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Blood in syringe
Hi all Just a quick question to those who self inject please. I've just given myself my peg shot, and when I removed the syringe, I noticed that there was blood inside it even though I didn't pull back the syringe in any way while injecting. I did get a bit of blood collecting on my skin after removing
Hi all Just a quick question to those who self inject please. I've just given myself my peg shot, and when I removed the syringe, I noticed that there was blood inside it even though I didn't pull back the syringe in any way while injecting. I did get a bit of blood collecting on my skin after removing
Skyehope
in
MPN Voice
1 month ago
Update
Hi everyone, I promised to let you know any updates. I went to audiology and ENT yesterday, had a hearing test then seen a specialist nurse then a consultant. I’m afraid I need a cochlear implant, my hearing is very poor now in my left ear, they think the cause is my sensorial hearing loss suddenly just
Hi everyone, I promised to let you know any updates. I went to audiology and ENT yesterday, had a hearing test then seen a specialist nurse then a consultant. I’m afraid I need a cochlear implant, my hearing is very poor now in my left ear, they think the cause is my sensorial hearing loss suddenly just
Numptybrain
in
PMRGCAuk
1 month ago
NHS London statement on Synnovis ransomware cyber attack
I am posting this using the NHS' own website version - it is covered across news sites as well. It seems it is having a major impact on blood tests - which might immediately affect some members. As well as the rest of the impact. [i]
NHS London statement on Synnovis ransomware cyber attack
[
I am posting this using the NHS' own website version - it is covered across news sites as well. It seems it is having a major impact on blood tests - which might immediately affect some members. As well as the rest of the impact. [i]
NHS London statement on Synnovis ransomware cyber attack
[
helvella
Thyroid UK
in
Thyroid UK
1 month ago
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Sjrogens discomfort
I have lupus SLE and have Sjrogens. I have been suffering with dry mouth. My full time job is taking care of my mouth. I am most uncomfortable at night. I use everything made by biotene; drink water all day( small sips), suck sugar free candies. Anything works well for anyone?. I stopped coffee and my
I have lupus SLE and have Sjrogens. I have been suffering with dry mouth. My full time job is taking care of my mouth. I am most uncomfortable at night. I use everything made by biotene; drink water all day( small sips), suck sugar free candies. Anything works well for anyone?. I stopped coffee and my
Love2fish2
in
The Australian Sjögren's Syndrome Association
1 month ago
GCA and Elevation
I have had PMR for 5 years and was diagnosed with GCA in September of 2023. I presently am on 4mg of prednisone. I am feeling good and continue to be pretty active and just turned 70 year old. I walk at least 3 miles a day, bike long distances and kayak. I plan on taking a hike up to 10,000 feet
I have had PMR for 5 years and was diagnosed with GCA in September of 2023. I presently am on 4mg of prednisone. I am feeling good and continue to be pretty active and just turned 70 year old. I walk at least 3 miles a day, bike long distances and kayak. I plan on taking a hike up to 10,000 feet
Mooreby
in
PMRGCAuk
1 month ago
Safe eye makeup
I'm a 69 y/o female taking Lumigan eye drops for dx of Glaucoma suspect and IOP (took Latanoprost drops previously but my pressure was increasing a bit so changed drops). My pressures have been pretty consistent at 17 in both eyes, so I feel pretty lucky right now. I had a S/P LPI procedure in 2012 (
I'm a 69 y/o female taking Lumigan eye drops for dx of Glaucoma suspect and IOP (took Latanoprost drops previously but my pressure was increasing a bit so changed drops). My pressures have been pretty consistent at 17 in both eyes, so I feel pretty lucky right now. I had a S/P LPI procedure in 2012 (
Marocean
in
Glaucoma UK
1 month ago
diagnosis
Hi all, I’m new here just wanted to come somewhere for a bit of support! I haven’t yet been formally diagnosed, my consultant ‘suspects’ Endometriosis and the next step is a Laparoscopy. Has anyone else been through the wringer trying to get seen? It’s taken me years to get this far and I’m emotionally
Hi all, I’m new here just wanted to come somewhere for a bit of support! I haven’t yet been formally diagnosed, my consultant ‘suspects’ Endometriosis and the next step is a Laparoscopy. Has anyone else been through the wringer trying to get seen? It’s taken me years to get this far and I’m emotionally
DogLady91
in
Endometriosis UK
1 month ago
Looking for advice to deal with pain and stiffness related to AIH.
