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Peripheral Neuropathy
I’ve had Behcets for over 50 years. Taken numerous different medications and am on Imraldi at present. This works brilliantly for me re ulceration. I’ve never been diagnosed with Neuro Behcets although I do have neuropathic bladder, bowel motility problem and oesophageal spasm which does suggest some
I’ve had Behcets for over 50 years. Taken numerous different medications and am on Imraldi at present. This works brilliantly for me re ulceration. I’ve never been diagnosed with Neuro Behcets although I do have neuropathic bladder, bowel motility problem and oesophageal spasm which does suggest some
Meggy7791
in
Behçet's UK
3 years ago
Alpha Lipoic Acid
Hey supermum @kdli You got me thinking (which is rare as rocking horse shit these days lol) Good points and post everyone! I heard about ALA from the Barts website, and when the rolled in glass/paddling in icy water/Irish dancing blood fest (cos I kick out randomly all the time) constant feelings wouldn
Hey supermum @kdli You got me thinking (which is rare as rocking horse shit these days lol) Good points and post everyone! I heard about ALA from the Barts website, and when the rolled in glass/paddling in icy water/Irish dancing blood fest (cos I kick out randomly all the time) constant feelings wouldn
Mermaidia11
in
My MSAA Community
3 years ago
Hiv risk?
I’m a girl who had sex with another girl. She went down on me but I didn’t get down on her. We had sex and she menstruated. She have a partner who she has sex with and he took a hiv test for a month ago and it was negative. She took a hiv test two days after she was with me and was hiv negative. Is
I’m a girl who had sex with another girl. She went down on me but I didn’t get down on her. We had sex and she menstruated. She have a partner who she has sex with and he took a hiv test for a month ago and it was negative. She took a hiv test two days after she was with me and was hiv negative. Is
Loubbis
in
HIV Partners
3 years ago
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Take part in a research project in chronic pain and employment
I am looking to understand the employment experiences of people living with chronic pain -associated or not to other conditions (eg. fibromyalgia, arthritis,
neuropathies
) in Scotland. Please, see my attached flyer. Get in touch directly. Thanks in advance :)
I am looking to understand the employment experiences of people living with chronic pain -associated or not to other conditions (eg. fibromyalgia, arthritis,
neuropathies
) in Scotland. Please, see my attached flyer. Get in touch directly. Thanks in advance :)
chronicpainSTEM
Researcher
in
Pain Concern
3 years ago
Sore toe
I know this sounds trivial but although I have a lot of pain (due to peripheral neuropathy in feet and legs) which I can bear, the nail on my right big toe is peeling off and the toe underneath looks infected - the pain is indescribable. I have had this before and it involved a long podiatry attendance
I know this sounds trivial but although I have a lot of pain (due to peripheral neuropathy in feet and legs) which I can bear, the nail on my right big toe is peeling off and the toe underneath looks infected - the pain is indescribable. I have had this before and it involved a long podiatry attendance
foxglove
in
Pain Concern
3 years ago
Unnumbered post Look for alternatives 12 May 2021
Good day family. I have no idea when "YOU" read this so I think day is safest. For me, it is nearly eleven am, right and sunny and I am debating buying more instant coffee. I am Australian so instant coffee is normal for me. I know how to brew coffee, but sometimes I am just far too lazy, no
Good day family. I have no idea when "YOU" read this so I think day is safest. For me, it is nearly eleven am, right and sunny and I am debating buying more instant coffee. I am Australian so instant coffee is normal for me. I know how to brew coffee, but sometimes I am just far too lazy, no
RoyceNewton
in
My MSAA Community
3 years ago
citicoline as an adjunct therapy in PD
“A total of 7 studies (2 crossover, 3 randomized controlled, and 2 open prospective studies) were included. Despite the varied outcome tools, this review found that patients with PD who were taking citicoline had significant improvement in rigidity, akinesia, tremor, handwriting, and speech. Citicoline
“A total of 7 studies (2 crossover, 3 randomized controlled, and 2 open prospective studies) were included. Despite the varied outcome tools, this review found that patients with PD who were taking citicoline had significant improvement in rigidity, akinesia, tremor, handwriting, and speech. Citicoline
PDConscience
in
Cure Parkinson's
3 years ago
Thoughts Please
Huge fatigue and non specific aches along with several minor
neuropathies
(hands, feet and knees) and trigeminal/occipital neuralgia.Both feet are painfull, GP says it's plantar fasciitis, physio disagrees.
