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any info please
My consultant has suggested I try Valproate or Levetiracetam for my RLS/PLMD. Has anybody tried either of these and had any success or otherwise?
My consultant has suggested I try Valproate or Levetiracetam for my RLS/PLMD. Has anybody tried either of these and had any success or otherwise?
soupersuzy
in
Restless Legs Syndrome
8 months ago
Methylene Blue: Biohacker's Delight, or Playing With Fire? Chris Masterjohn, PhD is Not Too Keen on MB :( Insanely Detailed Video!
I take a small amount of MB twice a day. As close as I can tell from this insanely detailed video, this PhD probably thinks I am making a mistake :(
Methylene Blue: Biohacker's Delight, or Playing With Fire:
https://www.youtube.com/watch?v=XhgGGbdw4zE
This is a 51-page guide in which you
I take a small amount of MB twice a day. As close as I can tell from this insanely detailed video, this PhD probably thinks I am making a mistake :(
Methylene Blue: Biohacker's Delight, or Playing With Fire:
https://www.youtube.com/watch?v=XhgGGbdw4zE
This is a 51-page guide in which you
Bolt_Upright
in
Cure Parkinson's
8 months ago
THC Gummies
THC gummies worked for the first couple of times but, last time I took it I was super paranoid and definitely not sleeping. It’s not for me . To date, I’m taking one Pramipexole and one 12.5 ambien day night and sleep 4-5 hours and experience mild to no symptoms the following day. So far so good
THC gummies worked for the first couple of times but, last time I took it I was super paranoid and definitely not sleeping. It’s not for me . To date, I’m taking one Pramipexole and one 12.5 ambien day night and sleep 4-5 hours and experience mild to no symptoms the following day. So far so good
tuckerdog109
in
Restless Legs Syndrome
8 months ago
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Feeling grumpy and frustrated
I'm trying to be positive and grateful! But I don't really get excited about much these days. I have lingering moments of joy, but most of my days are filled with racing thoughts and killing time basically until I can get back into bed. My motivation is not very great either. I stay in my comfort
I'm trying to be positive and grateful! But I don't really get excited about much these days. I have lingering moments of joy, but most of my days are filled with racing thoughts and killing time basically until I can get back into bed. My motivation is not very great either. I stay in my comfort
trailmixup
in
Anxiety and Depression Support
6 months ago
Success with clonidine as a supplementary medication
Sharing some recent success. I have taken pregabalin 300mg for a number of years but have also supplemented it with a very small dose of clonazepam (between 0.125 and 0.5m) I started weaning off clonazepam approx 3 months ago because it's not desirable to take benzodiazepines long term (i'm weaning
Sharing some recent success. I have taken pregabalin 300mg for a number of years but have also supplemented it with a very small dose of clonazepam (between 0.125 and 0.5m) I started weaning off clonazepam approx 3 months ago because it's not desirable to take benzodiazepines long term (i'm weaning
Hidden
in
Restless Legs Syndrome
8 months ago
Bupropion and insomnia
I recently started the long-acting (24-hour)form of bupropion and it appears to be causing insomnia. I am wondering if taking the SR (12-hour) formulation just once daily in the morning would solve the insomnia problem while still being effective for depression. Does anyone have any experience taking
I recently started the long-acting (24-hour)form of bupropion and it appears to be causing insomnia. I am wondering if taking the SR (12-hour) formulation just once daily in the morning would solve the insomnia problem while still being effective for depression. Does anyone have any experience taking
Doctorplacebo
in
Anxiety and Depression Support
6 months ago
My updated post…I saw Dr. Davenport head of ABN (Association of British Neurologists) today .
