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Whole-Body and Peripheral-Nerve Pain Relief Options
While his content is not PD-specific, some of us with PwP experience
and other peripheral nerve pain, and I found his science-based suggestions addressing these topics worth exploring. Maybe they'll work for PwP... The podcast is two hours long(!)
While his content is not PD-specific, some of us with PwP experience
and other peripheral nerve pain, and I found his science-based suggestions addressing these topics worth exploring. Maybe they'll work for PwP... The podcast is two hours long(!)
Madame-Mango
in
Cure Parkinson's
3 years ago
Inulin improves gut health in humans in part by stimulating the growth of beneficial bifidobacteria
I need smartypants to figure out if this inulin is good or bad please. https://selfhacked.com/blog/health-benefits-inulin/ Inulin is present in 36,000 plant species including those we consume in our daily diets such as wheat, onion, bananas, garlic, and asparagus. They are also found in less common foods
I need smartypants to figure out if this inulin is good or bad please. https://selfhacked.com/blog/health-benefits-inulin/ Inulin is present in 36,000 plant species including those we consume in our daily diets such as wheat, onion, bananas, garlic, and asparagus. They are also found in less common foods
Bolt_Upright
in
Cure Parkinson's
3 years ago
Foot Cooling/Heating
No, I don't do HVAC. My daughter, who has CMT, tried out a pair of Medicmac Hot and Cold Therapy socks to help with the burning in her feet. She said they helped immensely, so I thought I'd pass her review on here. I just ordered some NatraCure Hot/Cold socks to use for my alternating burning/icy
No, I don't do HVAC. My daughter, who has CMT, tried out a pair of Medicmac Hot and Cold Therapy socks to help with the burning in her feet. She said they helped immensely, so I thought I'd pass her review on here. I just ordered some NatraCure Hot/Cold socks to use for my alternating burning/icy
greaterexp
in
My MSAA Community
3 years ago
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Lyrica for pain
I have taken Lyrica for pain for about 5 years. I take only 100mg 2x a day. While it's not perfect, it does take the edge off the pain. Especially sitting long periods, which now I don't have a choice really anymore. I'm progressive MS in a power wheelchair about 98% of the time. I do walk a bit each
I have taken Lyrica for pain for about 5 years. I take only 100mg 2x a day. While it's not perfect, it does take the edge off the pain. Especially sitting long periods, which now I don't have a choice really anymore. I'm progressive MS in a power wheelchair about 98% of the time. I do walk a bit each
palomino27
in
My MSAA Community
3 years ago
UK members: Royal Society of Medicine event about FND on Mon 13th Sept.
As far as I can tell this event isn't a #patientsincluded event although I may be wrong. I'm not on twitter but if you are you could ask about this as I think the 'nothing about us without us' meme could be very useful as we move forwards with the understanding of so-called 'functional' conditions.
As far as I can tell this event isn't a #patientsincluded event although I may be wrong. I'm not on twitter but if you are you could ask about this as I think the 'nothing about us without us' meme could be very useful as we move forwards with the understanding of so-called 'functional' conditions.
