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Sharing my kidney story and much more! Tedx talk! Enjoy.
Hello Kidney transplant community. Filmed up in Glasgow in October - less than two weeks later I got the call for my second kidney transplant. 9 months on - here is my first Tedx talk to share into the world! I hope you enjoy. One day at a time. https://youtu.be/y0lmkEkNIuk
Hello Kidney transplant community. Filmed up in Glasgow in October - less than two weeks later I got the call for my second kidney transplant. 9 months on - here is my first Tedx talk to share into the world! I hope you enjoy. One day at a time. https://youtu.be/y0lmkEkNIuk
WhollyAligned
in
Kidney Transplant Patient Support
4 years ago
Just when it's now safe to go out, a note of caution.
All those who have received a liver transplant (like myself) or who have a suppressed immune system will know how important skin protection is at this time of year. It can feel like we are having to doubly protect ourselves. Having got through the self-isolation due to the pandemic. We can finally go
All those who have received a liver transplant (like myself) or who have a suppressed immune system will know how important skin protection is at this time of year. It can feel like we are having to doubly protect ourselves. Having got through the self-isolation due to the pandemic. We can finally go
Richard-Allen
in
Liver4Life
4 years ago
Liver News - University of Birmingham
I like to share some news that I come across from time to time. Here is a recent news article from the University of Birmingham which talks about the enormous contribution that the Liver Profusion Machine has made in the use of unviable livers. This machine was trialled over six years ago at both
I like to share some news that I come across from time to time. Here is a recent news article from the University of Birmingham which talks about the enormous contribution that the Liver Profusion Machine has made in the use of unviable livers. This machine was trialled over six years ago at both
Richard-Allen
in
Liver4Life
4 years ago
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Stem Cell Transplant
I heard this can cure PV. Why the he is this not legal in the USA?! Obviously I can't fly to Panama to get this done and can't afford it. I'm sick of being fatigued!
I heard this can cure PV. Why the he is this not legal in the USA?! Obviously I can't fly to Panama to get this done and can't afford it. I'm sick of being fatigued!
lebowski42
in
MPN Voice
4 years ago
Transplant. Illness. Feeling Ok.
Hi guys. You’ve probably seen my posts in the past. I had liver failure in April 2019 and this resulted in decompensated liver, encephalitis and extensive ascites/odema. They said first three days are life and death. Now is now. My mobility is limited and with the help of my God I came through eleven
Hi guys. You’ve probably seen my posts in the past. I had liver failure in April 2019 and this resulted in decompensated liver, encephalitis and extensive ascites/odema. They said first three days are life and death. Now is now. My mobility is limited and with the help of my God I came through eleven
cammeag
in
British Liver Trust
4 years ago
Living with PKD
I have been diagnosed with PKD since I was 24. I am now awaiting for a kidney transplant. I do have someone being tested for living donor.
I have been diagnosed with PKD since I was 24. I am now awaiting for a kidney transplant. I do have someone being tested for living donor.
Pkd_2020
in
Kidney Transplant
4 years ago
Updates Covid After Effect
Hey guys, So my dad got his tracheostomy today and they said it went well with no complications! However is creatinine is at 2.28 now it’s been in the 2’s later kinda a little worried for his kidney since he is a kidney transplant 🥴 but they said he is still urinating well so i’m a bit confused ?
Hey guys, So my dad got his tracheostomy today and they said it went well with no complications! However is creatinine is at 2.28 now it’s been in the 2’s later kinda a little worried for his kidney since he is a kidney transplant 🥴 but they said he is still urinating well so i’m a bit confused ?
tegegne12
in
ICUsteps
4 years ago
Covid19 now the after effect
Hello guys, On march 19 my father was admitted to the hospital for what we believed was gastritis pain he was throwing up at home and very tired. The hospital diagnosed him with pneumonia but on march 21 he was diagnosed with Covid19 he was rushed into the ICU for intubation. The doctors said they never
Hello guys, On march 19 my father was admitted to the hospital for what we believed was gastritis pain he was throwing up at home and very tired. The hospital diagnosed him with pneumonia but on march 21 he was diagnosed with Covid19 he was rushed into the ICU for intubation. The doctors said they never
tegegne12
in
ICUsteps
4 years ago
Shingles
Does anyone know if can be around someone with shingles I have had kidney transplant 17 years ago my husband had got the shingles I know your not supposed to be around live vaccinations for ten days but what do you do in someone get shingles
Does anyone know if can be around someone with shingles I have had kidney transplant 17 years ago my husband had got the shingles I know your not supposed to be around live vaccinations for ten days but what do you do in someone get shingles
Sally03
in
Kidney Transplant
4 years ago
Looking forward for a kidney transplant
Hi My Name is Tariq aljamal 47 years old , am married and have 2 daughters 15 and 10. I live in DeKalb , Illinois 60115 Recently on May 2020 I had akidney failure as well as doing Hemo Dialysis 3 times weekly looking forward for a chance for kidney transplant to gain my normal health and continue my
Hi My Name is Tariq aljamal 47 years old , am married and have 2 daughters 15 and 10. I live in DeKalb , Illinois 60115 Recently on May 2020 I had akidney failure as well as doing Hemo Dialysis 3 times weekly looking forward for a chance for kidney transplant to gain my normal health and continue my
tariq_72
in
Kidney Transplant
4 years ago
Loungingsofa : Pins and needles, light handedness and breathlessness
With reference to the pins and needles post transplant, I have had it in both hands especially in the thumbs and forefingers . It is most irritating and like others who have commented upon.it, I have great difficulty in opening jars and taking the tops off tins. At the moment I'm also suffering from
With reference to the pins and needles post transplant, I have had it in both hands especially in the thumbs and forefingers . It is most irritating and like others who have commented upon.it, I have great difficulty in opening jars and taking the tops off tins. At the moment I'm also suffering from
Loungingsofa
in
Positive Wellbeing During Self-Isolation
4 years ago
Update on 1st post, scared but glad to be alive!
