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Familial Polycythemia
Hi,I wondered if anyone could advise on what care we should be getting for familial polycythemia? my 2 children (age 24 & 27) and I were tested at Guys a few years ago for the Jak2 gene, it was negative & we were discharged. Our blood tests always show a red cell count around 5.6, Haemoglobin 160
Hi,I wondered if anyone could advise on what care we should be getting for familial polycythemia? my 2 children (age 24 & 27) and I were tested at Guys a few years ago for the Jak2 gene, it was negative & we were discharged. Our blood tests always show a red cell count around 5.6, Haemoglobin 160
Vicky_b
in
MPN Voice
7 months ago
Dental Issues on Finesteride
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
fast_eddie
in
Fight Prostate Cancer
7 months ago
Chronic diarrhea after chemo; any suggestions?
Hello lovely ladies; unfortunately my disease came back after 2.5 years and 70 cm of my small intestines had to be removed with surgery. 6 cycle of chemo is given. 4 finished so far. But i'm experiencing terrible diarrhea. Everyday more than 10 (sometimes 18) visits to restroom and pain during after
Hello lovely ladies; unfortunately my disease came back after 2.5 years and 70 cm of my small intestines had to be removed with surgery. 6 cycle of chemo is given. 4 finished so far. But i'm experiencing terrible diarrhea. Everyday more than 10 (sometimes 18) visits to restroom and pain during after
Sybil71
in
My Ovacome
7 months ago
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h pylori treatment
hello I’d like to hear from anyone who has successfully eradicated helicobacter pylori with either a natural or antibiotic protocol. I’m on low dose NDT with Dr Frey and have thyroid nodules (biopsy tested benign) Tested positive for h pylori via a breath test in October and was offered quadruple
hello I’d like to hear from anyone who has successfully eradicated helicobacter pylori with either a natural or antibiotic protocol. I’m on low dose NDT with Dr Frey and have thyroid nodules (biopsy tested benign) Tested positive for h pylori via a breath test in October and was offered quadruple
Crankyoldbag
in
Thyroid UK
7 months ago
Fear of pooing during surgery
Hello I am due to have open heart surgery in a few weeks. I have IBS with diarrhoea and urgency. Am so frightened of soiling myself while I can't get up to the loo. Sorry if tmi but had bad experience last year in hospital on bed rest needed to go thought it was a wee but no the other and missed the
Hello I am due to have open heart surgery in a few weeks. I have IBS with diarrhoea and urgency. Am so frightened of soiling myself while I can't get up to the loo. Sorry if tmi but had bad experience last year in hospital on bed rest needed to go thought it was a wee but no the other and missed the
honey1958
in
IBS Network
11 months ago
OxyContin and low dose suboxone.
I have told different things by different Mds. Is it safe to take these two at the same time. Shaughnna Ps. I promise to give my story when I have more time
I have told different things by different Mds. Is it safe to take these two at the same time. Shaughnna Ps. I promise to give my story when I have more time
shaughnna
in
National Migraine Centre
9 months ago
Hiprex and D Mannose
I have had long term UTIs arising post radiation therapy. I also have bile salts malabsorption which causes bowel issues so it’s not always easy to keep myself as clean as I would like and I have been told this is likely to be the cause of the repeated UTIs Up until recently for approx 6 years
I have had long term UTIs arising post radiation therapy. I also have bile salts malabsorption which causes bowel issues so it’s not always easy to keep myself as clean as I would like and I have been told this is likely to be the cause of the repeated UTIs Up until recently for approx 6 years
janfarrugia
in
Women's Health
9 months ago
probiotics stomach upset
Hi, I was interested in trying probiotics, namely Kefir to help restore gut microbiome since the Lanzoprazole destroys them. The dietitian recommended this too, as did my surgeon. I already eat lots of live yoghurt with no problems. However I’ve been getting a lot of wind and diarrhoea since I started
Hi, I was interested in trying probiotics, namely Kefir to help restore gut microbiome since the Lanzoprazole destroys them. The dietitian recommended this too, as did my surgeon. I already eat lots of live yoghurt with no problems. However I’ve been getting a lot of wind and diarrhoea since I started
PopandMo
in
Oesophageal & Gastric Cancer
7 months ago
Antibiotics
Has anyone been prescribed Co-trimoxazole and Cefalexin 500mg to take together? I have a chest infection Klebsiella and have been prescribed the two antibiotics, however, I'm feeling quite unwell, shivery and then hot and not sleeping and wondered if anyone else has had these side effects? It could
Has anyone been prescribed Co-trimoxazole and Cefalexin 500mg to take together? I have a chest infection Klebsiella and have been prescribed the two antibiotics, however, I'm feeling quite unwell, shivery and then hot and not sleeping and wondered if anyone else has had these side effects? It could
PAP48
in
Lung Conditions Community Forum
11 months ago
Wheat Diet may Exacerbate Multiple Sclerosis Severity
Wheat diet may exacerbate multiple sclerosis severity, research finds - Jan 2024
by Natkritta Hüppe, Universitätsmedizin der Johannes Gutenberg-Universität Mainz https://medicalxpress.com/news/2024-01-wheat-diet-exacerbate-multiple-sclerosis.html
Highlights:
A research team at the University
Wheat diet may exacerbate multiple sclerosis severity, research finds - Jan 2024
by Natkritta Hüppe, Universitätsmedizin der Johannes Gutenberg-Universität Mainz https://medicalxpress.com/news/2024-01-wheat-diet-exacerbate-multiple-sclerosis.html
Highlights:
A research team at the University
Bolt_Upright
in
Cure Parkinson's
7 months ago
advice needed
my doctor prescribed me prochlorperazine when I started with tinnitus and it seemed to calm me down, I think it treats anxiety as well as sickness and dizziness. It’s not an antidepressant, not sure what kind of medication it is to be honest but it calmed me down. I was sleeping ok and because it keep
my doctor prescribed me prochlorperazine when I started with tinnitus and it seemed to calm me down, I think it treats anxiety as well as sickness and dizziness. It’s not an antidepressant, not sure what kind of medication it is to be honest but it calmed me down. I was sleeping ok and because it keep
Lakeshiker
in
Tinnitus UK
11 months ago
Slow colonic transit
I have been diagnosed with slow colonic transit after having all the usual bowel investigations. I have been suffering suffering from chronic constipation for several years. I have been taking Prucalopride for almost a month but unfortunately it has made no difference. My consultant has recommended
I have been diagnosed with slow colonic transit after having all the usual bowel investigations. I have been suffering suffering from chronic constipation for several years. I have been taking Prucalopride for almost a month but unfortunately it has made no difference. My consultant has recommended
Riccar24
in
IBS Network
11 months ago
Anyone else have severe daily heartburn?
