Search
Search
About
Log in
Join
Experiences with
Neuropathies
Posts
Communities
578 public posts
Filter results
Leflunomide concern
Anyone taking Leflunomide and experiencing extreme weakness? I have had weakness and dizziness a couple of times now and I have notified my GP and Rheumatologist. Started this drug Sept 25 so been about 6+ weeks. Not liking this at all. Thanks in advance for any feedback.
Anyone taking Leflunomide and experiencing extreme weakness? I have had weakness and dizziness a couple of times now and I have notified my GP and Rheumatologist. Started this drug Sept 25 so been about 6+ weeks. Not liking this at all. Thanks in advance for any feedback.
Alebeau
in
PMRGCAuk
3 years ago
Dasatinib
I was interested to see in the latest from the Mayo: "
Antidiabetic Effects of the Senolytic Agent Dasatinib
" [1] Many men with PCa are pre-diabetic at diagnosis, with some of the symptons of the metabolic syndrome [MetS]. Pre-diabetics do not necessarily progress to diabetes, but androgen deprivation
I was interested to see in the latest from the Mayo: "
Antidiabetic Effects of the Senolytic Agent Dasatinib
" [1] Many men with PCa are pre-diabetic at diagnosis, with some of the symptons of the metabolic syndrome [MetS]. Pre-diabetics do not necessarily progress to diabetes, but androgen deprivation
pjoshea13
in
Advanced Prostate Cancer
3 years ago
Nausea
I've been feeling nauseus, mild headache and unwell after eating for last week or so. I've booked a bllod test, but not available till Dec 6th. Anybody have any advice? I take levo 100mg, vitd/k2 5000iu, magnesium glycinate 500mg daily.
I've been feeling nauseus, mild headache and unwell after eating for last week or so. I've booked a bllod test, but not available till Dec 6th. Anybody have any advice? I take levo 100mg, vitd/k2 5000iu, magnesium glycinate 500mg daily.
Geegee777
in
Thyroid UK
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
FND burning sensation...
Hi. Newly diagnosed with FND. Progressing fairly well with help of neuro physio. main problem (apart from actual functioning!) is the burning/ tingling sensation in my hand. any way to improve this please. Exercises that help?? Thank you
Hi. Newly diagnosed with FND. Progressing fairly well with help of neuro physio. main problem (apart from actual functioning!) is the burning/ tingling sensation in my hand. any way to improve this please. Exercises that help?? Thank you
mabelwoofer
in
Functional Neurological Disorder - FND Hope
3 years ago
Small Fibre Neuropathy and PMR
Hi does anyone know if there’s any link between PMR and small fibre neuropathy? I have it quite badly in my feet and lower legs and slightly in the tips of my fingers. Another long shot - could the small fibre neuropathy be connected to long term use of steroids - since 2014 when my PMR was first diagnosed
Hi does anyone know if there’s any link between PMR and small fibre neuropathy? I have it quite badly in my feet and lower legs and slightly in the tips of my fingers. Another long shot - could the small fibre neuropathy be connected to long term use of steroids - since 2014 when my PMR was first diagnosed
susanspurs
in
PMRGCAuk
3 years ago
Dating post prostate surgery
Had my radical prostatectomy August 10th of this year. This weekend met someone and went out on a date Sunday night. It was good I was open and honest with my medical issues. My question to those that are single, how long after your surgery did you wait before getting back in the dating game?
Had my radical prostatectomy August 10th of this year. This weekend met someone and went out on a date Sunday night. It was good I was open and honest with my medical issues. My question to those that are single, how long after your surgery did you wait before getting back in the dating game?
Skip66
in
Prostate Cancer And Gay Men
3 years ago
Is Magnesium glycinate available in smaller caps/tabs?
