Search
Search
About
Log in
Join
Experiences with
Peroxisome biogenesis disorders
Posts
Communities
11,583 public posts
Filter results
Is there anyone who would like to mentor a struggling anorexic - me?
I am looking for somebody who can help me be a inspiration and be a mentor to me for my anorexia. I have had this disease for now for over 20 years and I've had all the experts, drs, counselors, and inpatient treatment programs that you can get. They never helped do anything with my mind, they only got
I am looking for somebody who can help me be a inspiration and be a mentor to me for my anorexia. I have had this disease for now for over 20 years and I've had all the experts, drs, counselors, and inpatient treatment programs that you can get. They never helped do anything with my mind, they only got
Hidden
in
Talk ED (eating disorders)
7 months ago
This New Year's Eve is Weird!!!
I plan to have a party somehow for 2024 going into 2025 because this one SUCKS A**!! Ok, so I am alive and breathing, I have a roof over my head and food to eat so by goodness I am thankful 🙏🏽🙏🏽, buttt.... because I'm in a trauma filled situation mentally and financially, this day ain't it!! I remember
I plan to have a party somehow for 2024 going into 2025 because this one SUCKS A**!! Ok, so I am alive and breathing, I have a roof over my head and food to eat so by goodness I am thankful 🙏🏽🙏🏽, buttt.... because I'm in a trauma filled situation mentally and financially, this day ain't it!! I remember
Cat_cat44
in
Anxiety and Depression Support
5 months ago
Pramipexole RLS symptoms worse
Just started taking Pramipexole for RLS for the first night. Wow, didn’t know the symptoms would become totally overwhelming all over body too.is this normal, does it settle down? I have Fibromyalgia, which means I also take Duloxetine for the pain and am medication sensitive, but never thought it would
Just started taking Pramipexole for RLS for the first night. Wow, didn’t know the symptoms would become totally overwhelming all over body too.is this normal, does it settle down? I have Fibromyalgia, which means I also take Duloxetine for the pain and am medication sensitive, but never thought it would
Fra3021
in
Restless Legs Syndrome
7 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Sleep studies and RLS
Hello everyone. What have been your experiences of sleep studies, and how useful have they been in managing your RLS? Have they actually contributed at all to resolving your RLS symptoms? Or is their benefit just to make you aware of which sleep disorders you have and which you don’t? I ask because
Hello everyone. What have been your experiences of sleep studies, and how useful have they been in managing your RLS? Have they actually contributed at all to resolving your RLS symptoms? Or is their benefit just to make you aware of which sleep disorders you have and which you don’t? I ask because
restlegs1
in
Restless Legs Syndrome
7 months ago
update
I am now on 15mg norspan patch, this is keeping the leg at a bearable level. I still have to fight the tugging and pulling 24/7 but it is not so severe that I want to end it all when the patch is on. They seem to have given up now and not trying anything else. I have arranged nerve conduction studies
I am now on 15mg norspan patch, this is keeping the leg at a bearable level. I still have to fight the tugging and pulling 24/7 but it is not so severe that I want to end it all when the patch is on. They seem to have given up now and not trying anything else. I have arranged nerve conduction studies
Hidden
in
Restless Legs Syndrome
7 months ago
My story
I am a 24 old female from India. I am 5'6" and 85 kg. I have been struggling with my body image from child hold. I hai ne da lot of weight during last four years, Specially in covid. My clothes dont fit. Its hard to get outfits that look good on me. All I wear is indian, I like Indian outfits, but sometimes
I am a 24 old female from India. I am 5'6" and 85 kg. I have been struggling with my body image from child hold. I hai ne da lot of weight during last four years, Specially in covid. My clothes dont fit. Its hard to get outfits that look good on me. All I wear is indian, I like Indian outfits, but sometimes
Healthcupid
in
Weight Loss Support
7 months ago
Help. What can I do?
I have a relative who is anorexic and in recovery. I buy in calorie laden food for them and am trying to lose weight, live alone and am struggling with this problem. Can anyone suggest what to do as I keep the food in a cupboard away from the kitchen but still eat it and my weight is going up not down
I have a relative who is anorexic and in recovery. I buy in calorie laden food for them and am trying to lose weight, live alone and am struggling with this problem. Can anyone suggest what to do as I keep the food in a cupboard away from the kitchen but still eat it and my weight is going up not down
Missionwoman
Restart Sept 2023
in
Weight Loss Support
7 months ago
B12 made symptoms go away
Hi. I had ME/CFS and it seemed to clear up 16 years later. About 3 years ago, I had fatigue, myclonic jerks especially while sleeping which woke me up and tremor feeling inside me. I took B12 sublingual for 2 or 3 weeks and the symptoms subsided. But then I stopped taking the B12 supplements and I have
Hi. I had ME/CFS and it seemed to clear up 16 years later. About 3 years ago, I had fatigue, myclonic jerks especially while sleeping which woke me up and tremor feeling inside me. I took B12 sublingual for 2 or 3 weeks and the symptoms subsided. But then I stopped taking the B12 supplements and I have
MEguy
in
Pernicious Anaemia Society
7 months ago
Red Light Therapy
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
Defiance
in
Cure Parkinson's
7 months ago
Prepping for Round 2
Hello ladies! I’m planning to start a second IVF cycle in January (when I’ll turn age 40!) and feeling hopeful. First cycle was BFN with short protocol so we are trying long protocol this time with Nafarelin (Synarel) nasal spray and Menopur. Has anyone had luck with this combo? Also we had the option
Hello ladies! I’m planning to start a second IVF cycle in January (when I’ll turn age 40!) and feeling hopeful. First cycle was BFN with short protocol so we are trying long protocol this time with Nafarelin (Synarel) nasal spray and Menopur. Has anyone had luck with this combo? Also we had the option
Newbeginnings24
in
Fertility Network UK
5 months ago
New to group and a survivor with encouragement!
