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Pattern Glare
Does anyone else get this? It's the proper term ( learnt from pink vision Headway) It's one of the things I now live with . Supermarket syndrome ( cherylclair posted) Part of it too. It has improved but as I'm 'appearing ' more 'normal 'sorts the chaff from the wheat with understanding of how debilitating
Does anyone else get this? It's the proper term ( learnt from pink vision Headway) It's one of the things I now live with . Supermarket syndrome ( cherylclair posted) Part of it too. It has improved but as I'm 'appearing ' more 'normal 'sorts the chaff from the wheat with understanding of how debilitating
Nackapan
in
Pernicious Anaemia Society
11 months ago
Flaring up after Booster
Good morning all,I hope everyone is well as can be given their conditions. I read everyone's messages but rarely post. I had my fourth Covid vaccination yesterday morning. It should be my fifth but I didn't take the previous one. By late afternoon/evening, my shoulder was hurting and my hand and some
Good morning all,I hope everyone is well as can be given their conditions. I read everyone's messages but rarely post. I had my fourth Covid vaccination yesterday morning. It should be my fifth but I didn't take the previous one. By late afternoon/evening, my shoulder was hurting and my hand and some
Choccy23
in
NRAS
1 year ago
FND SUCKS
Hi I'm Debby and I'm in the USA in Utah. I have been dealing with constant pain all over, abdominal pain, constipation that lasted sometimes 17 days with no help from anything, slirred speech, loss of the ability to walk flat( I walk on my tipsy toes) and need a cane, walker or scooter to get around
Hi I'm Debby and I'm in the USA in Utah. I have been dealing with constant pain all over, abdominal pain, constipation that lasted sometimes 17 days with no help from anything, slirred speech, loss of the ability to walk flat( I walk on my tipsy toes) and need a cane, walker or scooter to get around
Luv2teezeu
in
Functional Neurological Disorder - FND Hope
3 months ago
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Pain that effects my life
Last 2 days had pain right side wrist leg and shoulder . Previously to this for years I had back ache and shoulder . I know think it could be possibly fibromeliga and will keep going back with a pain log . I went today but the doctor said I come to early and implying I am wasting there time . I did
Last 2 days had pain right side wrist leg and shoulder . Previously to this for years I had back ache and shoulder . I know think it could be possibly fibromeliga and will keep going back with a pain log . I went today but the doctor said I come to early and implying I am wasting there time . I did
Amanda556
in
Borders Pain Management
1 year ago
Hi Penny
I was on pred for 3 years for p m a.I reduced very slowly but it was extremely difficult once I hit 5mgms I then reduced by half a mgm every 2 months.At each reduction I experienced break through pain .When I finally stopped I was in severe pain but I persevered with the help of pain killers heat bags
I was on pred for 3 years for p m a.I reduced very slowly but it was extremely difficult once I hit 5mgms I then reduced by half a mgm every 2 months.At each reduction I experienced break through pain .When I finally stopped I was in severe pain but I persevered with the help of pain killers heat bags
Whist
in
NRAS
1 year ago
curious!
Good morning! I am doing so well on prednisone 6mg. I can’t believe the difference after being tapered too quickly and being on only Advil. I have latent TB and have to start a medication for that for 4 months. Apparently, this med will decrease the effects of prednisone! Ugh! Any thoughts?
Good morning! I am doing so well on prednisone 6mg. I can’t believe the difference after being tapered too quickly and being on only Advil. I have latent TB and have to start a medication for that for 4 months. Apparently, this med will decrease the effects of prednisone! Ugh! Any thoughts?
Curry_girl
in
PMRGCAuk
11 months ago
ibs-d and facing surgery
I’m having a knee replacement on Wednesday and worried about my ibs-d as bad at the mo. I’m taking loperamide but worried that if I take too many with the combination of strong painkillers I’ll end up constipated. Also concerned that as im having an epidural I wont be able to feel if I need to go😩
I’m having a knee replacement on Wednesday and worried about my ibs-d as bad at the mo. I’m taking loperamide but worried that if I take too many with the combination of strong painkillers I’ll end up constipated. Also concerned that as im having an epidural I wont be able to feel if I need to go😩
BasilG
in
IBS Network
1 year ago
Is codeine ok with prednisolone.
