Search
Search
About
Log in
Join
Experiences with
Neuropathies
Posts
Communities
573 public posts
Filter results
Wondering about Leflunomide side effects
Hi Everyone I started Leflunomide a week ago. I thought all was going well until yesterday. I hurt from head to toe and today is even worse, plus I have not slept in 3 nights as I am in so much pain. I am thinking this pain is from the med. and not pmr. I was wondering if anyone else has experienced
Hi Everyone I started Leflunomide a week ago. I thought all was going well until yesterday. I hurt from head to toe and today is even worse, plus I have not slept in 3 nights as I am in so much pain. I am thinking this pain is from the med. and not pmr. I was wondering if anyone else has experienced
Linny3
in
PMRGCAuk
4 years ago
New HU pages - please follow :)
Hi everyone, I would just like to let you know that Alex TLC have now set up two new pages on Health Unlocked that may be beneficial for you to be a part of (as well as this group). They are: Leukodystrophy Carriers: https://healthunlocked.com/leukodystrophy-carriers Leukodystrophy Support: https://
Hi everyone, I would just like to let you know that Alex TLC have now set up two new pages on Health Unlocked that may be beneficial for you to be a part of (as well as this group). They are: Leukodystrophy Carriers: https://healthunlocked.com/leukodystrophy-carriers Leukodystrophy Support: https://
Olivia_Bostock
in
AMN EASIER
4 years ago
B Vitamins and blood tests
Hi I’ve just had a blood test and realised I didn’t lay off my high strength B vitamins before hand and I’ve been taking a week and half how could affect the results? I’ve read B vits skew the results especially biotin and the tablet contains 100ug a tablet.
Hi I’ve just had a blood test and realised I didn’t lay off my high strength B vitamins before hand and I’ve been taking a week and half how could affect the results? I’ve read B vits skew the results especially biotin and the tablet contains 100ug a tablet.
Blackpanther46
in
Thyroid UK
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Etanercept - anyone tried it?
I was diagnosed with PMR 4 years ago and have been travelling a rocky road ever since. I go through phases of being well and then something kicks off. Many of you here will have read my ramblings and as always everyone is helpful and supportive. The past 18 months it has been my knees - one at a time
I was diagnosed with PMR 4 years ago and have been travelling a rocky road ever since. I go through phases of being well and then something kicks off. Many of you here will have read my ramblings and as always everyone is helpful and supportive. The past 18 months it has been my knees - one at a time
Lochy
in
PMRGCAuk
4 years ago
Tapering
Hi. I was diagnosed with PMR in 2015 and was told it would burn out in 5 years. Well it hasn’t. I started on 30mg of Pred and am now on 4.5. But the pain is still bad in toes, heel, stiff painful fingers, shoulder and neck. Should I up my dosage? The rheumatologist says taper at 1/2 mg every 2 months
Hi. I was diagnosed with PMR in 2015 and was told it would burn out in 5 years. Well it hasn’t. I started on 30mg of Pred and am now on 4.5. But the pain is still bad in toes, heel, stiff painful fingers, shoulder and neck. Should I up my dosage? The rheumatologist says taper at 1/2 mg every 2 months
Insty
in
PMRGCAuk
4 years ago
Diluting blood plasma rejuvenates tissue, reverses aging in mice
https://medicalxpress.com/news/2020-06-diluting-blood-plasma-rejuvenates-tissue.html "In 2005, University of California, Berkeley, researchers made the surprising discovery that making conjoined twins out of young and old mice—such that they share blood and organs—can rejuvenate tissues and reverse
https://medicalxpress.com/news/2020-06-diluting-blood-plasma-rejuvenates-tissue.html "In 2005, University of California, Berkeley, researchers made the surprising discovery that making conjoined twins out of young and old mice—such that they share blood and organs—can rejuvenate tissues and reverse
Rhyothemis
in
Cure Parkinson's
4 years ago
Hiv test done result negative
Is it possible if a person already into aids and hiv antibodies test continously prove negative.i mean if he is into aids .surely there must be hiv antibody right..exposure in 2018.test is done recently.did twice
Is it possible if a person already into aids and hiv antibodies test continously prove negative.i mean if he is into aids .surely there must be hiv antibody right..exposure in 2018.test is done recently.did twice
Sansat443
in
HIV Partners
4 years ago
How to get GP to prescribe Tapentadol in the UK
How do I get my GP to prescribe me Tapentadol in the UK? He said he'd never heard of it. I've been on Tramadol for 10 years and it no longer works as I've built up a tolerance. I tried Tapentadol online (I was desperate) and its perfect for my muscle and nerve pain. Does anyone know its UK brand name
How do I get my GP to prescribe me Tapentadol in the UK? He said he'd never heard of it. I've been on Tramadol for 10 years and it no longer works as I've built up a tolerance. I tried Tapentadol online (I was desperate) and its perfect for my muscle and nerve pain. Does anyone know its UK brand name
taxi_maicon
in
Pain Concern
4 years ago
Alternative to Pentamidine
I am currently on Ibrutinib for my SLL. I am allergic to Septrin so I am having Pentamidine by nebuliser every 4 weeks. I am just wondering if there may be another alternative ?
I am currently on Ibrutinib for my SLL. I am allergic to Septrin so I am having Pentamidine by nebuliser every 4 weeks. I am just wondering if there may be another alternative ?
Grannajan
in
CLL Support
4 years ago
Update on my foot injury
Okay, do not like to share any bad news, we all have had enough. I had an MRI on Thursday to see if more damage was done. I have 4 broken bones in my foot, ligament damage, tendons seriously injured, and of course, a very wicked ankle sprain. How great a fall! So...my lesson, steps will grab you and
Okay, do not like to share any bad news, we all have had enough. I had an MRI on Thursday to see if more damage was done. I have 4 broken bones in my foot, ligament damage, tendons seriously injured, and of course, a very wicked ankle sprain. How great a fall! So...my lesson, steps will grab you and
Amore55
in
My MSAA Community
4 years ago
Love-handles as injection site?