210272
in
Functional Neurological Disorder - FND Hope
3 years ago
Magnesium Supplements
I'm taking 350mg soluble magnesium carbonate every other day, as suggested by my GP before I was diagnosed. However, I have read that Magnesium Glycinate is specifically recommended for absorption and also as a sleep aid of sorts. Would welcome any feedback - i.e. what dose should be taken daily
I'm taking 350mg soluble magnesium carbonate every other day, as suggested by my GP before I was diagnosed. However, I have read that Magnesium Glycinate is specifically recommended for absorption and also as a sleep aid of sorts. Would welcome any feedback - i.e. what dose should be taken daily
Pr0jection
in
PMRGCAuk
3 years ago
quercetin and thyroid function
hello. i read somewhere that quercetin can inhibit thyroid function, anyone know if this is right? i have been taking it as an antiviral and senolytic. if so i wonder if there is a list anywhere of supplements to be avoided? I gather alpha lipoic acid is one (i also took that), and someone said fisetin
hello. i read somewhere that quercetin can inhibit thyroid function, anyone know if this is right? i have been taking it as an antiviral and senolytic. if so i wonder if there is a list anywhere of supplements to be avoided? I gather alpha lipoic acid is one (i also took that), and someone said fisetin
lauriegraham
in
Thyroid UK
3 years ago
Steroid reduction
Good morning lovely people I’ve been patiently doing the slow tapering regime from 15mg and have now got down to 3. I started to not feel too right so I’ve stayed on 3 for about the last month. However: I’m now developing pain in my shoulders and don’t know if this is PMR presenting itself in this
Good morning lovely people I’ve been patiently doing the slow tapering regime from 15mg and have now got down to 3. I started to not feel too right so I’ve stayed on 3 for about the last month. However: I’m now developing pain in my shoulders and don’t know if this is PMR presenting itself in this
Doraflora
in
PMRGCAuk
3 years ago
Latest Update
Three weeks ago, I had a call out of the blue from my rheumy's team offering me a face to face appointment this Friday! This was the first contact since 30 July last year. I thought I'd better get some bloods done and the results are in. I'd been worrying that they might want me to go back on steroids
Three weeks ago, I had a call out of the blue from my rheumy's team offering me a face to face appointment this Friday! This was the first contact since 30 July last year. I thought I'd better get some bloods done and the results are in. I'd been worrying that they might want me to go back on steroids
Ansteynomad
in
PMRGCAuk
3 years ago
Morton’s Neuroma/Fibroma
I’ve experienced odd foot pain and the sensation of having a quarter taped to the bottom of my foot off and on for several months. I assumed it had something to do with MS and ignored it, but will be talking with my PCP when I get home from visiting family. Do any of you have trouble with this?
I’ve experienced odd foot pain and the sensation of having a quarter taped to the bottom of my foot off and on for several months. I assumed it had something to do with MS and ignored it, but will be talking with my PCP when I get home from visiting family. Do any of you have trouble with this?
greaterexp
in
My MSAA Community
3 years ago
Peripheral Neuropathy
I’ve had Behcets for over 50 years. Taken numerous different medications and am on Imraldi at present. This works brilliantly for me re ulceration. I’ve never been diagnosed with Neuro Behcets although I do have neuropathic bladder, bowel motility problem and oesophageal spasm which does suggest some
I’ve had Behcets for over 50 years. Taken numerous different medications and am on Imraldi at present. This works brilliantly for me re ulceration. I’ve never been diagnosed with Neuro Behcets although I do have neuropathic bladder, bowel motility problem and oesophageal spasm which does suggest some
Meggy7791
in
Behçet's UK
3 years ago
Alpha Lipoic Acid
Hey supermum @kdli You got me thinking (which is rare as rocking horse shit these days lol) Good points and post everyone! I heard about ALA from the Barts website, and when the rolled in glass/paddling in icy water/Irish dancing blood fest (cos I kick out randomly all the time) constant feelings wouldn
Hey supermum @kdli You got me thinking (which is rare as rocking horse shit these days lol) Good points and post everyone! I heard about ALA from the Barts website, and when the rolled in glass/paddling in icy water/Irish dancing blood fest (cos I kick out randomly all the time) constant feelings wouldn
Mermaidia11
in
My MSAA Community
3 years ago
Take part in a research project in chronic pain and employment
I am looking to understand the employment experiences of people living with chronic pain -associated or not to other conditions (eg. fibromyalgia, arthritis,
neuropathies
) in Scotland. Please, see my attached flyer. Get in touch directly. Thanks in advance :)
I am looking to understand the employment experiences of people living with chronic pain -associated or not to other conditions (eg. fibromyalgia, arthritis,
neuropathies
) in Scotland. Please, see my attached flyer. Get in touch directly. Thanks in advance :)
chronicpainSTEM
Researcher
in
Pain Concern
3 years ago
Hiv risk?
