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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Extreme tiredness
T4. 16.2 range 12-22 T3. 6.7 range 3.1-6.8 TSH 0.02 range 0.27-4.2 Iron profile Vitamin b12 Hi there , Please can someone help offer me some advice as to what to do as I’m so extremely exhausted no energy and weak dizzy . I sleep so much and constant migraines . My whole body feels heavy especially
T4. 16.2 range 12-22 T3. 6.7 range 3.1-6.8 TSH 0.02 range 0.27-4.2 Iron profile Vitamin b12 Hi there , Please can someone help offer me some advice as to what to do as I’m so extremely exhausted no energy and weak dizzy . I sleep so much and constant migraines . My whole body feels heavy especially
Angie56
in
Thyroid UK
6 years ago
Mesenchymal Stem Cell treatment
Hi, I am a 37 year old and was diagnosed with Rheumatoid Arthritis at 32. Since then I have been told I have Osteoarthritis in both hips, both knees, both wrists, both shoulders and in my elbow to the extent that I have no cartilage left in my right elbow. I have been through all the meds and I’m currently
Hi, I am a 37 year old and was diagnosed with Rheumatoid Arthritis at 32. Since then I have been told I have Osteoarthritis in both hips, both knees, both wrists, both shoulders and in my elbow to the extent that I have no cartilage left in my right elbow. I have been through all the meds and I’m currently
neilpne10
in
Arthritis Action
6 years ago
Any advice please?
Diagnosed PMR August 2015 and started on 15 mg Pred. After approx 8/9 months developed pain in right buttock. Have always been told this is not due to the PMR and encouraged to reduce steroids. Physiotherapy has not helped but physio did help with some muscle weakness I had at that time and that
Diagnosed PMR August 2015 and started on 15 mg Pred. After approx 8/9 months developed pain in right buttock. Have always been told this is not due to the PMR and encouraged to reduce steroids. Physiotherapy has not helped but physio did help with some muscle weakness I had at that time and that
Wenben
in
PMRGCAuk
6 years ago
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CBD OIL ! Hi anyone know anything about the oil ? Selling in Holland & Barrett at a legalised low dose in UK now! Advise please in pain 🌸
I’m interested in any information from anyone who has tried it or thinking of trying it. As I am, if I get ok from my Dr with interactions with my drugs I’m thinking of it as I can’t take anti inflammatorys due to only having one damaged kidney and hate taking all the opioids for joint pain as they make
I’m interested in any information from anyone who has tried it or thinking of trying it. As I am, if I get ok from my Dr with interactions with my drugs I’m thinking of it as I can’t take anti inflammatorys due to only having one damaged kidney and hate taking all the opioids for joint pain as they make
Mellisa1066
in
NRAS
6 years ago
Sorry but do painkillers help?
Hi everyone I think I have successfully reduced to 2.5 mgs of pred. It’s taken me this long to recognise that every time I get to the next reduction level I have 7 to 10 days of worsening symptoms until I even out. I now know this is the withdrawal. This time I started taking co codamol only 2 at night
Hi everyone I think I have successfully reduced to 2.5 mgs of pred. It’s taken me this long to recognise that every time I get to the next reduction level I have 7 to 10 days of worsening symptoms until I even out. I now know this is the withdrawal. This time I started taking co codamol only 2 at night
JulieR2
in
PMRGCAuk
6 years ago
How long :/
Hi everyone hope your all doing well, so 6 weeks ago my doctors finally referred me to gynaecology, just wondered how long I would have to wait for my appointment letter to come thought I’m struggle so bad with the pain I think the wait we all have to wait is stupid :( Also anyone have any good tips
Hi everyone hope your all doing well, so 6 weeks ago my doctors finally referred me to gynaecology, just wondered how long I would have to wait for my appointment letter to come thought I’m struggle so bad with the pain I think the wait we all have to wait is stupid :( Also anyone have any good tips
