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Peroxisomal acyl-CoA oxidase deficiency
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Shout at the Moon
Today I visited my GP to try to get an iron infusion, following a reading of ferritin level of 58. He said it was a bit low. I reminded him of the research I had shown him last time, which states that levels should be over 100 in RLS patients. Sadly he hadn't read it, wanted to be helpful, but just
Today I visited my GP to try to get an iron infusion, following a reading of ferritin level of 58. He said it was a bit low. I reminded him of the research I had shown him last time, which states that levels should be over 100 in RLS patients. Sadly he hadn't read it, wanted to be helpful, but just
pennygates
in
Restless Legs Syndrome
2 years ago
Nerves ‘nicked’ during bmb
I’ve spoken to haematology this morning as I’ve been having such a lot of pain since my bmb last week. I’ve only got to try to turn over in bed and it’s like being poked with red hot needles! Anyway the nurse I spoke to said it sounded like nerves had been ‘caught’ when they did the procedure, followed
I’ve spoken to haematology this morning as I’ve been having such a lot of pain since my bmb last week. I’ve only got to try to turn over in bed and it’s like being poked with red hot needles! Anyway the nurse I spoke to said it sounded like nerves had been ‘caught’ when they did the procedure, followed
lizzziep
in
MPN Voice
2 years ago
Back, Shoulder, Knee & Hand Joint Pain.
Hi, I had an X-Ray on both of my hands last April which confirmed I had Osteoarthritis in all of the joints in both of my hands. I have had shoulder pain in both of my shoulders for many years as my job is working on a computer. I started to have lower back pain in 2020 and always had pain in one knee
Hi, I had an X-Ray on both of my hands last April which confirmed I had Osteoarthritis in all of the joints in both of my hands. I have had shoulder pain in both of my shoulders for many years as my job is working on a computer. I started to have lower back pain in 2020 and always had pain in one knee
Only45
in
Osteoarthritis Action
2 years ago
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Addiction?
I have recently started taking duloxetine and have been on co-codamol for around 7 months at highest dose i can take (60mg 4 times a day pretty much) for pain. I have tried reducing CC but pain gets unbearable at times so keep going back up. This morning i woke up pretty late compared to normal and was
I have recently started taking duloxetine and have been on co-codamol for around 7 months at highest dose i can take (60mg 4 times a day pretty much) for pain. I have tried reducing CC but pain gets unbearable at times so keep going back up. This morning i woke up pretty late compared to normal and was
Tassadar
in
Fibromyalgia Action UK
2 years ago
PMR – A newly diagnosed story so far
Warning – This is a bit long and you may find it boring! I wanted to share my recent experiences as someone who has only recently begun the PMR experience. I am a 55 year old man who shouldn’t get Polymyalgia….right?? When my pain began late in 2022 I had no idea what it might be and put off going
Warning – This is a bit long and you may find it boring! I wanted to share my recent experiences as someone who has only recently begun the PMR experience. I am a 55 year old man who shouldn’t get Polymyalgia….right?? When my pain began late in 2022 I had no idea what it might be and put off going
Bigbaldgit67
in
PMRGCAuk
2 years ago
Levothyroxine and iron prescription
hi everyone, Just been told I’ve got low iron by the dr from my bloods and was looking online that you can’t take levo and iron together and they have to be taken on an empty stomach. Please can someone confirm is this is correct? Thank you for your help.
hi everyone, Just been told I’ve got low iron by the dr from my bloods and was looking online that you can’t take levo and iron together and they have to be taken on an empty stomach. Please can someone confirm is this is correct? Thank you for your help.
RomyJean
in
Thyroid UK
2 years ago
Magnesium-which one is the best?