I bought a bottle called "doctor's best high absorption magnesium 100% chelated" 100mg tablets (ingredient says from magnesium lysinate glycinate chelate) to help with sleep, but the tablets r too huge for me to swallow, n when I tried to crush them n mix with water, the taste was so horrible I vomited
I bought a bottle called "doctor's best high absorption magnesium 100% chelated" 100mg tablets (ingredient says from magnesium lysinate glycinate chelate) to help with sleep, but the tablets r too huge for me to swallow, n when I tried to crush them n mix with water, the taste was so horrible I vomited
ejaji
in
Restless Legs Syndrome
3 years ago
Amitriptyline with antibiotics
Hi I'm on amitriptyline 25 mg for nerve pain but also quitiapine 150 mg for borderline personality disorder any help welcome thanks
Hi I'm on amitriptyline 25 mg for nerve pain but also quitiapine 150 mg for borderline personality disorder any help welcome thanks
Bubba44
in
PMRGCAuk
3 years ago
Anyone experience Intercostal Neuralgia? or Rhomboid pain?
Quick question: has anyone experienced "intercostal neuralgia" with their PMR? I have had PMR for three years and I am currently tapering pred now at 5 1/2 mg (tapering 1/2 mg per month) without any troubles - this time. Around a week ago, I woke with shingles like pain wrapping around my right rib cage
Quick question: has anyone experienced "intercostal neuralgia" with their PMR? I have had PMR for three years and I am currently tapering pred now at 5 1/2 mg (tapering 1/2 mg per month) without any troubles - this time. Around a week ago, I woke with shingles like pain wrapping around my right rib cage
pmrusa
in
PMRGCAuk
3 years ago
Has anyone had a dural fistula removed from spinal cord
I had a dural fistula removed from my spinal cord in April and progressed really well but recently I have been experiencing more pins and needles and pain. Can anyone tell me if this is normal and will it improve
I had a dural fistula removed from my spinal cord in April and progressed really well but recently I have been experiencing more pins and needles and pain. Can anyone tell me if this is normal and will it improve
Myfairl
in
Pelvic Pain Support Network
3 years ago
Whole-Body and Peripheral-Nerve Pain Relief Options
While his content is not PD-specific, some of us with PwP experience
and other peripheral nerve pain, and I found his science-based suggestions addressing these topics worth exploring. Maybe they'll work for PwP... The podcast is two hours long(!)
While his content is not PD-specific, some of us with PwP experience
and other peripheral nerve pain, and I found his science-based suggestions addressing these topics worth exploring. Maybe they'll work for PwP... The podcast is two hours long(!)
Madame-Mango
in
Cure Parkinson's
3 years ago
Inulin improves gut health in humans in part by stimulating the growth of beneficial bifidobacteria
I need smartypants to figure out if this inulin is good or bad please. https://selfhacked.com/blog/health-benefits-inulin/ Inulin is present in 36,000 plant species including those we consume in our daily diets such as wheat, onion, bananas, garlic, and asparagus. They are also found in less common foods
I need smartypants to figure out if this inulin is good or bad please. https://selfhacked.com/blog/health-benefits-inulin/ Inulin is present in 36,000 plant species including those we consume in our daily diets such as wheat, onion, bananas, garlic, and asparagus. They are also found in less common foods
Bolt_Upright
in
Cure Parkinson's
3 years ago
Foot Cooling/Heating
No, I don't do HVAC. My daughter, who has CMT, tried out a pair of Medicmac Hot and Cold Therapy socks to help with the burning in her feet. She said they helped immensely, so I thought I'd pass her review on here. I just ordered some NatraCure Hot/Cold socks to use for my alternating burning/icy
No, I don't do HVAC. My daughter, who has CMT, tried out a pair of Medicmac Hot and Cold Therapy socks to help with the burning in her feet. She said they helped immensely, so I thought I'd pass her review on here. I just ordered some NatraCure Hot/Cold socks to use for my alternating burning/icy
greaterexp
in
My MSAA Community
3 years ago
Lyrica for pain
I have taken Lyrica for pain for about 5 years. I take only 100mg 2x a day. While it's not perfect, it does take the edge off the pain. Especially sitting long periods, which now I don't have a choice really anymore. I'm progressive MS in a power wheelchair about 98% of the time. I do walk a bit each
I have taken Lyrica for pain for about 5 years. I take only 100mg 2x a day. While it's not perfect, it does take the edge off the pain. Especially sitting long periods, which now I don't have a choice really anymore. I'm progressive MS in a power wheelchair about 98% of the time. I do walk a bit each
palomino27
in
My MSAA Community
3 years ago
UK members: Royal Society of Medicine event about FND on Mon 13th Sept.