Peyten
in
Endometriosis UK
6 years ago
Pelvic pain problems
Hi guys, is anyone able to help or suggest anything please? Symptoms: -pelvic pain (most days but usually manageable and something I'm used to) -severe pelvic pain, especially the weeks before, during and after my period (7-day pill break) -painful bloating (I can properly look pregnant when normally
Hi guys, is anyone able to help or suggest anything please? Symptoms: -pelvic pain (most days but usually manageable and something I'm used to) -severe pelvic pain, especially the weeks before, during and after my period (7-day pill break) -painful bloating (I can properly look pregnant when normally
jessica17
in
Pelvic Pain Support Network
6 years ago
Chronic aches & pains
My question is can boosting minerals & vitamins enhance levo uptake and absorption? When originally diagnosed 21yrs ago and put on 100mg levo I had joint pain. 15/11/17 my TSH was 10.7 and on 75mg levo this was increased to 100mg 11/1 /18 retested TSH was 0.37 since then I have been taking supplements
My question is can boosting minerals & vitamins enhance levo uptake and absorption? When originally diagnosed 21yrs ago and put on 100mg levo I had joint pain. 15/11/17 my TSH was 10.7 and on 75mg levo this was increased to 100mg 11/1 /18 retested TSH was 0.37 since then I have been taking supplements
Breena
in
Thyroid UK
6 years ago
Bovine Thyroid Health by Nutri-Meds
Does anyone take these? I have just starting taking the 130mg capsules, having been on levothyroxine for 18 years and never feeling great. My last dose was 100mcg which had more recently been reduced from a long term dose of 125mcg. I'm wondering how much of the Bovine Thryoid Health I should be taking
Does anyone take these? I have just starting taking the 130mg capsules, having been on levothyroxine for 18 years and never feeling great. My last dose was 100mcg which had more recently been reduced from a long term dose of 125mcg. I'm wondering how much of the Bovine Thryoid Health I should be taking
Amandast
in
Thyroid UK
6 years ago
Laparoscopy Tips
Hi all, I hope everyone is as well as can be. After what feels like an eternity of pain, I finally have a date for my diagnostic laparoscopy, next Tuesday 14th. Which I’m strangely excited about. Will be so great to finally have some answers and hopefully some “pain” chopped out of me. I’m also prepared
Hi all, I hope everyone is as well as can be. After what feels like an eternity of pain, I finally have a date for my diagnostic laparoscopy, next Tuesday 14th. Which I’m strangely excited about. Will be so great to finally have some answers and hopefully some “pain” chopped out of me. I’m also prepared
tasha-marie
in
Endometriosis UK
6 years ago
Time to leave between Iron and Levo
Hi Can anybody tell me how many hours to leave between taking my Levo to taking iron supplements? The doctor has put me on 3 iron tablets a day now and I currently take my T4 in the morning at 630 am. I also take T3 around 330pm so struggling to squeeze 3 iron tablets in unless I can take two tablets
Hi Can anybody tell me how many hours to leave between taking my Levo to taking iron supplements? The doctor has put me on 3 iron tablets a day now and I currently take my T4 in the morning at 630 am. I also take T3 around 330pm so struggling to squeeze 3 iron tablets in unless I can take two tablets
mistygrey
in
Thyroid UK
6 years ago
Blood test results show high ferritin
Blood test results show high ferritin but low Hg. 57 year peri menapausal, cough for 20 weeks being treated for asthma. Sometimes so bad I gag and vomit. Took a 17 day course of Prednisone which cleared the cough completely then it’s back - could this be connected to blood results. Feel a little nausea
Blood test results show high ferritin but low Hg. 57 year peri menapausal, cough for 20 weeks being treated for asthma. Sometimes so bad I gag and vomit. Took a 17 day course of Prednisone which cleared the cough completely then it’s back - could this be connected to blood results. Feel a little nausea
Chezza1777
in
Pernicious Anaemia Society
6 years ago
Latest results !?!?