Hello all, I just wanted to introduce myself to the group. I'm a 20 year survivor of postpartum psychosis in the USA. I found this group through Postpartum Support International and I'm so glad I did. I have never actually spoken to another survivor of PP until I got here, just because I've never
Hello all, I just wanted to introduce myself to the group. I'm a 20 year survivor of postpartum psychosis in the USA. I found this group through Postpartum Support International and I'm so glad I did. I have never actually spoken to another survivor of PP until I got here, just because I've never
Survivedwithcolor
in
Action on Postpartum Psychosis
5 months ago
40 years of RLS
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
Trish8433
in
Restless Legs Syndrome
7 months ago
update
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Hidden
in
Restless Legs Syndrome
7 months ago
High Dose CL ?
I am often puzzled by the high dose her neurologist/ movement specialist has her taking. I have not found anyone taking this high of dose: 8am: 25/100 CL x 3 11am: 25/100 CL x3 2pm: 25/100 CL x3 5pm: 25/100 CL x3 8pm: 25/100 CL x3 11pm: 25/100 CL x 1 but then a Rytary along with 3mg Melatonin.
I am often puzzled by the high dose her neurologist/ movement specialist has her taking. I have not found anyone taking this high of dose: 8am: 25/100 CL x 3 11am: 25/100 CL x3 2pm: 25/100 CL x3 5pm: 25/100 CL x3 8pm: 25/100 CL x3 11pm: 25/100 CL x 1 but then a Rytary along with 3mg Melatonin.
Furch
in
Cure Parkinson's
7 months ago
Got my bipolar 1 diagnosis!
Thank you everyone for giving me support every time I write here (which is a lot) I just got my bipolar 1 diagnosis and feel so relieved. Been desperate to know what’s wrong with me for years, passed around to many psychiatrists and now have it in writing. It was really important for me to know after
Thank you everyone for giving me support every time I write here (which is a lot) I just got my bipolar 1 diagnosis and feel so relieved. Been desperate to know what’s wrong with me for years, passed around to many psychiatrists and now have it in writing. It was really important for me to know after
Isabella5991
in
Action on Postpartum Psychosis
5 months ago
antipsychotic withdrawal
Hello, sorry, me again. I have recently been taken off aripiprazole due it causing obsessive suicidal thoughts, all day every day. Coming down helped and then off helped a lot, the thoughts were way less. I am still on sertraline. A week later I feel very depressed, I have been low and trying not
Hello, sorry, me again. I have recently been taken off aripiprazole due it causing obsessive suicidal thoughts, all day every day. Coming down helped and then off helped a lot, the thoughts were way less. I am still on sertraline. A week later I feel very depressed, I have been low and trying not
Isabella5991
in
Action on Postpartum Psychosis
5 months ago
Do you have testicular pain after drinking coffee? What is the reason?
Have you ever had this experience? Tell you my opinion. Possible reasons include: 1. Caffeine allergy or allergic reaction: Some people may be allergic to caffeine, which can lead to uncomfortable symptoms, including testicular pain. 2. Urinary system issues: Caffeine is a diuretic that may lead to
Have you ever had this experience? Tell you my opinion. Possible reasons include: 1. Caffeine allergy or allergic reaction: Some people may be allergic to caffeine, which can lead to uncomfortable symptoms, including testicular pain. 2. Urinary system issues: Caffeine is a diuretic that may lead to
Henry0831
in
Pain Concern
7 months ago
Orphenadrine
My hwp had been using ophenadrine some time ago and stopped because of fears around using anticholinergics. However, his unrelenting battle with sciatica has me wondering if it might not be worth taking the risk. He is a well person in every other way, but the pain has him battling to do exercise. He
My hwp had been using ophenadrine some time ago and stopped because of fears around using anticholinergics. However, his unrelenting battle with sciatica has me wondering if it might not be worth taking the risk. He is a well person in every other way, but the pain has him battling to do exercise. He
ghoegap
in
Cure Parkinson's
6 months ago
What is the difference in Cartizem verses Metopropol for tachy and afib?
I just stopped all cardizem a month ago, Dr. agreed . I got 115 beats per. minuts yesterday at 4:00pm, got scared as I am alone, and did NOT want to to hospital ER.. Kardi mobile said it was Tachycardia. I was to frightened to go through the night like that and I took A Cardizem 180 24 HR ER. took
I just stopped all cardizem a month ago, Dr. agreed . I got 115 beats per. minuts yesterday at 4:00pm, got scared as I am alone, and did NOT want to to hospital ER.. Kardi mobile said it was Tachycardia. I was to frightened to go through the night like that and I took A Cardizem 180 24 HR ER. took
scardycat
in
Arrhythmia Alliance
8 months ago
update on rls treatment
Gp has put me on 20mg Norspan patches and I am having acupunture and reflexology as well. Shumbah has suggested applying the sesame oil on troublesome leg....I have started that and will keep you informed....I have only been doing it for a week, but I think it is having some effect. The tugging, pulling
Gp has put me on 20mg Norspan patches and I am having acupunture and reflexology as well. Shumbah has suggested applying the sesame oil on troublesome leg....I have started that and will keep you informed....I have only been doing it for a week, but I think it is having some effect. The tugging, pulling
Hidden
in
Restless Legs Syndrome
8 months ago
1
...
8
9
10
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Anxiety and Depression Support
3522 results
Anxiety Support
2499 results
Mental Health Support
560 results
View top 10 communities
Sort by
Most Relevant
Newest