As far as I can tell this event isn't a #patientsincluded event although I may be wrong. I'm not on twitter but if you are you could ask about this as I think the 'nothing about us without us' meme could be very useful as we move forwards with the understanding of so-called 'functional' conditions.
As far as I can tell this event isn't a #patientsincluded event although I may be wrong. I'm not on twitter but if you are you could ask about this as I think the 'nothing about us without us' meme could be very useful as we move forwards with the understanding of so-called 'functional' conditions.
210272
in
Functional Neurological Disorder - FND Hope
3 years ago
Magnesium Supplements
I'm taking 350mg soluble magnesium carbonate every other day, as suggested by my GP before I was diagnosed. However, I have read that Magnesium Glycinate is specifically recommended for absorption and also as a sleep aid of sorts. Would welcome any feedback - i.e. what dose should be taken daily
I'm taking 350mg soluble magnesium carbonate every other day, as suggested by my GP before I was diagnosed. However, I have read that Magnesium Glycinate is specifically recommended for absorption and also as a sleep aid of sorts. Would welcome any feedback - i.e. what dose should be taken daily
Pr0jection
in
PMRGCAuk
3 years ago
quercetin and thyroid function
hello. i read somewhere that quercetin can inhibit thyroid function, anyone know if this is right? i have been taking it as an antiviral and senolytic. if so i wonder if there is a list anywhere of supplements to be avoided? I gather alpha lipoic acid is one (i also took that), and someone said fisetin
hello. i read somewhere that quercetin can inhibit thyroid function, anyone know if this is right? i have been taking it as an antiviral and senolytic. if so i wonder if there is a list anywhere of supplements to be avoided? I gather alpha lipoic acid is one (i also took that), and someone said fisetin
lauriegraham
in
Thyroid UK
3 years ago
Steroid reduction
Good morning lovely people I’ve been patiently doing the slow tapering regime from 15mg and have now got down to 3. I started to not feel too right so I’ve stayed on 3 for about the last month. However: I’m now developing pain in my shoulders and don’t know if this is PMR presenting itself in this
Good morning lovely people I’ve been patiently doing the slow tapering regime from 15mg and have now got down to 3. I started to not feel too right so I’ve stayed on 3 for about the last month. However: I’m now developing pain in my shoulders and don’t know if this is PMR presenting itself in this
Doraflora
in
PMRGCAuk
3 years ago
Latest Update
Three weeks ago, I had a call out of the blue from my rheumy's team offering me a face to face appointment this Friday! This was the first contact since 30 July last year. I thought I'd better get some bloods done and the results are in. I'd been worrying that they might want me to go back on steroids
Three weeks ago, I had a call out of the blue from my rheumy's team offering me a face to face appointment this Friday! This was the first contact since 30 July last year. I thought I'd better get some bloods done and the results are in. I'd been worrying that they might want me to go back on steroids
Ansteynomad
in
PMRGCAuk
3 years ago
Morton’s Neuroma/Fibroma
I’ve experienced odd foot pain and the sensation of having a quarter taped to the bottom of my foot off and on for several months. I assumed it had something to do with MS and ignored it, but will be talking with my PCP when I get home from visiting family. Do any of you have trouble with this?
I’ve experienced odd foot pain and the sensation of having a quarter taped to the bottom of my foot off and on for several months. I assumed it had something to do with MS and ignored it, but will be talking with my PCP when I get home from visiting family. Do any of you have trouble with this?
greaterexp
in
My MSAA Community
3 years ago
1
...
6
7
8
...
29
Next page
10
20
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
136 results
Diabetes India
67 results
My MSAA Community
56 results
View top 10 communities
Sort by
Most Relevant
Newest