Sorry it has taken a while to get back, So the phone call with the consultant was frustrating and disappointing to be honest. He started by mentioning the "very serious infection" I got the feeling that he thought I didn't know what it was, I said "yes, the Spontaneous Bacterial Peritonitis" I asked
Sorry it has taken a while to get back, So the phone call with the consultant was frustrating and disappointing to be honest. He started by mentioning the "very serious infection" I got the feeling that he thought I didn't know what it was, I said "yes, the Spontaneous Bacterial Peritonitis" I asked
In-Shock
in
British Liver Trust
4 years ago
A newly discovered disease may lead to better treatment of cystic fibrosis.
Cystic fibrosis is the most frequent severe inherited disorder worldwide. Every year, hundreds of families are confronted with this diagnosis – and to date, there is no cure for this disease that mainly affects the respiratory system. Besides supportive treatments, a lung transplant is often the only
Cystic fibrosis is the most frequent severe inherited disorder worldwide. Every year, hundreds of families are confronted with this diagnosis – and to date, there is no cure for this disease that mainly affects the respiratory system. Besides supportive treatments, a lung transplant is often the only
2greys
in
Lung Conditions Community Forum
4 years ago
Taking suppliment in post transplant?
I am wondering that is there anyone who take mineral suppliments after kidney transplant?
I am wondering that is there anyone who take mineral suppliments after kidney transplant?
3idoits
in
Kidney Transplant
4 years ago
Living with Chronic Neuropathic Pain
There is much money in the pain and drug industry. Ethics and the recipients of these drugs do not factor into the bottom line. Profit and Loss Statements mean percentage increases at any cost. It is sad that chronic pain patients are made to feel like drug addicts and treated in a most callous way.
There is much money in the pain and drug industry. Ethics and the recipients of these drugs do not factor into the bottom line. Profit and Loss Statements mean percentage increases at any cost. It is sad that chronic pain patients are made to feel like drug addicts and treated in a most callous way.
Hidden
in
Pain Concern
4 years ago
Diet after Transplant
Hello warriors, I am 18-month post kidney transplant. I am 28. I am just started woking a month ago. I have been told by My transplant doct to always eat fresh hot food. But since I am working away from home I wont be able to manage arrage fresh hot food. I was thinking about taking a tiffin box with
Hello warriors, I am 18-month post kidney transplant. I am 28. I am just started woking a month ago. I have been told by My transplant doct to always eat fresh hot food. But since I am working away from home I wont be able to manage arrage fresh hot food. I was thinking about taking a tiffin box with
pateldev
in
Kidney Transplant
4 years ago
Loungingsofa - With regards to pins and needles
Since having my liver transplant in Feb of this year I have had numbness and pins and needles in both hands especially in the thumbs and index fingers. I have to be very wary that I don't burn myself as I have little sensation of temperature. i spoke with .my.consultant about this who said that it is
Since having my liver transplant in Feb of this year I have had numbness and pins and needles in both hands especially in the thumbs and index fingers. I have to be very wary that I don't burn myself as I have little sensation of temperature. i spoke with .my.consultant about this who said that it is
Loungingsofa
in
Positive Wellbeing During Self-Isolation
4 years ago
OVERCOMING GVHD AFTER ASCT
Post by MPN-MATE Admin » Thu Jul 16, 2020 9:56 am Morning all... :D For some of us here, (but hopefully not all...?), some may eventually have to travel down the path of having an Allogenic Stem Cell Transplant (ASCT), when and if it becomes necessary... ... If, and when that occurs, one of the known
Post by MPN-MATE Admin » Thu Jul 16, 2020 9:56 am Morning all... :D For some of us here, (but hopefully not all...?), some may eventually have to travel down the path of having an Allogenic Stem Cell Transplant (ASCT), when and if it becomes necessary... ... If, and when that occurs, one of the known
socrates_8
in
MPN Voice
4 years ago
Loungingsofa70
I am three months out of having my liver transplant on .23rd Feb. I am not feeling any pain from the operation except in my back a d left hand side but I have been assured that this is quite common. My main problem at the moment is tireness. I can not walk much further than about 2000 steps without becoming
I am three months out of having my liver transplant on .23rd Feb. I am not feeling any pain from the operation except in my back a d left hand side but I have been assured that this is quite common. My main problem at the moment is tireness. I can not walk much further than about 2000 steps without becoming
Loungingsofa
in
British Liver Trust
4 years ago
Covid19 and transplant patients
Hi all, hope you're all as well as can be expected. I haven't been around for quite some time now. I guess normal life gets back in the way eventually. Bit of background, I am a Liver Transplant patient, Kings College Hospital 2014, so coming up to 6th year anniversary. I've been doing well and got back
Hi all, hope you're all as well as can be expected. I haven't been around for quite some time now. I guess normal life gets back in the way eventually. Bit of background, I am a Liver Transplant patient, Kings College Hospital 2014, so coming up to 6th year anniversary. I've been doing well and got back
RodeoJoe
in
British Liver Trust
4 years ago
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