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hello
hi everyone I just thought I would introduce myself. My husband was diagnosed with stage 2 oesophageal cancer (junctional) last month, he just turned 44. He starts chemo next week and from our online research seems he is for a common treatment plan of 4 x FLOT, oesophagectomy, then 4 x FLOT. It’s been
hi everyone I just thought I would introduce myself. My husband was diagnosed with stage 2 oesophageal cancer (junctional) last month, he just turned 44. He starts chemo next week and from our online research seems he is for a common treatment plan of 4 x FLOT, oesophagectomy, then 4 x FLOT. It’s been
JE1983
in
Oesophageal & Gastric Cancer
6 days ago
Pericarditis and high inflammatory markers
Does anyone have experience of pericarditis and very high inflammatory markers? After having a 'small heart attack' I have now developed pericarditis and am finding it almost impossible to tolerate the colchicine that they want me to take for 3 months. Any advice/thoughts?
Does anyone have experience of pericarditis and very high inflammatory markers? After having a 'small heart attack' I have now developed pericarditis and am finding it almost impossible to tolerate the colchicine that they want me to take for 3 months. Any advice/thoughts?
Odosmum
in
PMRGCAuk
16 days ago
I have lung cancer and prostrate cancer
I apologize for my selfish concerns and pitty. I am on a roller coaster ride that seems to keep getting worse going down. I am trying to find something positive to grab on to. Some hope. In 5/24 they saw three nodes in my lung lymph nodes that were swollen or cancerous. Took 4 months to get a
I apologize for my selfish concerns and pitty. I am on a roller coaster ride that seems to keep getting worse going down. I am trying to find something positive to grab on to. Some hope. In 5/24 they saw three nodes in my lung lymph nodes that were swollen or cancerous. Took 4 months to get a
Cp014
in
Lung Conditions Community Forum
24 days ago
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907863
when I have a GCA flare 3 months later my hair comes out and grows back really dry and I cannt do anything with it . I went to a dermatologist who recommended , I take viviscal hair tablets ( not cheap) biotin tablets and then on prescription extrovex shsmpoo. Plus every other night I go to bed with
when I have a GCA flare 3 months later my hair comes out and grows back really dry and I cannt do anything with it . I went to a dermatologist who recommended , I take viviscal hair tablets ( not cheap) biotin tablets and then on prescription extrovex shsmpoo. Plus every other night I go to bed with
9077863
in
PMRGCAuk
1 month ago
Could this be gastritis?
Have you experienced gnawing sensation in the pit of the stomach? The best way to describe the stomach sensation is like you are hungry but you aren't, a gnawing hunger sensation even after you just ate ? Please share your experience. Thank you
Have you experienced gnawing sensation in the pit of the stomach? The best way to describe the stomach sensation is like you are hungry but you aren't, a gnawing hunger sensation even after you just ate ? Please share your experience. Thank you
Catsandsunsets
in
IBS Network
2 months ago
BAM, IBS-D. Need a Rant.
Afternoon everyone. Really need to just have a rant today. I've posted loads on here and always received great advice from everyone. Everyone on here really are amazing. Today, I think is just a really bad day, normally I cope ok but today I just feel like it's never going to end. So exhausted and sick
Afternoon everyone. Really need to just have a rant today. I've posted loads on here and always received great advice from everyone. Everyone on here really are amazing. Today, I think is just a really bad day, normally I cope ok but today I just feel like it's never going to end. So exhausted and sick
Julie182
in
IBS Network
3 months ago
Mtx and pantoprazol?
I really need to take some pantoprazole; however, it seems to not go well with MTX in particular. Before I started MTX (20 mg), I sometimes took pantoprazole 40 mg for 2-3 days to get rid of pain from reflux. It would settle, and I would be fine for a long time. Any experience with pantoprazole while
I really need to take some pantoprazole; however, it seems to not go well with MTX in particular. Before I started MTX (20 mg), I sometimes took pantoprazole 40 mg for 2-3 days to get rid of pain from reflux. It would settle, and I would be fine for a long time. Any experience with pantoprazole while
krillemy
in
PMRGCAuk
4 months ago
EC 1mg pred??
