Desert79
in
Thyroid UK
3 years ago
survive
good afternoon, I wanted to thank you for your help, I wait for the repair service to contact me, no shower is terrible, my physical condition worsens, now I hardly walk, but I have to force myself or I become a fossil, unfortunately, for months I have also been fighting with uterine fibroids, they have
good afternoon, I wanted to thank you for your help, I wait for the repair service to contact me, no shower is terrible, my physical condition worsens, now I hardly walk, but I have to force myself or I become a fossil, unfortunately, for months I have also been fighting with uterine fibroids, they have
Eagleflyalone
in
Fibromyalgia Action UK
3 years ago
Venetoclax
I consider it a miracle drug in May I was doing real bad needed blood transfusion WBC was 278,000 platelets 58 and rbc 2 now after 4 months on Venetoclax my latest blood test wbc 3,82 hgb 15 plt 117 neut2.22 and baso .01 have more energy and all the swelling is gone , I take in conjunction with monthly
I consider it a miracle drug in May I was doing real bad needed blood transfusion WBC was 278,000 platelets 58 and rbc 2 now after 4 months on Venetoclax my latest blood test wbc 3,82 hgb 15 plt 117 neut2.22 and baso .01 have more energy and all the swelling is gone , I take in conjunction with monthly
starlifter
in
CLL Support
3 years ago
Update for 5th valve replacement surgery
Well, I’m through the worst and now back on the high dependency ward. Have a few wound issues as it wouldn’t stop bleeding which meant a couple of blood transfusions but they were able to go in through my side so that was a relief. Woke up only 3 hours after the surgery with minimal pain. Had chest drains
Well, I’m through the worst and now back on the high dependency ward. Have a few wound issues as it wouldn’t stop bleeding which meant a couple of blood transfusions but they were able to go in through my side so that was a relief. Woke up only 3 hours after the surgery with minimal pain. Had chest drains
Clairealou
in
British Heart Foundation
3 years ago
Palliative care - medications and routine
While most of our forum is focused on treatment, I thought it would be helpful for others to post our palliative care routine. Our current treatment has made a huge difference and greatly improved quality of life. My dad declined very suddenly with PCa on July 17. He has a unique situation with daily
While most of our forum is focused on treatment, I thought it would be helpful for others to post our palliative care routine. Our current treatment has made a huge difference and greatly improved quality of life. My dad declined very suddenly with PCa on July 17. He has a unique situation with daily
ArabianNights
in
Advanced Prostate Cancer
3 years ago
Bleeding from urethra…not bladder or kidney
Has anyone had an issue with the scar tissue or whatever the issue is inside my urethra starting to bleed? Everything has been fine with my urinary tract for over two years when I had a little blockage from one of the scar tissues. Now this past week I started bleeding a little spurts of blood they
Has anyone had an issue with the scar tissue or whatever the issue is inside my urethra starting to bleed? Everything has been fine with my urinary tract for over two years when I had a little blockage from one of the scar tissues. Now this past week I started bleeding a little spurts of blood they
greatjohn
in
Advanced Prostate Cancer
3 years ago
Can't stop bleeding. Please help!
Please, please help! I have pcos and trying to conceive but have been bleeding heavily for 80-90% of the past year. I had polyps removed which they thought would stop it but it didn't work. I also had three blood transfusions because my hemoglobin went down to 59 when it should be around 120. My doctor
Please, please help! I have pcos and trying to conceive but have been bleeding heavily for 80-90% of the past year. I had polyps removed which they thought would stop it but it didn't work. I also had three blood transfusions because my hemoglobin went down to 59 when it should be around 120. My doctor
GiJeDe
in
PCOS UK (Verity)
3 years ago
New to this
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Highwaywomble
in
Kidney Cancer Support
3 years ago
New To this site
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Highwaywomble
in
British Liver Trust
3 years ago
Maintenance treatment for stage 4
Hi All, My first post. I have Braca 2 gene and stage 4 ovarian cancer diagnosed nov. 20. Had 6 cycles of chemo and surgery feb 21. Finished chemo in April 21, Since then I have been on Avastin infusion x3 weekly and Olaparib x2 a day. I have just gone back to work. Had a blood transfusion 3 weeks ago
Hi All, My first post. I have Braca 2 gene and stage 4 ovarian cancer diagnosed nov. 20. Had 6 cycles of chemo and surgery feb 21. Finished chemo in April 21, Since then I have been on Avastin infusion x3 weekly and Olaparib x2 a day. I have just gone back to work. Had a blood transfusion 3 weeks ago
Annielowie
in
SHARE Ovarian Cancer Support
3 years ago
Hospital guest!
I have just escaped from 5 days of solitary confinement in hospital and got home just in time to celebrate my birthday today. I know how short of beds the hospitals are here in the West Country so when I developed a high temperature after a blood transfusion I decided to see if I could reduce the fever
I have just escaped from 5 days of solitary confinement in hospital and got home just in time to celebrate my birthday today. I know how short of beds the hospitals are here in the West Country so when I developed a high temperature after a blood transfusion I decided to see if I could reduce the fever
beetle
in
MPN Voice
3 years ago
Correlation between iron deficiency anaemia and thyroid cancer?
Hello After a chest CT performed to confirm COPD, which also showed a nodule on thee right side of my thyroid, I've had the result of a thyroid ultrasound today which showed several benign cysts and a 24mm U3 nodule on the right side of my thyroid. I have been put on the fast track referral for suspected
Hello After a chest CT performed to confirm COPD, which also showed a nodule on thee right side of my thyroid, I've had the result of a thyroid ultrasound today which showed several benign cysts and a 24mm U3 nodule on the right side of my thyroid. I have been put on the fast track referral for suspected
DanzNan
in
Thyroid UK
3 years ago
I'm new in this site and i need help...
Hello everyone. I was diagnosed with Lupus 8 months ago. It was a completely traumatizing exhausting journey until i finally able to get a proper diagnosis and a proper test. I live in a third world country where health treatment and health care is still very low and backwards compare to developed countries
Hello everyone. I was diagnosed with Lupus 8 months ago. It was a completely traumatizing exhausting journey until i finally able to get a proper diagnosis and a proper test. I live in a third world country where health treatment and health care is still very low and backwards compare to developed countries
nanaglitter
in
LUPUS UK
3 years ago
Has anyone got any tips staying positive while trying for a baby
My journey has been a long one. I started my periods at 9 and quickly realised there were not normal. After multiple blood transfusions, getting so poorly I finally have the diagnosis I wanted. I have recently been diagnosed with endometriosis , however am deciding to come off the pill. I have massive
My journey has been a long one. I started my periods at 9 and quickly realised there were not normal. After multiple blood transfusions, getting so poorly I finally have the diagnosis I wanted. I have recently been diagnosed with endometriosis , however am deciding to come off the pill. I have massive
Pineapplehead91
in
Endometriosis UK
3 years ago
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