Dear Dr. Davenport , You kindly saw me today so I could get advice for my RLS for now and in the future. I also asked you for general advice for my future treatment in case certain drugs are forbidden to be prescribed. I particularly went to you as you are an eminent neurologist and head of the
Dear Dr. Davenport , You kindly saw me today so I could get advice for my RLS for now and in the future. I also asked you for general advice for my future treatment in case certain drugs are forbidden to be prescribed. I particularly went to you as you are an eminent neurologist and head of the
Kakally
in
Restless Legs Syndrome
8 months ago
ADHD or Bipolar
Anxiety and rumination causing havoc again and I feel like I am going mad. I feel that sometimes my good and honest intentions go against me. I feel like I have been suffering from some sort of mental disorder and specifically bipolar disorder and or ADHD. My lack of confidence has definitely been part
Anxiety and rumination causing havoc again and I feel like I am going mad. I feel that sometimes my good and honest intentions go against me. I feel like I have been suffering from some sort of mental disorder and specifically bipolar disorder and or ADHD. My lack of confidence has definitely been part
north_oxford
in
Mental Health Support
6 months ago
Chronic Endometritis
Hey lovely ladies! My question today related to endometritis/chronic uterine inflammation. I have done 4 hysteroscopies so far (two in 2021, one in 2022, one in 2023), each time the inflamed endometrium came out, with a "strawberry" appearance. After the tests, I came out positive for Ureaplasma (at
Hey lovely ladies! My question today related to endometritis/chronic uterine inflammation. I have done 4 hysteroscopies so far (two in 2021, one in 2022, one in 2023), each time the inflamed endometrium came out, with a "strawberry" appearance. After the tests, I came out positive for Ureaplasma (at
Anita85
in
Fertility Network UK
8 months ago
Psalm 119:143
As a believer that Jesus Christ is God and I have found him as my Lord & Saviour. The Bible has become a living book to me. its my comfort, my guide and my medicine, for sleep, peace of mind etc!! Thats why i write under the title Psalm 119:143! Trouble and Calamity have found me in the form of Parkinsons
As a believer that Jesus Christ is God and I have found him as my Lord & Saviour. The Bible has become a living book to me. its my comfort, my guide and my medicine, for sleep, peace of mind etc!! Thats why i write under the title Psalm 119:143! Trouble and Calamity have found me in the form of Parkinsons
Psalm119143
in
Cure Parkinson's
8 months ago
sleep apnea and afib
According to monitoring with apple watch, my over night pulse rate often goes into the low 40s. In addition when I check in the morning I am often in afib. I have sleep apea and use a CPAP. Just wondering if anyone else has these low overnight pulse rates and any linkage to sleep apnea triggering afib
According to monitoring with apple watch, my over night pulse rate often goes into the low 40s. In addition when I check in the morning I am often in afib. I have sleep apea and use a CPAP. Just wondering if anyone else has these low overnight pulse rates and any linkage to sleep apnea triggering afib
Xian1
in
AF Association
8 months ago
Horizitom
Transitioning off of Pramipexole and onto Horiziton/Gabapentin. 600 no of Gabapentin and results have been so so. Take it a 5 pm and ot seems I start getting the symptoms a bit and other nights not. Taking 12.5 mg Ambien trying to sleep and last night was not good. Buzzing toes , fingers and extremities
Transitioning off of Pramipexole and onto Horiziton/Gabapentin. 600 no of Gabapentin and results have been so so. Take it a 5 pm and ot seems I start getting the symptoms a bit and other nights not. Taking 12.5 mg Ambien trying to sleep and last night was not good. Buzzing toes , fingers and extremities
tuckerdog109
in
Restless Legs Syndrome
8 months ago
MSA or PSP - Parkinson's Plus
Hello,My brother is in mid 40s , diagnosed with Parkinson in 2020 after getting COVID-19. Since then, he has detoriated very rapidly. He has had MIBG scan recently which reveals he has PSP or MSA. We are very worried for him, at his age we weren't expecting this. Anyone in similar situation? What's the
Hello,My brother is in mid 40s , diagnosed with Parkinson in 2020 after getting COVID-19. Since then, he has detoriated very rapidly. He has had MIBG scan recently which reveals he has PSP or MSA. We are very worried for him, at his age we weren't expecting this. Anyone in similar situation? What's the
Sarah106
in
Cure Parkinson's
7 months ago
I am Alone
My boyfriend has Bipolar Disorder and let say this year hasn't been the greatest overall. I haven't felt this suicidal since my teens( I'm a 26 year old female). I'm all over the place at the moment. I feel like I can't begin to express how much I want to end my life. I'm so tired of this. I'm always
My boyfriend has Bipolar Disorder and let say this year hasn't been the greatest overall. I haven't felt this suicidal since my teens( I'm a 26 year old female). I'm all over the place at the moment. I feel like I can't begin to express how much I want to end my life. I'm so tired of this. I'm always
Hidden
in
Anxiety and Depression Support
6 months ago
threadworm fibromyalgia link?