Huge fatigue and non specific aches along with several minor
neuropathies
(hands, feet and knees) and trigeminal/occipital neuralgia.Both feet are painfull, GP says it's plantar fasciitis, physio disagrees.
Mistermeaner
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
alpha lipoic acid and other supplements that interact with levo?
Hello. I have for a long while taken ala, it has a range of benefits but i have just started levo and heard that it interferes with t4 to t3 conversion. does anyone know if this means one should not take it at all or just leave a good time gap? is there a comprehensive list of supplements that one should
Hello. I have for a long while taken ala, it has a range of benefits but i have just started levo and heard that it interferes with t4 to t3 conversion. does anyone know if this means one should not take it at all or just leave a good time gap? is there a comprehensive list of supplements that one should
lauriegraham
in
Thyroid UK
3 years ago
Twisted ankle
4 years into GCA/PMR on 7mg Pred and Tocilizimab I went over on my ankle and stumbled not fell. Few days later suffering with what feels like Plantar fasciitis and pain in buttock. This has now been about 3 weeks. Anybody got any advice? Is it just pulled muscles/tendons. Just another bit falling apart
4 years into GCA/PMR on 7mg Pred and Tocilizimab I went over on my ankle and stumbled not fell. Few days later suffering with what feels like Plantar fasciitis and pain in buttock. This has now been about 3 weeks. Anybody got any advice? Is it just pulled muscles/tendons. Just another bit falling apart
broomfield28
in
PMRGCAuk
3 years ago
When do you give up....
On a supplement! I completely understand these things take time. However, my father is willing to trial supplements that have NO effect, but he feels something we added is contributing to fatigue and difficulty speaking in the last several days What we have started so far (with 2 day gap in between)
On a supplement! I completely understand these things take time. However, my father is willing to trial supplements that have NO effect, but he feels something we added is contributing to fatigue and difficulty speaking in the last several days What we have started so far (with 2 day gap in between)
simonasays
in
Cure Parkinson's
3 years ago
Multiple thoracic disc herniations misdiagnosed as FND
I have miraculous news that I thought would never come. I'd fully accepted the FND diagnosis at age 27 and coped with terrible pain, unilateral upper and lower limb paresis, use of wheelchair, and 2 years of disability. But this week, after 2 years of having an FND diagnosis , my spine was finally x-rayed
I have miraculous news that I thought would never come. I'd fully accepted the FND diagnosis at age 27 and coped with terrible pain, unilateral upper and lower limb paresis, use of wheelchair, and 2 years of disability. But this week, after 2 years of having an FND diagnosis , my spine was finally x-rayed
jhsbipolarfnd92
in
Functional Neurological Disorder - FND Hope
3 years ago
Voltaren, (diclofenac) topical gel OK with pred?
