Hi all, hope you're all as well as can be expected. I haven't been around for quite some time now. I guess normal life gets back in the way eventually.
Bit of background, I am a Liver Transplant patient, Kings College Hospital 2014, so coming up to 6th year anniversary. I've been doing well and got back what I consider a fairly normal life. Well that is until the pandemic. I'm obviously shielding and have absolutely no idea what to expect if I caught the disease. Basically, do we have any stories regarding how Liver Transplant patients can expect to fare if they catch it?
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RodeoJoe
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It does make for alarming reading, and I will point out 2 things - 1) these are the 'sharp end of the wedge' , the patients who were hospitalised - there will be many more who have been mildly unwell at home, therefore not included in the reporting,
2) This is not specific to transplant patients, but those with 'significant liver disease'
I do not know of any statistics available specifically to liver transplant patients, but I am sure the British Liver Trust website will be updated if and when that data is available.
Thank you for your response. I had previously wondered why people with liver disease weren't on the shielding list, and it seems they really should be.
Yes it is quite an alarming read so I guess that's why I posted wondering if anyone had any first hand experience. I'm finding that as the lock down measures are relaxed I find myself more anxious and finding the shielding almost impossible to comply with.
Me neither but the key bit was "Within their cohort of over 150 transplant recipients, the authors identified six patients with COVID-19, including three resulting deaths."
The 3 months isolation was right at the start of the pandemic, so I think was based on nothing more than seeing how things go. If you are working from home or furloughed it might be worth having a chat with your boss.
I'm lucky that I can work from home and work at a University. There are no plans for anyone to go on premise until the new academic year in Oct. And even then they are talking about a slow return. As much for well being and mental health as anything else.
I've not seen anyone here mention it but from what I read on Twitter the BLT are telling patients to talk to their GP or consultant if they receive the text.
I received a text on Friday from NHS digital saying I’ve been identified as someone who should shield and I’d be getting a letter this week, not sure why I got this text again as had it around 10 weeks ago unless it’s an update
Mama41 H there its Paderico here so nice to see you have taken the time to post, I wont add or detract from the post just so so so happy to hear from you hope you are as well as you can be.
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Caring for mam Post Liver Transplant
Transplant
Called for transplant 
Transplant preparation 
No transplant
