I’ve had Behcets for over 50 years. Taken numerous different medications and am on Imraldi at present. This works brilliantly for me re ulceration. I’ve never been diagnosed with Neuro Behcets although I do have neuropathic bladder, bowel motility problem and oesophageal spasm which does suggest some nerve damage. Over the past year or two I have noticed numbness in my right foot arch but have had surgery so put it down to some nerve damage caused by that. Now in the past 6 months I have the same problem with my left foot. I have had nerve conduction tests and they were able to compare with those taken in 2012. Then I was on Thalidomide. Peripheral neuropathy is a common side effect of Thalidomide and there was a little damage but not that I could feel. I stopped taking Thalidomide then. Today they can see there is more peripheral neuropathy present.
Does anyone with Behcets have this problem?