Hi everyone, I haven't posted for a long time, but commented on posts here and there....and read all daily. I wonder if anyone could give me some advice re: magnesium supplement... I bought my last one from Holland&Barrett and it was magnesium oxide, I have read somewhere it is the most inferior type
Hi everyone, I haven't posted for a long time, but commented on posts here and there....and read all daily. I wonder if anyone could give me some advice re: magnesium supplement... I bought my last one from Holland&Barrett and it was magnesium oxide, I have read somewhere it is the most inferior type
Nadeje
in
British Heart Foundation
2 years ago
Update on Daughter's Ferritin levels
Hi just an update from the other day,I had posted about my daughter havi low ferritin of 11. She has just let me know her ferritin is now 52😲can't quite believe it. She's going to get D checked and ask which blood tests she's had.She was only taking the Iron Protein Plus (life extension) so these
Hi just an update from the other day,I had posted about my daughter havi low ferritin of 11. She has just let me know her ferritin is now 52😲can't quite believe it. She's going to get D checked and ask which blood tests she's had.She was only taking the Iron Protein Plus (life extension) so these
caroash
in
Thyroid UK
2 years ago
Constipation ....
Sooooo, while there are some things which are considered "unmentionable", they are often the things where a chat can be very helpful. Many of us are on heavy pain medications, most of which cause constipation. Personally, I can go eight days and end up with nausea and stomach pain. Yes, I have tried
Sooooo, while there are some things which are considered "unmentionable", they are often the things where a chat can be very helpful. Many of us are on heavy pain medications, most of which cause constipation. Personally, I can go eight days and end up with nausea and stomach pain. Yes, I have tried
LhasaMomma
in
Fibromyalgia Action UK
2 years ago
Anemia
Hi all Has anyone had an iron infusion while suffering from Pmr and taking steroids 🌺
Hi all Has anyone had an iron infusion while suffering from Pmr and taking steroids 🌺
Nanny71
in
PMRGCAuk
2 years ago
Adrenals or Not Adrenals
Well, further to my post last week, I've had the results of both my faecal occult blood test (for new re-occurring digestive issues) and BNP blood test (for indications of heart failure) and all have come back normal with no further action required. The extreme fatigue has improved significantly
Well, further to my post last week, I've had the results of both my faecal occult blood test (for new re-occurring digestive issues) and BNP blood test (for indications of heart failure) and all have come back normal with no further action required. The extreme fatigue has improved significantly
Kendrew
in
PMRGCAuk
2 years ago
Iron panel results
In early Sept my ferritin came back: 25.9 (10-291) so I asked for an iron panel. I am a bit confused by the transferrin result as I have read that if low iron then transferrin should be high? Mine is below range. Oct 22: Ferritin: 28.9 (10-291) Iron serum: 13.7 (9-30.4) Transferrin: 2.42 (2.5
In early Sept my ferritin came back: 25.9 (10-291) so I asked for an iron panel. I am a bit confused by the transferrin result as I have read that if low iron then transferrin should be high? Mine is below range. Oct 22: Ferritin: 28.9 (10-291) Iron serum: 13.7 (9-30.4) Transferrin: 2.42 (2.5
Fizzyinch
in
Thyroid UK
2 years ago
Is it all about the range?
Hi everyone I was just reading up on thyroid globulin antibodies as I had a test done by Medichecks in Aug 2022 which had me within normal range and I was wondering whether people without thyroid problems had these antibodies too.
Thyroid Globulin Antibodies (TgAb) 48IU/L (reference <115)
Reading
Hi everyone I was just reading up on thyroid globulin antibodies as I had a test done by Medichecks in Aug 2022 which had me within normal range and I was wondering whether people without thyroid problems had these antibodies too.