I have had a couple of Blue Horizon tests. Thought I’d try a medi checks test and pay for RT3. Interesting. Although for some reason they don’t think I have Hashimoto’s which makes me doubt ALL of their results because every other test says I have ! I would be grateful for comments. I am having another
I have had a couple of Blue Horizon tests. Thought I’d try a medi checks test and pay for RT3. Interesting. Although for some reason they don’t think I have Hashimoto’s which makes me doubt ALL of their results because every other test says I have ! I would be grateful for comments. I am having another
AliF
in
Thyroid UK
6 years ago
Not too sure but have a feeling it might be endo
Hi everyone, i'm a newbie on this site and just wanted to see if anyone else is experiencing the same as me. I'm seventeen years old and have had horrible period pains for as long as i could remember. Some of what i go through are: heavy periods for the first 2-3 days, pain in the pelvic area, large
Hi everyone, i'm a newbie on this site and just wanted to see if anyone else is experiencing the same as me. I'm seventeen years old and have had horrible period pains for as long as i could remember. Some of what i go through are: heavy periods for the first 2-3 days, pain in the pelvic area, large
Hidden
in
Endometriosis UK
6 years ago
Will thyroxine be affected by pain relief during and after op?
Having major surgery on Tuesday and will have epidural and morphine etc. Will this affect thyroxine absorption? Also do I need to stop taking: Vit D with K2 spray Vit B complex Multi vit with iron Selenium drops Cod liver oil
Having major surgery on Tuesday and will have epidural and morphine etc. Will this affect thyroxine absorption? Also do I need to stop taking: Vit D with K2 spray Vit B complex Multi vit with iron Selenium drops Cod liver oil
Flecmac
in
Thyroid UK
6 years ago
Kirkby.
Hi I'm new to this site so hope you can help me ! I've had a cyst behind my knee which has burst causing severe pain and unable to walk without crutches since yesterday morning. The Doc at A & E has put me on Co Codamol . After taking 2 doses of 2 × 500mg , I've woken up with a very dry mouth & my Asthma
Hi I'm new to this site so hope you can help me ! I've had a cyst behind my knee which has burst causing severe pain and unable to walk without crutches since yesterday morning. The Doc at A & E has put me on Co Codamol . After taking 2 doses of 2 × 500mg , I've woken up with a very dry mouth & my Asthma
Hidden
in
Asthma Community Forum
6 years ago
The Good and Bad
Bit of a long post... My dad has had Parkinsons for several years now, started with a left hand tremor which has progressed to slow movement, some shuffling (though not as bad as some), and stiffness. The neurologist has had him on Pramipexole, Rasagaline, and Kemadrin for the last few years. Unfortunately
Bit of a long post... My dad has had Parkinsons for several years now, started with a left hand tremor which has progressed to slow movement, some shuffling (though not as bad as some), and stiffness. The neurologist has had him on Pramipexole, Rasagaline, and Kemadrin for the last few years. Unfortunately
Dee1980
in
Cure Parkinson's
6 years ago
Constant pain
These pains are getting worse by the minute. I’ve tried tramadol and co-codamol but it doesn’t work at all just knocks me out for a few hours. Tried having a hot bubble bath and hot water bottle but not able to eat or sleep & I’m tempted to go hospital to get morphine. Anything I could try?? Need help
These pains are getting worse by the minute. I’ve tried tramadol and co-codamol but it doesn’t work at all just knocks me out for a few hours. Tried having a hot bubble bath and hot water bottle but not able to eat or sleep & I’m tempted to go hospital to get morphine. Anything I could try?? Need help
MeshaW
in
Endometriosis UK
6 years ago
I'm new here but am an oldie to thyroid problems
Hi Sorry for the Long post if anyone can stick with it then I thank them. I have Panhypopituitarism following a prolactinoma and then radium implant in 1973. As a consequence I am on replacement meds:- hydrocortisone,desmopressin (for diabetes insipidus) levothyroxine and norditropin (GH replacement
Hi Sorry for the Long post if anyone can stick with it then I thank them. I have Panhypopituitarism following a prolactinoma and then radium implant in 1973. As a consequence I am on replacement meds:- hydrocortisone,desmopressin (for diabetes insipidus) levothyroxine and norditropin (GH replacement
shirleyh14
in
Thyroid UK
6 years ago
Has anyone??
I am severely anaemic and have now got an appointment on Tuesday for an iron infusion, just wondering has anyone else on here had one??
I am severely anaemic and have now got an appointment on Tuesday for an iron infusion, just wondering has anyone else on here had one??
jojokarak
in
British Liver Trust
6 years ago
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