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When do you give up....
On a supplement! I completely understand these things take time. However, my father is willing to trial supplements that have NO effect, but he feels something we added is contributing to fatigue and difficulty speaking in the last several days What we have started so far (with 2 day gap in between)
On a supplement! I completely understand these things take time. However, my father is willing to trial supplements that have NO effect, but he feels something we added is contributing to fatigue and difficulty speaking in the last several days What we have started so far (with 2 day gap in between)
simonasays
in
Cure Parkinson's
3 years ago
Multiple thoracic disc herniations misdiagnosed as FND
I have miraculous news that I thought would never come. I'd fully accepted the FND diagnosis at age 27 and coped with terrible pain, unilateral upper and lower limb paresis, use of wheelchair, and 2 years of disability. But this week, after 2 years of having an FND diagnosis , my spine was finally x-rayed
I have miraculous news that I thought would never come. I'd fully accepted the FND diagnosis at age 27 and coped with terrible pain, unilateral upper and lower limb paresis, use of wheelchair, and 2 years of disability. But this week, after 2 years of having an FND diagnosis , my spine was finally x-rayed
jhsbipolarfnd92
in
Functional Neurological Disorder - FND Hope
3 years ago
Voltaren, (diclofenac) topical gel OK with pred?
My GP has prescribed Voltaren (dicflocinac), for osteoarthritis and hip bursitis pain. I asked about taking it with prednisone and she assured me it’S OK because it’s topical, doesn’t affect internal organs, etc. Has anyone used this gained relief from pain? Currently having pain in right
My GP has prescribed Voltaren (dicflocinac), for osteoarthritis and hip bursitis pain. I asked about taking it with prednisone and she assured me it’S OK because it’s topical, doesn’t affect internal organs, etc. Has anyone used this gained relief from pain? Currently having pain in right
Mstiles
in
PMRGCAuk
3 years ago
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Leflunomide and plan for reducing prednisolone
My PMR journey began in February 2018 on15mg Pred and was smooth apart from one or two bumps in the road. I was diagnosed with asymptomatic large vessel vasculitis in September 2020. My Pred dose for PMR was successfully reduced from 5mg to 2.5mg over three months and I've remained on that dose. After
My PMR journey began in February 2018 on15mg Pred and was smooth apart from one or two bumps in the road. I was diagnosed with asymptomatic large vessel vasculitis in September 2020. My Pred dose for PMR was successfully reduced from 5mg to 2.5mg over three months and I've remained on that dose. After
123-go
in
PMRGCAuk
3 years ago
Weird PMR
Hi, I'm a two year sufferer of PMR. In the last four weeks or so the ache is very much localized in just one area - i.e. lower righthand side of my neck. This ache can become quite severe sometimes. No aches anywhere else! I'm currently on 10mg of Steriods and have both increased an decreased this
Hi, I'm a two year sufferer of PMR. In the last four weeks or so the ache is very much localized in just one area - i.e. lower righthand side of my neck. This ache can become quite severe sometimes. No aches anywhere else! I'm currently on 10mg of Steriods and have both increased an decreased this
GucciPaddy
in
PMRGCAuk
3 years ago
Important advice would be appreciated
I have a face to face appointment with my rheumy on Tuesday and would very much appreciate some help. Looking back over the last nine months she has given me three plans for reducing Pred' All three have resulted in flare ups and set backs measured in months. The first was 25mg to 20mg for one week,then
I have a face to face appointment with my rheumy on Tuesday and would very much appreciate some help. Looking back over the last nine months she has given me three plans for reducing Pred' All three have resulted in flare ups and set backs measured in months. The first was 25mg to 20mg for one week,then
yorkieme
in
PMRGCAuk
3 years ago
Weaning off Ropinirol
A question! I was on 2mg ropinirol at bedtime for the last 5 years or so. After reading all the negative things about it, I decided to wean off, .25mg at a time. I've been doing this slowly and I'm down to 1mg now but a strange thing happened last night. Early evening and my legs felt fine. No twitchy
A question! I was on 2mg ropinirol at bedtime for the last 5 years or so. After reading all the negative things about it, I decided to wean off, .25mg at a time. I've been doing this slowly and I'm down to 1mg now but a strange thing happened last night. Early evening and my legs felt fine. No twitchy
Notlikinthis
in
Restless Legs Syndrome
3 years ago
Feeling tired again?
