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Gemcitibane/intravenous zoledronic acid
I was diagnosed stage 4b in January 2018, had debulking surgery, no adjuvant chemo, then two rounds of carboplatin about 18 months apart followed by Niraparib for 8 months, but no further treatment for the last 18 months.Then 3 weeks ago I needed treatment for hypercalcemia (which I didn't know I
I was diagnosed stage 4b in January 2018, had debulking surgery, no adjuvant chemo, then two rounds of carboplatin about 18 months apart followed by Niraparib for 8 months, but no further treatment for the last 18 months.Then 3 weeks ago I needed treatment for hypercalcemia (which I didn't know I
bamboo89
in
My Ovacome
8 months ago
Problems with neck causing shoulder and arm pains
I have been back and forwards to the doctors over the past couple of years with a suspected torn rotator cuff in my right shoulder. I had a ultrasound on shoulder 2 months ago and was told my shoulder is fine and I probably have a neck problem which is causing the pain. Contacted doctors again and was
I have been back and forwards to the doctors over the past couple of years with a suspected torn rotator cuff in my right shoulder. I had a ultrasound on shoulder 2 months ago and was told my shoulder is fine and I probably have a neck problem which is causing the pain. Contacted doctors again and was
Papareaps
in
Pain Concern
8 months ago
PEG/RIG feeding tubes
Hi chaps, question for you. My wife has now had MSA since 2016 so is a fair way into it. She has the usual problems and is now too late for PEG tubes, however, it still might be possible for a RIG set up. She no longer eats much so I make her diet high in calories etc, drinking is sort of ok for now.
Hi chaps, question for you. My wife has now had MSA since 2016 so is a fair way into it. She has the usual problems and is now too late for PEG tubes, however, it still might be possible for a RIG set up. She no longer eats much so I make her diet high in calories etc, drinking is sort of ok for now.
Oliverwindsor
in
Multiple System Atrophy Trust
8 months ago
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I’m currently having investigations into Endo-sorry long post but need some advice or any reassurance:)
Hi I’m Sara and I’ve just turned 22, this month, and over the last 3 years I have symptoms (similar to the ones listed for endometriosis) and they have become more severe or more frequent/longer episodes that have been stopping me from working or functioning properly (exercise, sex, going out); it has
Hi I’m Sara and I’ve just turned 22, this month, and over the last 3 years I have symptoms (similar to the ones listed for endometriosis) and they have become more severe or more frequent/longer episodes that have been stopping me from working or functioning properly (exercise, sex, going out); it has
Butterfly0509
in
Endometriosis UK
8 months ago
Gastric sleeve op
Greetings to my HealthUnblocked friends! I thought I'd update you on what's been going on for me the last few weeks. Well, my gastric sleeve op was booked in for 30th September and my consultant talked about the diet I'd need to be on for the two weeks beforehand. The reason for it was that when they
Greetings to my HealthUnblocked friends! I thought I'd update you on what's been going on for me the last few weeks. Well, my gastric sleeve op was booked in for 30th September and my consultant talked about the diet I'd need to be on for the two weeks beforehand. The reason for it was that when they
saville75
in
Headway
8 months ago
NEWBIE
I have chronic myeloproliferative disease - between ET & prefibrotic myelofibrosis, on HU 500mg per day and 1000mg on Sundays, plus 75mg Aspirin. This is of course on top of all my usual pain medication. I was undiagnosed for 5years until this year in May, my high platelet levels were picked up by chance
I have chronic myeloproliferative disease - between ET & prefibrotic myelofibrosis, on HU 500mg per day and 1000mg on Sundays, plus 75mg Aspirin. This is of course on top of all my usual pain medication. I was undiagnosed for 5years until this year in May, my high platelet levels were picked up by chance
JOL13
in
MPN Voice
8 months ago
💥coping with chronic pain and fatigue💥
💥hi everyone! I’ve recently been diagnosed with fibro and I’m looking for ways to cope with the pain and fatigue. Does anyone have any advice they could offer me please? Anything from your experiences with medication and assistive devices, to the things you do to make daily living a bit more comfortable
💥hi everyone! I’ve recently been diagnosed with fibro and I’m looking for ways to cope with the pain and fatigue. Does anyone have any advice they could offer me please? Anything from your experiences with medication and assistive devices, to the things you do to make daily living a bit more comfortable
RatArt
in
Fibromyalgia Action UK
8 months ago
Gallstones
Hello again 👋 Well I didn't expect this! I'm just out of A&E after a gallstone attack. Excruciating, until the morphine kicked in. I've been given strong painkillers and antibiotics. I'm a bit miffed, as I've been following a Low Fodmap, anti- inflammatory, pescatarian diet for as long as I can remember
Hello again 👋 Well I didn't expect this! I'm just out of A&E after a gallstone attack. Excruciating, until the morphine kicked in. I've been given strong painkillers and antibiotics. I'm a bit miffed, as I've been following a Low Fodmap, anti- inflammatory, pescatarian diet for as long as I can remember
Caffeinefreezone
in
Thyroid UK
8 months ago
Joint pain
Hi everyone I've been suffering with really bad joint pain I fill stiff and she all over is this normall with pbc if so wot pain killers can I take kind regards
Hi everyone I've been suffering with really bad joint pain I fill stiff and she all over is this normall with pbc if so wot pain killers can I take kind regards
Purdy2017
in
PBC Foundation
8 months ago
Painkiller advice for Anagrelide headaches.
Started Anagralide 7 days ago, & took horrendous headache today. Took Solpadeine Max, & this helped, but only to be used for 3 days, & are expensive. Can my GP give me strong painkillers, or should I jut stick with Solpadeine? Would Paracetamol maybe help? Again thank you for any response.
