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Recently diagnosed with Primary Myelofibrosis
Up until I caught Covid at the beginning of June 2022 I was fit, healthy and pretty active, always outdoors doing something like playing golf two or three times a week. I never really recovered from Covid although tested negative after two weeks. Since that time, I became more and more out of breath
Up until I caught Covid at the beginning of June 2022 I was fit, healthy and pretty active, always outdoors doing something like playing golf two or three times a week. I never really recovered from Covid although tested negative after two weeks. Since that time, I became more and more out of breath
Flyingsteamer
in
MPN Voice
2 years ago
Long covid and RA flare up
I've just been told I have long covid which appears to have aggravated the RA and now having cross over symptoms of both. Fatigue is usually part of a flare up for me but breathlessness, headaches and palpitations are new so are definitely long covid. Has anyone had similar and got any advice how to
I've just been told I have long covid which appears to have aggravated the RA and now having cross over symptoms of both. Fatigue is usually part of a flare up for me but breathlessness, headaches and palpitations are new so are definitely long covid. Has anyone had similar and got any advice how to
Alberta69
in
NRAS
2 years ago
Had to cancel my Lung function tests
To say I'm gutted is an understatement. After waiting sooo long for some answers I've had to cancel my appointment next week for a Full Lung Function Test & 6 minute walk test (never had this before) as I have a chest infection & currently taking Doxycycline. When I called the hospital they said they
To say I'm gutted is an understatement. After waiting sooo long for some answers I've had to cancel my appointment next week for a Full Lung Function Test & 6 minute walk test (never had this before) as I have a chest infection & currently taking Doxycycline. When I called the hospital they said they
Otto11
in
Lung Conditions Community Forum
2 years ago
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ICU and osteoporosis
I have quite a basket of post-ICU/ECMO/covid/coma health issues, but the majority of them have been known to me since I left hospital, eg denuded lungs, heart, neurology issues, muscle waste, fatigue etc etc. However, a small bombshell has landed in my lap just recently. I have now also been diagnosed
I have quite a basket of post-ICU/ECMO/covid/coma health issues, but the majority of them have been known to me since I left hospital, eg denuded lungs, heart, neurology issues, muscle waste, fatigue etc etc. However, a small bombshell has landed in my lap just recently. I have now also been diagnosed
Gooddaysunshine
in
ICUsteps
2 years ago
Long covid related asthma/lung issues
Hi everyone, I've just joined this site and just wanted to share my experiences and get any advice that's available. In March 2020 I caught covid and ended up in icu but thankfully I wasn't ventilated. However ever since I've had problems with fatigue and shortness of breath. Last year I eventually
Hi everyone, I've just joined this site and just wanted to share my experiences and get any advice that's available. In March 2020 I caught covid and ended up in icu but thankfully I wasn't ventilated. However ever since I've had problems with fatigue and shortness of breath. Last year I eventually
Clydedog1
in
Lung Conditions Community Forum
2 years ago
CLL Society’s COVID-19 Update for the Week of November 7th, 2022
https://cllsociety.org/2022/11/cll-societys-covid-19-update-for-the-week-of-november-7th-2022/ As the world has seemingly moved on from COVID-19 and appears to be disinterested in hearing about anything related to rates of infection/community spread, hospitalizations, or how many succumb daily to COVID
https://cllsociety.org/2022/11/cll-societys-covid-19-update-for-the-week-of-november-7th-2022/ As the world has seemingly moved on from COVID-19 and appears to be disinterested in hearing about anything related to rates of infection/community spread, hospitalizations, or how many succumb daily to COVID
lankisterguy
Volunteer
in
CLL Support
2 years ago
Covid vaccination & on antibiotics & steroids.
I have booked in to have my 6th Covid booster this coming Friday 11th. However I now have a chest infection & was put on both antibiotics & prednisone tablets yesterday. I know you are not doctors but do you think it is safe for me to have the Covid vaccination? I am already overdue for this one because
I have booked in to have my 6th Covid booster this coming Friday 11th. However I now have a chest infection & was put on both antibiotics & prednisone tablets yesterday. I know you are not doctors but do you think it is safe for me to have the Covid vaccination? I am already overdue for this one because
Hidden
in
NRAS
2 years ago
Not typical PMR ?? Long covid related and back problem.