Since then, lots of my symptoms have improved: I no longer suffer from specific
neuropathies
(it used to feel like a wasp was stinging my toe!), I don’t have the daily headaches, etc.
Since then, lots of my symptoms have improved: I no longer suffer from specific
neuropathies
(it used to feel like a wasp was stinging my toe!), I don’t have the daily headaches, etc.
still_elsewhere
in
Pernicious Anaemia Society
3 years ago
Magnesium glycinate safe to take while on Rivaroxaban
Does anyone know if it’s ok to take magnesium glycinate while on Xarelto (rivaroxaben). I can only find stuff that says it may increase serum levels of magnesium - but I do not know the implication of this 🤷♀️ Health history: I have AF and had a TIA years ago, aldi take 2.5mg bisoprolol) Thanks in
Does anyone know if it’s ok to take magnesium glycinate while on Xarelto (rivaroxaben). I can only find stuff that says it may increase serum levels of magnesium - but I do not know the implication of this 🤷♀️ Health history: I have AF and had a TIA years ago, aldi take 2.5mg bisoprolol) Thanks in
Tilly1957
in
AF Association
3 years ago
Fingers
Hi I have been diagnosed with PMR a couple of months ago, I'm 45 Currently striking the balance with Pred and Methotrexate Hoping the Meth will allow me to wean of the Pred One thing my Rummy told me was non of his patients suffer with pain in the fingers I suffer greatly, especially the first few
Hi I have been diagnosed with PMR a couple of months ago, I'm 45 Currently striking the balance with Pred and Methotrexate Hoping the Meth will allow me to wean of the Pred One thing my Rummy told me was non of his patients suffer with pain in the fingers I suffer greatly, especially the first few
evzi75
in
PMRGCAuk
3 years ago
blood in stool 18 months after IMRT
need some guidance regarding some blood in stool after 18 months of IMRT 20 sessions...some days ok some days blood. No pain or no irritation so far...veg diet...lot of exercise.... I will appreciate any suggestions...thanks
need some guidance regarding some blood in stool after 18 months of IMRT 20 sessions...some days ok some days blood. No pain or no irritation so far...veg diet...lot of exercise.... I will appreciate any suggestions...thanks
Karmaji
in
Advanced Prostate Cancer
3 years ago
Prednisolone together with Leflunomide
I was diagnosed GCA in April 2018 (confirmed by biopsy) and have been reducing from 60mg. pred. since then. Each time I reach 7 - 5mg I have a flare and have to increase the dose again (now on 9mg). My Rheumy has just prescribed leflunomide (20mg) hoping it will help me to reduce the pred. I understand
I was diagnosed GCA in April 2018 (confirmed by biopsy) and have been reducing from 60mg. pred. since then. Each time I reach 7 - 5mg I have a flare and have to increase the dose again (now on 9mg). My Rheumy has just prescribed leflunomide (20mg) hoping it will help me to reduce the pred. I understand
membership
in
PMRGCAuk
3 years ago
Tinnitus from Cisplatin chemotherapy
Hello Ovacome community, Has anyone experience of tinnitus as a result of receiving Cisplatin, or another chemo ( seems to be side affect of platinum chemos). This hissing started last Thursday, it’s loud and distressing causing hearing impairment. It’s constant. I had cycle 2 of Cisplatin & Etoposide
Hello Ovacome community, Has anyone experience of tinnitus as a result of receiving Cisplatin, or another chemo ( seems to be side affect of platinum chemos). This hissing started last Thursday, it’s loud and distressing causing hearing impairment. It’s constant. I had cycle 2 of Cisplatin & Etoposide
greenpink
in
My Ovacome
3 years ago
Neuropathy
I’ve had numbness in my feet for quite awhile, but recently I’ve had hot & cold feet as well as swelling. Note: this occurs in one foot or the other (switching from left to right and back). I just read that this is part of neuropathy too. This is a new item on my list of strange occurrences that MS has
I’ve had numbness in my feet for quite awhile, but recently I’ve had hot & cold feet as well as swelling. Note: this occurs in one foot or the other (switching from left to right and back). I just read that this is part of neuropathy too. This is a new item on my list of strange occurrences that MS has