Diagnosis of autoimmune atrophic gastritis with intestinal metaplasia and also PA. Currently SI B12 (cyanobalamin ) EOD. Does anyone else with this get severe heartburn? I’ve cut out acidic and spicy. It seems to happen mostly on an empty stomach right before lunch. Sometimes Pepsid Complete works and
Diagnosis of autoimmune atrophic gastritis with intestinal metaplasia and also PA. Currently SI B12 (cyanobalamin ) EOD. Does anyone else with this get severe heartburn? I’ve cut out acidic and spicy. It seems to happen mostly on an empty stomach right before lunch. Sometimes Pepsid Complete works and
ReallyWondering
in
Pernicious Anaemia Society
7 months ago
New to world of IBS - How do you balance your diet and still enjoy life?
Hi everyone, I am new to this network and I look forward to sharing experiences with my fellow community😀 I have always loved bread, especially craft-baked / slow fermented / sourdough types but have moved away from even these until I better understand the gremlin in my gut 👿 Before IBS said "Hello
Hi everyone, I am new to this network and I look forward to sharing experiences with my fellow community😀 I have always loved bread, especially craft-baked / slow fermented / sourdough types but have moved away from even these until I better understand the gremlin in my gut 👿 Before IBS said "Hello
Nomorewheat
in
IBS Network
7 months ago
Ct scan with contrast
Just had a ct scan with contrast. It sent my heart into a really erratic state for 1/2 hrs afterwards . Should I take my thyroid s as normal or wait 24 hrs for the stuff to clear out of my system? Any help please.
Just had a ct scan with contrast. It sent my heart into a really erratic state for 1/2 hrs afterwards . Should I take my thyroid s as normal or wait 24 hrs for the stuff to clear out of my system? Any help please.
Catlover3
in
Thyroid UK
7 months ago
Loss of Balance
I was diagnosed with AN 5 years ago and it has remained under watch and stable at 18mm. However, I am increasingly having balance problems. Turning over in bed and my head becomes totally disorientated for a few seconds, and when getting up need to sit on edge of bed for a couple of minutes until head
I was diagnosed with AN 5 years ago and it has remained under watch and stable at 18mm. However, I am increasingly having balance problems. Turning over in bed and my head becomes totally disorientated for a few seconds, and when getting up need to sit on edge of bed for a couple of minutes until head
rogthepoge
in
Acoustic Neuroma Support
11 months ago
Glaucoma along with advanced AMD (GA stage)
Hi all, I am new to this forum and would like an opinion from the experts here. My father has glaucoma in both eyes and unfortunately, by the time it was diagnosed, his vision in right eyes was 30% remaining only. This was almost 12 yrs back. His left eye was the savior for us so many years till 2018
Hi all, I am new to this forum and would like an opinion from the experts here. My father has glaucoma in both eyes and unfortunately, by the time it was diagnosed, his vision in right eyes was 30% remaining only. This was almost 12 yrs back. His left eye was the savior for us so many years till 2018
VikPa
in
Macular Society
11 months ago
Tests
Can anyone tell me what tests you have to prove its IBS as I haven't as yet but assuming I have this condition? ......constant gut ache and nausea but no diarrhoea or constipation as such.
Can anyone tell me what tests you have to prove its IBS as I haven't as yet but assuming I have this condition? ......constant gut ache and nausea but no diarrhoea or constipation as such.
Poshy
in
IBS Network
7 months ago
constipation!!!
Hello anyone I have got this constant gnawing ,scratching ,pinching ETC going on in my bum and for 3/4 months really bad constipation frightened to poop in case I "UNBLOCK" myself to the nasty stuff I just can't control I looked it up on DR GOOGLE and it came up with Proctalgia Fugax/ Levator Syndromeas
Hello anyone I have got this constant gnawing ,scratching ,pinching ETC going on in my bum and for 3/4 months really bad constipation frightened to poop in case I "UNBLOCK" myself to the nasty stuff I just can't control I looked it up on DR GOOGLE and it came up with Proctalgia Fugax/ Levator Syndromeas
bungi1961
in
Bowel Disease Support
7 months ago
colitis
I been diagnosed with UC about five years ago . I started meditation was on Octasa ASA. Nothing seem to work until I was put on a course of prednisone which in conjunction with pentasa granules but was put on 8 weekly infusion Vedo at St Albans hospital this work brilliantly for 1and half years, then
I been diagnosed with UC about five years ago . I started meditation was on Octasa ASA. Nothing seem to work until I was put on a course of prednisone which in conjunction with pentasa granules but was put on 8 weekly infusion Vedo at St Albans hospital this work brilliantly for 1and half years, then
Bluegirl1948
in
Crohn's and Colitis Support
7 months ago
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