I started taking glatiramer acetate (3 times a week) 2 months ago, and I'm eager to rotate my injection sites to avoid permanent damage. The booklet I was given with my injector shows the front of the thighs, the belly area, the back of the arms, and the upper sides of the butt. The love-handles seem
I started taking glatiramer acetate (3 times a week) 2 months ago, and I'm eager to rotate my injection sites to avoid permanent damage. The booklet I was given with my injector shows the front of the thighs, the belly area, the back of the arms, and the upper sides of the butt. The love-handles seem
FuzzyBoots
in
My MSAA Community
4 years ago
What is patches of goose bumps on right arm
Does anyone know what causes patches of goose bumps following a tingling sensation? I get this on my right arm frequently. Also headaches and muscle weakness
Does anyone know what causes patches of goose bumps following a tingling sensation? I get this on my right arm frequently. Also headaches and muscle weakness
Nataliewilson
in
Functional Neurological Disorder - FND Hope
4 years ago
Can someone help me with this
I have been getting these sensations on my body, mostly my right arm that’s followed by patches of bumps similar to goose bumps but only on one arm or leg, also other symptoms like headaches. Does anyone know what this could be
I have been getting these sensations on my body, mostly my right arm that’s followed by patches of bumps similar to goose bumps but only on one arm or leg, also other symptoms like headaches. Does anyone know what this could be
Nataliewilson
in
Functional Neurological Disorder - FND Hope
4 years ago
Another Coronavirus Update.....
Did anyone watch our President Trump today?? The scientist that spoke today at the podium.. About different chemicals that kill the virus on hard surfaces..., Bleach kills the virus in five minutes... Isopropyl Alcohol kills the virus in thirty seconds.... Wait for it.... The goofy 🙃 reporter that asks
Did anyone watch our President Trump today?? The scientist that spoke today at the podium.. About different chemicals that kill the virus on hard surfaces..., Bleach kills the virus in five minutes... Isopropyl Alcohol kills the virus in thirty seconds.... Wait for it.... The goofy 🙃 reporter that asks
Hidden
in
My MSAA Community
4 years ago
Ampyra Positive effect
I’ve taken ampyra 5 days now and when i walked with my husband yesterday and our dogs he (husband) said it looked like my foot was dragging less!! It was still hard to walk right but i started noticing that it was easier to walk without foot drop! Im sure my shoes appreciate that too 😁 When my alarm
I’ve taken ampyra 5 days now and when i walked with my husband yesterday and our dogs he (husband) said it looked like my foot was dragging less!! It was still hard to walk right but i started noticing that it was easier to walk without foot drop! Im sure my shoes appreciate that too 😁 When my alarm
Neworleanslady
in
My MSAA Community
4 years ago
Help with medication. Targin Or Palexia
Taking Targin has helped me get a good night sleep but the side effects such as sweats, dry mouth and gut ache wants me to try something else. A friend takes Palexia and Lyrica together which helps her. Would Palexia have the same effect as Targin. Because of this corona virus I have to have a phone
Taking Targin has helped me get a good night sleep but the side effects such as sweats, dry mouth and gut ache wants me to try something else. A friend takes Palexia and Lyrica together which helps her. Would Palexia have the same effect as Targin. Because of this corona virus I have to have a phone
Shir_11
in
Restless Legs Syndrome
4 years ago
Petscan results
So I had my Petscan results and it's not showing vasculitis! Which is good news but it leaves no explanation for all my symptoms and the fact that the more I reduce the Pred the worse my symptoms get. I dont know if being on 40mg when I had the scan had any effect on results but they said not. During
So I had my Petscan results and it's not showing vasculitis! Which is good news but it leaves no explanation for all my symptoms and the fact that the more I reduce the Pred the worse my symptoms get. I dont know if being on 40mg when I had the scan had any effect on results but they said not. During
Poppy1647
in
PMRGCAuk
4 years ago
Sleep distruption
Can anyone recommend natural sleep supplements please,I have tried Magnesium Glycinate, melatonin and Tryptophan. I have under active thyroid and seem to wake a few times during the night and then have difficulty getting back to sleep.
Can anyone recommend natural sleep supplements please,I have tried Magnesium Glycinate, melatonin and Tryptophan. I have under active thyroid and seem to wake a few times during the night and then have difficulty getting back to sleep.
Yellow1955
in
Thyroid UK
4 years ago
Prof D’Cruz and neuropathies, advice needed please.
Basically I need someone who specialises specifically in
neuropathies
. I’m in Belfast but willing to travel. I have a neuro too who treats the CNS part, reluctantly. Many thanks everyone, Terri X
Basically I need someone who specialises specifically in
neuropathies
. I’m in Belfast but willing to travel. I have a neuro too who treats the CNS part, reluctantly. Many thanks everyone, Terri X
TM1970
in
LUPUS UK
5 years ago
Oxygen Therapy
Has anyone tried Oxygen Therapy for their headaches? Did it help? When your APS is active and your INR is low are your SATs low?
Has anyone tried Oxygen Therapy for their headaches? Did it help? When your APS is active and your INR is low are your SATs low?
WendyWoo50
in
Hughes Syndrome APS Forum
5 years ago
1
...
9
10
11
...
29
Next page
10
20
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
135 results
Diabetes India
67 results
My MSAA Community
56 results
View top 10 communities
Sort by
Most Relevant
Newest