Morning all, I’ve recently been diagnosed with fibro and even more recently been researching if there is a link between it and thread worm as 5yrs ago I had threadworm then the other night I’ve realised they are back so was wondering if anyone else has found a link as my fibro flares have been so much
Morning all, I’ve recently been diagnosed with fibro and even more recently been researching if there is a link between it and thread worm as 5yrs ago I had threadworm then the other night I’ve realised they are back so was wondering if anyone else has found a link as my fibro flares have been so much
Emmybird2
in
Fibromyalgia Action UK
8 months ago
Pure misery, trying to avoid emotional eating/binge eating
I posted on a thread a while ago and got some very helpful comments and messages. I'm two weeks on. I am doing better eating wise : I'm making better choices and taking things one hour at a time. The problem I am having is being so desperately unhappy with my weight, especially the fat around my middle
I posted on a thread a while ago and got some very helpful comments and messages. I'm two weeks on. I am doing better eating wise : I'm making better choices and taking things one hour at a time. The problem I am having is being so desperately unhappy with my weight, especially the fat around my middle
Ineedtochange
2023 August
in
Weight Loss Support
8 months ago
Anyone experience insomnia since starting pirtobrutinib?
About an hour after I take it, I feel like I drank a triple espresso. At night it is causing insomnia. So far this is the only side effect except some nausea after my morning pill. My lymph nodes have gone down slightly. White count went up 5000 points in the first week, but interesting enough, my
About an hour after I take it, I feel like I drank a triple espresso. At night it is causing insomnia. So far this is the only side effect except some nausea after my morning pill. My lymph nodes have gone down slightly. White count went up 5000 points in the first week, but interesting enough, my
ReneeSusan
in
CLL Support
8 months ago
Any correlation between antipsychotic discontinuation and b12 absorption or deficiency?
Hi, has anyone ever had experience of b12 deficiency symptoms after antipsychotic withdrawal/discontinuation, & more specifically Aripiprazole (Abilify)? I am still awaiting b12 deficiency test results, but I wonder if discontinuation has resulted b12 deficiency symptoms & creating a false normal?
Hi, has anyone ever had experience of b12 deficiency symptoms after antipsychotic withdrawal/discontinuation, & more specifically Aripiprazole (Abilify)? I am still awaiting b12 deficiency test results, but I wonder if discontinuation has resulted b12 deficiency symptoms & creating a false normal?
Ian232
in
Pernicious Anaemia Society
6 months ago
Great video on healing a "leaky gut" and I found this probiotic to be the best deal on Amazon!
For myself ... I believe my PD-like symptoms is from my "leaky gut". And, fortunately after more than 2 years of self-diagnosis --- my various symptoms are still very, very, very mild. My neuro/MDS is Dr. Bozo who said after my exam: [i]"The good news is that you don't have Parkinson. The bad news
For myself ... I believe my PD-like symptoms is from my "leaky gut". And, fortunately after more than 2 years of self-diagnosis --- my various symptoms are still very, very, very mild. My neuro/MDS is Dr. Bozo who said after my exam: [i]"The good news is that you don't have Parkinson. The bad news
PDWarrior1900
in
Cure Parkinson's
8 months ago
I was diagnosed 4 years ago with relapsing remitting. In the MS community no one ever talks about lesions black holes or myelin. Why!
After my initial diagnosis on my next visit I asked my neurologist how many lesions I had. He said “ I don’t really know. This guy is one of the most renowned neurologists in the world. I said, how long have you been doing this? X years. Then what does your gut say? He said in between 50 and 75 but
After my initial diagnosis on my next visit I asked my neurologist how many lesions I had. He said “ I don’t really know. This guy is one of the most renowned neurologists in the world. I said, how long have you been doing this? X years. Then what does your gut say? He said in between 50 and 75 but
Mark1499
in
My MSAA Community
8 months ago
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