I posted a few months ago about my symptoms and you were very helpful with advice suggesting it might be long covid related as the symptoms appeared a week after getting covid. ESR levels were 57 and CPR 7 After being put on steroids they came down to normal levels quite quickly but the pains didn't
I posted a few months ago about my symptoms and you were very helpful with advice suggesting it might be long covid related as the symptoms appeared a week after getting covid. ESR levels were 57 and CPR 7 After being put on steroids they came down to normal levels quite quickly but the pains didn't
simps999
in
PMRGCAuk
2 years ago
Difficult to Treat, Better Lying Down
Hi Everyone, I'm 68. I caught Covid in April 2022. I don't have long Covid. Rather, my body is affected by what happened to it during Covid. Since then my asthma has become considerably worse then it was before the infection. I'm on 250/10 Flutiform, 2.5 Spiriva Respimat, Montelukast and Salamol
Hi Everyone, I'm 68. I caught Covid in April 2022. I don't have long Covid. Rather, my body is affected by what happened to it during Covid. Since then my asthma has become considerably worse then it was before the infection. I'm on 250/10 Flutiform, 2.5 Spiriva Respimat, Montelukast and Salamol
Challiefan
in
Asthma Community Forum
2 years ago
Covid before transfer
hi, today I tested positive for covid, same day as I am meant to start my meds in preparation for a FET 😢 I figured based on history, in 25 days when it’s time for transfer, I should be completely better? I don’t want to take any risks as this is my last embryo but I do feel fine even now. Anyone had
hi, today I tested positive for covid, same day as I am meant to start my meds in preparation for a FET 😢 I figured based on history, in 25 days when it’s time for transfer, I should be completely better? I don’t want to take any risks as this is my last embryo but I do feel fine even now. Anyone had
Gerti2020
in
Fertility Network UK
2 years ago
Joint flare ups after Pfizer covid booster
Hi everyone, just wanted to ask if anyone has experienced joint inflammation flare ups after their covid booster. I had Pfizer last week and developed very bad upper neck pain, pain in wrists, elbows, upper back area. I had the Pfizer booster last December and didn’t have any joint problems after it.
Hi everyone, just wanted to ask if anyone has experienced joint inflammation flare ups after their covid booster. I had Pfizer last week and developed very bad upper neck pain, pain in wrists, elbows, upper back area. I had the Pfizer booster last December and didn’t have any joint problems after it.
Gen89
in
NRAS
2 years ago
Chronic Lymphocytic Leukemia patient survey points to a need for better patient education
The interim report of an ongoing survey of CLL patients demonstrates that over 60% of respondents were unaware of different CLL risk groups and that about 20% felt they had "[i]not received enough information about CLL to make informed treatment decisions"[/i]. 14% of patients surveyed "[i]were unable
The interim report of an ongoing survey of CLL patients demonstrates that over 60% of respondents were unaware of different CLL risk groups and that about 20% felt they had "[i]not received enough information about CLL to make informed treatment decisions"[/i]. 14% of patients surveyed "[i]were unable
CLLerinOz
Administrator
in
CLL Support
2 years ago
Unknown Diagnosis
Recently seen Rheumatologist. Again, she states it is not PMR. She doesn’t know what is causing the systemic inflammation and the physical symptoms. I accepted the fact, and now committed to treat the symptoms despite not knowing diagnosis. Off prednisone and only taking NSAIDS. After reading about Long
Recently seen Rheumatologist. Again, she states it is not PMR. She doesn’t know what is causing the systemic inflammation and the physical symptoms. I accepted the fact, and now committed to treat the symptoms despite not knowing diagnosis. Off prednisone and only taking NSAIDS. After reading about Long
SMH4CRNA
in
PMRGCAuk
2 years ago
Anybody else having breathing problems 15months after Covid?
