Has anyone?? : I am severely anaemic and... - British Liver Trust

British Liver Trust

36,533 members17,975 posts

Has anyone??

jojokarak profile image
27 Replies

I am severely anaemic and have now got an appointment on Tuesday for an iron infusion, just wondering has anyone else on here had one??

Written by
jojokarak profile image
jojokarak
To view profiles and participate in discussions please or .
Read more about...
27 Replies
dizzime profile image
dizzime

No sorry jojo. Good luck with it though x😁

jojokarak profile image
jojokarak in reply to dizzime

Thanks x

Identity75 profile image
Identity75

I was severely anaemic a few years back, ended up having a blood transfusion, two units/bags of blood.

jojokarak profile image
jojokarak in reply to Identity75

I have had blood just not pure iron I gonna be like Popeye even though I not far off it now lol hope your feeling better x

Carterc1 profile image
Carterc1

Hi JoJo I have had a couple of blood transfusions and a couple of iron transfusions when I first became ill. All were fine but you just have to sit around until they are finished, felt loads better after having them done x

jojokarak profile image
jojokarak in reply to Carterc1

I shouldn't of read about side effects hahaha I just worried I quite sensitive to meds

O13B profile image
O13B in reply to jojokarak

They regularly give iron infusions so they will be prepared for any potential side effects x good luck

jojokarak profile image
jojokarak in reply to O13B

Thank you 😊

Carterc1 profile image
Carterc1

I know there can be side effects but I never had any at all and like I said felt much better for it, I think this is a better option than iron tablets x

Brett11 profile image
Brett11

I’ve had a couple. No pain or side effects in any way.

Cheers,

Brett

jojokarak profile image
jojokarak in reply to Brett11

Thanks Brett fingers crossed it's the same for me x

Rodjackwill profile image
Rodjackwill

I had it not long after being diagnosed with cirrhosis, I had two iron infusions, I literally felt like a new man, mine was so bad I had cravings to eat dirt or soil and later found out that this was a craving you get from severe anemia

jojokarak profile image
jojokarak in reply to Rodjackwill

I have been craving strange things gp told me it was part of the anaemia I nearly kissed him because I thought I was pregnant through immaginery conception hahaha 😂 glad it makes you feel better 😊

Chelle_ profile image
Chelle_

Hey Jo, Ive had two so far. They look like bags of rusty water going into your veins. They will keep an eye on you (bp, hr etc) as it can cause a crazy effect if filtered into you too quick, but apart from that pretty straightforward. Although I had one and it took two hours and the last took 6 so regardless have a good book! lol. Good Luck - your feel great after! x

jojokarak profile image
jojokarak in reply to Chelle_

Aww thanks Michelle I am sick of people asking if I ok because I so pale lol I gathered it was an all dayer appointment letter said to arrive at 9 am and I could be there until 5 ... Least I will getting home ... Are you feeling any better?

Chelle_ profile image
Chelle_ in reply to jojokarak

I'm ok thank you, I don't feel great, I'm ridiculously emotional and tired. I feel sick, my spleen is too big and my tummy is covered in little green bruises. lol, apart from that I am tip top! I have good people around me that make me feel better and work is keeping me occupied. How are you? x

jojokarak profile image
jojokarak in reply to Chelle_

Oh dear it's a struggle just one day at a time only way to get through it I can only say it will get better once it's done but I know it also feels frustrating waiting for that call I truly just put it too the back of my head last few months I was too tired to give a shit lol .... And I ok just hope this iron does it's job and saves me from having a bone marrow biopsy and then hopefully get back to work I am so bored ..x

Chelle_ profile image
Chelle_ in reply to jojokarak

Oh you don't want a bone marrow biopsy - I have one every year and can safely say either my pain threshold is very low or I it's very painful! Either way I wouldn't wish it on anyone! I hate them! I don't have a choice about them to be honest, but eat lots of iron enriched food and fingers crossed for this infusion!! xx

I've had an iron infusion and did not have any problems. Felt immediately better. It did take a while, but a good book will take care of the boredom if necessary! Good luck :)

jojokarak profile image
jojokarak in reply to

Thank you seems it works well

Jo3560 profile image
Jo3560

Hi. I had iron infusions ( venofer) once a month for about 6 months. They monitor you carefully during infusion . I had no side effects and each session took about an hour once everything was set up. Best of luck and hope it works x

jojokarak profile image
jojokarak in reply to Jo3560

Thanks me too 😁

Izzy4994 profile image
Izzy4994

I had 8 over two months. Now I get B 12 injections once a month.

Kelly200200 profile image
Kelly200200

Hi jojo, I'm new to the forum as I have recently been diagnosed with hep c. I have been following your posts and am very confused. I also suffer with anemia on and off and was told to stop taking iron supplements as they are bad for the liver. What is the difference between an infusion and supplements. Would that not have an effect on your liver.. As in negative.

Wish you luck with it, kind regards Kelly xx

Hi

I hope everything goes well and the infusion works, JoJo. Good luck to anyone having things done.

As most of you know I've got Nash with fibrosis, fibromyalgia, osteopenia which might turn into osteoporosis!! Git to have a dexa scan. Love and hugs to you all xxxx

jojokarak profile image
jojokarak in reply to

I had my dexa scan in December I got told I have osteopenia as well .... Fingers crossed your results are ok hunni XX

in reply to jojokarak

Thank you. Hope you are as well as can be xxxx

You may also like...

has anyone experienced similar?

I know no one here is a Dr. but i'm about to have a mental break down. My next appointment for blood

Has anyone heard of Jugular vein biopsy?

I am going to have a jugular vein biopsy soon and just wondered if anyone else has had the same...

Has anyone gone from compensated to decompensated?

Did you go back to compensated? How many times has it happened? Was each decompensated time worse...

Has anyone here had an endoscopy done?

endoscopy. I have never had one of these before, though I am aware of what they are. The...

has anyone had a permanent drain fitted for ascetics !

having a permanent drain fitted next week and is worrying about it . Has anyone had one fitted ?...