Foolishly went mad digging garden couple of weeks ago and upset my back....past slipped disc. Seeing pysio and doing all the right things and keeping pain killers to a minimum as even the paracetamol make me feel strange, light headed and upset digestive system. I am on omeprazole. Would codeine be a
Foolishly went mad digging garden couple of weeks ago and upset my back....past slipped disc. Seeing pysio and doing all the right things and keeping pain killers to a minimum as even the paracetamol make me feel strange, light headed and upset digestive system. I am on omeprazole. Would codeine be a
Ebiker
in
PMRGCAuk
1 year ago
More surgery....
So I finally got to see the endometriosis specialist again after screaming and shouting yet again, they told me they will finally take out my overies away and put me on prostap injections up until this surgery I really hope it helps, this is my last resort it's been years of pain pills injections and
So I finally got to see the endometriosis specialist again after screaming and shouting yet again, they told me they will finally take out my overies away and put me on prostap injections up until this surgery I really hope it helps, this is my last resort it's been years of pain pills injections and
Bubblepoppy
in
Endometriosis UK
1 year ago
Supplements to reduce glutamate
I was inspired by Widebody's comments on taurine and glycine to look into supplements that reduce glutamate. I found the following on an autism website that I cannot vouch for, but here is the list: (those of us taking gabapentin, pregabalin, horizont are taking medicine that is reducing brain glutamate
I was inspired by Widebody's comments on taurine and glycine to look into supplements that reduce glutamate. I found the following on an autism website that I cannot vouch for, but here is the list: (those of us taking gabapentin, pregabalin, horizont are taking medicine that is reducing brain glutamate
wantokporo
in
Restless Legs Syndrome
10 months ago
Rant time
Hey, I hope you're all keeping okUnfortunately, I've been hit by the doctors strike regarding my impending surgery to rectify the macular hole in my left eye. My consultant appointment has been cancelled on 15th August. However the ultrasound appointment, scheduled the same day is still going ahead
Hey, I hope you're all keeping okUnfortunately, I've been hit by the doctors strike regarding my impending surgery to rectify the macular hole in my left eye. My consultant appointment has been cancelled on 15th August. However the ultrasound appointment, scheduled the same day is still going ahead
Gulfstream_Maggie
in
Fibromyalgia Action UK
11 months ago
Terrified I have PBC
hi, I saw a consultant today as was told my bloods flagged for an autoimmune disease marker which I now know to be AMA positive, I only know this as all the urgent blood test forms I have for Tommorrow state I tested positive for this. i have looked up all the blood tests and most are liver related
hi, I saw a consultant today as was told my bloods flagged for an autoimmune disease marker which I now know to be AMA positive, I only know this as all the urgent blood test forms I have for Tommorrow state I tested positive for this. i have looked up all the blood tests and most are liver related
Kelpop1
in
PBC Foundation
11 months ago
2 years post-thyroidectomy - Struggling with Tirosint and finding the right dose
Hi, To make a long storyshort, after a sever hyperthyroidism and toxic goiter, I got my thyroid removed 2 years ago. I started with Levothyroxine - 88mg , went to hypo so my doctor increased it to 4x100mg 3x88mg. I then went to hyper in less than 2 weeks during 2 months. As I also experience very
Hi, To make a long storyshort, after a sever hyperthyroidism and toxic goiter, I got my thyroid removed 2 years ago. I started with Levothyroxine - 88mg , went to hypo so my doctor increased it to 4x100mg 3x88mg. I then went to hyper in less than 2 weeks during 2 months. As I also experience very
Sophie4506
in
Thyroid UK
11 months ago
Hydroxychloroquine
Hi, I have Sjogrens disease and the Hydroxychloroquine really helps me. It has been like a miracle drug for me actually. My immune system is very strong. I haven’t had a any problems with it. It has definitely helped with my raynauds and my stiffness in my hands and fingers as well.
