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Hi all. I'm post liver transplant and have been writing for british liver trust website. I've faced lots and lots of complications with big effects to my physical and mental health. It's had a big impact on my life. I've been looking for help. I've even thought about palliative residential respite
Hi all. I'm post liver transplant and have been writing for british liver trust website. I've faced lots and lots of complications with big effects to my physical and mental health. It's had a big impact on my life. I've been looking for help. I've even thought about palliative residential respite
welshgareth
in
British Liver Trust
5 years ago
My sister
My sister is having a kidney transplant next Friday...oddly enough the donor is her husband...what is the best thing I can do for her or bring her?
My sister is having a kidney transplant next Friday...oddly enough the donor is her husband...what is the best thing I can do for her or bring her?
PoppyMott
in
Kidney Transplant
5 years ago
Side ache and naseau
I had my kidney transplant 18 months ago. It is on my left side. I have always experienced uncomfortable pressure on the transplant site. I understand this. However, I also experience considerable pain on both sides of my abdomen usually waking me up at night or early morning. Ironically, the ache is
I had my kidney transplant 18 months ago. It is on my left side. I have always experienced uncomfortable pressure on the transplant site. I understand this. However, I also experience considerable pain on both sides of my abdomen usually waking me up at night or early morning. Ironically, the ache is
Kernick
in
Kidney Transplant Patient Support
5 years ago
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severe coronary arterial calcification
I am 1 year and 10 months post kidney transplant from a live donor. Last week I had 2 CT scans due to my ongoing bouts of excessive sweating and bouts of fatigue. The results came back normal except for one. This one stated that I had severe coronary arterial calcification. My blood work has always been
I am 1 year and 10 months post kidney transplant from a live donor. Last week I had 2 CT scans due to my ongoing bouts of excessive sweating and bouts of fatigue. The results came back normal except for one. This one stated that I had severe coronary arterial calcification. My blood work has always been
kidneytransplan
in
Kidney Transplant Patient Support
5 years ago
Incisional Hernia Experiences
Hello I had my liver transplant on the 15th August 2017 and a few months later started feeling a bit of pain on my right side and also a lump started to appear. This was identified as an incisional hernia and it became very large. It was repaired on the 23rd March this year but unfortunately I had a
Hello I had my liver transplant on the 15th August 2017 and a few months later started feeling a bit of pain on my right side and also a lump started to appear. This was identified as an incisional hernia and it became very large. It was repaired on the 23rd March this year but unfortunately I had a
AndyEssex
in
British Liver Trust
5 years ago
Over sensitive ??
Going on a 3 day cruise in October and just been asked on Facebook if I would like one of these!! Is it silly to get upset - since my husband's illness (not alcohol related) and subsequent liver transplant I'm not sure if I'm being over sensitive or just stupid. My husband intends to take his transplant
Going on a 3 day cruise in October and just been asked on Facebook if I would like one of these!! Is it silly to get upset - since my husband's illness (not alcohol related) and subsequent liver transplant I'm not sure if I'm being over sensitive or just stupid. My husband intends to take his transplant
Kimlescam
in
British Liver Trust
5 years ago
Stem cell transplant for Myelofibrosis
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
Dodders
in
MPN Voice
5 years ago
Keep Active to Stay Healthy
After my kidney transplant in 2012, I experienced two below-knee amputations in the next two years. I learnt to walk using two prosthetic legs, aided by two walking sticks. I am encouraged to keep active to stay healthy, so I go on twice weekly walks, one with my walking coach, and twice weekly gym sessions
After my kidney transplant in 2012, I experienced two below-knee amputations in the next two years. I learnt to walk using two prosthetic legs, aided by two walking sticks. I am encouraged to keep active to stay healthy, so I go on twice weekly walks, one with my walking coach, and twice weekly gym sessions
richardzach
in
Weight Loss Support
5 years ago
Good news from Tricity125
Hi, I’m a member of the NRAS group and we’ve 3 posts appeared from Tricity 125 about 10 hours ago - I think they are meant for you peeps as he’s never posted with us before. The post lung transplant op news from Tricity 125 is he’s alive and doing relatively well. Please do pop over to his posts on NRAS
Hi, I’m a member of the NRAS group and we’ve 3 posts appeared from Tricity 125 about 10 hours ago - I think they are meant for you peeps as he’s never posted with us before. The post lung transplant op news from Tricity 125 is he’s alive and doing relatively well. Please do pop over to his posts on NRAS
Ali_H
in
Lung Conditions Community Forum
5 years ago
Vaccines
I’m traveling to Thailand in September and I need to two vaccines: MMR and Varicella. I received my kidney transplant in 4/2007. What should I do ? I remembered being vaccinated back in the early 70s but I can’t find my records. I took the blood test and my results was negative.
I’m traveling to Thailand in September and I need to two vaccines: MMR and Varicella. I received my kidney transplant in 4/2007. What should I do ? I remembered being vaccinated back in the early 70s but I can’t find my records. I took the blood test and my results was negative.
