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Nice to meet you all. Any tips or tricks to deal with this lovely, lovely butterfly disease that I need to know?
Hi. Can't believe it took me this long to find this site. I was diagnosed back in 2016 at 25 with severe Lupus SLE, and I'm studying here in the UK, hoping to stay permanently because I love it here so. The lupus certainly makes life more interesting, I've noticed. Nice to meet everyone. Anyone know
Hi. Can't believe it took me this long to find this site. I was diagnosed back in 2016 at 25 with severe Lupus SLE, and I'm studying here in the UK, hoping to stay permanently because I love it here so. The lupus certainly makes life more interesting, I've noticed. Nice to meet everyone. Anyone know
Raeia
in
LUPUS UK
3 years ago
I am New Here!
Good Morning, I am a new poster to this community! I am also from the United States but see how awesome and informative this community is! Results as of 1/21/2021 150MG Levo FREE T41.2 ng/dL 0.8 - 1.8 ng/dL TRIIODE THYRONINE90 ng/dL 76 - 181 ng/dL TSH/Thy.Stim.Horm4.33 mIU/L 0.40 - 4.50 mIU/L
Good Morning, I am a new poster to this community! I am also from the United States but see how awesome and informative this community is! Results as of 1/21/2021 150MG Levo FREE T41.2 ng/dL 0.8 - 1.8 ng/dL TRIIODE THYRONINE90 ng/dL 76 - 181 ng/dL TSH/Thy.Stim.Horm4.33 mIU/L 0.40 - 4.50 mIU/L
Shaf3938
in
Thyroid UK
3 years ago
What are PMR and GCA? Simple explanations of the basics for family and friends
I am a member of another forum where we had an easy to find section with this sort of information. Some one asked for a non-academic explanation of PMR the other day so I have taken the one from there to repeat here. The basics of PMR: Polymyalgia rheumatica is disorder that affects large muscle groups
I am a member of another forum where we had an easy to find section with this sort of information. Some one asked for a non-academic explanation of PMR the other day so I have taken the one from there to repeat here. The basics of PMR: Polymyalgia rheumatica is disorder that affects large muscle groups
PMRpro
Ambassador
in
PMRGCAuk
3 years ago
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Tinnitus Anyone ?
Dorset Lady gave us a useful summary of GCA symptoms in reply to a recent post. One thing not mentioned was Tinnitus. I had tapered down to 5mg from a starting point of 60mg ( 3 and a half years ago.) Had a bad flare earlier this year. Jaw pain, headache etc, plus Tinnitus which I had never experienced
Dorset Lady gave us a useful summary of GCA symptoms in reply to a recent post. One thing not mentioned was Tinnitus. I had tapered down to 5mg from a starting point of 60mg ( 3 and a half years ago.) Had a bad flare earlier this year. Jaw pain, headache etc, plus Tinnitus which I had never experienced
Kaurleone
in
PMRGCAuk
3 years ago
Tinnitus linked to mucus behind eardrum
hi folks, I've been suffering from Tinnitus in my left ear for around three months now. I had some earwax removed a few weeks after my symptoms began, but this did not make any difference. During the earwax removal procedure, they took some photos of the inside of my ears, just to show me how much
hi folks, I've been suffering from Tinnitus in my left ear for around three months now. I had some earwax removed a few weeks after my symptoms began, but this did not make any difference. During the earwax removal procedure, they took some photos of the inside of my ears, just to show me how much
Roc_M
in
British Tinnitus Association
3 years ago
Dizziness
Have tapered gradually from 20mg to 3mg over 15 months but started having dizzy spells which begin with tingling in lips, fingers and toes and then feeling very giddy. Have seen GP who diagnosed vertigo but has anyone else had this?
