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Hello Not posted before so here goes .Suffered with osteoarthritis in both hips for the last 7 years , had Left Hip THR last July . Recovered well but then started with severe pain and stiffness in left knee which then progressed to both knees , shoulders , hands , neck over a period of 4 weeks . Diagnosed
Hello Not posted before so here goes .Suffered with osteoarthritis in both hips for the last 7 years , had Left Hip THR last July . Recovered well but then started with severe pain and stiffness in left knee which then progressed to both knees , shoulders , hands , neck over a period of 4 weeks . Diagnosed
Spats15
in
PMRGCAuk
21 days ago
Update on appointment with professor Hughes
So I had a really good appointment today with professor Hughes. He listened to what I had to say and had read the medical history pre read I had sent him. After a good chat about my PMR/pred journey and all the steroid sparing drugs I had tried he came up with 3 options. 1. Stay on 10mg of pred and
So I had a really good appointment today with professor Hughes. He listened to what I had to say and had read the medical history pre read I had sent him. After a good chat about my PMR/pred journey and all the steroid sparing drugs I had tried he came up with 3 options. 1. Stay on 10mg of pred and
Griggser
in
PMRGCAuk
28 days ago
Positive Effect of Tocotrienol on T2D subjects
Of late, I have been reading the effect of a compound called Tocotrienols (one of the two classes of compounds available in Vitamin E) on type-2 diabetes subjects. According to some of the research papers published (links provided below) , having 250 to 400 mg of tocotrienol for around 6 months reduced
Of late, I have been reading the effect of a compound called Tocotrienols (one of the two classes of compounds available in Vitamin E) on type-2 diabetes subjects. According to some of the research papers published (links provided below) , having 250 to 400 mg of tocotrienol for around 6 months reduced
barani19
Administrator
in
Diabetes India
1 month ago
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Horizant
I am slowly discontinuing Ropinerole and have reviewed Winkleman’s medication recommendations. It appears that Horizant has the best overall profile of the gaba-related drugs. Can anyone please describe your experience with it? I am interested in RLS symptom reduction of course, but also on sleep quality
I am slowly discontinuing Ropinerole and have reviewed Winkleman’s medication recommendations. It appears that Horizant has the best overall profile of the gaba-related drugs. Can anyone please describe your experience with it? I am interested in RLS symptom reduction of course, but also on sleep quality
pyramidhiker
in
Restless Legs Syndrome
1 month ago
Voltarol
Is it considered ok to use Voltarol cream when taking Pred? I am confused as to whether it's an NSAID. I am hoping to use it on what is supposedly an artritic knee joint.
Is it considered ok to use Voltarol cream when taking Pred? I am confused as to whether it's an NSAID. I am hoping to use it on what is supposedly an artritic knee joint.
tempusfugi
in
PMRGCAuk
2 months ago
good Rheumy, better Rheumy, tapering & Leflunomide
A good news story. My Rheumy retired suddenly recently to my dismay as she listened etc, but her replacement is such a good communicator. Sent me a letter with MRI result and when I replied with lots of questions he responded by answering them all. Also may have a sense of humour as I pressed send by
A good news story. My Rheumy retired suddenly recently to my dismay as she listened etc, but her replacement is such a good communicator. Sent me a letter with MRI result and when I replied with lots of questions he responded by answering them all. Also may have a sense of humour as I pressed send by
Japsquar
in
PMRGCAuk
2 months ago
Help with Vit.B1 protocol.
My husband has been on separate vitamin B capsules,B12,B2,B6( P5P) and Biotin.In Daphnes very informative book she says that the original protocol had been with a low dose B complex .would this be every day,or only on the Monday Wednesday and Friday when taking B1? Should we stop his larger dose and
My husband has been on separate vitamin B capsules,B12,B2,B6( P5P) and Biotin.In Daphnes very informative book she says that the original protocol had been with a low dose B complex .would this be every day,or only on the Monday Wednesday and Friday when taking B1? Should we stop his larger dose and
CRMACK1948
in
Cure Parkinson's
2 months ago
Work on healing balance
My balance is no longer a major issue. I am working on improving it. I do work on my core. I consider my balance issues to be a neurological issue. I balance on both feet or one foot and focus on one point. Then I move my eyes back and forth in focus and same up and down. I also move my head to change
My balance is no longer a major issue. I am working on improving it. I do work on my core. I consider my balance issues to be a neurological issue. I balance on both feet or one foot and focus on one point. Then I move my eyes back and forth in focus and same up and down. I also move my head to change
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
Polyneuropathy.
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
B Vitamins and the Brain: Mechanisms, Dose and Efficacy
B vitamins are essential for brain function and are generally safe to consume in higher amounts than recommended. However, many people and definitely PWP, have deficiencies in one or more B vitamins, which can negatively affect brain function. Previous research has focused on three B vitamins (folate
B vitamins are essential for brain function and are generally safe to consume in higher amounts than recommended. However, many people and definitely PWP, have deficiencies in one or more B vitamins, which can negatively affect brain function. Previous research has focused on three B vitamins (folate
Esperanto
in
Cure Parkinson's
4 months ago
Tingling, pins and needles and weakness worse when exercising?