My GP has prescribed Voltaren (dicflocinac), for osteoarthritis and hip bursitis pain. I asked about taking it with prednisone and she assured me it’S OK because it’s topical, doesn’t affect internal organs, etc. Has anyone used this gained relief from pain? Currently having pain in right
My GP has prescribed Voltaren (dicflocinac), for osteoarthritis and hip bursitis pain. I asked about taking it with prednisone and she assured me it’S OK because it’s topical, doesn’t affect internal organs, etc. Has anyone used this gained relief from pain? Currently having pain in right
Mstiles
in
PMRGCAuk
3 years ago
Leflunomide and plan for reducing prednisolone
My PMR journey began in February 2018 on15mg Pred and was smooth apart from one or two bumps in the road. I was diagnosed with asymptomatic large vessel vasculitis in September 2020. My Pred dose for PMR was successfully reduced from 5mg to 2.5mg over three months and I've remained on that dose. After
My PMR journey began in February 2018 on15mg Pred and was smooth apart from one or two bumps in the road. I was diagnosed with asymptomatic large vessel vasculitis in September 2020. My Pred dose for PMR was successfully reduced from 5mg to 2.5mg over three months and I've remained on that dose. After
123-go
in
PMRGCAuk
3 years ago
Weird PMR
Hi, I'm a two year sufferer of PMR. In the last four weeks or so the ache is very much localized in just one area - i.e. lower righthand side of my neck. This ache can become quite severe sometimes. No aches anywhere else! I'm currently on 10mg of Steriods and have both increased an decreased this
Hi, I'm a two year sufferer of PMR. In the last four weeks or so the ache is very much localized in just one area - i.e. lower righthand side of my neck. This ache can become quite severe sometimes. No aches anywhere else! I'm currently on 10mg of Steriods and have both increased an decreased this
GucciPaddy
in
PMRGCAuk
4 years ago
Important advice would be appreciated
I have a face to face appointment with my rheumy on Tuesday and would very much appreciate some help. Looking back over the last nine months she has given me three plans for reducing Pred' All three have resulted in flare ups and set backs measured in months. The first was 25mg to 20mg for one week,then
I have a face to face appointment with my rheumy on Tuesday and would very much appreciate some help. Looking back over the last nine months she has given me three plans for reducing Pred' All three have resulted in flare ups and set backs measured in months. The first was 25mg to 20mg for one week,then
yorkieme
in
PMRGCAuk
4 years ago
Weaning off Ropinirol
A question! I was on 2mg ropinirol at bedtime for the last 5 years or so. After reading all the negative things about it, I decided to wean off, .25mg at a time. I've been doing this slowly and I'm down to 1mg now but a strange thing happened last night. Early evening and my legs felt fine. No twitchy
A question! I was on 2mg ropinirol at bedtime for the last 5 years or so. After reading all the negative things about it, I decided to wean off, .25mg at a time. I've been doing this slowly and I'm down to 1mg now but a strange thing happened last night. Early evening and my legs felt fine. No twitchy
Notlikinthis
in
Restless Legs Syndrome
4 years ago
Feeling tired again?
Since then, lots of my symptoms have improved: I no longer suffer from specific
neuropathies
(it used to feel like a wasp was stinging my toe!), I don’t have the daily headaches, etc.
Since then, lots of my symptoms have improved: I no longer suffer from specific
neuropathies
(it used to feel like a wasp was stinging my toe!), I don’t have the daily headaches, etc.
still_elsewhere
in
Pernicious Anaemia Society
4 years ago
Magnesium glycinate safe to take while on Rivaroxaban
Does anyone know if it’s ok to take magnesium glycinate while on Xarelto (rivaroxaben). I can only find stuff that says it may increase serum levels of magnesium - but I do not know the implication of this 🤷♀️ Health history: I have AF and had a TIA years ago, aldi take 2.5mg bisoprolol) Thanks in
Does anyone know if it’s ok to take magnesium glycinate while on Xarelto (rivaroxaben). I can only find stuff that says it may increase serum levels of magnesium - but I do not know the implication of this 🤷♀️ Health history: I have AF and had a TIA years ago, aldi take 2.5mg bisoprolol) Thanks in
Tilly1957
in
AF Association
4 years ago
Fingers
Hi I have been diagnosed with PMR a couple of months ago, I'm 45 Currently striking the balance with Pred and Methotrexate Hoping the Meth will allow me to wean of the Pred One thing my Rummy told me was non of his patients suffer with pain in the fingers I suffer greatly, especially the first few
Hi I have been diagnosed with PMR a couple of months ago, I'm 45 Currently striking the balance with Pred and Methotrexate Hoping the Meth will allow me to wean of the Pred One thing my Rummy told me was non of his patients suffer with pain in the fingers I suffer greatly, especially the first few
evzi75
in
PMRGCAuk
4 years ago
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