Have tapered gradually from 20mg to 3mg over 15 months but started having dizzy spells which begin with tingling in lips, fingers and toes and then feeling very giddy. Have seen GP who diagnosed vertigo but has anyone else had this?
granofthewest
in
PMRGCAuk
3 years ago
Treatment Plan / GP Support - Tinnitus
Hello everyone, I wrote a couple of weeks ago, about anxiety & struggling to cope with the arrival in my life - tinnitus! The last few weeks have been better for me mentally, however my tinnitus has actually probably got slightly worse & I now not only have a low hum in one ear which switches constantly
Hello everyone, I wrote a couple of weeks ago, about anxiety & struggling to cope with the arrival in my life - tinnitus! The last few weeks have been better for me mentally, however my tinnitus has actually probably got slightly worse & I now not only have a low hum in one ear which switches constantly
Hla20
in
British Tinnitus Association
3 years ago
4 day & counting vertigo episode
Hi all Not really tinnitus related, although perhaps... I woke up at 4am 4 days ago with an all too familiar feeling of vertigo. I've had these episodes before, throughout my 34 tears, even as a young child, but usually limited to the one episode. Never has it been so long-lasting, so I'm naturally
Hi all Not really tinnitus related, although perhaps... I woke up at 4am 4 days ago with an all too familiar feeling of vertigo. I've had these episodes before, throughout my 34 tears, even as a young child, but usually limited to the one episode. Never has it been so long-lasting, so I'm naturally
Zudukk
in
British Tinnitus Association
3 years ago
Jaw pain with PSP?
My husband was only diagnosed with PSP two weeks ago and is already on hospice care. He was in hospital and rehab and just came home yesterday. Now his jaw is hurting very badly. I thought it was a toothache, but happened to notice a passing comment about jaw pain on a PSP page. Is this common? It
My husband was only diagnosed with PSP two weeks ago and is already on hospice care. He was in hospital and rehab and just came home yesterday. Now his jaw is hurting very badly. I thought it was a toothache, but happened to notice a passing comment about jaw pain on a PSP page. Is this common? It
WindyGirl
in
PSP Association
3 years ago
Ménière’s disease & tinnitus problems
Can anyone share their own experiences of Ménière’s disease, treatment and if it eventually clears up please? My consultant is leaning towards this diagnosis, it’s horrible when the vertigo takes effect. Thanks
Can anyone share their own experiences of Ménière’s disease, treatment and if it eventually clears up please? My consultant is leaning towards this diagnosis, it’s horrible when the vertigo takes effect. Thanks
Mscull-80
in
British Tinnitus Association
3 years ago
Tinnitus and Pulsatile Tinnitus
Hi everyone, I hope you're all keeping well in lockdown and the end of winter! I'm just posting this out there to see who can relate. I get pulsatile tinnitus quite regularly, especially when I'm stressed, in a flare, or whenever I lie down to go to sleep. It keeps me up quite often, and can make my
Hi everyone, I hope you're all keeping well in lockdown and the end of winter! I'm just posting this out there to see who can relate. I get pulsatile tinnitus quite regularly, especially when I'm stressed, in a flare, or whenever I lie down to go to sleep. It keeps me up quite often, and can make my
Londonlupie
in
LUPUS UK
3 years ago
Jaw pain?
Hi all, have not felt well for about a wk now but in last few hrs I think I might have pain when eating, well just as I have 1st mouthful then nothing after that but it more by my ear than mouth, i had ear infection few wks ago with antibiotics, so just wondering which part is classed as jaw pain? Is
Hi all, have not felt well for about a wk now but in last few hrs I think I might have pain when eating, well just as I have 1st mouthful then nothing after that but it more by my ear than mouth, i had ear infection few wks ago with antibiotics, so just wondering which part is classed as jaw pain? Is
Hidden
in
PMRGCAuk
3 years ago
Feosol. Are these claims real?
Hi there I am still researching. I tried splitting my 20mg ferrous bisglycinate in half and it still made me drowsy and horrible. It clears after three or so hours... is it because it's all going in at once? Please if you could take a look at this product as I would love to hear your views. Feosol
Hi there I am still researching. I tried splitting my 20mg ferrous bisglycinate in half and it still made me drowsy and horrible. It clears after three or so hours... is it because it's all going in at once? Please if you could take a look at this product as I would love to hear your views. Feosol
WorkingProgress
in
Pernicious Anaemia Society
3 years ago
Low fluctuating b12 but no advice from GP.