Hi, i was diagnosed with FND recently after having tingling, pins and needles in my legs and feet. My right side is mostly effected and my right leg is weaker and seems slow. Whenever I have tried to exercise within a few minutes the tingling and numbness gets so much worse and the leg becomes really
Hi, i was diagnosed with FND recently after having tingling, pins and needles in my legs and feet. My right side is mostly effected and my right leg is weaker and seems slow. Whenever I have tried to exercise within a few minutes the tingling and numbness gets so much worse and the leg becomes really
AJ21FT
in
Functional Neurological Disorder - FND Hope
4 months ago
Small fiber polynueropathy, often misdiagnosed as FND, a personal story:
Not my story but one I was given permission to share: I was originally diagnosed with fibromyalgia, and then later diagnosed with a connective tissue disorder (EDS). My diagnosing geneticist also told me that fibromyalgia was an inaccurate diagnosis, and dropped it. He informed me that I had small fiber
Not my story but one I was given permission to share: I was originally diagnosed with fibromyalgia, and then later diagnosed with a connective tissue disorder (EDS). My diagnosing geneticist also told me that fibromyalgia was an inaccurate diagnosis, and dropped it. He informed me that I had small fiber
Lady4
in
Functional Neurological Disorder - FND Hope
4 months ago
Co-Amoxiclav side effects with Disopyramide/AF?
Hi, just started taking Co-amoxiclav as an antibiotic, and now seem to be getting an increase in AF symptoms. Still taking Disopyramide, but this seems to be less effective at rate control than it has been previously. No Caffeine, no alcohol, so no obvious triggers. Anyone else experienced this?
Hi, just started taking Co-amoxiclav as an antibiotic, and now seem to be getting an increase in AF symptoms. Still taking Disopyramide, but this seems to be less effective at rate control than it has been previously. No Caffeine, no alcohol, so no obvious triggers. Anyone else experienced this?
DE-AF
in
Atrial Fibrillation Support
5 months ago
Repost results
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
5 months ago
Leflunomide - be alert!
I was diagnosed with severe bilateral ulnar neuropathic with sensory abnormalities in lower limbs and median and radial nerves in upper limbs. The neurologist says this is probable toxic neuropathy secondary to Leflunomide (based on correlation between the onset of the problem and the time of introduction
I was diagnosed with severe bilateral ulnar neuropathic with sensory abnormalities in lower limbs and median and radial nerves in upper limbs. The neurologist says this is probable toxic neuropathy secondary to Leflunomide (based on correlation between the onset of the problem and the time of introduction
Steal
in
PMRGCAuk
5 months ago
What did I miss???
Hi to all. Sorry I missed tonight sharing. Anyway to get summaries? Went to pain meds and discussed Baclafin pump and pain meds. Nervous since I deal with multiple symptoms. Spasticity, bowel and bladder, neuropathy? Foot pain. I try to research. Not good taking just anything for pain. Neurpathic neuropathy
Hi to all. Sorry I missed tonight sharing. Anyway to get summaries? Went to pain meds and discussed Baclafin pump and pain meds. Nervous since I deal with multiple symptoms. Spasticity, bowel and bladder, neuropathy? Foot pain. I try to research. Not good taking just anything for pain. Neurpathic neuropathy
Irishgirl76
in
My MSAA Community
5 months ago
Leflunomide
Hi just an update on my journey, its been about 3 yrs of not being able to reduce pred mainly being at 15mg , rheumatologist wanted me to try Leflunomide I resisted for too long wish I hadn't after 2 weeks felt a great improvement it's my third week now and Wow feeling much better doing more jobs hips
Hi just an update on my journey, its been about 3 yrs of not being able to reduce pred mainly being at 15mg , rheumatologist wanted me to try Leflunomide I resisted for too long wish I hadn't after 2 weeks felt a great improvement it's my third week now and Wow feeling much better doing more jobs hips
Marko666
in
PMRGCAuk
6 months ago
Leflunomide, Mycophenolate, Azathioprine instead of TCZ, that was the question
Thanks for your help in answering this question. It seems Leflunomide is the only real contender. So much so that my cynical self wonders if the other two are only there to give the illusion of choice! Any more info about your experience of Leflunomide is very welcome. Not rushing into anything, and
Thanks for your help in answering this question. It seems Leflunomide is the only real contender. So much so that my cynical self wonders if the other two are only there to give the illusion of choice! Any more info about your experience of Leflunomide is very welcome. Not rushing into anything, and
Japsquar
in
PMRGCAuk
6 months ago
Prucalopride & Pelvic floor pain
Hi I have been suffering from rectal & pelvic floor pain for last 18 months. 2 months ago I was placed on Prucalopride as the magnesium citrate they I was taking stopped working. My pelvic floor pain & rectal spasm appears to be getting worse. I used to be able to sleep at night but now struggling
Hi I have been suffering from rectal & pelvic floor pain for last 18 months. 2 months ago I was placed on Prucalopride as the magnesium citrate they I was taking stopped working. My pelvic floor pain & rectal spasm appears to be getting worse. I used to be able to sleep at night but now struggling
Hopetobewell
in
Pelvic Pain Support Network
7 months ago
I just need to vent!
Hi all, I’ve just had an appointment that I’ve waited over two years for regarding my Meralgia Paraesthetica. My thigh has been numb for over 20 years following a Cesarean section but in the last two years, it feels like it’s had acid thrown over it. The guy I spoke to said that there’s nothing they
Hi all, I’ve just had an appointment that I’ve waited over two years for regarding my Meralgia Paraesthetica. My thigh has been numb for over 20 years following a Cesarean section but in the last two years, it feels like it’s had acid thrown over it. The guy I spoke to said that there’s nothing they
Bramble2000
in
PMRGCAuk
8 months ago
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