I have recently managed to taper to 4mg which means taking all plain tablets. I have had an increase in indigestion/slight heartburn since doing this. I have 3 questions. Is it possible to get 1mg ec? - I'd be willing to pay (if not ridiculous price) If I take some gaviscon (already take 20mg omeprazole
I have recently managed to taper to 4mg which means taking all plain tablets. I have had an increase in indigestion/slight heartburn since doing this. I have 3 questions. Is it possible to get 1mg ec? - I'd be willing to pay (if not ridiculous price) If I take some gaviscon (already take 20mg omeprazole
LbHH
in
PMRGCAuk
4 months ago
stage 4 endo
hi all, I’m 20 and just been diagnosed with stage 4 endo. My endo specialist has given me a couple of options. Either take norethisterone and see how that goes or surgery for excision. I want a family and he said some women can conceive naturally and others need help. I just wondered what other people
hi all, I’m 20 and just been diagnosed with stage 4 endo. My endo specialist has given me a couple of options. Either take norethisterone and see how that goes or surgery for excision. I want a family and he said some women can conceive naturally and others need help. I just wondered what other people
Magsag
in
Endometriosis UK
4 months ago
how can I suppress stool build up
hello, it’s been a while since I posted here but Hopi g someone can help where no doctor has been able to. My colon is always full of stool despite having 15 plus bowel movements a day. I do not eat much in the hope that might relieve the symptoms. But still stool builds up and makes me feel like
hello, it’s been a while since I posted here but Hopi g someone can help where no doctor has been able to. My colon is always full of stool despite having 15 plus bowel movements a day. I do not eat much in the hope that might relieve the symptoms. But still stool builds up and makes me feel like
GKT1969
in
IBS Network
5 months ago
High platelet count due to iron deficiency anaemia maybe?
Just again when I thought all was going well ! High platelet count from recent blood test shows Platelet count 515 10*9/L Platelet count has been abnormal for some time, but never this high. Not sure whether I should request the ferrous sulphate again, OR could it be PMR flare. I have felt pretty
Just again when I thought all was going well ! High platelet count from recent blood test shows Platelet count 515 10*9/L Platelet count has been abnormal for some time, but never this high. Not sure whether I should request the ferrous sulphate again, OR could it be PMR flare. I have felt pretty
gillsky8
in
PMRGCAuk
6 months ago
Weaning off Omeprazole
Does anyone have a treatment plan for a successful weaning off Omeprazole please? I want to start this process but am a bit scared as I stopped cold turkey previously and had horrendous issues. I understand that the drug makes the acid producing valve loose which further contributes to the issue causing
Does anyone have a treatment plan for a successful weaning off Omeprazole please? I want to start this process but am a bit scared as I stopped cold turkey previously and had horrendous issues. I understand that the drug makes the acid producing valve loose which further contributes to the issue causing
Pink_peach
in
IBS Network
6 months ago
Lanzoprazole and side effects
Hello, I am over 2 years past Ivor Lewis oesophagectomy and have been taking Lanzoprazole 15mg once a day, then Gavison at night. I’ve found that my folate and ferritin are low , probably caused by ppi use and wonder if anyone has managed to come off them. I know they have lots of potential bad effects
Hello, I am over 2 years past Ivor Lewis oesophagectomy and have been taking Lanzoprazole 15mg once a day, then Gavison at night. I’ve found that my folate and ferritin are low , probably caused by ppi use and wonder if anyone has managed to come off them. I know they have lots of potential bad effects
PopandMo
in
Oesophageal & Gastric Cancer
7 months ago
Is there a difference between Barrett’s tongue and barretts oesophagus ?