I was recently signposted as this may be my diagnosis by a GP and I'm awaiting a consultant appointment with Rheumatology as appose to a liver specialist despite me questioning this. I have no inflammation markers on my bloods but I do on my antibodies and smooth muscle blood counts which his why it's
I was recently signposted as this may be my diagnosis by a GP and I'm awaiting a consultant appointment with Rheumatology as appose to a liver specialist despite me questioning this. I have no inflammation markers on my bloods but I do on my antibodies and smooth muscle blood counts which his why it's
PeterStewart
in
British Liver Trust
1 month ago
Had doctors appointment this morning sigh
Had to see my doctor this morning they heard back from the neurologist. I thought they had written to the neurologist about me trying Targinact instead they asked him what he would suggest he has come back with …wait for it. .,.sinemetI told the doctor no no no and explained why. She was a really lovely
Had to see my doctor this morning they heard back from the neurologist. I thought they had written to the neurologist about me trying Targinact instead they asked him what he would suggest he has come back with …wait for it. .,.sinemetI told the doctor no no no and explained why. She was a really lovely
Elisse3
in
Restless Legs Syndrome
1 month ago
feeling desperate.
Ok so I am hopefully going to be starting injecting every other day soon (possibly end of this week), but can’t just yet and I don’t know how to cope. I ain’t sleeping, I am peeing loads and have terrible bladder pain. Dr Klein says this does happen to some people. But I have also started seeing things
Ok so I am hopefully going to be starting injecting every other day soon (possibly end of this week), but can’t just yet and I don’t know how to cope. I ain’t sleeping, I am peeing loads and have terrible bladder pain. Dr Klein says this does happen to some people. But I have also started seeing things
Gobbozoid
in
Pernicious Anaemia Society
2 months ago
Mixed messages
Does anyone have glaucoma and also suffer with migraines auras . I have both ,taking drops for the glaucoma, but just paracetamol for the migraines.?My neurologist won't treat them unless I have more than 5 Attacks a month. I am getting 2/3 . Wondering how you cope, as I am getting a bit depressed
Does anyone have glaucoma and also suffer with migraines auras . I have both ,taking drops for the glaucoma, but just paracetamol for the migraines.?My neurologist won't treat them unless I have more than 5 Attacks a month. I am getting 2/3 . Wondering how you cope, as I am getting a bit depressed
Lancashirelass07
in
Glaucoma UK
2 months ago
Varicose veins and returning to running after injury
I have varicose veins and have not done long distance running since January this year. I have been riding my bike 120 km per week to keep cardio fitness up. Just wondering would it be ok to come back to running yet? I have not had surgery and don't intend to get surgery. Would it be ok to get back to
I have varicose veins and have not done long distance running since January this year. I have been riding my bike 120 km per week to keep cardio fitness up. Just wondering would it be ok to come back to running yet? I have not had surgery and don't intend to get surgery. Would it be ok to get back to
Loverofrunning
in
Couch to 5K
2 months ago
Terahertz Therapy
Hi everyone, I've seen the torture and the pain induced by antipsychotic meds again, to me it waa like deliberate punishment and torture and for months nothing changed, antipsychotic withdrawals induced neuroleptic malignant syndrome s causing catatonic mutism, restless legs went into remission, now
Hi everyone, I've seen the torture and the pain induced by antipsychotic meds again, to me it waa like deliberate punishment and torture and for months nothing changed, antipsychotic withdrawals induced neuroleptic malignant syndrome s causing catatonic mutism, restless legs went into remission, now
RLSSCARER
in
Restless Legs Syndrome
2 months ago
cataract surgery
hi - I am healthy & 65. Very myopic (-10 & -9) with glaucoma in left eye). I have just dropped below DVLA driving limit so consultant is recommending cataract surgery in both eyes (NHS). My question is would it be worth it in terms of quality of vision improvement to go private as I understand that various
hi - I am healthy & 65. Very myopic (-10 & -9) with glaucoma in left eye). I have just dropped below DVLA driving limit so consultant is recommending cataract surgery in both eyes (NHS). My question is would it be worth it in terms of quality of vision improvement to go private as I understand that various
t55ddy
in
Glaucoma UK
2 months ago
Dark shadows from glaucoma eye drops
Hi I was diagnosed almost 3 yrs ago and simply handed a leaflet and a prescription. I now have to use them 3 times a day as the pressure has worsened.The dark shadows in my eye sockets now look so bad, although I did read about this I have never been told if there is an alternative. The nurse at the
Hi I was diagnosed almost 3 yrs ago and simply handed a leaflet and a prescription. I now have to use them 3 times a day as the pressure has worsened.The dark shadows in my eye sockets now look so bad, although I did read about this I have never been told if there is an alternative. The nurse at the
doileyqueen
in
Glaucoma UK
2 months ago
Amino acid complex, is it worth trying?