Thyroid Globulin Antibodies (TgAb) 48IU/L (reference <115)
Reading
Souzy
in
Thyroid UK
2 years ago
bloods vit count they claim normal ?
serum iron 19.6 umol/l iron binding 63 umol/l unbound iron binding 43 umol/l percentage iron saturation 31%alkaline phosphatease level 92 u/l plasma alanine aminotransferase level ? 18 u/l serum total bilirubin level 6 umol/l serum total protein level 69 g/l plasma globulin level 33 g/l serum
serum iron 19.6 umol/l iron binding 63 umol/l unbound iron binding 43 umol/l percentage iron saturation 31%alkaline phosphatease level 92 u/l plasma alanine aminotransferase level ? 18 u/l serum total bilirubin level 6 umol/l serum total protein level 69 g/l plasma globulin level 33 g/l serum
Hidden
in
Thyroid UK
2 years ago
Muscles in lower back all rigid and locked up
Hi, the muscles around my lower back have been locked up for a few weeks now. I find using an electric blanket has helped. I also use "winter green' (methyl salicylate) sports rub, with limited effect. Taking a couple of Ibuprofen and a co-codamol help too, but it's still very immobile and limits
Hi, the muscles around my lower back have been locked up for a few weeks now. I find using an electric blanket has helped. I also use "winter green' (methyl salicylate) sports rub, with limited effect. Taking a couple of Ibuprofen and a co-codamol help too, but it's still very immobile and limits
cuppa69
in
NRAS
2 years ago
Blood Iron results
Hello everyone. My long awaited appointment at the gp surgery finally arrived and I was seen by a somewhat inexperienced health care assistant who suggested I drink a glass of tonic water before bed to help with my RLS! When I tried to explain my research, this forum and the Mayo Clinic algorithm
Hello everyone. My long awaited appointment at the gp surgery finally arrived and I was seen by a somewhat inexperienced health care assistant who suggested I drink a glass of tonic water before bed to help with my RLS! When I tried to explain my research, this forum and the Mayo Clinic algorithm
rlsagain
in
Restless Legs Syndrome
2 years ago
Mould and mycotoxins as root cause of hashimotos/ hypothyroidism!!!
Hello, I have just joined this group and want to share my journey over this past year including my new revelation for those who might be interested or it could help. I was diagnosed with subclinical hypothyroidism a year ago and offered levothyroxine by my GP due to my symptoms but that was and is
Hello, I have just joined this group and want to share my journey over this past year including my new revelation for those who might be interested or it could help. I was diagnosed with subclinical hypothyroidism a year ago and offered levothyroxine by my GP due to my symptoms but that was and is
LucyYoga
in
Thyroid UK
2 years ago
Weeks in pain and return of lack of Spoons
For weeks now, with all the jiggery pokery with my Pred and Hydrocortisone , I've been in constant pain unless I take the French equivalent of Co-Codamol x 3 per day. I have finally kicked the Hydro, after the last week on alternating days and I think now 2 days free. Pred is at 8mg which is where it
For weeks now, with all the jiggery pokery with my Pred and Hydrocortisone , I've been in constant pain unless I take the French equivalent of Co-Codamol x 3 per day. I have finally kicked the Hydro, after the last week on alternating days and I think now 2 days free. Pred is at 8mg which is where it
IdasMum
in
PMRGCAuk
2 years ago
Swollen bile duct
swollen bile duct Whilst undergoing a CT scan on bladder kidney and liver nothing was found. All ok However radiologist contacted the gastro team as he had seen a swollen bile duct. I went to see consultant and he says the duct is twice the size it should be. Need an Mri next week and then he is
swollen bile duct Whilst undergoing a CT scan on bladder kidney and liver nothing was found. All ok However radiologist contacted the gastro team as he had seen a swollen bile duct. I went to see consultant and he says the duct is twice the size it should be. Need an Mri next week and then he is
MaryH
in
Hughes Syndrome APS Forum
2 years ago
Terrible sleep - What do I need cortisol, liver, adrenals, perimenopause testing- all of them? Any advice please?
Hi All I'm having a bit of a crash at the moment and having to cancel so many social events, which is frankly quite depressing! I need a bit of help and am wondering if some kind soul might advice me. I've been doing lots of trawling and it is quite a minefield working out what we need given that the
Hi All I'm having a bit of a crash at the moment and having to cancel so many social events, which is frankly quite depressing! I need a bit of help and am wondering if some kind soul might advice me. I've been doing lots of trawling and it is quite a minefield working out what we need given that the
clarityforest
in
Thyroid UK
2 years ago
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