I have been trying to research this since my endoscopy showed “possible Barrett’s tongue” Biopsy has been taken to rule this out which I hope is a positive sign , but does anyone have experience of this term? I understand that it is associated with hiatal hernia although my reflux issues aren’t too
I have been trying to research this since my endoscopy showed “possible Barrett’s tongue” Biopsy has been taken to rule this out which I hope is a positive sign , but does anyone have experience of this term? I understand that it is associated with hiatal hernia although my reflux issues aren’t too
gillsky8
in
Oesophageal & Gastric Cancer
7 months ago
Barretts oesophagus
😟 I am very very worried. !! Acid reflux for over 5 years, and finally seen by Gastro consultant who referred for Gastroscopy Diagnosed with hiatus hernia just recently, mother had Barretts and my brother died from osophageal cancer., he was in the RAF and had sarcoidosis which they seemed to
😟 I am very very worried. !! Acid reflux for over 5 years, and finally seen by Gastro consultant who referred for Gastroscopy Diagnosed with hiatus hernia just recently, mother had Barretts and my brother died from osophageal cancer., he was in the RAF and had sarcoidosis which they seemed to
gillsky8
in
Oesophageal & Gastric Cancer
7 months ago
Leflunomide, Mycophenolate, Azathioprine instead of TCZ, that was the question
Thanks for your help in answering this question. It seems Leflunomide is the only real contender. So much so that my cynical self wonders if the other two are only there to give the illusion of choice! Any more info about your experience of Leflunomide is very welcome. Not rushing into anything, and
Thanks for your help in answering this question. It seems Leflunomide is the only real contender. So much so that my cynical self wonders if the other two are only there to give the illusion of choice! Any more info about your experience of Leflunomide is very welcome. Not rushing into anything, and
Japsquar
in
PMRGCAuk
9 months ago
omeprazole at night
I take 20 mg of Omeprazole before breakfast under instruction from my GP although I have not suffered from acid reflux/ heartburn. I do however suffer from a hoarse voice which I was told by others who have the same that it may be “silent reflux” which is where the stomach acid is pushed up into the
I take 20 mg of Omeprazole before breakfast under instruction from my GP although I have not suffered from acid reflux/ heartburn. I do however suffer from a hoarse voice which I was told by others who have the same that it may be “silent reflux” which is where the stomach acid is pushed up into the
Nanatoo
in
PMRGCAuk
9 months ago
Scared
Hi, I’m one month post op, Ivor Lewis I spent 9 days in CCD and 5 on the ward. At home now and struggling to eat due to no appetite and not feeling hungry. I’ve lost quite a lot of weight and hate the way I look. All skin and bone. I am scared of the post op Chemotherapy as I struggled before hand, only
Hi, I’m one month post op, Ivor Lewis I spent 9 days in CCD and 5 on the ward. At home now and struggling to eat due to no appetite and not feeling hungry. I’ve lost quite a lot of weight and hate the way I look. All skin and bone. I am scared of the post op Chemotherapy as I struggled before hand, only
Myfrenchieboy
in
Oesophageal & Gastric Cancer
24 days ago
Stomach rumbling growling and pain
Hi, i have a lot of stomach growling and rumbling which is extremely loud and can be heard from far away. People have commented on hearing a lot of noise and it makes me uncomfortable. I also get a lot of pain. The rumbling/growling happens most of the day and last quite a long time between intervals
Hi, i have a lot of stomach growling and rumbling which is extremely loud and can be heard from far away. People have commented on hearing a lot of noise and it makes me uncomfortable. I also get a lot of pain. The rumbling/growling happens most of the day and last quite a long time between intervals
spiderman5674
in
IBS Network
9 months ago
Laxido and acid reflux
I swear every time I take this stuff I end up with really bad regurgitation and heartburn. Coincidence? I am on other medications.
I swear every time I take this stuff I end up with really bad regurgitation and heartburn. Coincidence? I am on other medications.
Spaceboy_60
in
IBS Network
10 months ago
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