Started Anagralide 7 days ago, & took horrendous headache today. Took Solpadeine Max, & this helped, but only to be used for 3 days, & are expensive. Can my GP give me strong painkillers, or should I jut stick with Solpadeine? Would Paracetamol maybe help? Again thank you for any response.
Didgeridoo2
in
MPN Voice
8 months ago
Waiting for an appointment
Hi everyone, Just a little rant at the useless NHS again, I have been waiting for 3 years to be seen at the pain management clinic at my local hospital. I have contacted my doctor umpteen times and finally he got me an appointment, YIPPEE! I thought, it was short lived though. It turns out that the
Hi everyone, Just a little rant at the useless NHS again, I have been waiting for 3 years to be seen at the pain management clinic at my local hospital. I have contacted my doctor umpteen times and finally he got me an appointment, YIPPEE! I thought, it was short lived though. It turns out that the
Imagine1
in
Pain Concern
8 months ago
First Post
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Ryshta
in
NRAS
8 months ago
pain relief for rotator cuff injury
I am seeking honest answers regarding treatment for severe pain. My PBC is “evolving “. My liver biopsy was inconclusive but I was started on urso due to symptoms and progression of labs. I recently had an MRI that shows mild liver inflammation but nothing particularly concerning based on my interpretation
I am seeking honest answers regarding treatment for severe pain. My PBC is “evolving “. My liver biopsy was inconclusive but I was started on urso due to symptoms and progression of labs. I recently had an MRI that shows mild liver inflammation but nothing particularly concerning based on my interpretation
Donti
in
PBC Foundation
8 months ago
To Give Hope
n 2018 I could hardly walk, or get out of the bath without help, I did try a few drugs until finding the right one that worked, that being hydroxychloroquine don;t get me wrong I do have bad days but I have learnt to give in to it and rest,take pain killers,and that the flare will pass, I thought back
n 2018 I could hardly walk, or get out of the bath without help, I did try a few drugs until finding the right one that worked, that being hydroxychloroquine don;t get me wrong I do have bad days but I have learnt to give in to it and rest,take pain killers,and that the flare will pass, I thought back
VeronicaF
in
NRAS
8 months ago
Minor Calf Strains (Pulled Calf)
As many know by now, I've been firmly placed onto the injury couch again, so my next posts will not be about running, or walking, rowing, dancing, stretching, weightlifting 😩 but …. yes … recovery and rehabilitation. I’ll share my journey to hold myself to account, but also in case it helps anyone
As many know by now, I've been firmly placed onto the injury couch again, so my next posts will not be about running, or walking, rowing, dancing, stretching, weightlifting 😩 but …. yes … recovery and rehabilitation. I’ll share my journey to hold myself to account, but also in case it helps anyone
CBDB
Administrator
in
Strength & Flex
8 months ago
Broken Shoulder
Hi, everyone. My 73 year old husband had a nasty fall playing walking football on Monday morning. It turned out that he broke his shoulder badly and most of his arm came out in a massive bruise. I took him straight to casualty hoping to get seen straight away because his shoulder didn't look right and
Hi, everyone. My 73 year old husband had a nasty fall playing walking football on Monday morning. It turned out that he broke his shoulder badly and most of his arm came out in a massive bruise. I took him straight to casualty hoping to get seen straight away because his shoulder didn't look right and
Imagine1
in
Pain Concern
8 months ago
Check your Thyroid
For about a year I’ve been struggling. Fatigue getting worse, frozen shoulder, dry mouth and eyes, aching, brain fog, palpitations. It really got worse after last years autumn Covid booster when I thought I was having a heart attack. Heart all checked out fine. So I talked to my consultant at my clinic
For about a year I’ve been struggling. Fatigue getting worse, frozen shoulder, dry mouth and eyes, aching, brain fog, palpitations. It really got worse after last years autumn Covid booster when I thought I was having a heart attack. Heart all checked out fine. So I talked to my consultant at my clinic
Readlots
in
British Liver Trust
8 months ago
Weaning off Topiramate and starting Rizatriptan
I saw my consultant today (it has been 3 months since I last saw him). I do not think I am seeing much benefit from the Topiramate, and after a long discussion he came to the conclusion that he thinks the Topiramate could be contributing to my severe insomnia and depression. Therefore he has decided
I saw my consultant today (it has been 3 months since I last saw him). I do not think I am seeing much benefit from the Topiramate, and after a long discussion he came to the conclusion that he thinks the Topiramate could be contributing to my severe insomnia and depression. Therefore he has decided
AMG26
in
Migraine Support
8 months ago
Deep infiltrated Bowel Endo
Hey warriors! I have deep infiltrated bowel endo, mild adenomysis and a growth in my pouch of Douglas :( My main issues are having extreme pain the moment I need the loo! The pain subsides about 30 minutes after I go but I also get sharp pains in my abdomen so I’m looking at the best diet/ foods to
Hey warriors! I have deep infiltrated bowel endo, mild adenomysis and a growth in my pouch of Douglas :( My main issues are having extreme pain the moment I need the loo! The pain subsides about 30 minutes after I go but I also get sharp pains in my abdomen so I’m looking at the best diet/ foods to
Karen_92
in
Endometriosis UK
8 months ago
Advice on pain killers
Please can i have some suggestions on what pain killers to take which will not cause a reaction to my T. The noise of the T gives me such a bad headache. My heads feels like it will explode . Any advice on how to manage this flare up over the last two weeks been a huge struggle. In a dark place
Please can i have some suggestions on what pain killers to take which will not cause a reaction to my T. The noise of the T gives me such a bad headache. My heads feels like it will explode . Any advice on how to manage this flare up over the last two weeks been a huge struggle. In a dark place
Parrcj
in
Tinnitus UK
8 months ago
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