Hi, I have Sjogrens disease and the Hydroxychloroquine really helps me. It has been like a miracle drug for me actually. My immune system is very strong. I haven’t had a any problems with it. It has definitely helped with my raynauds and my stiffness in my hands and fingers as well.
Juanburr1950
in
Scleroderma & Raynaud's UK (SRUK)
11 months ago
Serious Dry Eyes
Recently saw my ophthalmologist and I was told I have the worst dry eyes he’s ever seen. I have been using eye drops but now I am seriously using eye drops…Refresh eye drops 6x during the day, prednisone drops 2x a day, gel drops at night, moist heat eye compress 1x a day, new humidifier plus I have
Recently saw my ophthalmologist and I was told I have the worst dry eyes he’s ever seen. I have been using eye drops but now I am seriously using eye drops…Refresh eye drops 6x during the day, prednisone drops 2x a day, gel drops at night, moist heat eye compress 1x a day, new humidifier plus I have
MaryAZ
in
My MSAA Community
11 months ago
Bit of a Vent
(Warning: I mention infertility a bit) Hi everyone, My suspected endometriosis has been getting worse and worse, especially after I’ve been put on the implant. I had to go to A&E for the doctor to tell me he didn’t even think morphine would help with my pain… I’ve had to take so many sick days from
(Warning: I mention infertility a bit) Hi everyone, My suspected endometriosis has been getting worse and worse, especially after I’ve been put on the implant. I had to go to A&E for the doctor to tell me he didn’t even think morphine would help with my pain… I’ve had to take so many sick days from
VioletCoffee
in
Endometriosis UK
1 year ago
advise required
I am blind in my left eye it has a pressure reading of 36. I am taking Maxidex and azopt which makes my eye sting. I use a heat pad after using the computer which helps . Can I use the heat pad before putting the eye drops in? will this reduce the stinging?
I am blind in my left eye it has a pressure reading of 36. I am taking Maxidex and azopt which makes my eye sting. I use a heat pad after using the computer which helps . Can I use the heat pad before putting the eye drops in? will this reduce the stinging?
Lucydog
in
Glaucoma UK
1 year ago
Hopelessness
I've been diagnosed officially with PTSD this week which is not a shock. I begin EMDR sessions next week so hope those are able to help. I have these bouts of feeling hopeless. I'm trying not to go too hard on myself but just feel that things will never get easier. Cry myself to sleep most nights with
I've been diagnosed officially with PTSD this week which is not a shock. I begin EMDR sessions next week so hope those are able to help. I have these bouts of feeling hopeless. I'm trying not to go too hard on myself but just feel that things will never get easier. Cry myself to sleep most nights with
Hidden
in
ICUsteps
4 months ago
Ganfort Preservative Free Eye Drop Side Effects
Hi all, Anyone here using Ganfort PF? I tried it one day it’s very effective but my eye red for whole day!🤦🏻♂️🤦🏻♂️🤦🏻♂️🤦🏻♂️ Just to check will the redness go away?😂😂😂
Hi all, Anyone here using Ganfort PF? I tried it one day it’s very effective but my eye red for whole day!🤦🏻♂️🤦🏻♂️🤦🏻♂️🤦🏻♂️ Just to check will the redness go away?😂😂😂
RonOng5267
in
Glaucoma UK
1 year ago
Nerve pain, constant over 3 weeks
I believe I have posted my history with regard to this recent episode of severe pain, over 3 weeks now, every day, front thigh, groin, coming from nerve pain, L2 disc, nerve impingement on nerver root, pain in back, but also redirecting to front thigh, has brought me to tears, no painkillers have worked
I believe I have posted my history with regard to this recent episode of severe pain, over 3 weeks now, every day, front thigh, groin, coming from nerve pain, L2 disc, nerve impingement on nerver root, pain in back, but also redirecting to front thigh, has brought me to tears, no painkillers have worked
arvine
in
Pain Concern
1 year ago
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