Deelyn21
in
Kidney Transplant
5 years ago
Thin skin
Hi I have had a kidney transplant for 28 years I have very thin skin which is causing a lot of problems I bruise very easy especially on legs is there anyone who could tell me if there is anything I can do especially the legs as I am getting paranoid about anyone touching them I have been told by the
Hi I have had a kidney transplant for 28 years I have very thin skin which is causing a lot of problems I bruise very easy especially on legs is there anyone who could tell me if there is anything I can do especially the legs as I am getting paranoid about anyone touching them I have been told by the
Rusty8
in
Kidney Transplant Patient Support
5 years ago
Done with Lutetium
I completed five of the six infusions in the VISION clinical trial before I was excluded due to low hemoglobin. The initial and main cause of the low hemoglobin was my bone marrow transplant in late 2017, but the level continued dropping. Lutetium reduced my PSA by about 300 per infusion, in a linear
I completed five of the six infusions in the VISION clinical trial before I was excluded due to low hemoglobin. The initial and main cause of the low hemoglobin was my bone marrow transplant in late 2017, but the level continued dropping. Lutetium reduced my PSA by about 300 per infusion, in a linear
Beauxman
in
Advanced Prostate Cancer
5 years ago
Jaycee's Journey - continues
Our poor Jaycee is back in the wars again. She’s once again back in hospital. She was admitted yet again last Wednesday. As many of you may know, Jaycee has been suffering with some post-transplant issues. Her body it would appear isn’t making enough white blood cells, and those ones it is making are
Our poor Jaycee is back in the wars again. She’s once again back in hospital. She was admitted yet again last Wednesday. As many of you may know, Jaycee has been suffering with some post-transplant issues. Her body it would appear isn’t making enough white blood cells, and those ones it is making are
Hidden
in
British Liver Trust
5 years ago
Taking 195mg of iron pills a day: did you lose your appetite?
My spouse with doctor's orders around July 8 started taking 195mg of iron pills a day (had been taking 65 mg for months) due to "low iron stores"/low hemoglobin and severe fatigue since February. Did anyone take a high dose of iron for a long time and lose their appetite? HE received his kidney transplant
My spouse with doctor's orders around July 8 started taking 195mg of iron pills a day (had been taking 65 mg for months) due to "low iron stores"/low hemoglobin and severe fatigue since February. Did anyone take a high dose of iron for a long time and lose their appetite? HE received his kidney transplant
Gardner-NY
in
Kidney Transplant
5 years ago
Transplant
Hi all, hope you are well as can be. I haven't been in touch for a while as nothing had changed with my hubby's condition. Saw his consultant today thinking he would be able to go on the list but again we were turned down because she said he seemed well. so not ill enough to be put on the list. It has
Hi all, hope you are well as can be. I haven't been in touch for a while as nothing had changed with my hubby's condition. Saw his consultant today thinking he would be able to go on the list but again we were turned down because she said he seemed well. so not ill enough to be put on the list. It has
Catmeow
in
British Liver Trust
5 years ago
Kidney transplant
My husband’s GFR was 15 on his last blood test. The doctor is saying he should go on a transplant list. I heard that the immune suppressant drugs after the surgery are brutal. Those of you who’ve had transplants, (or knew someone who has) what was your/their experience? Thank you in advance ❤️
My husband’s GFR was 15 on his last blood test. The doctor is saying he should go on a transplant list. I heard that the immune suppressant drugs after the surgery are brutal. Those of you who’ve had transplants, (or knew someone who has) what was your/their experience? Thank you in advance ❤️
Christina1960
in
Vasculitis UK
5 years ago
Question: bone marrow biopsy after transplant
The kidney transplant appointment yesterday did not yield good news for my spouse as we hoped about his declining hemoglobin numbers the past 6 months and now white blood count went down from 7.27 last month to 1.59 yesterday. CMV blood lab taken yesterday (last time negative and hope this is negative
The kidney transplant appointment yesterday did not yield good news for my spouse as we hoped about his declining hemoglobin numbers the past 6 months and now white blood count went down from 7.27 last month to 1.59 yesterday. CMV blood lab taken yesterday (last time negative and hope this is negative
Gardner-NY
in
Kidney Transplant
5 years ago
The real Silent Heroes
I have mentioned on here before, about those very special people who care and look after us during our liver disease journey. Those wonderful people who put up with us during those terrible moments of HE. Those who stand by us and help us through our Liver Transplant convalescence. Sometimes a simple
I have mentioned on here before, about those very special people who care and look after us during our liver disease journey. Those wonderful people who put up with us during those terrible moments of HE. Those who stand by us and help us through our Liver Transplant convalescence. Sometimes a simple
Hidden
in
British Liver Trust
5 years ago
Can I get a kidney transplant if I have tattoos?
I asked my nephrologist if I could get tattoos before I got them and he said yes so I did. But come to find out I'm allergic to the ink and keep getting rashes on them so I called to make an appointment with my family doctor but she was on vacation so I made an appointment with the nurse practitioner
I asked my nephrologist if I could get tattoos before I got them and he said yes so I did. But come to find out I'm allergic to the ink and keep getting rashes on them so I called to make an appointment with my family doctor but she was on vacation so I made an appointment with the nurse practitioner
Mindy73
in
Kidney Transplant
5 years ago
Kidney Transplant
Hello everyone, I am 48 yrs old women in Indiana. I need to know how long does it take to get a kidney transplant? My son is wanting to get tested and the actual transplant center that I'm going to it seem like they're taking all day or getting things going I am currently not on dialysis yet but I'm
Hello everyone, I am 48 yrs old women in Indiana. I need to know how long does it take to get a kidney transplant? My son is wanting to get tested and the actual transplant center that I'm going to it seem like they're taking all day or getting things going I am currently not on dialysis yet but I'm
Rene70
in
Kidney Disease
5 years ago
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