Ceptava Mycophenolic acid

[Willow1414]

Dear all

Is anyone taking this above medication for lupus or RA ?

Please can anyone give me any experience of using this medication ?

I was given Mycohenolate leaflet by rheumatologist last Thursday . Yet my the pharmacist at the hospital had given me the Mycophenolic acid ?

I enclose a photo of the box

🦋❤️

[Spanielmadlady]

The only difference between mycophenolate mofetil and mycophenolate acid is the way they are absorbed. mycophenolate mofetil is absorbed has to be metabolized and is absorbed through the stomach. Mycophenolate acid is coated to delay release and is absorbed through the small intestine.

I being taking mycophenolate mofetil for lupus for 18 months.sufffered with side effects for the first 6 weeks or so ... nausea ,violent headaches and my hair has gone curly . Good luck xx

[Willow1414 in reply to Spanielmadlady]

Hi Spanielmadlady

Thank you for

this information

🦋❤️

[Willow1414]

Hi Fanny12

This information is most welcome , thank you , I have read some of it from the leaflet inside the box , there is nothing to say it’s to treat SLE and RA . I’m waiting fir a return call from Rheumatology, hopefully tomorrow .

I have not started taking it yet , has Biologics were discussed has most suitable , but cannot be prescribed to me yet , due to interfering with my B cells and possibility of eradicating my proactive covid vaccine .

All too much for me .

Struggling at the moment ..

I think if I would have been given the covid vaccine as per guide lines , I wouldn’t be in the situation I’m in with not been able to start the right treatment for me .

🤦‍♀️🦋❤️

[Willow1414]

Hi Fanny12

Thank you again for reading and answering my post .

🦋❤️

[Loopyru]

Good info from Spanielmadlady. Do stick with it though as at first (from my experience ) you may feel sick for a few weeks but it’s worth it as is a useful medication but make sure you go for blood tests at least very 3 months. Take care

[Willow1414 in reply to Loopyru]

Hi loopyru

Thank you for advice .,

❤️🦋