I am New Here!

[Shaf3938]

Good Morning,

I am a new poster to this community! I am also from the United States but see how awesome and informative this community is!

Results as of 1/21/2021 150MG Levo

FREE T41.2 ng/dL 0.8 - 1.8 ng/dL

TRIIODE THYRONINE90 ng/dL 76 - 181 ng/dL

TSH/Thy.Stim.Horm4.33 mIU/L 0.40 - 4.50 mIU/L

Results of 3/8/2021 150MG Levo Monday-Saturday Sunday 1 1/2 Pills I take

TSH/Thy.Stim.Horm1.56 mIU/L 0.40 - 4.50 mIU/L

These results are blood drawn 24 hours after Levo was previously taken.

I am still trying to understand this stuff and trying to get a grasp on thyroid dysfunction and it seems after I was pressured into RAI things have never been the same... I have developed tinnitus and anxiety! sleeping issues! I am trying to get my new Endo to test all my vitamins to see if I can get them optimal! I will post more of my journey numbers in my bio!

[PurpleNails Administrator]

Your profile (bio) is really informative. I see after you had RAI and your TSH went 81 at one stage! You must have felt awful.

Can you add what dose of levo you were taking as you progress? What are you taking now?

Your symptoms point to being under medicated. Most feel well when the TSH is around 1 and the FT4 and FT3 it in top third of range. FT4 needs to be converted to FT3 the active (useable hormone). Was this ever tested? Do you have option to order this test?

Key nutrients are often low when either hypo or hyper and levo will not work well if not optimal. Test for folate, ferritin, vitamin D & B12.

I’m sorry you were pressured into having RAI. Medics view treating hypothyroid “easy” and the safer, more straightforward treatment.

You will find lots of help and information on this forum so you can be proactive about your treatment and become your own advocate.

[Shaf3938 in reply to PurpleNails]

Right now I am on 150MCG 6 days a week and I take 1 and 1/2 pills on Sunday! I have been on so many different doses it's not funny... so from my ranges back in Jan what does that say of my T3/T4? right now it seems like he is only worried about TSH...

[SlowDragon Administrator in reply to Shaf3938]

Last test ...just TSH

Obviously you need TSH, Ft4 and Ft3 tested at each test

What vitamin supplements are you currently taking

Extremely important to regularly retest vitamin D, folate, ferritin and B12

Tinnitus is often linked to low B12 or being under medicated

All thyroid tests should be done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

So you take 150mcg 6 days a week and how much on 7th day ?

Strictly gluten free diet often helps or is essential

Get coeliac blood test done before considering trial on gluten free diet

[Shaf3938 in reply to SlowDragon]

I am trying to push for my Endo to test all the thyroid panel just not the TSH to get a full view of what's going on but seems to be worried about TSH from the recent bloods! I still take 150MCG on Sunday and then I cut another 150MCG Levo in half and take that as well as instructed by my Endo so it's 1 and 1/2 pills of the 150MCG. I just take a fish oil / turmeric / just gummy b-12 and d3 /

[PurpleNails Administrator in reply to Shaf3938]

Useful calculator to show where you are in the range

chorobytarczycy.eu/kalkulator

your jan results

FT4 1.2 (0.8 - 1.8) 40%

FT3 90 (76 - 181) 13%

So FT4 not “terrible”. FT3 is too low, when this is low you will have symptoms.

Endocrinologist should not focus solely on TSH as it can lag behind, especially after being hyperthyroid is can remain discordant to actual thyroid levels for some time. You would hope your doctor would know this but they are taught TSH is all they need to look at.

I had suppressed TSH over 4 years, doctor didn’t pick it up. FT4 & FT3 levels were borderline high for all that time. I’ve had antithyroid medication for over 2 years now but my TSH still hasn’t risen into range even though my levels are now around 30% into range.

How often are you having tests & dose increases?

Do you take levo on a empty stomach with water only away how far away from from food, supplements & other medication?

[Shaf3938 in reply to PurpleNails]

Every 6-8 weeks getting bloods done... I have take Levo on an empty stomach at 4 am and go back to sleep usually for an hour or 2! and I take my Lexapro 2-3 hours after Levo

[Shaf3938 in reply to Shaf3938]

So from this I actually need T3 along with T4???

[PurpleNails Administrator in reply to Shaf3938]

You need your ferritin, folate, B12 & vitamin D optimal first and FT4 higher, eg 75% Then your FT3 will likely naturally rise. Only if it stays low do you need to investigate why you are not converting and look at adding T3.

[Shaf3938 in reply to PurpleNails]

I just need to figure out how to get my Endo to test for all of these... I am just trying to get my optimal health back!!! anyone have any good private testing in the US for Thyroid panels?

[SlowDragon Administrator in reply to Shaf3938]

Here you go ....might be something useful

USA and rest of world lab testing option

stopthethyroidmadness.com/r...

Here in U.K. we almost always have to test privately to make progress

[Shaf3938 in reply to SlowDragon]

Thank you very much! This journey has been long so far it seems like the only way to get anywhere is trying to get help yourself!!

[Shaf3938 in reply to PurpleNails]

So needing t3 and t4 higher what it was showing in January could that possibly be leading to brain fog symptoms??

[PurpleNails Administrator in reply to Shaf3938]

Yes, especially in regard to low FT3.

[Shaf3938 in reply to PurpleNails]

Thank you so much for your information and quick replies I really appreciate it!!

[Shaf3938]

My main complaints are cold toes and fingers! Sometimes I get tingly feelings in my feet and fingers! I get heart palpitations even though my heart rate is at like at a rest 57-66bpm! ringing in my ears and sound sensitivity it seems as well! I feel edgy but not like a panic attacks! It’s weird and like my memory lacks it seems and hard to recall some stuff ugh!!