Struggling again. On 8th chesty cold/virus since Covid. No resilience to anything. Four chest infections. Saw respiratory doctor who said see you in 6months time. On ever growing list for pulmonary rehab. Breathless, congested, tired. Tell me your stories. What helps you.
Struggling again. On 8th chesty cold/virus since Covid. No resilience to anything. Four chest infections. Saw respiratory doctor who said see you in 6months time. On ever growing list for pulmonary rehab. Breathless, congested, tired. Tell me your stories. What helps you.
Hebes
in
Lung Conditions Community Forum
2 years ago
Asthma uncontrolled post covid
Hi all, A year ago I caught Covid which exacerbated my Asthma. It took me months to build back up my lung strength and to stop having coughing fits. I began to feel I was getting back to normal, however for the last six months I have been getting repeated colds which turn into asthma exacerbation and
Hi all, A year ago I caught Covid which exacerbated my Asthma. It took me months to build back up my lung strength and to stop having coughing fits. I began to feel I was getting back to normal, however for the last six months I have been getting repeated colds which turn into asthma exacerbation and
AFUN1
in
Asthma Community Forum
2 years ago
Lupus and Monkeypox
Hi all, I thought I'd ask as this is very topical at the moment, especially for the immunosuppressed. Does anyone have any comments on this?
Hi all, I thought I'd ask as this is very topical at the moment, especially for the immunosuppressed. Does anyone have any comments on this?
HantsMan
in
LUPUS UK
2 years ago
Cases still low but new COVID strains spreading, with ominous echoes of past winters
The past 2 winters brought major COVID peaks, and now, as the mercury falls, new Omicron-descended variants are on the rise and already account for 17% of Israel’s recorded cases Nathan Jeffay With ominous echoes of past winters, as the mercury is dropping, new COVID variants are spreading. It
The past 2 winters brought major COVID peaks, and now, as the mercury falls, new Omicron-descended variants are on the rise and already account for 17% of Israel’s recorded cases Nathan Jeffay With ominous echoes of past winters, as the mercury is dropping, new COVID variants are spreading. It
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Advice needed, help from my friends here
Because I have a number of medical conditions, both as a result of vasculitis and other things, I have several hospital appointments coming up this month. One of them is my 6 monthly Denosumab bone jab, which must not be delayed by more than a month or my bones will weaken (I already have a fractured
Because I have a number of medical conditions, both as a result of vasculitis and other things, I have several hospital appointments coming up this month. One of them is my 6 monthly Denosumab bone jab, which must not be delayed by more than a month or my bones will weaken (I already have a fractured
May7
in
Vasculitis UK
2 years ago
OTD & 2nd failed ICSI attempt… Considering IVF Abroad
Hiya, any tips for ICSI/IVF abroad, been a bumpy road for us - due to using our x1 NHS funding and then paying for FET privately ourselves we now need to consider starting the whole process again. Due to UK costs considering ICSI/IVF abroad / any suggestions and/or recommendations appreciated 🥹
Hiya, any tips for ICSI/IVF abroad, been a bumpy road for us - due to using our x1 NHS funding and then paying for FET privately ourselves we now need to consider starting the whole process again. Due to UK costs considering ICSI/IVF abroad / any suggestions and/or recommendations appreciated 🥹
Banana77
in
Fertility Network UK
2 years ago
Long Covid research and immunocompromise
https://www.washingtonpost.com/health/2022/11/04/chronic-covid-uk-cure-genomic/ Based on research in the UK, it turns out that long COViD cases, which disproportionately show up in immunocompromised individuals, are better handled with genomic sequencing of the disease. Many “reinfections” turn out
https://www.washingtonpost.com/health/2022/11/04/chronic-covid-uk-cure-genomic/ Based on research in the UK, it turns out that long COViD cases, which disproportionately show up in immunocompromised individuals, are better handled with genomic sequencing of the disease. Many “reinfections” turn out
scryer99
in
CLL Support
2 years ago
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