robster1
in
My MSAA Community
4 years ago
Methotrexate v. Leflunomide
I have been on Pred (currently at 5mg) plus Methotrexate since May this year. I stopped the Metho two weeks ago to see if it was the medication causing me so much dreadful fatigue. I have felt much better since. Is there anyone who has changed from Metho. to Leflunomide and if so has it been beneficial
I have been on Pred (currently at 5mg) plus Methotrexate since May this year. I stopped the Metho two weeks ago to see if it was the medication causing me so much dreadful fatigue. I have felt much better since. Is there anyone who has changed from Metho. to Leflunomide and if so has it been beneficial
Francesbarbara
in
PMRGCAuk
4 years ago
Leflunomide
I’ve posted this a reply to head girl but thought I would also add as a separate post saw Dr Hughes yesterday for a catch up. I was diagnosed with PMR Dec 2019 and have been having difficulties decreasing the Prednisolone dose. Hence Dr Hughes suggested adding in 20mg of Leflunomide which I have been
I’ve posted this a reply to head girl but thought I would also add as a separate post saw Dr Hughes yesterday for a catch up. I was diagnosed with PMR Dec 2019 and have been having difficulties decreasing the Prednisolone dose. Hence Dr Hughes suggested adding in 20mg of Leflunomide which I have been
SurreyFlower
in
PMRGCAuk
4 years ago
Plant based ALA [alpha-lipoic acid] can weaken COVID-19 infection and maybe even prevent it.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7427590/#!po=9.45946 ALA can increase human defenses against SARS-CoV-2 by increasing intracellular pH. ALA is a potent antioxidant and reduces oxidative stress and inhibits activation of nuclear factor-kappa B (NF-kB) and can play a vital role in the treatment
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7427590/#!po=9.45946 ALA can increase human defenses against SARS-CoV-2 by increasing intracellular pH. ALA is a potent antioxidant and reduces oxidative stress and inhibits activation of nuclear factor-kappa B (NF-kB) and can play a vital role in the treatment
SilentEchoes
in
Cure Parkinson's
4 years ago
Tingling in muscles
Hi. I have developed a tingling in muscles around inside knees. Started with left but now on right too. It started a few weeks ago and initially thought it was a trapped nerve, but now that other leg is affected, I’m not so sure. I think I’ve had read something about this but have forgotten it’s name
Hi. I have developed a tingling in muscles around inside knees. Started with left but now on right too. It started a few weeks ago and initially thought it was a trapped nerve, but now that other leg is affected, I’m not so sure. I think I’ve had read something about this but have forgotten it’s name
Suedeshayes
in
PMRGCAuk
4 years ago
EVENING PRIMROSE OIL AND HYPOTHYROIDISM
I have lost my hair, eyebrows and lashes due to hypothyroidism. I am taking biotin and collagen to help. Someone recommended Evening Primrose Oil. I would like to know if it is safe to take it
I have lost my hair, eyebrows and lashes due to hypothyroidism. I am taking biotin and collagen to help. Someone recommended Evening Primrose Oil. I would like to know if it is safe to take it
Siames
in
Thyroid UK
4 years ago
My First Photography Trip
20 years ago, I went on a out-of-state photography trip. No family reunion, no wedding of a family member, or to meet up with friends. I had recently lost my dog, Peanut, to cancer, and I couldn't sleep for weeks. My family doctor had diagnosed me with depression and put me on an antidipressant
20 years ago, I went on a out-of-state photography trip. No family reunion, no wedding of a family member, or to meet up with friends. I had recently lost my dog, Peanut, to cancer, and I couldn't sleep for weeks. My family doctor had diagnosed me with depression and put me on an antidipressant
CrazyCatWom
in
My MSAA Community
4 years ago
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