I’m a girl who had sex with another girl. She went down on me but I didn’t get down on her. We had sex and she menstruated. She have a partner who she has sex with and he took a hiv test for a month ago and it was negative. She took a hiv test two days after she was with me and was hiv negative. Is
I’m a girl who had sex with another girl. She went down on me but I didn’t get down on her. We had sex and she menstruated. She have a partner who she has sex with and he took a hiv test for a month ago and it was negative. She took a hiv test two days after she was with me and was hiv negative. Is
Loubbis
in
HIV Partners
3 years ago
Sore toe
I know this sounds trivial but although I have a lot of pain (due to peripheral neuropathy in feet and legs) which I can bear, the nail on my right big toe is peeling off and the toe underneath looks infected - the pain is indescribable. I have had this before and it involved a long podiatry attendance
I know this sounds trivial but although I have a lot of pain (due to peripheral neuropathy in feet and legs) which I can bear, the nail on my right big toe is peeling off and the toe underneath looks infected - the pain is indescribable. I have had this before and it involved a long podiatry attendance
foxglove
in
Pain Concern
3 years ago
Unnumbered post Look for alternatives 12 May 2021
Good day family. I have no idea when "YOU" read this so I think day is safest. For me, it is nearly eleven am, right and sunny and I am debating buying more instant coffee. I am Australian so instant coffee is normal for me. I know how to brew coffee, but sometimes I am just far too lazy, no
Good day family. I have no idea when "YOU" read this so I think day is safest. For me, it is nearly eleven am, right and sunny and I am debating buying more instant coffee. I am Australian so instant coffee is normal for me. I know how to brew coffee, but sometimes I am just far too lazy, no
RoyceNewton
in
My MSAA Community
3 years ago
citicoline as an adjunct therapy in PD
“A total of 7 studies (2 crossover, 3 randomized controlled, and 2 open prospective studies) were included. Despite the varied outcome tools, this review found that patients with PD who were taking citicoline had significant improvement in rigidity, akinesia, tremor, handwriting, and speech. Citicoline
“A total of 7 studies (2 crossover, 3 randomized controlled, and 2 open prospective studies) were included. Despite the varied outcome tools, this review found that patients with PD who were taking citicoline had significant improvement in rigidity, akinesia, tremor, handwriting, and speech. Citicoline
PDConscience
in
Cure Parkinson's
3 years ago
Thoughts Please
Huge fatigue and non specific aches along with several minor
neuropathies
(hands, feet and knees) and trigeminal/occipital neuralgia.Both feet are painfull, GP says it's plantar fasciitis, physio disagrees.
Huge fatigue and non specific aches along with several minor
neuropathies
(hands, feet and knees) and trigeminal/occipital neuralgia.Both feet are painfull, GP says it's plantar fasciitis, physio disagrees.
Mistermeaner
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
alpha lipoic acid and other supplements that interact with levo?
Hello. I have for a long while taken ala, it has a range of benefits but i have just started levo and heard that it interferes with t4 to t3 conversion. does anyone know if this means one should not take it at all or just leave a good time gap? is there a comprehensive list of supplements that one should
Hello. I have for a long while taken ala, it has a range of benefits but i have just started levo and heard that it interferes with t4 to t3 conversion. does anyone know if this means one should not take it at all or just leave a good time gap? is there a comprehensive list of supplements that one should
lauriegraham
in
Thyroid UK
3 years ago
Twisted ankle
4 years into GCA/PMR on 7mg Pred and Tocilizimab I went over on my ankle and stumbled not fell. Few days later suffering with what feels like Plantar fasciitis and pain in buttock. This has now been about 3 weeks. Anybody got any advice? Is it just pulled muscles/tendons. Just another bit falling apart
4 years into GCA/PMR on 7mg Pred and Tocilizimab I went over on my ankle and stumbled not fell. Few days later suffering with what feels like Plantar fasciitis and pain in buttock. This has now been about 3 weeks. Anybody got any advice? Is it just pulled muscles/tendons. Just another bit falling apart
broomfield28
in
PMRGCAuk
3 years ago
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