Experiences with

Pancreas transplant

Just wondering if anyone else out here has had this diagnosis? My husband has been diagnosed this week, his pancreas is now barely functioning at all, so mimicking Type 1. Care has been quite slow, as it seems quite rare, not often seen by GP, likewise patients with Liver Transplant! They always seem

Hi Everyone, I am hoping to hear about your experience with having your Polycystic Kidneys removed. I had a kidney transplant three years ago and I was hoping my kidneys would shrink down and I would not have to worry about having them removed. Unfortunately mine are not and might be continuing to

Hello, I had a preemptive, living donor kidney transplant 7 weeks ago. The following morning after the transplant, I had to be rushed back into surgery for compartment syndrome (the new kidney wasn't getting enough blood and was becoming cyanotic). They cut the fascia and inserted a 6 inch piece of

Having just been diagnosed with mild PBC and not being on any liver transplant list, I was astonished to discover that our annual worldwide travel policy has quadrupled in cost!! Is anyone able to recomment a travel insurance provider that is more reasonable? Especially as my condition is mild and

I am 6 months post kidney transplant. I had BK virus for 3 months. My doctor is treating with infusion of Cidofivir and immunoglobilin. The numbers are still trending high. The last result was 76000 copies. Did anyone had a similar issue and how long did it take to bring it down. Any suggestions

I have ESKD and I bruise very easily. I was wondering if post kidney transplant will resolve or help this issue.

My mother was put on the list for a liver transplant and everything was looking good until recently, she had developed pancreatitis which they say is fatal if she were to transplant her while she has pancreatitis. The doctors keep pushing my family and myself to hospice care and telling us to be realistic

Hello, I am grateful to be with you as support through this journey. I was diagnosed with PMR 3wks ago via elevated sedation rate and CRP. I also had classic sudden onset symptoms. I was started on 20mg of prednisone which helped but the mornings were still rough for 1-3hrs. I was seen again yesterday

From an attendee of our Love Your Liver for Black History Month workshop last week. "I very much enjoyed last week's seminar on liver cancer. Although I don't have liver cancer, back in October 2012, my liver was attacked by three different autoimmune diseases that had me on the liver transplant

I have just had a kidney transplant and wanted to know what foods to try first.

I was recently at a new transplant center to inquire about possibly listing there in addition to my current center. While meeting with the transplant team, I also met with the transplant surgeon. He mentioned that in preparation for the surgery I should get the vaccines for Shingles, RSV and any new

I am coming up on 2 years post kidney transplant. I feel very good with one exception. I have gained about 25 lbs after transplant. My lab work is looking very good and doctors are very pleased with me. I believe that some of the anti-rejection medications work at adding weight. I will admit that

Just thought I would share what I saw this a.m. in the paper about organ transplant disparities. https://www.nytimes.com/interactive/2025/02/26/us/organ-transplants-waiting-list-skipped-patients.html?smid=nytcore-ios-share&referringSource=articleShare

this policy was decided last year way before the new administration. I was told about this change last year by my Kidney transplant team. I have to travel 2 hours to my clinic appointments.

I have a long medical history with various conditions leading to another but for the much greater part have had no pain or distressing symptoms. Briefly: Late 1980s - Gall Stones, Gall Bladder removed. Blood tests didn't return to normal. After a few years of investigations was diagnosed with: Primary

Happy Kidney-versary! Today is the third anniversary of my life changing kidney transplant. I was blessed with a receive an anonymously donated healthy kidney. I was three months away from aging out the program at my transplant center when I got the call. I couldn’t believe this was happening to me.

I’m traumatized by seven years ina row of devastating events that have broken my spirit and wrecked my ability to rebound. My niece was murdered in her own yard, life’s financial curses have caused severe losses of very hard earned money for retirement and necessary repairs home, my son got cancer

Hello everyone, We're having our first [i]The Truth About Liver Cancer[/i] workshop on Saturday, March 15, at 12 p.m. ET. The topic is Patient Perspectives. You'll meet three people who have or had different liver diseases that put them at a high risk for liver cancer. You can register

My hubby has received an appt letter for his liver transplant inital assessment at Kings- London. Please could anyone who has been through the Kings assessment in the last 2/3 years share your experience please. ( Polite point: We don't do social media so won't be able to get support from the Facebook

Hi Unfortunately my amazing Dad died back in April last year 2024. He had a cardio version 3 months before he died as he was experiencing fast heart rhythm to the point it was overheating and doctor said he needs a cardio version. On the night my Dad died, he showed jo symptons. Had a full meal, had