I have been seeing more and more about amino acids and the possible benefits for those with hypothyroidism. Their importance for conversion, also their benefits regarding liver health. I'm also type2 diabetic, it seems there may be benefits there too. Have any of you looked into this? If so are there
I have been seeing more and more about amino acids and the possible benefits for those with hypothyroidism. Their importance for conversion, also their benefits regarding liver health. I'm also type2 diabetic, it seems there may be benefits there too. Have any of you looked into this? If so are there
Jones1969
in
Thyroid UK
2 months ago
Rituximab and Denosumab
Has anyone had a Denosumab injection after having a Retuximab infusion. I have just had my second infusion and due a Denosumab injection soon. Just read that Denosumab can increase the risk of serious infection with Rituximab. Rheumatology have said that it's OK, but I don't trust them.
Has anyone had a Denosumab injection after having a Retuximab infusion. I have just had my second infusion and due a Denosumab injection soon. Just read that Denosumab can increase the risk of serious infection with Rituximab. Rheumatology have said that it's OK, but I don't trust them.
Jacko37
in
NRAS
2 months ago
Worries about Travel Medical Insurance
Hi, I am recently diagnosed with ET and started yesterday on Hydroxycarbamide 500mg Monday to Friday . I understand that I will be monitored closely to achieve the best balance of drugs and optimum platelet count which will take a few months. However, I am used to travelling, My partner and I have
Hi, I am recently diagnosed with ET and started yesterday on Hydroxycarbamide 500mg Monday to Friday . I understand that I will be monitored closely to achieve the best balance of drugs and optimum platelet count which will take a few months. However, I am used to travelling, My partner and I have
SpendyWendy
in
MPN Voice
2 months ago
Hydroxicarbamide for PV - UK
Diagnosed late 2018 soon after started on Hydroxycarbamide + Rivaroxyban 10mg daily. In the last year, Hydroxycarbamide has been increased slowly every few months. I am now taking 2000mg 4 days a week and 1500mg on 3 days a week because my platelet score is 640. I am feeling really poorly on this
Diagnosed late 2018 soon after started on Hydroxycarbamide + Rivaroxyban 10mg daily. In the last year, Hydroxycarbamide has been increased slowly every few months. I am now taking 2000mg 4 days a week and 1500mg on 3 days a week because my platelet score is 640. I am feeling really poorly on this
RedEye21
in
MPN Voice
2 months ago
Puffy eyes
Hi 👋 Has anyone experienced puffy eyelids and a bit of swelling under the eyes? I have lupus and sjogrens so not sure which would cause this.. I am having a painful flare at the moment. Quite new to this as diognosed Dec 2022. Only seen rheumatologist once and due to see them again this month but have
Hi 👋 Has anyone experienced puffy eyelids and a bit of swelling under the eyes? I have lupus and sjogrens so not sure which would cause this.. I am having a painful flare at the moment. Quite new to this as diognosed Dec 2022. Only seen rheumatologist once and due to see them again this month but have
Lucylou72
in
LUPUS UK
2 months ago
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