Hi there, a bit of background about myself. I’m 23 years old (female) and have type 1 diabetes (since 3 years old), hashimotos (since 16 years old) and autoimmune hepatitis (since 22 years old). I take budesonide and azathioprine for AIH, insulin therapy for T1D and also iron tablets for anemia discovered
Hi there, a bit of background about myself. I’m 23 years old (female) and have type 1 diabetes (since 3 years old), hashimotos (since 16 years old) and autoimmune hepatitis (since 22 years old). I take budesonide and azathioprine for AIH, insulin therapy for T1D and also iron tablets for anemia discovered
Auto2
in
Pernicious Anaemia Society
3 years ago
Ceptava Mycophenolic acid
Dear all Is anyone taking this above medication for lupus or RA ? Please can anyone give me any experience of using this medication ? I was given Mycohenolate leaflet by rheumatologist last Thursday . Yet my the pharmacist at the hospital had given me the Mycophenolic acid ? I enclose a photo of
Dear all Is anyone taking this above medication for lupus or RA ? Please can anyone give me any experience of using this medication ? I was given Mycohenolate leaflet by rheumatologist last Thursday . Yet my the pharmacist at the hospital had given me the Mycophenolic acid ? I enclose a photo of
Willow1414
in
LUPUS UK
3 years ago
Is CEFUROXIME a problem with covid vaccine
Does anyone know if an allergy to CEFUROXIME is an issue with the vaccine. My GP surgery called me today and have booked my vaccine for tomorrow, I asked about my two allergies and she said my allergy to penicillin isn't a problem but didn't know about the other, I have to ask when I get there. Its
Does anyone know if an allergy to CEFUROXIME is an issue with the vaccine. My GP surgery called me today and have booked my vaccine for tomorrow, I asked about my two allergies and she said my allergy to penicillin isn't a problem but didn't know about the other, I have to ask when I get there. Its
Alw75
in
Asthma Community Forum
3 years ago
In need of positive reinforcement
Hi all, I’m so sorry I haven’t been on here lately. As I’m sure you can imagine I’ve been quite preoccupied trying to figure everything out post covid. A year ago I lost my job, and my career prospects seem more bleak than ever. I live in New York and things have been getting more difficult as I’ve
Hi all, I’m so sorry I haven’t been on here lately. As I’m sure you can imagine I’ve been quite preoccupied trying to figure everything out post covid. A year ago I lost my job, and my career prospects seem more bleak than ever. I live in New York and things have been getting more difficult as I’ve
Kevin87
in
Mental Health Support
3 years ago
Aaah! Developed piriformis syndrome and bit sciatica. Says it's common amongst new runners. Anyone found a solution to help?
Developed piriformis syndrome for first time ever at end week 5. Had a bit of a pain in right hip/buttock last week or so but then started getting weird sensations and shocks down leg. Looked it up and it says common in runners. I want to carry on but don't want pain to get worse. Anyone else had
Developed piriformis syndrome for first time ever at end week 5. Had a bit of a pain in right hip/buttock last week or so but then started getting weird sensations and shocks down leg. Looked it up and it says common in runners. I want to carry on but don't want pain to get worse. Anyone else had
jmozz
in
Couch to 5K
3 years ago
Aids and adaptations.
Does anyone know if I can get any help with aids to help me. I have a walking stick. Which is becoming more difficult to use due to the pain in my shoulders, neck, elbows, wrists and arms. I asked my gp but no joy there. Any ideas , help, I am becoming a recluse.
Does anyone know if I can get any help with aids to help me. I have a walking stick. Which is becoming more difficult to use due to the pain in my shoulders, neck, elbows, wrists and arms. I asked my gp but no joy there. Any ideas , help, I am becoming a recluse.
Nettiemac
in
Fibromyalgia Action UK
3 years ago
Meuniers disease
I’m curious to know if any one with PBC has been diagnosed also with meuniers disease I have been asymptomatic PBC for years with few problems . Now at 70 suddenly my blood pressure has risen and I experienced ear pressure , head aches and tinnitus . Last Friday a sudden attack of hideous vertigo lead
I’m curious to know if any one with PBC has been diagnosed also with meuniers disease I have been asymptomatic PBC for years with few problems . Now at 70 suddenly my blood pressure has risen and I experienced ear pressure , head aches and tinnitus . Last Friday a sudden attack of hideous vertigo lead
boneytoys
in
PBC Foundation
3 years ago
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